Re: Hi, I'm new. I have FM and it's driving me nuts!/To Jan

[Guest guest]

--- First off Welcome to the group, Here you will find lots of

support and lots of info, and some understanding friends!

Your story has really touched my heart. I fell that you feel that

your between a rock & a hard place. Hey, I see a really good game

plan here. So congratulate your self on that...

Jan when you feel like this isn't worth it, I'm always hurting etc.

Try to see your self thin, and playing with your grand kids. This

for me I know would be such a goal to meet. You can do this and we

here can help you along the way, encourage you, and give you koudos

when you reach a goal.

Fibro doesn't go away but you have good days and bad. Just getting

the weight off will make you feel much better, so you may think it's

gone. You will learn what you can and cannot do ( I think you

already see that with the exercising) I can't exercise either. I

don't care if it's only 10-15 minutes I get a flare. So I don't.

I'm 59 on the 29th of this month and I've had Fibro, well I was

diagnoised 15 years ago but know I've had it much longer. I have

learned what I can do and what I can't and sometimes do what I know I

shouldn't anyway, like picking up my 4 yr. old grandson. He fell and

got hurt well,.... I'm certinally going to pick him up and love on

him!!!! I suffered for a couple of days after that but I knew I

would. So goes the cycle. I've rambled her sorry, Welcome to our

little space here....Hinky

In Fibromyalgia_Support_Group , " bjmpony "

wrote:

>

> Hi, I only ask that you please don't tell me to " suck it up " . My

Mom

> and several others practically told me to do this. No one believes

> that it is the most horrible pain one can go through. It's even

worse

> because I can't show them anything! All I could do was sit in a

> recliner and hold very still. Because i was still smiling and able

to

> talk everyone thought I was faking it. Why in the world would

someone

> fake that kind of pain?

> I should start at the beginning. One I'm obese, I have high

blood

> pressure, I recently found out I'm a diabetic and have sleep apnea.

8

> years ago I found out I am Bi-polar. Now I have FM on top of it

all.

> About a year ago I noticed that I would have chest pains when I

> walked real fast. I thought I forgot my blood pressure meds. Then

> just after Thanksgiving last year the pains wouldn't go away. I

> thought oops I waited to long to go to the Doc. I had only gotten

> insurance in August so hadn't been to a doc in sometime. Heart

> disease runs in my family so I thought I had really screwed up.

> I was rushed to the hospital as we thought I was having a heart

> attack. Well after many, many tests. I found that my heart etc is

in

> excellent shape concidering my size. However, I was given nothing

for

> the pain and told to go see my family doctor. So I got in to see

him

> and he said it was Acid reflux. I've had that and knew it wasn't.

But

> to a specialist I went. Again no pain killer. The pain was annoying

> at first and was getting worse by the day. I started getting angry

> because no one was listening. I went for a biopsy that the

specialist

> said i didn't really need. I have healthy kidneys, gall bladder,

> liver and any other part you can imagine. No tumors in my head no

> blockages. Nothing. I would be looked at. They would find nothing

and

> I would be dismissed. Just after Christmas I went yet again to the

> family doc. I told him I was taking 4 advil every 2 - 3 hours. I

know

> that isn't good. Taking that much only took the edge off by this

> time. It had spread up to my face from arm to arm, down my back and

> to my legs. I was being eaten alive and no one could see it! I was

> crying all the time by then. I told the doc i wasn't leaving until

he

> gave me something. He tried some other pain killers but nothing

> seemed to work. Not even Vicodin.

> I was on fire! My muscles were jumping all over. I couldn't lay

> flat. I couldn't walk. I could hardly push the button on the

remote.

> I just sat in a chair and wished it would go away.

> Finally, the doc said i was to go to a RA specialist. Now here

I

> have to confess. If this RA doc could do nothing I was seriously

> thinking of doing myself in. My faith tells me that would be the

> ultimate sin. It upset me very much. I now have a new understanding

> for terminally ill people.

> The good news. They didn't treat me like I was insane. They told

> me what I had. They gave me some meds that so far are helping

> greatly. I have a plan for dealing with this. I now find it

extremely

> annoying.

> The plan is to deal with the sleep apnea. I definatly have it

and

> am currently waiting to recieve the air pump to go with the mask.

> This will help me start to relax at night and get the sleep I

haven't

> had in a long time. I am on a strict diet and need to loose 35

pounds

> so that I can have the by pass on my stomach done. This is easier

> said than done. I have found that it is hard to change my eating

> habits. I need to exersize. The mind is willing and even the body.

> But like someone else in here said. My body punishes me for 2 days

> after the simplest of exersizes. I can ride a stationary bike for

15

> to 30 mins. As long as i don't move my upper body. I'm forever

being

> told to walk by all the docs. I really can't. I can sometimes do 2 -

> 7 laps in the gym but my chest starts to hurt so much I feel like i

> can't breath. I can't lift the lightest of weights. Anything with

my

> arms and I have to sleep in a chair again.

> Has anyone conquered this walking thing and how did you do it?

> For me it doesn't matter how fast or slow. It still happens.

> OK back to that game plan. The RA doc said that in therory, if

I

> loose the weight, get the sleep and exersize I need I should beable

> to get rid of most of my meds. I should no longer be a diabetic, no

> longer have high blood pressure, hopefully the FM will go away or

> least be easier to handle. Not to mention I should feel really good

> mentally and physically.

> So that's my problems in a nut shell. Any in put would be

great.

> It is great to see I'm not alone. Like a lot of you I have a life

> that seems to be leaving me slowly behind. I have grandchildren I

> want to play with. Place to see, people to meet etc, etc.

> Sorry, I've spouted off so soon. It's been nice reading all of

> you. Thanks, Jan

>

[Guest guest]

Hi Hinky,

Thanks for writing. My family would be shocked at my having

thought about leaving. I'm the happy, make a joke, keep smiling person.

I think that's why the Doc was having a hard time with diagnosing me. I

had told him that my fat was rebelling and I couldn't find the zipper

to let it out. He just wasn't getting that I was in such horrible pain.

I finally asked him if I should flop around like a fish on the ground

or something. He didn't realize that i wasn't driving anymore or

anything. I told him all I could do was sit very still. i wished that i

could float. i didn't want to touch anything and no one was to touch

me. I almost past out when they tried to take my blood pressure. No one

was getting it. I had finally made up my mind that if the last

specialist couldn't do anything I was giving up. In 2 weeks I would

have lost my job and was already losing my mind. When they told me they

beleived me and put a name to it I started crying in relief. they are

they ones that came up with the game plan.

I'm not really a quitter, honest.

Take care, Jan

>

> --- First off Welcome to the group, Here you will find lots of

> support and lots of info, and some understanding friends!

> Your story has really touched my heart. I fell that you feel that

> your between a rock & a hard place. Hey, I see a really good game

> plan here. So congratulate your self on that...

>

>