Re: Re: I wish the non-believers would log on- To

[Guest guest]

I am a 44 year old white female in East TX. I am an R.N. and had never heard of

fibro before I got ill with it. (this is because unfortunately they do not

teach it in nursing schools). Of course I graduated nursing school in 1992 when

it was not talked about hardly at all I am sure. But they still don't teach on

it from what I hear.

love,

Debra V.

jant6886 jant6886@...> wrote:

Amen, Deb, Amen. You have hit it right on the head. I have been

asked if I thought it was all in my head. If it was in my head I

certainly wouldn't make up this kind of pain. I hate pain and now I

have to live the rest of my life being in pain everyday, don't think

I would make something like up in my head. I had never heard of

fibro until I started having all this pain and my mom's neighbor has

it and told my mom to ask me a few questions and that is how I heard

of it.

I agree with you though, sometimes the world does suck. People just

don't understand. Sometimes when I talk to someone about it I either

get, " Oh, I'm sorry, I know someone with that and I know it consists

of a lot of pain " , or I get, " what is that? Never heard of it. "

Then when you try to explain to them what it is they just look at you

like you are crazy. When the pain really flares up, I wish I was

just crazy and I could something to make it stop completely but I

know I can't. I can make it tolerable but I can't make it stop

completely.

I know how it is for family to not understand too. I bought a book

about fibro and my family refuses to read it because " they don't like

to read " , to damn bad, this is something that is wrong with me and

the only way they are going to understand it in the least bit is to

read this book, that is how I learned more about it.

I have had to go on strike in my house to get my family to help me

with stuff. My son just today decided to clean the living room and

dining room after 5 days of nothing getting done. Then had the gall

to tell me that I didn't say Thank You to him, how often do they say

that to me, NEVER!! (I'm having a bad fibro day also.)

By the way, I am from Rensselaer, Indiana, white, so if we want to

start a post with where everybody is from I think that would be a

great idea. Then maybe we can get people who " say " they care about

us to look at that post and we can say, " see, I'm not the only one

with it and it doesn't just happen to people like me. " I kind of

like that idea.

I love you all also, this is the only place I can come to do get any

kind of relief or help when the pain gets real bad. I have my

friend/business partners that I can talk to but none of them have

ever heard of this so it isn't easy for them to understand. I am so

grateful I found this group. Thank you all for everything that you

have done for me. You are all truely sent from God to help everyone

with Fibro.

>

> If they did, they MIGHT think differently. Come on. How many of

us are on this site? Are we all just crazy? If so, it is estimated

that about 10 million people in America alone are having the same

symptoms. I know I never read a damn thing about fibromyalgia and

had no idea what was wrong with me until I got sick with it. I guess

they think we look it up on the internet and decide " I think I will

have that disease " . I can tell you now that if I was a liar and

wanted to make something up, it would not be fibromyagia. The stigma

alone would keep anyone from making it up. And how many walks of

life do we come from????

> Some days the world just sucks to me. I guess this is one of

those days.

> Love ya all. You are the only ones that are really there for

me. I get no understanding from anyone except the people here. Even

the few that want to understand me cannot understand me. #1- they

don't care enough to read anything about it and #2- they think " it

can't be THAT bad " .

> Debra V.

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> between 0000-00-00 and 9999-99-99

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