Re: Hoping the group can help with my question/meachelle

[Guest guest]

--- Hi Meachelle, and welcome to the group

my first symptom with Fibro was upon waking, my hands would hurt so

bad and they felt like the were swollen. I couldn't even bend them,

so stiff... I still have that to this day. I was working as a dental

asst. and my shoulders and neck would kill me to the point of tears.

One of my patients asked me one day what was wrong and I told her all

my symptoms and said I thought I was really sick with something. She

had Fibro. She said I bet you do too as all your symptoms were like

mine. She gave me the name of her Rheumatologist and I made an appt

to see him. He diagnoised me within a month after numerous other

test to rule out other things. That was 15 yrs, agao... I'm still in

pain but have learned to manage it and I have learned my

limitations. I think that is the most important lesson to learn...

It will be by trial and error and alot of painful days but you will

eventually figuer out what you can and cannot do... Some you will do

anyway knowing you will pay for it in a day or so, but you have pain

meds. to get you through the rough times... Hope this is of some help

to you... Hinky

In Fibromyalgia_Support_Group , Marti Boguski

wrote:

>

> Hi Meachelle,

>

> I do think Fibro starts differently for everyone. I was dx in

1990 after a lot of testing and other stuff, ruling out everything

they could think of. So I had it for at least two years before I was

dx, which I think is a lot of people's experience. I think you

should be here whether it has be officially dx or not.

>

> It was a long time ago and it's hard for me to remember exactly

how it started. I think for me I first noticed pain in my ankles and

up the outside of my shins while I was playing tennis. (like a lot of

people in the group, I was extremely active and fit before I got

fibro). Then I think it progressed to my neck, shoulders and upper

back. It could be the other way around, but those were my first

symptoms along with the terrible exhaustion, which is so different

from being tired, and the fog in my mind.

>

> Most of the symptoms you have described sound like Fibro. There

are no definitive blood tests or Xrays or anything else that indicate

you have Fibro. Fibro doesn't cause inflammation, even though it

feels like it does, so that wouldn't show up. It seems you are going

through the process of elimination that many of us went through.

>

> I don't know where it comes from or how you get it and don't

think the reasons have been discovered yet. I hope for research to

find out soon so maybe we can know how to get rid of it or prevent it.

>

> I hope you feel better and welcome to the group,

>

> Marti

>

> meachelleb wrote:

> Hi all,

>

> I have been with the group about 3 weeks now and read your

messages,

> many that show great support of each other.

>

> I am in the process of being diagnosed ( my GP suspects I do have

> fibro) but I am waiting on appointment to see the rheumo dept (

> which can take awhile here in the UK). I do have a question that I

> am hoping that some of you might be able to help me with.

>

> My question is how did the fibro start for you?

>

> For me it started with pain in the ribs especially to touch and

> hugging was a nightmare. Over time it seemed to get worse and

> affected lots of areas including my shoulders, arms, face, right

> hip, knees ankles just to name a few. I find these areas painful

but

> it waxes and wanes, no two days are alike. I also find these areas

> very tender to the touch and all my bloods show no inflammation of

> the muscles or bones. My calcium levels are ok and there was only a

> little high reading on my phosphorus level. I sweat in cold weather

> which is weird and cannot walk further than my kitchen without

pain.

> I do try to exercise my legs so I don't get muscle problems.

>

> I also suffer with sleep problems, getting up at least twice a

night

> on days I can sleep. I do also have problems with urination at

night

> and this is another reason for disturbed sleep. I do nap and

> sometimes find that I can fall asleep mid sentence, which of course

> might be down to my medication ( MST, Lrica & Baclofen) I get

> restless leg problems along with severe cramps that wake me

> screaming and kick out loads ( much to my hubbys distress). I do

> have both cervical and lumbar spondylosis along with what my

> neurologist thinks is arachnoiditis.

>

> I guess my reason for asking is through one of confusion, I have

> researched fibro but found no where that describes how it all

> starts. I guess it does start different for everyone but I am stuck

> in a rut not knowing if I have fibro or not. Also difficult do to

> the other problems I have to work out what sympton belongs to what

> problem. I have not listed all my problems would be much longer

> email if I did.

>

> To be honest the reason I have not contributed to the group so far

> is a feeling of if I should really be here or not. My family tries

> to understand but like the topic on friends understanding my

husband

> can be unsupportive and quite cruel at time. I guess I just need to

> talk to others that do understand.

>

> Thanks in advance to all that reply

>

> Hoping you all have a good pain free day

>

> Meachelle

>

>

>

>

>

> __________________________________________________

>