New to the group

[Guest guest]

Hello. My name is Marci and I just found this group. I would love

to talk to other people who have this disease. I am 36 years old and

have been diagnosed for about 3 years. I know they say it doesn't

progress, but I swear mine has. I can say I was lucky that the

rheumatologist diagnosed it the first visit I had there. I had no

idea what it was. To begin with, my PCP said Lupus, then possibly

MS, then sero negative arthritis. The rheumatologist got it on the

first try. After reading about it, I cried because if it was Lupus,

I had a chance at remission. So, I didn't want to agree that I had

it. Now, I'm no longer thinking it's something else, just wishing.

So, I have a great job. I love the work I do. Only problem, the big

project I'm working on now (ends in a month) has caused a flare up.

One of the questions I have is the " fog " . I'm an IT Manager and am

in charge of putting in a new computer system for the US. I keep

forgetting things I'm supposed to do! That's a big issue. I am so

scared I will lose my job because I forget how to do it. Anyone else

feel this way? Also, if I do lose my job, I have 2 kids to support.

And the pain since the flare up (I've been flared up for 2 months

now) is terrible. It hurts to breath. But if I take all the

prescribed meds, the pain is much better, but my brain is so fuzzy, I

can't do my work. I'm at a loss as to what to do: Live in this much

pain but keep my job or fix the pain and lose the job. Sorry for

rambling.

Happy to belong to this group,

Marci