Re: Fibro and moving south- To Joe

[Guest guest]

Joe, it seems it is so typical of fibromyalgia to attack people who are very

active, busy, successful, well achieved, and fit. For some reason this just

does not fit the profile of the stereotype this illness is given. The

stereotype is that we are all " lazy, liars, hypochodriacs, attention seekers,

drug seekers " etc. If the people who refuse to believe us would just look at

the people this disease attacks, they would be surprised to know who we really

are.

And denial is normal. I will tell you that when I was first diagnosed I was in

shock. I could not internalize the fact that I really have a chronic illness.

It took a while for it to be real to me. I felt the symptoms and they would let

up on some days, and I would think " hey, maybe I was just imagining all that " .

But I soon learned that it is very real and here to stay.

We all go through a grieving process. We grieve the loss of the person we once

were. We grieve in order to accept the limitations our lives now have.

My husband is not really very supportive in that he will not give alot of

compassion. However, he does give support in that he believes me and helps

tremendously with everything in the household including the kids. I do not know

how I would raise my children alone and deal with fibromyalgia.

I hope this helps you some to write to this group. I also think that more men

have this illness than we know about. I believe it is very underdiagnosed in

men and alot of men simply do not go for help for the symptoms.

hugs from East TX

Debra V.

>

> Subject: RE: Fibro and moving south/Debra and not pushing myself

> To: Fibromyalgia_Support_Group

> Date: Monday, May 5, 2008, 9:07 PM

> Thanks, Debra.

>

> Rest is something I have to get used to doing because I

> like to push myself.

> Get more done, try to get done what I really shouldn’t or

> sometimes cannot.

> Obviously this isn’t very wise anymore. I was a good

> athlete once and a

> hell of a worker, but times have changed and I have not

> been at my best over

> the last couple of years; and now this. This is very hard

> to accept, but

> denial is too dangerous and I have to move on and do what I

> have to do

> right? What choice do I have?

>

> Hugs,

> ~Joe

>

>

>

> Re: Fibro and moving south

>

> Joe, let me say this. I do know that the horrible humidity

> of East Tx makes

> it difficult for most fibro sufferers. However, I do know

> also that extreme

> cold as you experience up north is a real bad thing for us

> too. It gets

> really really hot here in the summer. (I am close to

> Houston). I hate it

> but I will say that my pain is worse in the winter for the

> most part.

> Hope FL will be great for you. As for stopping the

> progression, I don't

> know. I guess that depends. (medical experts and

> researchers will tell you

> it does NOT progress). They are full of crap. It does.

> It does not

> progress to the same severity with us all and not at the

> same rate. It

> might NEVER make me bedbound whereas it does make others

> bedbound. I may

> never need a wheelchair, whereas others do. However, it

> has progressed in

> my case the last 5 years and aged me at least 10-15 years

> in the last 5.

> Now keeping in my mind that a low stress lifestyle will be

> of tremendous

> help. Plenty of rest plus medications that are right for

> you will make a

> difference.

> Debra V.

>

>

> No virus found in this outgoing message.

> Checked by AVG.

> Version: 7.5.524 / Virus Database: 269.23.8/1415 - Release

> Date: 5/5/2008

> 6:01 AM

>

>

>

> ------------------------------------

>

> 1. While it is wonderful to share our experiences with

> everyone on the list as to what treatments do and don't

> work for us, pls always check with your dr. Some treatments

> are dangerous when given along with other meds as well as to

> certain health conditions or just dangerous in general.

>

> 2. If you are in a difficult situation (doesn't matter

> what it is) pls don't be afraid to ask for help. It is

> the first step to trying to make that situation better.

>

> 3. To unsubscribe the e-mail is:

> Fibromyalgia_Support_Group-unsubscribe

>

> 4. Also, it is not uncommon for more than one member to be

> feeling bad at the same time when it comes to flares and

> b/c of that potentially take something another member says

> the wrong way. And that includes the things that one

> member may find funny (even if it's laughing at fibro

> itself) even though we who deal with illness whether one

> such as fibro or multiple illnesses try to keep a sense of

> humor.

>

> 5. Pls let's be gentle with each other, and if you are

> having a bad day pls let us know so that we can do our best

> to offer our support.

>

> Have a nice day everyone.

>

[Guest guest]

Oh Gosh, Joe, you mentioned rest! We may sit down here and there..but

are we ever truly able to rest? I have gotten so used to pushing

myself-over-doing..so to say..only hoping that it will make my body

tired enough to shut up and leave me alone just long enough to get

comfortable enough to rest...but that seldom happens. Nights are

filled with tossing and turning, and getting so damned frustrated that

I just get up. I've kinda got to the point I laugh...heck, if it

isn't my neck/shoulders hurting when I lay down, it is my back, if not

my back, my right hip, and leg, and if I lay on the left side, well

guess what..haha..the left hip and leg will start. And let's not even

begin to speak of laying flat on my back..OH GOOD LORD! Feel like I

am trying to bend steel, when I do get up.

But..I have to say..that is really only when I am flaring..and I know

that long before I even dare lay down to rest.

Not sure where you are at Joe, but, I can say, that living here in

TN..that the weather changes on a minute to minute basis

here..so..this part of South..may not be an idea part of the world to

be in for most.

***Annie--you probably know that as well.*** Could also be one reason

why we do have such often flares, and rest is nearly impossible..-just

a wonder.

Joe, denial yes..but you can bet, you're gonna get angry too. At

least I do, quite often. I do not take it out on anybody--well..my

doctor has heard me ..but, it is FM..just something,that gets on my

last nerve for keeping me from being able to do what I once

could...or..as much as I once could. (Thank God that my doctor

recognizes Fibro, and realizes the toll it takes on the folks that are

stricken by it).

I am so so sorry you are having to go through it. I wouldn't wish

this on anyone. But ya are in a wonderful group here. We all have

our good days, and bad days..crying days, and days filled with bitter

growling frustrations..but we--above all else..understand each other.

You, if ya haven't already..will feel like we are all just parts of a

big family spread all out through the U.S.

~Hugs.

T

>

> > From: Joe Marshall

> > Subject: RE: Fibro and moving south/Debra and not pushing myself

> > To: Fibromyalgia_Support_Group

> > Date: Monday, May 5, 2008, 9:07 PM

> > Thanks, Debra.

> >

> > Rest is something I have to get used to doing because I

> > like to push myself.

> > Get more done, try to get done what I really shouldn’t or

> > sometimes cannot.

> > Obviously this isn’t very wise anymore. I was a good

> > athlete once and a

> > hell of a worker, but times have changed and I have not

> > been at my best over

> > the last couple of years; and now this. This is very hard

> > to accept, but

> > denial is too dangerous and I have to move on and do what I

> > have to do

> > right? What choice do I have?

> >

> > Hugs,

> > ~Joe

> >

> >

> >

> > Re: Fibro and moving south

> >

> > Joe, let me say this. I do know that the horrible humidity

> > of East Tx makes

> > it difficult for most fibro sufferers. However, I do know

> > also that extreme

> > cold as you experience up north is a real bad thing for us

> > too. It gets

> > really really hot here in the summer. (I am close to

> > Houston). I hate it

> > but I will say that my pain is worse in the winter for the

> > most part.

> > Hope FL will be great for you. As for stopping the

> > progression, I don't

> > know. I guess that depends. (medical experts and

> > researchers will tell you

> > it does NOT progress). They are full of crap. It does.

> > It does not

> > progress to the same severity with us all and not at the

> > same rate. It

> > might NEVER make me bedbound whereas it does make others

> > bedbound. I may

> > never need a wheelchair, whereas others do. However, it

> > has progressed in

> > my case the last 5 years and aged me at least 10-15 years

> > in the last 5.

> > Now keeping in my mind that a low stress lifestyle will be

> > of tremendous

> > help. Plenty of rest plus medications that are right for

> > you will make a

> > difference.

> > Debra V.

> >

> >

> > No virus found in this outgoing message.

> > Checked by AVG.

> > Version: 7.5.524 / Virus Database: 269.23.8/1415 - Release

> > Date: 5/5/2008

> > 6:01 AM

> >

> >

> >

> > ------------------------------------

> >

> > 1. While it is wonderful to share our experiences with

> > everyone on the list as to what treatments do and don't

> > work for us, pls always check with your dr. Some treatments

> > are dangerous when given along with other meds as well as to

> > certain health conditions or just dangerous in general.

> >

> > 2. If you are in a difficult situation (doesn't matter

> > what it is) pls don't be afraid to ask for help. It is

> > the first step to trying to make that situation better.

> >

> > 3. To unsubscribe the e-mail is:

> > Fibromyalgia_Support_Group-unsubscribe

> >

> > 4. Also, it is not uncommon for more than one member to be

> > feeling bad at the same time when it comes to flares and

> > b/c of that potentially take something another member says

> > the wrong way. And that includes the things that one

> > member may find funny (even if it's laughing at fibro

> > itself) even though we who deal with illness whether one

> > such as fibro or multiple illnesses try to keep a sense of

> > humor.

> >

> > 5. Pls let's be gentle with each other, and if you are

> > having a bad day pls let us know so that we can do our best

> > to offer our support.

> >

> > Have a nice day everyone.

> >