Guest guest Posted April 19, 2008 Report Share Posted April 19, 2008 Hi my name is Gail and I was diagnosed with Fibro and Lupus in 1998. I progressively got worse and by 1999 I was unable to work. I am married with two boys now 13 and 15. I first started getting sick in 1997, so compared to most people I was diagnosed very quickly. By 2001 I was bedridden and on so many meds I didn't know which end was up. On top of all of it I was diagnosed with a brain tumor in January of 2002, had a stroke in March of 2002 and then of all things had cancer in May of 2002. That was a year from hell for my family. Finally when I went off the deep end I was hospitalized and I came off all my medication. I only take my insulin now. I just knew I was going to die. Well I am still here and glad to be. I do live with a lot of pain but at least I am aware of my surroundings now. It was very rough for my family; my kids were so young and not sure of what was happening. I was very active prior to being ill. I worked went to school and was a volunteer paramedic. I lead a very full fast paced life. Boy did things change! I was lucky and had a good doctor at town University Hospital. I was lucky that I worked for the state and was able to collect disability from them and then a year later I applied for SSI and got it in 60 days. I gave them all my medical records and they never fought it. For those that wonder if it is worth it yes it is. I know with the medical things going on that I could die any day and in fact I am a do not resuscitate but it does not mean that I want to quit living. Every day that I am with my family is a gift and I never thought I would see my boys grow to be teenagers and here we are. Quote Link to comment Share on other sites More sharing options...
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