childrens disability, PLEASE answer if you know anything

[Guest guest]

Please answer this and hear my ranting if you know ANYTHING about disability for

children with autism spectrum disorder and pervasive developmental disorder.

Ok, n was put in special ed when Kindergarten found him to be way behind.

I was told with all the school documentation I have and their assessments that

he will qualify for medicaid and disability regardless of my income. I called

an 800 number to get info today. The man was snide when I first told him what

I was inquiring about. Then when I told him my middle class income, he told me

my child probably won't qualify. I told him in no uncertain terms that the

child is behind at least 2 years developmentally and that I work to raise my

kids. I told him if I did NOT work, then the government would help them with

everything. I was pissed.

He then got nicer. He set up a meeting here at the local office for me and said

he would send the papers to me to fill out.

I have no medicaid or insurance for my kids. I can barely keep up with the

bills being the sole provider. And neither one of their " fathers " will send

child support. I own nothing and have no savings. (ok, that is another story).

HOWEVER, I was told by the school psychologist, therapists, and principal that

no matter what I make he will qualify for help. The man on the phone got nicer

as I told him this child did not walk until 2 years old, did not crawl until

after the age of 1 1/2 and was only fully potty trained at 5 1/2 years old. I

have tons of documentation over the last few months that he is behind by at

least 2-3 years developmentally and probably wont even hit kindegarten level by

6.

Do ANY of you know if he was filling me with BS. He did say I was barely under

the income limit. I have a meeting with the local social security office in a

couple of weeks. I WILL NOT GIVE UP. They have ticked me off to no end. And I

have heard from a co worker who has a sister who is a special ed teacher and she

also said there is no income limit. I gross

much higher than my actual income a month. But the taxes taken out makes it

much less. They don't count that I guess. Because I sure don't see all that

money.

I am so mad. I work sick all the time with an invisible illness and provide for

my kids the best I can and cannot give them proper medical care. It hurts me.

ARE THEY JUST TRYING TO DETER ME AND MAKE ME GIVE UP WITH THE INITIAL PHONE

CALL?????? If so, they have another thing coming. They can mess with me but

not with my kids. DONT come between a mother and her disabled child..... hell

hath no fury like a mother's love.

Thanks for listening,

love and hugs,

Debra V.

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