Re: Re: WE NEED people to speak out? -

[Guest guest]

That is a wonderful letter and a great idea. Now, what if we all got together

and emailed and wrote CNN? We would then be one large voice from every walk of

life. I think you had a great idea.

Wonderful.

Hugs,

Debra v.

Subject: Re: WE NEED people to speak out? LETS DO IT...

To: Fibromyalgia_Support_Group

Date: Saturday, May 3, 2008, 11:53 PM

Here is a copy of the email I just sent to CNN.com/health-

On May 12th is Fibromyalgia Awareness Day. I am on a yahoo group

called " Fibromyalgia_ Support_Group " . I have talked with and listened

to many with the same trouble, aches, chronic pain all over, just to

be ignored by people because we show no signs of anything wrong. We

have all been belittled and some even called lazy, even tho, this

beast has a hold of us and the chronic pain, the fatigue, and the mind

fogs we all have-that is absolutely has to stop.

We are all good decent people for the most part..fighting most of the

time alone, a disease, that is not recognized by anyone with exception

of us that are suffering from it.

Now..I would love to see or hear of CNN Health doing a segment on it.

Especially with FM awareness day approaching.

As a matter of fact, I would love to invite you to join our group for

more info, and some real life people, with real life experiences with

this.

It is sad..that as a people..that we have to hear such bad things, as

much pain we are in. NO, I promise you--it is NOT all in our heads as

it has been said so many times, by doctors, family, friends..etc.

But, then again..maybe we should consider it may just be in our heads,

because, that is where our pain transmitters that are somehow crossed,

or short circuited are, isn't it?

By the way...this support group has over a thousand members in it, and

the majority are suffering, and a few are there to actually support

family members and friends, spouses, etc..that are suffering.

Any acknowledgement you could give to us, would deeply be appreciated,

to get the word out.

Thank You for Your Time and Attention-

.

Is a start! Hope it helps.

Awhile back when I

working in the security industry, during the Suzane

> Summers " Thigh Master " reign.

>

> One of our dispatchers said she had been using hers for about a month,

> and could, " Pop a basket ball " .

>

> Every man in the room took a few steps back, that was a scary

prospect.

>

>

>

>

>

>

> ------------ --------- --------- ---

> Be a better friend, newshound, and know-it-all with Yahoo! Mobile.

Try it now.

>

>