Re: [FSG]To Jill...numbness and tingling- To Jill again

[Guest guest]

Jill, it is much more recognized now. There is alot of progress. I think that

for every person you find that does not believe it exists, you will find at

least another person who does. I just don't give a crap anymore if they believe

me or not. Think of it this way, it is your body, they cannot feel what you go

through.

So, especially if it is someone not important to you, it does not matter what

they think. (of course it is more hurtful when someone you care for or love

chooses not to believe it). But I say that it will be a part of my mission in

my lifetime to try to educate others on this illness when I can. (I don't just

open up discussions on it). But if it comes up, and they ask what is wrong with

me on a really bad day, I will tell them.

love and hugs,

Debra V

jill larion jilllarion@...> wrote:

Deb,

I'm glad your severe burning went away! In the last year mine went from numbness

to severe burning....it sucks!

Good for you that you don't let him bother you. I remember years ago that people

didn't believe in fibro/CFS. My cousin has had severe CFS since she was born,

and I thought she was full of it. I really resisted getting my diagnoses for

Fibro/CFS because I knew it had such a stigma. I hadn't paid much attention to

the news about for about 10 years when I finally gave in to my diagnoses of

Fibro/CFS. I really thought that fibro was now an accepted disease for the most

part (not CFS, though). I haven't hesitated to tell people I have fibro, and I

have always been responded to in a positive manner. Now, after hearing all the

stories on here, I'm afraid to say anything.............

Re: MIckey

The PA-C said she'd tested for it on the last six blood tests,and if she

couldn't find it..I didn't have it..her words. Very arrogant woman. Believes her

own press. Blah

She works for a doctor who is 71 who should not be practicing..he has as bad a

short term memory as I do due to a major auto accident almost 20 years ago. He

lets her roam free.

My rheumatologist..a very good doctor..found it first test..she did not have me

on an anti-inflammatory..I was on low power darvocet..

Nov.05 I began a hellish journey with a viral infection she refused to

treat..says I can't..bulloney..a friend of mine had the same V.I. and he

still..wound up paralyzed. Attacked his nervous system and spinal area. I am

lucky..I just wound up with short-term memory loss..a chunk of long term memory

gone..vertigo..and..the fibromyalgia. Lovely..I left her in July 06..I didn't

get over this infection til around September that year.

My rheumatologist hates this PA-C..he found out..she had never given me a 24

hour urine collection..he said should be every year..the last urinalysis I had

to think about..I use word-association as I forget words even..I recalled it was

when my sister was in the nursing home..I said 2000. He almost growled. He said

this should happen 2-3 times a year!

Neuropathy is numbness in hands and feet..it..kills the nerves..my hands are

detiorating because of it. People say Oh..you have diabetes??? Noooo...

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