no worse!!!!!!!!! To Debra Re:Bratty lil' Sister

[Guest guest]

Hi Debra- yeah I am assuming that I have fibro, although I have not been able to

find any

Dr within 250 miles who is able/available to do an eval. Hence the working

diagnosis of

" Fibro's bratty little sister. " Fibro was first suggested to me as a possible

cause of my

pain, stiffness and difficulty lifting my feet to walk properly in August 2007,

when I was

living in Baltimore.

My Psychiatrist in Baltimore assured the PCP there that the symptoms were not

due to

psych meds effects, nor to a case of lithium toxicity I had sufferred in May. I

do have

metabolic syndrome (aka SyndromeX), Hypothyroid, Menieres, and GERD so severe

that it

has damaged my vocal cords, I have Asthma and I am allergic to Iodine. Also I

have bad

teeth. (An odd assortment of maladys, but some combo of these I have seen over

and over

on this forum and I have not been here long)

The Baltimore PCP did one more round of bloodwork, did a physical and said it

realy

looked like possible fibro to her. She knew I was planning to move to Maine in

September

and told me to follow up when I got a pcp there. Unfortunately none of this got

into my

official medical records.

I did get one eval here, in Maine, by a Pain Specialist. I was told I was to

have an

evaluation for fibromyalgia. Dr weenie said it didn't matter if I have fibro or

not, that he

treats pain, Chronic pain, that I clearly have Chronic Pain and that he is

diagnosing me

with Chronic Pain Syndrome. My PCP, the one I had at the time, was rude to the

point of

being abusive and refused me a 2nd opinion referral.

My new PCP is totaly cool. She refuses to discuss the Pain Specialist or the

diagnosis of

Chronic Pain Syndrome (she doesn't want to comment and she doesn't want me to

get

upset and drive up my blood pressure.) She is researching fibro and looking for

any

possible markers that may appear in bloodwork; also medical conditions that may

be

diagnosed before fibro or along with fibro.

I would be so happy if someone told me that " Fibro's bratty lil sis " had a

differant name

and really wasn't fibro but something that could be " fixed. " But even if that

wish came true

I would stay here in support of all of us; I sure do have a lot of symptoms a

lot of folks

here got.

Peace

Cassandra

>

> Ok Cassandra... I get it. I understand. It is undiagnosed but you do know it

is there. It

is aggravating isn't it?

> hugs,

> Debra V.

>