Re: I'm new here-- A BIG welcome Sue!

[Guest guest]

Sue, I am so glad you found us. I have been here for about a year and a half

the best I can remember. This group is wonderful. We will understand when no

one else will.

I can see exactly what you are going through. I was diagnosed about 4 or 5

years ago. I am 43. I have two kids. My daughter is 11 and my son is 6. My

son is in special ed. We just learned when he entered Kindergarten that he has

what they call " Pervasive Developmental Disorder- Autism Spectrum " . I really

can empathize with you that you still have a young child at home with a handicap

and that now you have fibromyalgia.

We all went through a phase of shock I think when we were diagnosed with

Fibromyalgia. I know that I said it over and over to myself for a couple of

months before I even believed it myself. But I was in so much misery by the

time I was diagnosed, I was almost relieved that there was a name to put on this

monster of an illness. Until I found this group, I felt like an alien. I felt

alone and felt as if I was the only one with this dreaded monster.

I can relate so much to not being able to do the things you use to. The

exhaustion with this illness for me is almost as incapacitating as the pain.

Ok, the sleep deprivation... it could have had something to do with it. But

also, it seems most of us have a common thread in that something traumatic or

very stressful set this disease into motion. Just the stress of caring for your

precious little daughter could have had something to do with it. (Now, don't

get me wrong. I know how you love her and would not have ever given the world

for her). It is just circumstances. I love my kids dearly.

Also, they have found in research that most people with Fibromyalgia have a

sleep disorder. It is something about our brain wave patterns during sleep. I

can sleep 9 hours and THINK I slept well but wake up feeling like I was hit by a

truck and have not slept in a week.

Well, take care honey. Welcome again to the group. It is a large group and

sometimes we have 200 posts in a couple of days time. BUT, we welcome anyone

new here to share and gain support an knowledge. Stick around.

Welcome again,

Debra V. (East TX)

karriemom@... wrote:

Hi to everyone!

I just went to the doctor for a check up on Tuesday. I gave her my list of

" complaints " , expecting to hear that I have a thyroid out of whack or needed

vitamins or that I'd be told I'm just making up all my complaints. Instead, I

was told that she (the doctor) wanted to run a bunch of tests, that what she is

thinking is diagnosed by ruling out everything else and that she suspects I have

fibromyalgia.

After going home and reading about what this is, I see where she is thinking

this. I decided on Thursday that heck NO, I'm not going to allow this to happen

to me. I had a good day on Friday. But today, I went out to work in my yard. It

was beautiful outside. I love nothing more than working in my yard. I last 3

hours. I used to work for 10-12 hours. I was in so much pain in my hips and legs

that I had to come in to lay down. After sleeping for about 2 hours, I got up,

very, very depressed.

A little more about me....I'm a single mom, 53. I have a daughter who is 18 and

getting ready to leave for college this summer. I also have an 11 year old

daughter who has Down syndrome and autism. She didn't sleep through the night

until she was around 9 years old. Since it was only me here with her, I was up,

too. Then I would get up and go to work everyday.

So, first question of what I am sure will be many...could this sleep deprivation

have caused this? I do know that I don't sleep very deeply at all, that I wake

up 4 and 5 times every night.

Thanks for allowing me to join your group. I know I will learn a lot.

Sue in Illinois

--

Sue

---------------------------------

You rock. That's why Blockbuster's offering you one month of Blockbuster Total

Access, No Cost.