Re: Re: I WONT SHUT UP- To

[Guest guest]

, you have some great ideas. I am especially glad that someone wants you

to do a conference call on fibro. It means they are interested in learning.

The radio station and newspaper are wonderful ideas.

hugs,

Debra V.

Subject: Re: I WONT SHUT UP........

To: Fibromyalgia_Support_Group

Date: Friday, May 9, 2008, 8:51 PM

Debra,

I have been thinking about what I can do for our cause, I don't know

much about Fibromyalgia but I have been reading up on it and going

through all the " fun " stuff for 2 1/2 years now. I am thinking about

contacting a Christian station in northern Indiana about it and I

also have a few other places that I can contact. I also know someone

that works at our local newspaper, used to babysit for him, and I

have thought about talking to him about it. One of my business

partners has asked me if I would do a conference call on Fibromyalgia

for our business and I have been considering doing that. I want to

help get the word out about this disease because I know how many

times I got " the look " from doctor's or the attitude from doctor's

and I don't want anyone else to go through that. I will let you know

what I find out.

Take care,

>

> Just to say that I am feeling like crap. I felt good this morning

and now that it is time for work, the change is here. I don't

understand this disease how it can change from one hour to the next.

Oh well, will be off this weekend.

> Anyway, I am going to try to write at least 3 or 4 more letters to

medias. I WILL NOT SHUT UP. I will go with my local KTRE news

channel here. Also the Lufkin Daily News. Also will write CNN again

to a different CNN address. If we all keep this attitude, someone

will start listening to us. The WORLD needs to KNOW that we are not

a bunch of lazy hypochondriacs that just want to lie to get drugs.

Seems that is the opinion of alot of people. But with time and more

and more speaking out from us.... it might make a difference.

>

> love and hugs,

> off to work...... (sick of course),

> Debra V.

>

>

>

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