Re: Pain and narcotics.... hydrocodone/oxycontin ect.. Debra

[Guest guest]

Hey Debra- I feel like I have been away forever, and I know it has been

forever since I have felt this bad, I can't believe how quick it came on, and

how long it has lasted, the burning tongue, liitle teeny tiny bumps on the tip

that burn like a bon fire!, I have had such anxiety with it, which I always get

when last more then 3 days or so, then my throat get's feeling like it is

closing, yeck, I was ready to check in somewhere and say I know it is the end of

the road for me now. I feel a bit better and able to handle sitting still to

get some fibro relief on here. I wanted to say though while I have been under

the weather with all this, I held off of the vicodin Es,and my HS p r n

ocxycodone as my tongue seemed to not enjoy this as I have not been eating,

barely drinking, because seems to get worse when doing so, and I know part of it

is I am nervous with this mouth issue, as I keep thinking my tongue is going to

swell, my throat is going to close, I can't shut my

mind off when symptoms are like this. I hate it!, and even though others have

posted the same type of thing going on I get in my mind thinking the worse.

Anyway want to tell you again as I know we have talked on this, the things that

go on when I taper off the pain med's are not good, I get in so much pain, I

can not stand alone, walk at all first thing in the a,m for several hrs., and

other things, I am sure you are aware of when one stops this type of drug

quickly. I know I have a life long relationship with a pain medication for sure

now, as this is x2 I have tried this, 1st time was a test for myself and that

was worse because I didn't do it being sick with something else going on like

this mouth thing. Anyway you are right with the next drug to go to, this is the

only reason I hesitate, what if I do have to switch Dr's and they just yank it,

as some have no mercy I am sure you know working with.???? I worked at a

facility and we had a patient come in had to

change her Dr. to the only one who made nursing home visits she had been on

vicodin her son said all her life, or he rememberd it as, we figured at leat

14yrs., this jerk stopped her cold turkey, and she went Biszerk on us,

hallucinations, vomiting, bouts of falling for no reason her legs would not

work, and this went on and on it seems. Now I don't need to hallucinate!, nor

do I need to flop around, I do enough falling with clumsiness LOL. So again I

will tell you don't try and stop this for any length, you will suffer and have

to double the doae to stop hurting really. So could you imagine the oxcycontin

withdrawel?? I had my RLS RDS and neuropathy kick in while off and can't get my

feet to warm up yet, they feel like they are freezing all the time but not that

cold to the touch.????/

Okay that was long sorry. I told you I missed you guys the 2 wks I have been

burning.

Take Care HOPE YOU LIGHTER DAYS/

Sharon

debra van ness ladybug75901@...> wrote:

Ok, I think that there may come a time with most of us that we have to

take narcotics for pain. I have been on hydrocodone now for about a year and

half. No, it does not do what it use to for the pain. BUT.... when I skip a dose

for too long, my body really tells me with fibro pain. The pain is unbelievably

worse. So, on that take, I guess it is helping me still.

I have the same fear expressed here by some. yeah, what happens when I am on

narcotic meds and have to keep stepping up the ladder to oxy or methadone? Well,

I fear that it will eventually quit working too. Then What? Or if I go somewhere

and don't have the hydrocodone or my doc discontinues it, then what kind of

withdrawals will I go through?

It is like being between a rock and a hard place.

BUT.... I do not think anyone should have to live with this crap without proper

pain control even if it means strong narcotics. I would not function without it.

Not because I am an addict, but because the fibro will rear his ugly head 10

fold.

Do what you have to though. Do not suffer when there are medications that were

made for people IN PAIN. I know of all the bad rap about this. The street

pushers and people who use this medicine for a " high " . If it were not for

dumba$$es like that, we might not be looked at with such stigma. But we take it

for REAL PAIN. So, let it be so.

love and hugs,

Debra V.

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