Lyrica

March 23, 2006

Jeannette, thanks for not lurking for me....appreciate it very much. not sure

where all that came from last nite for me. I do take valium prn and sometimes

that can take the edge off a bit. it took me about a week each increase to get

used to the lyrica....it sure does make you loopier than if you were drinking.

i do trazedone at nite for sleep, but again, nothing knocks me out enough to not

wake up stuck and in pain. it helps me go to sleep sometimes when i brain isn't

ready to go. i tried the neurontin (gabapinten) early on and it even on such

high doses didn't do much to help at all.

i'll take your pump that way you won't have to worry about it!! hee hee. it

is nice to know that you are so close by and i am hoping to see you post more

too! i appreciate your prayers and thoughts and today is better and fear is

lost in the moment.

Tawny

JJ10920@... wrote:

Hi Tawny, I am a neighbor in the Tampa Bay area, (north Tampa). I have

been with Friends for a long time but mostly a lurker. I'm in my 7th

year with PLS. I have had almost every sx that comes with this ugly

disease. Some come and then go away....weird... I am w/c bound...can

transfer with walker tho. I am so sorry you are experiencing all the

pain plus all the nerve quirks that make up PLS. They say it is a

painless disease....haa... I don't have pain but as I tell the Dr and

nurses the sx are very uncomfortable and could never sleep or rest

without med to control spasms, pin pricks and clonus etc. I was on

baclofen for 2 years. when I started to progress dr upped the dose from

20mg a day to 30. I almost died. everything shut down after the 2nd

day. started gabapentin and took it for more than 2 years but I had

flaking and real dry skin and my last visit with dr told him I couldn't

stand it no more. It was like fish scales on my face and moving down to

shoulder area. So I had to titrate using half of the 3000mg of

gabapentin and 1 75mg lyrica twice a day for 2 weeks. This is my 1st

week on the full dosage of lyrica.....150mg morning and at bedtime. It

knocks me for a loop... I've had an alcohol drink or two that has made

me loopy, but this feels like I've had 10. I hope I get used to it

because I only\

have to take 4 capsules a day instead of 10 a day gabapentin. I take

1mg clonazepam at bedtime and it helps my emotional liability. I have

the crying version of that. I also take 200mg provigil in the AM. I

was sleeping all the time after starting on gabapentin so have been on

provigil quite a while. other than my levoxyl for thyroid (15 yrs) and

timolo drops for glaucoma (5yrs) I'm good to go but not until after my

coq10, b12, biotin, and centum silver. I'm 74 yrs old. My beloved

husband, is caretaker, housekeeper and cook. I have not only lost

balance which was one of 1st sx but now have no coordination in hands

and arms. The neuro dx me as quadriplegic the last visit so we now don't

have to pay any property taxes. yahoo. In Fl anyone w/c bound is exempt

.. speech...forget it but lyrica has improved it some or maybe getting

off of gabapentin that may have caused it to become worse. Well I don't

often post and now you know why.... I rattle on and on. But Tawny I not

only replied because of lyrica but to say you are in my prayers and I

enjoy all your posts... keep up that good spirit....not only helpful to

yourself but to us on the list too. Blessings and hugs..Jeanette from

Tampa

March 23, 2006