Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 > Im so glad to see you posting again Ginny. Its been a rough haul for you and your health and welfare have been a major concern. I wish that I had a twin of me that could take care of all the personal parts of my life that arent being eaten by WC's desire to have me working...but that being said its good to know that others are checking on you too but I wish that your dr could get a handle on it and get you feeling better quickly..enough is enough! Being a blessing? Hon, Im just little ol' me...this is who you signed on to when you and I became friends (wink) I just wish I could do more to help you. In the meantime, know you are in my thoughts always hoping you get plenty of rest, get enough nutrients into you and that the painful flare will soon come to an end. Nobody should be this miserable especially for this long. I care too much to see you this miserable. Love ya Hugs Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2005 Report Share Posted March 8, 2005 Ginny We'll keep her in our thoughts and prayers. I just wanted to thank all of you for your thoughts and prayers. My grandmother is the same...she is not better..but thankfully she is also no worse. I have told her that all of you are praying for her and she wanted me to tall you all she really appreciates it. She also wanted me to thank you for all of the nice condolences you sent on the guest book...she really loved reading them all. She was so touched that so many of you posted. Hope you all with this blizzard will not have too much snow to shovel and that spring comes soon....Hugs..Ginny __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 9, 2005 Report Share Posted March 9, 2005 I just wanted to thank all of you for your thoughts and prayers. My grandmother is the same...she is not better..but thankfully she is also no worse. I have told her that all of you are praying for her and she wanted me to tall you all she really appreciates it. She also wanted me to thank you for all of the nice condolences you sent on the guest book...she really loved reading them all. She was so touched that so many of you posted. Hope you all with this blizzard will not have too much snow to shovel and that spring comes soon....Hugs..Ginny__________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 1, 2006 Report Share Posted February 1, 2006 Hello!! Did your doctor say the heartbeat looked fine? Sometimes the yolk sacs are hard to see at 6 weeks. I know this week is so hard - I just went through it. The one thing I can tell you is that spotting is very common, especially with a SU. Hang in there!! > > Dear All, > > I'm Priya. I joined this group yesterday, when I felt extremely dull > and dejected. But, being in this group and reading the mails and > seeing the support offered means a lot of me. It took away the > loneliness that I was experiencing for about a week. Thank you all. > I just tested positive for pregnancy about two weeks back and then had > an episode of bleeding last week, for which I was admitted into the > ER. During the US, they detected a possibility of a septate uterus, > but its not sure though. I did not know that I had this condition > before the ultrasound. Had another bleeding two days after that and > had an US with a OB/GYN. He is saying that he is not seeing a regular > yolk-sac and he wants to do another US next week. He did see something > similar to a septum in the US. He did not talk much about it. when I > asked questions about it, he did not give much information about it > either. The uncertainity of things are driving me crazy and am so > thankful that I found this group. Am having some spotting everyday and > donno if thats ok. > This is my first pregnancy. Fortunately, my husband is being very > supportive and we are keeping our fingers crossed and praying. Am > looking forward to the next US, when I can get some more information > regarding my condition. As of now, I think I might have either a > sepate or a bicornuate uterus. > It gives me hope, reading the mails here, that one day I have a chance > of holding my baby in my arms. > > Regards, > Priya > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2006 Report Share Posted February 2, 2006 Priya, Wow… good luck with everything! I think one of the reasons the doctors are not giving you definitive answers is because they probably don’t know. A lot of the test that they do to tell you whether or not you have a su or uu usually involve being in your uterus. If you have a baby growing in there then it is best they stay out! I hope the best for you and hopefully after this baby is healthy you can figure out what is going on with your uterus! My advise to you would be to make sure you have a good doctor who can monitor you closely and make sure you are taken care of! Good luck, Nickey ________________________________________ From: MullerianAnomalies [mailto:MullerianAnomalies ] On Behalf Of Shyamalapriya Sent: Wednesday, February 01, 2006 3:56 PM To: MullerianAnomalies Subject: Hi All Dear All, I'm Priya. I joined this group yesterday, when I felt extremely dull and dejected. But, being in this group and reading the mails and seeing the support offered means a lot of me. It took away the loneliness that I was experiencing for about a week. Thank you all. I just tested positive for pregnancy about two weeks back and then had an episode of bleeding last week, for which I was admitted into the ER. During the US, they detected a possibility of a septate uterus, but its not sure though. I did not know that I had this condition before the ultrasound. Had another bleeding two days after that and had an US with a OB/GYN. He is saying that he is not seeing a regular yolk-sac and he wants to do another US next week. He did see something similar to a septum in the US. He did not talk much about it. when I asked questions about it, he did not give much information about it either. The uncertainity of things are driving me crazy and am so thankful that I found this group. Am having some spotting everyday and donno if thats ok. This is my first pregnancy. Fortunately, my husband is being very supportive and we are keeping our fingers crossed and praying. Am looking forward to the next US, when I can get some more information regarding my condition. As of now, I think I might have either a sepate or a bicornuate uterus. It gives me hope, reading the mails here, that one day I have a chance of holding my baby in my arms. Regards, Priya Share bookmarks: http://groups.yahoo.com/group/MullerianAnomalies/links/ Share files: http://groups.yahoo.com/group/MullerianAnomalies/files/ The Congenital Uterine Anomalies Home Page: http://www.wegrokit.com/uterineanomalies/ es/ The Congenital Uterine Anomalies Home Page: http://www.wegrokit.com/uterineanomalies/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Hi Priya, I just wanted to give you a virtual hug and some encouragement! I'm sure that the waiting for answers is really aggrivating. Do your best to relax & put your feet up. (don't do a heap of internet research!!) I had a successful pregnancy with a septum intact. I had it removed this past summer & I'm now fortunate to be pregnant with #2. Keep us posted and let us know how you are! There is hope! Hugs, , 35 SU - resected 6/28/05 PCOS, 1 working tube ds - 3/13/98 18w 6d w/#2 Hi All Dear All, I'm Priya. I joined this group yesterday, when I felt extremely dull and dejected. But, being in this group and reading the mails and seeing the support offered means a lot of me. It took away the loneliness that I was experiencing for about a week. Thank you all. I just tested positive for pregnancy about two weeks back and then had an episode of bleeding last week, for which I was admitted into the ER. During the US, they detected a possibility of a septate uterus, but its not sure though. I did not know that I had this condition before the ultrasound. Had another bleeding two days after that and had an US with a OB/GYN. He is saying that he is not seeing a regular yolk-sac and he wants to do another US next week. He did see something similar to a septum in the US. He did not talk much about it. when I asked questions about it, he did not give much information about it either. The uncertainity of things are driving me crazy and am so thankful that I found this group. Am having some spotting everyday and donno if thats ok. This is my first pregnancy. Fortunately, my husband is being very supportive and we are keeping our fingers crossed and praying. Am looking forward to the next US, when I can get some more information regarding my condition. As of now, I think I might have either a sepate or a bicornuate uterus. It gives me hope, reading the mails here, that one day I have a chance of holding my baby in my arms. Regards, Priya Share bookmarks: http://groups.yahoo.com/group/MullerianAnomalies/links/ Share files: http://groups.yahoo.com/group/MullerianAnomalies/files/ The Congenital Uterine Anomalies Home Page: http://www.wegrokit.com/uterineanomalies/ es/ The Congenital Uterine Anomalies Home Page: http://www.wegrokit.com/uterineanomalies/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2007 Report Share Posted April 18, 2007 Great news on the job . I'm sure Katelynn will adjust in time, everything is still quite new and I'm sure she just needs time to process everything. Hugs, Kennedy's Mom www.chargesyndrome.info > > Hi All, > > just a quick hello to let everybody know we are ok we are trying to > cope the best we can right now nathan is doing good no er visits or > hopsital stays katelynn is having trouble with this whole thing but im > trying to help her the best i can its hard to sit on the couch look at > the clock and know hes supposed to walk through the door and doesnt > come home im sure once the pain passes and we get into a new routine we > will be ok at least i hope so he hasnt been to see the kids since he > left im hoping hell come to see them soon ive popped in a couple times > to read emails good news I HAVE A JOB and i love it i work with my > sister transporting special needs kids and i can even bring nathan > along he loves it the way they interact is priceless he has fun well i > hope everyone has a good night ill pop in again soon > > mommy to {19 month old CHARGEr}& Katelynn{7 year old ADHD} > > > -- " It is far better to grasp the universe as it really is than to persist in delusion, however satisfying and reassuring. " --Carl Sagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 Sorry that we have not been around for a few days. We brought Elijah home this past Monday and we have been swamped with getting everything set up. He is doing fine but the lack of swallowing is still causing him some complications. I want to thank all of you for your kind words and support. We are going to make it I just know it. Thanks again, and Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 and , Congrats on Elijah comming home. I remember how hectic it was when we first brought home, we too had feeding issues but ours was from a cleft lip and pallate. Good luck and welcome to the family, Casey Mom to Dawn 28, Ken 17 and 15 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 Yes you WILL make it! Things were hectic for us when we got her home but SO MUCH BETTER than being in the hospital. She really seemed to take off once we got home developmentally. She was happy to be home, too! Kennedy's Mom www.chargesyndrome.info > > Sorry that we have not been around for a few days. We brought Elijah > home this past Monday and we have been swamped with getting everything > set up. He is doing fine but the lack of swallowing is still causing > him some complications. I want to thank all of you for your kind > words and support. We are going to make it I just know it. > > Thanks again, > and > > > -- " It is far better to grasp the universe as it really is than to persist in delusion, however satisfying and reassuring. " --Carl Sagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 you will get easier with this list coz we r all here for u an each other > > Yes you WILL make it! Things were hectic for us when we got her home but > SO > MUCH BETTER than being in the hospital. She really seemed to take off once > we got home developmentally. She was happy to be home, too! > > > Kennedy's Mom > www.chargesyndrome.info > > On 4/19/07, emorydawg1 emorydawg@... > > wrote: > > > > Sorry that we have not been around for a few days. We brought Elijah > > home this past Monday and we have been swamped with getting everything > > set up. He is doing fine but the lack of swallowing is still causing > > him some complications. I want to thank all of you for your kind > > words and support. We are going to make it I just know it. > > > > Thanks again, > > and > > > > > > > > -- > " It is far better to grasp the universe as it really is than to persist in > delusion, however satisfying and reassuring. " --Carl Sagan > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2007 Report Share Posted April 19, 2007 and , So happy to hear of Elijah coming home. Remember to stop every so often and just breath deeply. Drink him in with your eyes and hearts. mom to 31 > > and , > > Congrats on Elijah comming home. I remember how hectic it was when we first brought home, we too had feeding issues but ours was from a cleft lip and pallate. > > Good luck and welcome to the family, > > Casey > Mom to Dawn 28, Ken 17 and 15 > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 I remember how overwhelming it was to finally have Vinny home after 3+ months in the NICU. We had medical equipment everywhere! Most stressful to us was his medication schedule. He was on 9 different meds (many for his heart) and was also on IV antibiotics at that time. Once we acknowledged the fact that we were completely frazzled, overwhelmed, and at the same time delighted to have Vinny home, we wrote out a schedule for what needed to be done and when. I actually set a timer to remind myself of med times. It worked... for the most part! Over time, the craziness settles and you'll be able to get into a new routine. While it was probably not the routine you had ever imagined or planned, you'll figure it out and begin your new life with precious Elijah. -ina, mom to Luca (an almost 4 year old who never stops moving) and Vinny (an almost 2 year old with cHARgE who is beginning to catch up with his big brother!) and wife to --- emorydawg1 emorydawg@...> wrote: > Sorry that we have not been around for a few days. > We brought Elijah > home this past Monday and we have been swamped with > getting everything > set up. He is doing fine but the lack of swallowing > is still causing > him some complications. I want to thank all of you > for your kind > words and support. We are going to make it I just > know it. > > Thanks again, > and > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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