Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 > I don't know why some of us are better, but I can only hope that I don't get worse. I was as bad as you describe before I gave up artificial sweeteners last August. I only hope that was not a temporary fix. Feel better soon. ~j~ > Good morning my new buddies, > > I just got nearly 12 hours of sleep and am still so sleepy. Is there > ever enough sleep? I think that one of the things that I hate the most > of this disease monster is the total fatigue. IT isn't just a regular > tired it is the most intent exhaustion. I know that I am still in the > more beginning stages of this but have any of you found anything to help > with the tired or the need to sleep? I know that last night I fell in > the bed so exhausted because I haven't slept in 4 days and my body was > making up for lost sleep, > How do you talk to the Dr about this so that he will understand and > actually do something to help? I know that taking melatonin can help me > sleep better but leaves me so foggy the next day, but it is an herbal > med. and I like the herbals, most but most of the time they don't work > as well. > I think that one of the things that I hate the most right now is the > tired, I cant convey this to the children they don't understand and my > dear husband although he is trying so very hard to get it, he just > doesn't either. I think he nearly caught on, Sunday when I was watching > a movie with him one min. and asleep very deep the next. You know that > sleep the one where you cant wake up even when you want too. He is > beginning to get it howbeit slowly but that is better than nothing. The > pain is always there lurking, always in the muscles and the bones. My > back often feels like it is completely out of whack, I tried to describe > it to my children, by telling them that my muscles tingle like they are > asleep all of the time. it is not a pleasant feeling and my bones hurt > deep They want to massage me and make it better but some days just their > touch can send me into acute pain. I want to be a normal mommy again, I > want to hug my children and I want to play with them. Sometimes I wonder > why the Lord choose those of us he does to have the trial of this > disease? Is it because he knows that we are capable of not only dealing > with it OR is it because he knows that we can be a great witness for him > with it? Whatever his reasoning, like of the bible I wish that he > would take this affliction away from me. I want to feel good again< I > want to enjoy my children until they are old enough to be on their own. > Some days I sit and listen to them talk and the older ones tell the > younger ones of when I would take them to the park and play with them or > we would play different games, like tag or base ball. now it takes all i > have some day just to go out of the door. It breaks my heart to heat > them talk and know that I cant do that with the babies now. > I always feel so worthless, when my friend comes over to help me, she > has Graves disease and Adrenal fatigue and she pushes onward, while some > days it takes all I have to just to get out of bed. and not cry for the > pain. Why is that some people can push their bodies and others can't? > Why is that some bodies can go on through the pain and others just want > to stop? > I am mostly just venting and I hope you don't mind. I hear myself say > day after day after day, I am so tired of being tired, and I am so tried > of the pain and the feeling of worthlessness. I want to push on and get > my houses clean and I wand to do all the things that I used to be able > to do and I can't. Some days I wonder why I even get out of the bed, By > the time I am dressed and have breakfast ready for the kids, I am pretty > much wiped totally out and I want to take a nap. I just wish for the old > days and live in the new ones. Oh well thank you all for listening to > my ravings. I am so glad that I found this place where even though I > don't post often I feel like I have a new family that not only listens > but understands and will just let me whine. > Soft hugs to all of you , > > > Rise " Wampler > Wife to Rich, mother to 11 Angels straight from God . > Hebrews 13:2, " Be not forgetful to entertain angels for thereby some have > entertained angels unawares. " > The shortest distance between a problem and a solution is the distance > between your knees and the floor. > > > http://geo.yahoo.com/serv? s=97359714/grpId=10519220/grpspId=1705061682/ > msgId=91696/stime=1208413480/nc1=5191945/nc2=5191951/nc3=5191953> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2008 Report Share Posted April 17, 2008 Rise, Do you have a good Dr.? Does he know how to treat fibro? I really think you need a good dr. You are going thru so much right now! Are you on an anti-d? I really think you should be. Cymbalta might help with pain, too. Wellbutrin is supposed to give you a little energy. You also need to be on sleep meds so can sleep deeper. What about Lyrica...have you tried it? Are you on pain meds? I know what you mean about your kids! I have so much guilt when it comes to my twins. I don't understand how I was so blessed just to turn around and become so ill. How is that fair for them? Or my husband? That's why I have been treating my fibro so aggressively. I can't accept the fact that this is it for me. Let us know what you are taking right now and what you have tried in the past. There are some vitamins and herbs that are helpful, too. But, again, you are under so much stress right now that if you aren't already, you need to get on an anti-d. Take Care, Jill DOes any one ever get enough sleep? Good morning my new buddies, I just got nearly 12 hours of sleep and am still so sleepy. Is there ever enough sleep? I think that one of the things that I hate the most of this disease monster is the total fatigue. IT isn't just a regular tired it is the most intent exhaustion. I know that I am still in the more beginning stages of this but have any of you found anything to help with the tired or the need to sleep? I know that last night I fell in the bed so exhausted because I haven't slept in 4 days and my body was making up for lost sleep, How do you talk to the Dr about this so that he will understand and actually do something to help? I know that taking melatonin can help me sleep better but leaves me so foggy the next day, but it is an herbal med. and I like the herbals, most but most of the time they don't work as well. I think that one of the things that I hate the most right now is the tired, I cant convey this to the children they don't understand and my dear husband although he is trying so very hard to get it, he just doesn't either. I think he nearly caught on, Sunday when I was watching a movie with him one min. and asleep very deep the next. You know that sleep the one where you cant wake up even when you want too. He is beginning to get it howbeit slowly but that is better than nothing. The pain is always there lurking, always in the muscles and the bones. My back often feels like it is completely out of whack, I tried to describe it to my children, by telling them that my muscles tingle like they are asleep all of the time. it is not a pleasant feeling and my bones hurt deep They want to massage me and make it better but some days just their touch can send me into acute pain. I want to be a normal mommy again, I want to hug my children and I want to play with them. Sometimes I wonder why the Lord choose those of us he does to have the trial of this disease? Is it because he knows that we are capable of not only dealing with it OR is it because he knows that we can be a great witness for him with it? Whatever his reasoning, like of the bible I wish that he would take this affliction away from me. I want to feel good again< I want to enjoy my children until they are old enough to be on their own. Some days I sit and listen to them talk and the older ones tell the younger ones of when I would take them to the park and play with them or we would play different games, like tag or base ball. now it takes all i have some day just to go out of the door. It breaks my heart to heat them talk and know that I cant do that with the babies now. I always feel so worthless, when my friend comes over to help me, she has Graves disease and Adrenal fatigue and she pushes onward, while some days it takes all I have to just to get out of bed. and not cry for the pain. Why is that some people can push their bodies and others can't? Why is that some bodies can go on through the pain and others just want to stop? I am mostly just venting and I hope you don't mind. I hear myself say day after day after day, I am so tired of being tired, and I am so tried of the pain and the feeling of worthlessness. I want to push on and get my houses clean and I wand to do all the things that I used to be able to do and I can't. Some days I wonder why I even get out of the bed, By the time I am dressed and have breakfast ready for the kids, I am pretty much wiped totally out and I want to take a nap. I just wish for the old days and live in the new ones. Oh well thank you all for listening to my ravings. I am so glad that I found this place where even though I don't post often I feel like I have a new family that not only listens but understands and will just let me whine. Soft hugs to all of you , Rise " Wampler Wife to Rich, mother to 11 Angels straight from God . Hebrews 13:2, " Be not forgetful to entertain angels for thereby some have entertained angels unawares. " The shortest distance between a problem and a solution is the distance between your knees and the floor. http://geo.yahoo.com/serv?s=97359714/grpId=10519220/grpspId=1705061682/ msgId=91696/stime=1208413480/nc1=5191945/nc2=5191951/nc3=5191953> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2008 Report Share Posted April 18, 2008 > > Good morning my new buddies, > > I just got nearly 12 hours of sleep and am still so sleepy. Is there > ever enough sleep? I think that one of the things that I hate the most > of this disease monster is the total fatigue. IT isn't just a regular > tired it is the most intent exhaustion. I know that I am still in the > more beginning stages of this but have any of you found anything to help > with the tired or the need to sleep? I know that last night I fell in > the bed so exhausted because I haven't slept in 4 days and my body was > making up for lost sleep, > How do you talk to the Dr about this so that he will understand and > actually do something to help? I know that taking melatonin can help me > sleep better but leaves me so foggy the next day, but it is an herbal > med. and I like the herbals, most but most of the time they don't work > as well. > I think that one of the things that I hate the most right now is the > tired, I cant convey this to the children they don't understand and my > dear husband although he is trying so very hard to get it, he just > doesn't either. I think he nearly caught on, Sunday when I was watching > a movie with him one min. and asleep very deep the next. You know that > sleep the one where you cant wake up even when you want too. He is > beginning to get it howbeit slowly but that is better than nothing. The > pain is always there lurking, always in the muscles and the bones. My > back often feels like it is completely out of whack, I tried to describe > it to my children, by telling them that my muscles tingle like they are > asleep all of the time. it is not a pleasant feeling and my bones hurt > deep They want to massage me and make it better but some days just their > touch can send me into acute pain. I want to be a normal mommy again, I > want to hug my children and I want to play with them. Sometimes I wonder > why the Lord choose those of us he does to have the trial of this > disease? Is it because he knows that we are capable of not only dealing > with it OR is it because he knows that we can be a great witness for him > with it? Whatever his reasoning, like of the bible I wish that he > would take this affliction away from me. I want to feel good again< I > want to enjoy my children until they are old enough to be on their own. > Some days I sit and listen to them talk and the older ones tell the > younger ones of when I would take them to the park and play with them or > we would play different games, like tag or base ball. now it takes all i > have some day just to go out of the door. It breaks my heart to heat > them talk and know that I cant do that with the babies now. > I always feel so worthless, when my friend comes over to help me, she > has Graves disease and Adrenal fatigue and she pushes onward, while some > days it takes all I have to just to get out of bed. and not cry for the > pain. Why is that some people can push their bodies and others can't? > Why is that some bodies can go on through the pain and others just want > to stop? > I am mostly just venting and I hope you don't mind. I hear myself say > day after day after day, I am so tired of being tired, and I am so tried > of the pain and the feeling of worthlessness. I want to push on and get > my houses clean and I wand to do all the things that I used to be able > to do and I can't. Some days I wonder why I even get out of the bed, By > the time I am dressed and have breakfast ready for the kids, I am pretty > much wiped totally out and I want to take a nap. I just wish for the old > days and live in the new ones. Oh well thank you all for listening to > my ravings. I am so glad that I found this place where even though I > don't post often I feel like I have a new family that not only listens > but understands and will just let me whine. > Soft hugs to all of you , > > > Rise " Wampler > Wife to Rich, mother to 11 Angels straight from God . > Hebrews 13:2, " Be not forgetful to entertain angels for thereby some have > entertained angels unawares. " > The shortest distance between a problem and a solution is the distance > between your knees and the floor. > > > http://geo.yahoo.com/serv? s=97359714/grpId=10519220/grpspId=1705061682/ > msgId=91696/stime=1208413480/nc1=5191945/nc2=5191951/nc3=5191953> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Hi Angie and Darlene, On Saturdays my husband usually gets up after I shower and get the laundery started. If I am not up when my husband gets up the laundry and our errands get delayed. On Sundays often I let me DH sleep till 9am and I doze. We go to movies on Sunday mornings so can't sleep in much anyway. My DH will let me sleep longer when I am not feeling good. Debbie L Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2008 Report Share Posted April 22, 2008 Hi Darlene, I was taking my HCTZ first thing in the morning. Probably drink too much in the evening that keeps me up at night. Never have had a sleep study done. Don't think I have sleep agnea but it may be possible. Right now am taking the antibiotic Cipro which I can't take with all my calcium doses. So take Cipro around 11pm. Then take it again around 5am. Also take my Levoxyl at night because of calcium also. I get worried about taking those 3 pills at night so that's another reason I am not sleeping good now. Debbie L > > Debbie, > WHY doesn't your DH let you sleep on the weekends? >> As for your diuretic, do you take multiple doses throughout the day? > Or just in the morning? Because I was on 80 mgs of lasix at one point > and didn't get up all night, although the daytime was lots of fun. > It's possible, if you are waking multiple times at night that you > could have a sleep disorder; have you ever been checked for sleep > apnea? I was getting up lots during the night and ended up having > obstructive sleep apnea. Now, I have a machine (think darth vader, > only cuter) and I seldom get up in the middle of the night. > > I wake up somewhat refreshed, but depending on the day before, of > course, my pain level varies. Today it's kind of bad, even though I > don't recall doing much yesterday that would have caused it. > > Darlene > > Quote Link to comment Share on other sites More sharing options...
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