Re: [FSG]To Jill...numbness and tingling-- From Debra V. believe in fibro?

April 13, 2008

Deb,

I'm glad your severe burning went away! In the last year mine went from

numbness to severe burning....it sucks!

Good for you that you don't let him bother you. I remember years ago that

people didn't believe in fibro/CFS. My cousin has had severe CFS since she was

born, and I thought she was full of it. I really resisted getting my diagnoses

for Fibro/CFS because I knew it had such a stigma. I hadn't paid much attention

to the news about for about 10 years when I finally gave in to my diagnoses of

Fibro/CFS. I really thought that fibro was now an accepted disease for the most

part (not CFS, though). I haven't hesitated to tell people I have fibro, and I

have always been responded to in a positive manner. Now, after hearing all the

stories on here, I'm afraid to say anything.............

Re: MIckey

The PA-C said she'd tested for it on the last six blood tests,and if she

couldn't find it..I didn't have it..her words. Very arrogant woman. Believes her

own press. Blah

She works for a doctor who is 71 who should not be practicing..he has as bad a

short term memory as I do due to a major auto accident almost 20 years ago. He

lets her roam free.

My rheumatologist..a very good doctor..found it first test..she did not have

me on an anti-inflammatory..I was on low power darvocet..

Nov.05 I began a hellish journey with a viral infection she refused to

treat..says I can't..bulloney..a friend of mine had the same V.I. and he

still..wound up paralyzed. Attacked his nervous system and spinal area. I am

lucky..I just wound up with short-term memory loss..a chunk of long term memory

gone..vertigo..and..the fibromyalgia. Lovely..I left her in July 06..I didn't

get over this infection til around September that year.

My rheumatologist hates this PA-C..he found out..she had never given me a 24

hour urine collection..he said should be every year..the last urinalysis I had

to think about..I use word-association as I forget words even..I recalled it was

when my sister was in the nursing home..I said 2000. He almost growled. He said

this should happen 2-3 times a year!

Neuropathy is numbness in hands and feet..it..kills the nerves..my hands are

detiorating because of it. People say Oh..you have diabetes??? Noooo...

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