Re: WE NEED people to speak out? LETS DO IT...may 12

[Guest guest]

Fibro awarness day is May 12

Re: WE NEED people to speak out? LETS DO IT...

I believe it is May 14th. I ordered a fibro bracelet off the net to wear. She

donates 10% to the FM site. Pricey but her work is good if anyone is interested

hugs

debra van ness wrote:

I just wrote a response to 's comments. He is right on the money. What can

we do in the future to put together some kind of awareness type operation for

Fibromyalgia? ?? The commercials are short and are a beginning but do no

justice. And just think, Fibromyalgia Awarenss day is coming up shortly. But do

you think anyone will hear about it except for a very few? The answer is NO. It

won't be advertised and no one will know it except those of us who have it. I am

just stating how this disease gets no coverage or gets the WRONG coverage.

NOW, THAT SAID, we have a very diverse group of people here with knowledge and

creativity from every walk of life. We have some very damn SMART people here too

with alot of intelligence and education backgrounds. How do we come together in

some way to figure out how to get the REAL word out about fibro? I will help any

way I can. If I could I would talk to a crowd of a million about this disease. I

am a registered nurse who had years of experience before fibro took ahold of me.

I DID NOT even know what fibromyalgia was until I got very ill with it. I had

not even heard the word " FIBROMYALGIA " . What does that tell us? The disease is

behind the lines, it is discounted, it is NOT taught in nursing schools. It was

not taught in medical school either until maybe the very recent time.

Come on people. Help me. Is there any way we can ban together and come up with

something to educate people about this? I mean the real thing, not the stupid

articles that make us look like hypochondriacs and lunatics. Not the STUPID

articles that say " It does NOT get worse " .

That said, it will not happen overnight. But think together and lets at least

try to come up with something. (We may not be able to, but lets think on it)

love and hugs to my group of friends,

Debra V.

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1. While it is wonderful to share our experiences with everyone on the list as

to what treatments do and don't work for us, pls always check with your dr. Some

treatments are dangerous when given along with other meds as well as to certain

health conditions or just dangerous in general.

2. If you are in a difficult situation (doesn't matter what it is) pls don't be

afraid to ask for help. It is the first step to trying to make that situation

better.

3. To unsubscribe the e-mail is: Fibromyalgia_ Support_Group- unsubscribe@

yahoogroups. com

4. Also, it is not uncommon for more than one member to be feeling bad at the

same time when it comes to flares and b/c of that potentially take something

another member says the wrong way. And that includes the things that one member

may find funny (even if it's laughing at fibro itself) even though we who deal

with illness whether one such as fibro or multiple illnesses try to keep a sense

of humor.

5. Pls let's be gentle with each other, and if you are having a bad day pls let

us know so that we can do our best to offer our support.

Have a nice day everyone.