Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 Hi , Welcome to the list. I am really glad you joined. Remember me, Flo from London who rang you all that time ago? It was lovely to speak with you. I hope you get lots of benefit from being here on the list. There are lots of people who have had or are having the same experiences as you. Lots of experience of CHARGE here. People here are mostly parents, adults with CHARGE or professionals with an interest in or working with children with CHARGE. You can be assured that most questions you have someone is bound to have an answer so feel free to ask anything. I am glad to hear you had a holiday. I am sure you really needed one. All of us need some time to rebuild our energies and to introduce normality into our lives. I hope Caitlyn is well though I am sure keeping you very busy. certainly is keeping us very busy (although her sister Elly is not far behind in demanding our attention). also has the " CHARGE moods " as you aptly called them. They are related to not being able to regulate the emotions. She has the same with temperatures in warm weather. She quickly gets hot and upset because she can't regulate her temperature but take a layer of clothing off or introduce a fan and she is fine. Have to head off to bed now Kellie, but I hope you enjoy the list. I have been on it now for about 3 years and I feel quite lost whenever I sign off it. Enjoy............... -- Flo (UK) Mum to - CHARGE - (6) and Elly (4) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2007 Report Share Posted April 17, 2007 flo ive got the heat probs to im finewhen its cold but when its hot ohmy ohmy u dotn wanna know me!!!!!!!!!!! > > Hi , > Welcome to the list. I am really glad you joined. Remember me, Flo from > London who rang you all that time ago? It was lovely to speak with you. > > I hope you get lots of benefit from being here on the list. There are lots > of people who have had or are having the same experiences as you. Lots of > experience of CHARGE here. People here are mostly parents, adults with > CHARGE or professionals with an interest in or working with children with > CHARGE. You can be assured that most questions you have someone is bound > to > have an answer so feel free to ask anything. > > I am glad to hear you had a holiday. I am sure you really needed one. All > of us need some time to rebuild our energies and to introduce normality > into > our lives. > > I hope Caitlyn is well though I am sure keeping you very busy. > certainly is keeping us very busy (although her sister Elly is not far > behind in demanding our attention). also has the " CHARGE moods " as > you aptly called them. They are related to not being able to regulate the > emotions. She has the same with temperatures in warm weather. She quickly > gets hot and upset because she can't regulate her temperature but take a > layer of clothing off or introduce a fan and she is fine. > > Have to head off to bed now Kellie, but I hope you enjoy the list. I have > been on it now for about 3 years and I feel quite lost whenever I sign off > it. > > Enjoy............... > > -- > Flo (UK) > Mum to - CHARGE - (6) and Elly (4) > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 hi flo, thankx! its brilliant to be able to join with you all. it was lovely to speak to you, hope your all keeping well. we all had a lovely holiday, thankx.we really neded it, just didnt want to come home back to reality and hospitals. caitlyn had a really good time on holiday full of smiles and booging until late at night!! that was the most important thing to see her having so much fun. speak to u soon. kellie (caitlyn's mum) > >Reply-To: CHARGE >To: CHARGE CHARGE > >Subject: Hi Kellie and Welcome >Date: Tue, 17 Apr 2007 23:51:14 +0100 > >Hi , >Welcome to the list. I am really glad you joined. Remember me, Flo from >London who rang you all that time ago? It was lovely to speak with you. > >I hope you get lots of benefit from being here on the list. There are lots >of people who have had or are having the same experiences as you. Lots of >experience of CHARGE here. People here are mostly parents, adults with >CHARGE or professionals with an interest in or working with children with >CHARGE. You can be assured that most questions you have someone is bound >to >have an answer so feel free to ask anything. > >I am glad to hear you had a holiday. I am sure you really needed one. All >of us need some time to rebuild our energies and to introduce normality >into >our lives. > >I hope Caitlyn is well though I am sure keeping you very busy. >certainly is keeping us very busy (although her sister Elly is not far >behind in demanding our attention). also has the " CHARGE moods " as >you aptly called them. They are related to not being able to regulate the >emotions. She has the same with temperatures in warm weather. She quickly >gets hot and upset because she can't regulate her temperature but take a >layer of clothing off or introduce a fan and she is fine. > >Have to head off to bed now Kellie, but I hope you enjoy the list. I have >been on it now for about 3 years and I feel quite lost whenever I sign off >it. > >Enjoy............... > >-- >Flo (UK) >Mum to - CHARGE - (6) and Elly (4) > > > Quote Link to comment Share on other sites More sharing options...
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