Guest guest Posted March 30, 2008 Report Share Posted March 30, 2008 Hi Rebbecca I am Sharon, and wanted to say your info was great, as I am the one suffering this right now! yeck. I have had this before, and it started years ago, I was told it was the geographical tongue, and deal with it basically, I never cared for that answer. I have not had it for a while,but I had to post to someone else asking about the what I call fire mouth a couple wks ago, and had mentioned hadn't had it in a long time and hoped never again, well here it is almost 2 wks now! It makes me very anxious, and wish I had the Klonapin now, I get diazapam and take Soma, which would probably at least help me forget about it, but I let myself run out as I had only been taking PRN and didn't think it woud still be here, now have to wait another day to call for my refills, stupid. I will have to try the vitamans also, hope they work I can't stand it. The big thing will be taking with food, as I am so uncomfortable I have not been eating which doesn't make it better I know as I take other meds, but am anxious with it, I am nausea, today I wish I was the nervous eater instead of opposite. I have never had the soreness on the sides of my, but this time the other day I noticed it. I only get the fire mouth and the little tiny fire bumps on tongue, and also feels like my throat is scrachey in a funny way like it is asleep??? narrowed??, hard to explain. I hope it will get clared up real soon, or put me asleep till it is over with. I always thought it might have something to do with my stomach, as it is acting like it is acidy, which I have to much of. I have had nuts, and things you would not think cause a burn reaction on my tongue, oh and of course I am a diet coke, coffee, apple eating person all day long. I shoud try and stop these while like this right?, that will be hard, I drink alot of water also, but that really is seeming to make it worse, like it is drying it out. Well thanks again for your very informational post. I otherwise would not have found it could be this vit. thing, how long did it take for you to stop the burn? Take Care EAZZYGOING1@... wrote: Hello All... Yes, I am a few days late in commenting on this topic but I feel maybe my information may be of some help to some of you Fibro mites out there..... Last year, finally, I went for a 2nd opinion of an ENT Specialist, as I was fed up with being told I was imagining things. This new ENT diagnosed my sore/swollen tongue and mouth that felt like it was " ON FIRE " just drinking a soda, as " Burning Tongue & Mouth Syndrome " ... My reasons for posting is to tell you ALL that you are not 'crazy', like most Doctors make you fell and you are NOT 'alone.' At first, my tongue only swelled and hurt when I had adverse reactions to several Antibiotics that I am now Allergic to. During my whole life, at one time or another, I have gotten those little " REALLY SORE & HURTFUL " bumps on the tip of my tongue and cracks on the sides of my mouth which I was told was a Vitamin deficiency...... BUT NOW.....It is a whole different " Ball Game " .... Following is what I told my ENT and he confirmed my condition: My tongue swells and gets deep cracks Bumps Tiny to Large and very painful Cannot drink: soda, alcohol, anything VERY cold or hot Drink with a straw ONLY NOTHING Spicy Hot like Pepper or Tabasco Nothing with a lot of SALT NO Salad Dressings, Pickles, Vinegar Sometimes even Apple Pie (Cinnamon) hurts!!! NOW.....My Doc recommends the following Vitamin Supplements and Prescription Medications with no guarantees but they have helped other patients: Ultra B-150 Complex 1 AM B12 500mcg 2 AM A 12,000IU 1 AM Zinc 50mg 1 AM Alpha Lipoic Acid 100mg 1 AM Take ALL of these Vitamin Supplements with FOOD and of course, take them religiously or you will NOT receive any relieve..... YES, I have been taking the Vitamin supplements and feel some relief....but then there are days that I DO NOT.... The prescription medications are: Klonopin (Generic is Clonazepam) Elavil (Generic is Amitriptyline) Both of these are supposed to have effect on the nerves in the mouth besides any other reasons for taking them. Because I am on other Psych Medications similar.....I can not take the above. Well....if anyone wishes to write back to me....you are welcome to....maybe I can be of more help....OR.....maybe someone may have more advice for ME....LOL..... Take care everyone....and May tomorrow be a BETTER DAY FOR ALL !!! Quote Link to comment Share on other sites More sharing options...
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