Myoclonus(Body Jerks),Stiff Necks,MS/Chiari,etc

November 9, 2002

Chiarians,

I could sure use your help. For years, I've had Myoclonus (Body

Jerking) and thought just recently that it could be seizures. The EEG said I

didn't. So my neurologist says it's derived from my neck and spine. But I'm

not sure if it's from Chiari or MS or both. Last night, I put my neck down

and it brought on the body jerks. I quickly raised my neck. But it freaked me

out. And I know that if I'm sitting in a certain position, especially if

there's nothing in back of me, it will bring on the Myoclonus. Then the rest

of the time where I get the jerking out of nowhere all day long. Is this just

me or do you all have it too?

This morning, I woke up with the most painful stiff neck. My head was

hurting as bad as my neck. What does everyone else do for this problem? Are

muscle relaxants helpful? I'm slabbed up with Ben Gay right now, but it never

really helps much.

Any imput is appreciated. :-) Thanks and have a good weekend.

Caryn

Boston, Massachusetts

Dx'd with ACM 7/11/02

Also, Scolosis (dx'd age 8, Boston Brace until 18 yrs old)

Probable MS

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