Guest guest Posted April 13, 2007 Report Share Posted April 13, 2007 so good shes doing good for now good luck on the surgeries > > I just wanted to let yall know that May 2nd Chrystine will have her left > > kidney and left ureter removed, right ureter stint and reimplantation and > possible semi-perm catheter for her bladder-6 hours or so of surgery.... > She is > having her MRI of her spinal cord on April 30th to determine if she has > the > tethered cord. Her urologist really believes she does and so do we. The > MRI will > confirm it-then they will schedule a surgery to repair it. She got her > AFO's > and is trying her best in them. They are hot pink. Her PT is also getting > her a pediatric walker, I can't wait for her! They said the tricky part is > > finding one small enough for her petite frame. I have tried a regular baby > walker > and she can't move it-too heavy. We just got back from Cincinnati. Her > feeding team-and aero digestive says she needs another endoscopy because > she has > eosinophilic esophagitis (anyone know much about that?) and they need to > see > if it has worsened or possibly gotten better. The team is meeting about > Chrystine next Wednesday/ and will be calling me with more surgery dates. > They're > worried about her airway and if she has permanent lung damage from too > many > aspiration pneumonias... The only way to determine that is another surgery > > called a brachioscopy (I think)... > please send any info yall might have.. > thanks in advance to all of yall. > chrystal crites > > ************************************** See what's free at > http://www.aol.com. > > Quote Link to comment Share on other sites More sharing options...
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