Guest guest Posted April 30, 2008 Report Share Posted April 30, 2008 Hi and Please let me introduce myself. My name is Doreen but as far as groups goes-The Pagan Pixie. Please don't let the name scare you,I am totally harmless. I suffer from fibromyalgia, RA, some muscluar thing and a sensitivity to touch that absolutly burns when I am at certain times-so I'm having fun. Will it be okay if I tell my Doctors office about this group? We have noone here to talk to. Hi there Doreen and welcome to the group and you are so right about Dover not having any support groups for fibromyalgia. I live in Hartly, Delaware and my doctor recommended I join a support group and boy am I glad I ever did as this group will make you feel so at home, we're all family here and no one judges you. I hope to hear from you.... and again welcome.....Ruthie ___ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2008 Report Share Posted May 1, 2008 Doreen, you're absolutely right in what you wrote in your blog. 99% of the people you will ever run across during your life time will have never heard of the syndrome " Fibromyalgia " . A huge portion of the medical field will have -no- training on what to look for, or how to treat the symptoms. Diagnosing and treating Fibromyalgia Syndrome takes specialized training that the common Primary Care Physician will lack. Fibromyalgia is commonly known as the " Invisible Disease " . It will -not- show up on an X-Ray or MRI, many doctors have the mindset that if they cannot see it, it does not exist. Hence the " it's all in your head " response. I always offer this analogy to the non-believers: The wind blows, you can't see it but you know it's there because you can feel it. If a doctor doesn't understand your pain and you give him a quick smack to the temple with that stupid little rubber hammer they seem to like carrying around. Tell them that you can't see their pain, and it must be all in their head. (How does it feel to be treated like a nut ball doc?) If you run across other people -outside- of the Fibromyalgia community, realize that any energy expended on " convincing " them will be futile. You do not owe " anyone " an explanation for why you are in chronic pain. When people do not understand an issue or symptom, they tend to make their best " Guess " at and end up with a " Guess-Fact " . In the end it's what you know as factual that matters, first hand knowledge rules in the Fibromyalgia world, not the opinions of those who -do not- have the syndrome. Quote Link to comment Share on other sites More sharing options...
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