Re: Jalia Camryn is now with God

[Guest guest]

Im so sorry to hear about your loss i will pray that you and your family get

through this

mommy to {19 month old CHARGEr}

Lia williamsquadx4@...> wrote:

My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

old. I don't post that much, but I do read most posts. I have

learned so much from all of the wonderful people here. Jalia was

hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

She was very sick and was on the ventalator for 13 days. She finally

made a turn around and we were able to come home with just a little

oxygen(.2 hardly anything) until her lungs were back to almost 100%.

Well on Wednesday Aril 18th, exactly one week since she cam ehome

from the hosiptla. she stopped breathing. She was very congested

that morning, and I was going to call the doctor at 9am when he got

in. She was sleeping so I went in the bathroom,to brush my teeth and

ect. I came back about 3-5 min8tes later. I looked over at her and

she just didn't look right. I ran to her adn she wasn't breathing.

I picked her up and she was floppy like a rag doll. I started to pat

her back as I dialed 911. The police arrived about 3 minuted later

and proceeded to give her oxygen. They were trying to get her

breathing again. Once we reached the hospital she still was not

breathing. The finally got her heart beating, 45 minutes after she

stopped breathing. My baby was dead for 45 minutes. They gave her

4x the normal amount of medication to get her going. As youall

probably know how much brain damage and organ damaage can happen when

your body doesn't have oxygen for 45 minutes. They put her on a

ventilator at 100? oxygen, but her saturation levels stayed in the

80's, so they kept bagging her. They wanted to put her on the

occilator, but her blood pressure was too low. They gave her lasix

to get her to pee, but her kidneys had shut down. I was waiting on a

sign from her or God to help me make a decision. She never once

regained conciousness. They let me hold her while she was on the

venilator. We decided that whatever her body was going to do, we

would just accept it. It would be selfish of us to let her suffer. I

held her in my arms for about 15 minutes before her heart stopped

beating. I am so lost and confused. I feel like I can't go on, but

I have my 2 year old son Jadon that needs me. But I still feel so

empty. I miss my little girl who always made me smile and laugh. I

guess God had a plan and a lesson, but I just don't know what it is.

I want my baby back. I would give my life, if I could have her here

and to take all her pain.

I just wanted to vent my feelings to people who could understand.

Please send virtual hugs this way, or a hug in person would be nice(

wishful thinking). I just finished making arrangements. I can still

see and smell her in the nursery. Her favorite bouncer is now

empty. her windchimes are silent. Thanks

Lia

Mommy to Jalia Camryn 2/21/06-4/18/2007

I MISS YOU MUNCHKIN!!!!!!!!!!!

Jadon 3/9/05

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

[Guest guest]

I'm so sorry to hear about your loss. I asked to join this group so that I

could better understand CHARGE because I work with a student who has it. Again,

my thoughts are with you and your family.

Re: Jalia Camryn is now with God

Im so sorry to hear about your loss i will pray that you and your family get

through this

mommy to {19 month old CHARGEr}

Lia williamsquadx4@...> wrote:

My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

old. I don't post that much, but I do read most posts. I have

learned so much from all of the wonderful people here. Jalia was

hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

She was very sick and was on the ventalator for 13 days. She finally

made a turn around and we were able to come home with just a little

oxygen(.2 hardly anything) until her lungs were back to almost 100%.

Well on Wednesday Aril 18th, exactly one week since she cam ehome

from the hosiptla. she stopped breathing. She was very congested

that morning, and I was going to call the doctor at 9am when he got

in. She was sleeping so I went in the bathroom,to brush my teeth and

ect. I came back about 3-5 min8tes later. I looked over at her and

she just didn't look right. I ran to her adn she wasn't breathing.

I picked her up and she was floppy like a rag doll. I started to pat

her back as I dialed 911. The police arrived about 3 minuted later

and proceeded to give her oxygen. They were trying to get her

breathing again. Once we reached the hospital she still was not

breathing. The finally got her heart beating, 45 minutes after she

stopped breathing. My baby was dead for 45 minutes. They gave her

4x the normal amount of medication to get her going. As youall

probably know how much brain damage and organ damaage can happen when

your body doesn't have oxygen for 45 minutes. They put her on a

ventilator at 100? oxygen, but her saturation levels stayed in the

80's, so they kept bagging her. They wanted to put her on the

occilator, but her blood pressure was too low. They gave her lasix

to get her to pee, but her kidneys had shut down. I was waiting on a

sign from her or God to help me make a decision. She never once

regained conciousness. They let me hold her while she was on the

venilator. We decided that whatever her body was going to do, we

would just accept it. It would be selfish of us to let her suffer. I

held her in my arms for about 15 minutes before her heart stopped

beating. I am so lost and confused. I feel like I can't go on, but

I have my 2 year old son Jadon that needs me. But I still feel so

empty. I miss my little girl who always made me smile and laugh. I

guess God had a plan and a lesson, but I just don't know what it is.

I want my baby back. I would give my life, if I could have her here

and to take all her pain.

I just wanted to vent my feelings to people who could understand.

Please send virtual hugs this way, or a hug in person would be nice(

wishful thinking). I just finished making arrangements. I can still

see and smell her in the nursery. Her favorite bouncer is now

empty. her windchimes are silent. Thanks

Lia

Mommy to Jalia Camryn 2/21/06-4/18/2007

I MISS YOU MUNCHKIN!!!!!!!!!!!

Jadon 3/9/05

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

[Guest guest]

Im very sorry to hear of your loss.

Chantelle

--

I have 4 eyes, 4 ears, a guide cat and a cat that speaks mouse! - me

[Guest guest]

Oh Lia-

I am simply heartbroken. You have written a powerful and beautiful account fo

the events and your heart. It is beautiful. You are beautiful. Your love and

your open heart are beautiful. You so completely surrendered yourself into the

moment for your baby girl - with love and faith - and gave her everything.

Events like this break my human heart, and I simply don't understand. Yet I

know it is in God's time, and I so clearly see God and his love through you and

as you and through and as your children.

Thank you so much for sharing this with us. I am deeply honored and moved

simply to have read it. Please know that you are in my heart, my hopes and my

prayers - and that in your story I see how the One Spirit from which we were

given life cradles His beloved at all times.

Be whole. Amidst the grief and sorrow also have joy and peace - of memories, of

now and of tomorrow-

So much love to you and yours-

Yuka

Jalia Camryn is now with God

My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

old. I don't post that much, but I do read most posts. I have

learned so much from all of the wonderful people here. Jalia was

hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

She was very sick and was on the ventalator for 13 days. She finally

made a turn around and we were able to come home with just a little

oxygen(.2 hardly anything) until her lungs were back to almost 100%.

Well on Wednesday Aril 18th, exactly one week since she cam ehome

from the hosiptla. she stopped breathing. She was very congested

that morning, and I was going to call the doctor at 9am when he got

in. She was sleeping so I went in the bathroom,to brush my teeth and

ect. I came back about 3-5 min8tes later. I looked over at her and

she just didn't look right. I ran to her adn she wasn't breathing.

I picked her up and she was floppy like a rag doll. I started to pat

her back as I dialed 911. The police arrived about 3 minuted later

and proceeded to give her oxygen. They were trying to get her

breathing again. Once we reached the hospital she still was not

breathing. The finally got her heart beating, 45 minutes after she

stopped breathing. My baby was dead for 45 minutes. They gave her

4x the normal amount of medication to get her going. As youall

probably know how much brain damage and organ damaage can happen when

your body doesn't have oxygen for 45 minutes. They put her on a

ventilator at 100? oxygen, but her saturation levels stayed in the

80's, so they kept bagging her. They wanted to put her on the

occilator, but her blood pressure was too low. They gave her lasix

to get her to pee, but her kidneys had shut down. I was waiting on a

sign from her or God to help me make a decision. She never once

regained conciousness. They let me hold her while she was on the

venilator. We decided that whatever her body was going to do, we

would just accept it. It would be selfish of us to let her suffer. I

held her in my arms for about 15 minutes before her heart stopped

beating. I am so lost and confused. I feel like I can't go on, but

I have my 2 year old son Jadon that needs me. But I still feel so

empty. I miss my little girl who always made me smile and laugh. I

guess God had a plan and a lesson, but I just don't know what it is.

I want my baby back. I would give my life, if I could have her here

and to take all her pain.

I just wanted to vent my feelings to people who could understand.

Please send virtual hugs this way, or a hug in person would be nice(

wishful thinking). I just finished making arrangements. I can still

see and smell her in the nursery. Her favorite bouncer is now

empty. her windchimes are silent. Thanks

Lia

Mommy to Jalia Camryn 2/21/06-4/18/2007

I MISS YOU MUNCHKIN!!!!!!!!!!!

Jadon 3/9/05

------------------------------------------------------------------------------

No virus found in this incoming message.

Checked by AVG Free Edition.

Version: 7.5.446 / Virus Database: 269.5.5/769 - Release Date: 4/19/07 5:56 PM

[Guest guest]

I am so sorry. I hope you can find peace soon. My heart breaks for you.

Lori Myers

Jalia Camryn is now with God

My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

old. I don't post that much, but I do read most posts. I have

learned so much from all of the wonderful people here. Jalia was

hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

She was very sick and was on the ventalator for 13 days. She finally

made a turn around and we were able to come home with just a little

oxygen(.2 hardly anything) until her lungs were back to almost 100%.

Well on Wednesday Aril 18th, exactly one week since she cam ehome

from the hosiptla. she stopped breathing. She was very congested

that morning, and I was going to call the doctor at 9am when he got

in. She was sleeping so I went in the bathroom,to brush my teeth and

ect. I came back about 3-5 min8tes later. I looked over at her and

she just didn't look right. I ran to her adn she wasn't breathing.

I picked her up and she was floppy like a rag doll. I started to pat

her back as I dialed 911. The police arrived about 3 minuted later

and proceeded to give her oxygen. They were trying to get her

breathing again. Once we reached the hospital she still was not

breathing. The finally got her heart beating, 45 minutes after she

stopped breathing. My baby was dead for 45 minutes. They gave her

4x the normal amount of medication to get her going. As youall

probably know how much brain damage and organ damaage can happen when

your body doesn't have oxygen for 45 minutes. They put her on a

ventilator at 100? oxygen, but her saturation levels stayed in the

80's, so they kept bagging her. They wanted to put her on the

occilator, but her blood pressure was too low. They gave her lasix

to get her to pee, but her kidneys had shut down. I was waiting on a

sign from her or God to help me make a decision. She never once

regained conciousness. They let me hold her while she was on the

venilator. We decided that whatever her body was going to do, we

would just accept it. It would be selfish of us to let her suffer. I

held her in my arms for about 15 minutes before her heart stopped

beating. I am so lost and confused. I feel like I can't go on, but

I have my 2 year old son Jadon that needs me. But I still feel so

empty. I miss my little girl who always made me smile and laugh. I

guess God had a plan and a lesson, but I just don't know what it is.

I want my baby back. I would give my life, if I could have her here

and to take all her pain.

I just wanted to vent my feelings to people who could understand.

Please send virtual hugs this way, or a hug in person would be nice(

wishful thinking). I just finished making arrangements. I can still

see and smell her in the nursery. Her favorite bouncer is now

empty. her windchimes are silent. Thanks

Lia

Mommy to Jalia Camryn 2/21/06-4/18/2007

I MISS YOU MUNCHKIN!!!!!!!!!!!

Jadon 3/9/05

[Guest guest]

wow but must of been for better coz she could of been like another charger

that was on here and been in distress both r with the angels thangs god for

that nosuffering that hus to you and to ur family love u heaps lellen

>

> I am so sorry. I hope you can find peace soon. My heart breaks for you.

>

> Lori Myers

>

> Jalia Camryn is now with God

>

> My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

> old. I don't post that much, but I do read most posts. I have

> learned so much from all of the wonderful people here. Jalia was

> hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

> She was very sick and was on the ventalator for 13 days. She finally

> made a turn around and we were able to come home with just a little

> oxygen(.2 hardly anything) until her lungs were back to almost 100%.

> Well on Wednesday Aril 18th, exactly one week since she cam ehome

> from the hosiptla. she stopped breathing. She was very congested

> that morning, and I was going to call the doctor at 9am when he got

> in. She was sleeping so I went in the bathroom,to brush my teeth and

> ect. I came back about 3-5 min8tes later. I looked over at her and

> she just didn't look right. I ran to her adn she wasn't breathing.

> I picked her up and she was floppy like a rag doll. I started to pat

> her back as I dialed 911. The police arrived about 3 minuted later

> and proceeded to give her oxygen. They were trying to get her

> breathing again. Once we reached the hospital she still was not

> breathing. The finally got her heart beating, 45 minutes after she

> stopped breathing. My baby was dead for 45 minutes. They gave her

> 4x the normal amount of medication to get her going. As youall

> probably know how much brain damage and organ damaage can happen when

> your body doesn't have oxygen for 45 minutes. They put her on a

> ventilator at 100? oxygen, but her saturation levels stayed in the

> 80's, so they kept bagging her. They wanted to put her on the

> occilator, but her blood pressure was too low. They gave her lasix

> to get her to pee, but her kidneys had shut down. I was waiting on a

> sign from her or God to help me make a decision. She never once

> regained conciousness. They let me hold her while she was on the

> venilator. We decided that whatever her body was going to do, we

> would just accept it. It would be selfish of us to let her suffer. I

> held her in my arms for about 15 minutes before her heart stopped

> beating. I am so lost and confused. I feel like I can't go on, but

> I have my 2 year old son Jadon that needs me. But I still feel so

> empty. I miss my little girl who always made me smile and laugh. I

> guess God had a plan and a lesson, but I just don't know what it is.

> I want my baby back. I would give my life, if I could have her here

> and to take all her pain.

>

> I just wanted to vent my feelings to people who could understand.

> Please send virtual hugs this way, or a hug in person would be nice(

> wishful thinking). I just finished making arrangements. I can still

> see and smell her in the nursery. Her favorite bouncer is now

> empty. her windchimes are silent. Thanks

>

> Lia

> Mommy to Jalia Camryn 2/21/06-4/18/2007

> I MISS YOU MUNCHKIN!!!!!!!!!!!

> Jadon 3/9/05

>

>

[Guest guest]

As a parent of a 15 month old charger, I can only say how sorry I am to

hear this news, other words fail me at the moment.

I hope you find the strength to carry on and the realisation that you

did your best for Jalia while she was living with you " down here "

My thoughts are with you and your family.

Ian - Cai's Dad

[Guest guest]

Dear Lia,

I am so sorry for your loss. As a CHARGE parent you had the gift of your

daughter for only a short while. Your faith will get you through.

Kathy, Mom to 21 and 19 (CHARGE)

Lia williamsquadx4@...> wrote:

My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

old. I don't post that much, but I do read most posts. I have

learned so much from all of the wonderful people here. Jalia was

hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

She was very sick and was on the ventalator for 13 days. She finally

made a turn around and we were able to come home with just a little

oxygen(.2 hardly anything) until her lungs were back to almost 100%.

Well on Wednesday Aril 18th, exactly one week since she cam ehome

from the hosiptla. she stopped breathing. She was very congested

that morning, and I was going to call the doctor at 9am when he got

in. She was sleeping so I went in the bathroom,to brush my teeth and

ect. I came back about 3-5 min8tes later. I looked over at her and

she just didn't look right. I ran to her adn she wasn't breathing.

I picked her up and she was floppy like a rag doll. I started to pat

her back as I dialed 911. The police arrived about 3 minuted later

and proceeded to give her oxygen. They were trying to get her

breathing again. Once we reached the hospital she still was not

breathing. The finally got her heart beating, 45 minutes after she

stopped breathing. My baby was dead for 45 minutes. They gave her

4x the normal amount of medication to get her going. As youall

probably know how much brain damage and organ damaage can happen when

your body doesn't have oxygen for 45 minutes. They put her on a

ventilator at 100? oxygen, but her saturation levels stayed in the

80's, so they kept bagging her. They wanted to put her on the

occilator, but her blood pressure was too low. They gave her lasix

to get her to pee, but her kidneys had shut down. I was waiting on a

sign from her or God to help me make a decision. She never once

regained conciousness. They let me hold her while she was on the

venilator. We decided that whatever her body was going to do, we

would just accept it. It would be selfish of us to let her suffer. I

held her in my arms for about 15 minutes before her heart stopped

beating. I am so lost and confused. I feel like I can't go on, but

I have my 2 year old son Jadon that needs me. But I still feel so

empty. I miss my little girl who always made me smile and laugh. I

guess God had a plan and a lesson, but I just don't know what it is.

I want my baby back. I would give my life, if I could have her here

and to take all her pain.

I just wanted to vent my feelings to people who could understand.

Please send virtual hugs this way, or a hug in person would be nice(

wishful thinking). I just finished making arrangements. I can still

see and smell her in the nursery. Her favorite bouncer is now

empty. her windchimes are silent. Thanks

Lia

Mommy to Jalia Camryn 2/21/06-4/18/2007

I MISS YOU MUNCHKIN!!!!!!!!!!!

Jadon 3/9/05

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

[Guest guest]

Lia,

I am so sorry to hear about Jalia. I can't imagine the heartbreak you are

going through right now after having had that little special sweetheart in

your life for 13 months. Wishing you much love and strength,

& the rest of the Weir family, New Brunswick, Canada

(Kennedy's Mom)

www.chargesyndrome.info

>

> My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

> old. I don't post that much, but I do read most posts. I have

> learned so much from all of the wonderful people here. Jalia was

> hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

> She was very sick and was on the ventalator for 13 days. She finally

> made a turn around and we were able to come home with just a little

> oxygen(.2 hardly anything) until her lungs were back to almost 100%.

> Well on Wednesday Aril 18th, exactly one week since she cam ehome

> from the hosiptla. she stopped breathing. She was very congested

> that morning, and I was going to call the doctor at 9am when he got

> in. She was sleeping so I went in the bathroom,to brush my teeth and

> ect. I came back about 3-5 min8tes later. I looked over at her and

> she just didn't look right. I ran to her adn she wasn't breathing.

> I picked her up and she was floppy like a rag doll. I started to pat

> her back as I dialed 911. The police arrived about 3 minuted later

> and proceeded to give her oxygen. They were trying to get her

> breathing again. Once we reached the hospital she still was not

> breathing. The finally got her heart beating, 45 minutes after she

> stopped breathing. My baby was dead for 45 minutes. They gave her

> 4x the normal amount of medication to get her going. As youall

> probably know how much brain damage and organ damaage can happen when

> your body doesn't have oxygen for 45 minutes. They put her on a

> ventilator at 100? oxygen, but her saturation levels stayed in the

> 80's, so they kept bagging her. They wanted to put her on the

> occilator, but her blood pressure was too low. They gave her lasix

> to get her to pee, but her kidneys had shut down. I was waiting on a

> sign from her or God to help me make a decision. She never once

> regained conciousness. They let me hold her while she was on the

> venilator. We decided that whatever her body was going to do, we

> would just accept it. It would be selfish of us to let her suffer. I

> held her in my arms for about 15 minutes before her heart stopped

> beating. I am so lost and confused. I feel like I can't go on, but

> I have my 2 year old son Jadon that needs me. But I still feel so

> empty. I miss my little girl who always made me smile and laugh. I

> guess God had a plan and a lesson, but I just don't know what it is.

> I want my baby back. I would give my life, if I could have her here

> and to take all her pain.

>

> I just wanted to vent my feelings to people who could understand.

> Please send virtual hugs this way, or a hug in person would be nice(

> wishful thinking). I just finished making arrangements. I can still

> see and smell her in the nursery. Her favorite bouncer is now

> empty. her windchimes are silent. Thanks

>

> Lia

> Mommy to Jalia Camryn 2/21/06-4/18/2007

> I MISS YOU MUNCHKIN!!!!!!!!!!!

> Jadon 3/9/05

>

>

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

[Guest guest]

Lia--

I feel you pain and wish there was some way to ease it. Your family

will be in our prayers.

Joanne

[Guest guest]

I am so sorry to hear about your loss. I can not imagine what you are going

through. Please know that I am sending you a virtual hug and lots of prayers.

~

Mom of Jack (7mo. CHARGEr)

Jalia Camryn is now with God

My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

old. I don't post that much, but I do read most posts. I have

learned so much from all of the wonderful people here. Jalia was

hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

She was very sick and was on the ventalator for 13 days. She finally

made a turn around and we were able to come home with just a little

oxygen(.2 hardly anything) until her lungs were back to almost 100%.

Well on Wednesday Aril 18th, exactly one week since she cam ehome

from the hosiptla. she stopped breathing. She was very congested

that morning, and I was going to call the doctor at 9am when he got

in. She was sleeping so I went in the bathroom,to brush my teeth and

ect. I came back about 3-5 min8tes later. I looked over at her and

she just didn't look right. I ran to her adn she wasn't breathing.

I picked her up and she was floppy like a rag doll. I started to pat

her back as I dialed 911. The police arrived about 3 minuted later

and proceeded to give her oxygen. They were trying to get her

breathing again. Once we reached the hospital she still was not

breathing. The finally got her heart beating, 45 minutes after she

stopped breathing. My baby was dead for 45 minutes. They gave her

4x the normal amount of medication to get her going. As youall

probably know how much brain damage and organ damaage can happen when

your body doesn't have oxygen for 45 minutes. They put her on a

ventilator at 100? oxygen, but her saturation levels stayed in the

80's, so they kept bagging her. They wanted to put her on the

occilator, but her blood pressure was too low. They gave her lasix

to get her to pee, but her kidneys had shut down. I was waiting on a

sign from her or God to help me make a decision. She never once

regained conciousness. They let me hold her while she was on the

venilator. We decided that whatever her body was going to do, we

would just accept it. It would be selfish of us to let her suffer. I

held her in my arms for about 15 minutes before her heart stopped

beating. I am so lost and confused. I feel like I can't go on, but

I have my 2 year old son Jadon that needs me. But I still feel so

empty. I miss my little girl who always made me smile and laugh. I

guess God had a plan and a lesson, but I just don't know what it is.

I want my baby back. I would give my life, if I could have her here

and to take all her pain.

I just wanted to vent my feelings to people who could understand.

Please send virtual hugs this way, or a hug in person would be nice(

wishful thinking). I just finished making arrangements. I can still

see and smell her in the nursery. Her favorite bouncer is now

empty. her windchimes are silent. Thanks

Lia

Mommy to Jalia Camryn 2/21/06-4/18/ 2007

I MISS YOU MUNCHKIN!!!! !!!!!!!

Jadon 3/9/05

__________________________________________________

[Guest guest]

DEAR LIA,

My thoughts are solely with you and your family... How brave and unselfish

of you on the day of her passing. I remember talking with you when you joined

the group. Jalia is an angel now. God bless you, Lia. I am so very sorry for

the loss of your daughter.

chrystal mom

chrystine hope-18 months old CHaRGE+chronic kidney disease

arleigh-4

and silas-6 months

************************************** See what's free at http://www.aol.com.

[Guest guest]

Lia, I am so sorry for your loss, i can not find the words to help yo, but

know that you are in our prayers.

Cathie, mom to

************************************** See what's free at http://www.aol.com.

[Guest guest]

Lia, I am so sorry to hear about Jalia. May your memories of her bring you

peace and comfort. Take time for yourself and allow yourself to grieve. Know

that your precious angel is watching over you now. God bless, and lots of hugs

coming your way.

, mom to (5)

http://kauffmanlak.blogspot.com/

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

[Guest guest]

Lia,

We are very sorry to hear about your loss. We send our deepest sympathy to

you and your family.

The Mataskers

Jalia Camryn is now with God

My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

old. I don't post that much, but I do read most posts. I have

learned so much from all of the wonderful people here. Jalia was

hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

She was very sick and was on the ventalator for 13 days. She finally

made a turn around and we were able to come home with just a little

oxygen(.2 hardly anything) until her lungs were back to almost 100%.

Well on Wednesday Aril 18th, exactly one week since she cam ehome

from the hosiptla. she stopped breathing. She was very congested

that morning, and I was going to call the doctor at 9am when he got

in. She was sleeping so I went in the bathroom,to brush my teeth and

ect. I came back about 3-5 min8tes later. I looked over at her and

she just didn't look right. I ran to her adn she wasn't breathing.

I picked her up and she was floppy like a rag doll. I started to pat

her back as I dialed 911. The police arrived about 3 minuted later

and proceeded to give her oxygen. They were trying to get her

breathing again. Once we reached the hospital she still was not

breathing. The finally got her heart beating, 45 minutes after she

stopped breathing. My baby was dead for 45 minutes. They gave her

4x the normal amount of medication to get her going. As youall

probably know how much brain damage and organ damaage can happen when

your body doesn't have oxygen for 45 minutes. They put her on a

ventilator at 100? oxygen, but her saturation levels stayed in the

80's, so they kept bagging her. They wanted to put her on the

occilator, but her blood pressure was too low. They gave her lasix

to get her to pee, but her kidneys had shut down. I was waiting on a

sign from her or God to help me make a decision. She never once

regained conciousness. They let me hold her while she was on the

venilator. We decided that whatever her body was going to do, we

would just accept it. It would be selfish of us to let her suffer. I

held her in my arms for about 15 minutes before her heart stopped

beating. I am so lost and confused. I feel like I can't go on, but

I have my 2 year old son Jadon that needs me. But I still feel so

empty. I miss my little girl who always made me smile and laugh. I

guess God had a plan and a lesson, but I just don't know what it is.

I want my baby back. I would give my life, if I could have her here

and to take all her pain.

I just wanted to vent my feelings to people who could understand.

Please send virtual hugs this way, or a hug in person would be nice(

wishful thinking). I just finished making arrangements. I can still

see and smell her in the nursery. Her favorite bouncer is now

empty. her windchimes are silent. Thanks

Lia

Mommy to Jalia Camryn 2/21/06-4/18/2007

I MISS YOU MUNCHKIN!!!!!!!!!!!

Jadon 3/9/05

[Guest guest]

Lia I am so sorry for your loss and my heart hurts for you. I am

here in tears as I read your story. As most of my family knows all

CHARGErs are in my heart and I feel like they are my own, when I

hear something like this my heart hurts.

My thoughts and prayers are with you and your family,

Crystal mom to (11), (4), and Eva (2 year old CHARGEr)

wife to Dan in Illinios

>

> My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

> old. I don't post that much, but I do read most posts. I have

> learned so much from all of the wonderful people here. Jalia was

> hospitalized from March 19, 2007-Aril 11, 2007 for RSV and

Pnemonia.

> She was very sick and was on the ventalator for 13 days. She

finally

> made a turn around and we were able to come home with just a

little

> oxygen(.2 hardly anything) until her lungs were back to almost

100%.

> Well on Wednesday Aril 18th, exactly one week since she cam ehome

> from the hosiptla. she stopped breathing. She was very congested

> that morning, and I was going to call the doctor at 9am when he

got

> in. She was sleeping so I went in the bathroom,to brush my teeth

and

> ect. I came back about 3-5 min8tes later. I looked over at her

and

> she just didn't look right. I ran to her adn she wasn't

breathing.

> I picked her up and she was floppy like a rag doll. I started to

pat

> her back as I dialed 911. The police arrived about 3 minuted

later

> and proceeded to give her oxygen. They were trying to get her

> breathing again. Once we reached the hospital she still was not

> breathing. The finally got her heart beating, 45 minutes after

she

> stopped breathing. My baby was dead for 45 minutes. They gave

her

> 4x the normal amount of medication to get her going. As youall

> probably know how much brain damage and organ damaage can happen

when

> your body doesn't have oxygen for 45 minutes. They put her on a

> ventilator at 100? oxygen, but her saturation levels stayed in the

> 80's, so they kept bagging her. They wanted to put her on the

> occilator, but her blood pressure was too low. They gave her

lasix

> to get her to pee, but her kidneys had shut down. I was waiting

on a

> sign from her or God to help me make a decision. She never once

> regained conciousness. They let me hold her while she was on the

> venilator. We decided that whatever her body was going to do, we

> would just accept it. It would be selfish of us to let her

suffer. I

> held her in my arms for about 15 minutes before her heart stopped

> beating. I am so lost and confused. I feel like I can't go on,

but

> I have my 2 year old son Jadon that needs me. But I still feel so

> empty. I miss my little girl who always made me smile and laugh. I

> guess God had a plan and a lesson, but I just don't know what it

is.

> I want my baby back. I would give my life, if I could have her

here

> and to take all her pain.

>

> I just wanted to vent my feelings to people who could understand.

> Please send virtual hugs this way, or a hug in person would be nice

(

> wishful thinking). I just finished making arrangements. I can

still

> see and smell her in the nursery. Her favorite bouncer is now

> empty. her windchimes are silent. Thanks

>

> Lia

> Mommy to Jalia Camryn 2/21/06-4/18/2007

> I MISS YOU MUNCHKIN!!!!!!!!!!!

> Jadon 3/9/05

>

[Guest guest]

Lia

Tragic and very painful to read, our prayers are with you and your family

Lesley Amelie and the Chan family x

>

> Lia I am so sorry for your loss and my heart hurts for you. I am

> here in tears as I read your story. As most of my family knows all

> CHARGErs are in my heart and I feel like they are my own, when I

> hear something like this my heart hurts.

> My thoughts and prayers are with you and your family,

> Crystal mom to (11), (4), and Eva (2 year old CHARGEr)

> wife to Dan in Illinios

>

>

> >

> > My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

> > old. I don't post that much, but I do read most posts. I have

> > learned so much from all of the wonderful people here. Jalia was

> > hospitalized from March 19, 2007-Aril 11, 2007 for RSV and

> Pnemonia.

> > She was very sick and was on the ventalator for 13 days. She

> finally

> > made a turn around and we were able to come home with just a

> little

> > oxygen(.2 hardly anything) until her lungs were back to almost

> 100%.

> > Well on Wednesday Aril 18th, exactly one week since she cam ehome

> > from the hosiptla. she stopped breathing. She was very congested

> > that morning, and I was going to call the doctor at 9am when he

> got

> > in. She was sleeping so I went in the bathroom,to brush my teeth

> and

> > ect. I came back about 3-5 min8tes later. I looked over at her

> and

> > she just didn't look right. I ran to her adn she wasn't

> breathing.

> > I picked her up and she was floppy like a rag doll. I started to

> pat

> > her back as I dialed 911. The police arrived about 3 minuted

> later

> > and proceeded to give her oxygen. They were trying to get her

> > breathing again. Once we reached the hospital she still was not

> > breathing. The finally got her heart beating, 45 minutes after

> she

> > stopped breathing. My baby was dead for 45 minutes. They gave

> her

> > 4x the normal amount of medication to get her going. As youall

> > probably know how much brain damage and organ damaage can happen

> when

> > your body doesn't have oxygen for 45 minutes. They put her on a

> > ventilator at 100? oxygen, but her saturation levels stayed in the

> > 80's, so they kept bagging her. They wanted to put her on the

> > occilator, but her blood pressure was too low. They gave her

> lasix

> > to get her to pee, but her kidneys had shut down. I was waiting

> on a

> > sign from her or God to help me make a decision. She never once

> > regained conciousness. They let me hold her while she was on the

> > venilator. We decided that whatever her body was going to do, we

> > would just accept it. It would be selfish of us to let her

> suffer. I

> > held her in my arms for about 15 minutes before her heart stopped

> > beating. I am so lost and confused. I feel like I can't go on,

> but

> > I have my 2 year old son Jadon that needs me. But I still feel so

> > empty. I miss my little girl who always made me smile and laugh. I

> > guess God had a plan and a lesson, but I just don't know what it

> is.

> > I want my baby back. I would give my life, if I could have her

> here

> > and to take all her pain.

> >

> > I just wanted to vent my feelings to people who could understand.

> > Please send virtual hugs this way, or a hug in person would be nice

> (

> > wishful thinking). I just finished making arrangements. I can

> still

> > see and smell her in the nursery. Her favorite bouncer is now

> > empty. her windchimes are silent. Thanks

> >

> > Lia

> > Mommy to Jalia Camryn 2/21/06-4/18/2007

> > I MISS YOU MUNCHKIN!!!!!!!!!!!

> > Jadon 3/9/05

> >

>

>

>

[Guest guest]

>Im the gran of a 16month old little with charge though i might not be

her mom i could not love her any more than if she was my own and the

story of your precouse little girl breaks my heart please know that im

thinking of all your family at this moment in time my prays are with

you all.loads of hugs to

[Guest guest]

Lia,

I'm sorry to hear your loss. Michele S

Jalia Camryn is now with God

My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

old. I don't post that much, but I do read most posts. I have

learned so much from all of the wonderful people here. Jalia was

hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

She was very sick and was on the ventalator for 13 days. She finally

made a turn around and we were able to come home with just a little

oxygen(.2 hardly anything) until her lungs were back to almost 100%.

Well on Wednesday Aril 18th, exactly one week since she cam ehome

from the hosiptla. she stopped breathing. She was very congested

that morning, and I was going to call the doctor at 9am when he got

in. She was sleeping so I went in the bathroom,to brush my teeth and

ect. I came back about 3-5 min8tes later. I looked over at her and

she just didn't look right. I ran to her adn she wasn't breathing.

I picked her up and she was floppy like a rag doll. I started to pat

her back as I dialed 911. The police arrived about 3 minuted later

and proceeded to give her oxygen. They were trying to get her

breathing again. Once we reached the hospital she still was not

breathing. The finally got her heart beating, 45 minutes after she

stopped breathing. My baby was dead for 45 minutes. They gave her

4x the normal amount of medication to get her going. As youall

probably know how much brain damage and organ damaage can happen when

your body doesn't have oxygen for 45 minutes. They put her on a

ventilator at 100? oxygen, but her saturation levels stayed in the

80's, so they kept bagging her. They wanted to put her on the

occilator, but her blood pressure was too low. They gave her lasix

to get her to pee, but her kidneys had shut down. I was waiting on a

sign from her or God to help me make a decision. She never once

regained conciousness. They let me hold her while she was on the

venilator. We decided that whatever her body was going to do, we

would just accept it. It would be selfish of us to let her suffer. I

held her in my arms for about 15 minutes before her heart stopped

beating. I am so lost and confused. I feel like I can't go on, but

I have my 2 year old son Jadon that needs me. But I still feel so

empty. I miss my little girl who always made me smile and laugh. I

guess God had a plan and a lesson, but I just don't know what it is.

I want my baby back. I would give my life, if I could have her here

and to take all her pain.

I just wanted to vent my feelings to people who could understand.

Please send virtual hugs this way, or a hug in person would be nice(

wishful thinking). I just finished making arrangements. I can still

see and smell her in the nursery. Her favorite bouncer is now

empty. her windchimes are silent. Thanks

Lia

Mommy to Jalia Camryn 2/21/06-4/18/2007

I MISS YOU MUNCHKIN!!!!!!!!!!!

Jadon 3/9/05

[Guest guest]

Lia,

We are praying,praying,praying for you. Know that you did all that you could

for her. We will pray for peace for you.

God Bless You,

Corrie Young

>

> My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

> old. I don't post that much, but I do read most posts. I have

> learned so much from all of the wonderful people here. Jalia was

> hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

> She was very sick and was on the ventalator for 13 days. She finally

> made a turn around and we were able to come home with just a little

> oxygen(.2 hardly anything) until her lungs were back to almost 100%.

> Well on Wednesday Aril 18th, exactly one week since she cam ehome

> from the hosiptla. she stopped breathing. She was very congested

> that morning, and I was going to call the doctor at 9am when he got

> in. She was sleeping so I went in the bathroom,to brush my teeth and

> ect. I came back about 3-5 min8tes later. I looked over at her and

> she just didn't look right. I ran to her adn she wasn't breathing.

> I picked her up and she was floppy like a rag doll. I started to pat

> her back as I dialed 911. The police arrived about 3 minuted later

> and proceeded to give her oxygen. They were trying to get her

> breathing again. Once we reached the hospital she still was not

> breathing. The finally got her heart beating, 45 minutes after she

> stopped breathing. My baby was dead for 45 minutes. They gave her

> 4x the normal amount of medication to get her going. As youall

> probably know how much brain damage and organ damaage can happen when

> your body doesn't have oxygen for 45 minutes. They put her on a

> ventilator at 100? oxygen, but her saturation levels stayed in the

> 80's, so they kept bagging her. They wanted to put her on the

> occilator, but her blood pressure was too low. They gave her lasix

> to get her to pee, but her kidneys had shut down. I was waiting on a

> sign from her or God to help me make a decision. She never once

> regained conciousness. They let me hold her while she was on the

> venilator. We decided that whatever her body was going to do, we

> would just accept it. It would be selfish of us to let her suffer. I

> held her in my arms for about 15 minutes before her heart stopped

> beating. I am so lost and confused. I feel like I can't go on, but

> I have my 2 year old son Jadon that needs me. But I still feel so

> empty. I miss my little girl who always made me smile and laugh. I

> guess God had a plan and a lesson, but I just don't know what it is.

> I want my baby back. I would give my life, if I could have her here

> and to take all her pain.

>

> I just wanted to vent my feelings to people who could understand.

> Please send virtual hugs this way, or a hug in person would be nice(

> wishful thinking). I just finished making arrangements. I can still

> see and smell her in the nursery. Her favorite bouncer is now

> empty. her windchimes are silent. Thanks

>

> Lia

> Mommy to Jalia Camryn 2/21/06-4/18/2007

> I MISS YOU MUNCHKIN!!!!!!!!!!!

> Jadon 3/9/05

>

>

>

[Guest guest]

Lia,

I am so sorry for your loss. I can only imagine how hard it is to lose your

daughter. Jalia was a strong little fighter, and I know her spirit will live in

your heart forever. Our family's thoughts are with you.

Hugs during a difficult time,

(mom to Evan, 21 months)

Lia williamsquadx4@...> wrote:

My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

old. I don't post that much, but I do read most posts. I have

learned so much from all of the wonderful people here. Jalia was

hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

She was very sick and was on the ventalator for 13 days. She finally

made a turn around and we were able to come home with just a little

oxygen(.2 hardly anything) until her lungs were back to almost 100%.

Well on Wednesday Aril 18th, exactly one week since she cam ehome

from the hosiptla. she stopped breathing. She was very congested

that morning, and I was going to call the doctor at 9am when he got

in. She was sleeping so I went in the bathroom,to brush my teeth and

ect. I came back about 3-5 min8tes later. I looked over at her and

she just didn't look right. I ran to her adn she wasn't breathing.

I picked her up and she was floppy like a rag doll. I started to pat

her back as I dialed 911. The police arrived about 3 minuted later

and proceeded to give her oxygen. They were trying to get her

breathing again. Once we reached the hospital she still was not

breathing. The finally got her heart beating, 45 minutes after she

stopped breathing. My baby was dead for 45 minutes. They gave her

4x the normal amount of medication to get her going. As youall

probably know how much brain damage and organ damaage can happen when

your body doesn't have oxygen for 45 minutes. They put her on a

ventilator at 100? oxygen, but her saturation levels stayed in the

80's, so they kept bagging her. They wanted to put her on the

occilator, but her blood pressure was too low. They gave her lasix

to get her to pee, but her kidneys had shut down. I was waiting on a

sign from her or God to help me make a decision. She never once

regained conciousness. They let me hold her while she was on the

venilator. We decided that whatever her body was going to do, we

would just accept it. It would be selfish of us to let her suffer. I

held her in my arms for about 15 minutes before her heart stopped

beating. I am so lost and confused. I feel like I can't go on, but

I have my 2 year old son Jadon that needs me. But I still feel so

empty. I miss my little girl who always made me smile and laugh. I

guess God had a plan and a lesson, but I just don't know what it is.

I want my baby back. I would give my life, if I could have her here

and to take all her pain.

I just wanted to vent my feelings to people who could understand.

Please send virtual hugs this way, or a hug in person would be nice(

wishful thinking). I just finished making arrangements. I can still

see and smell her in the nursery. Her favorite bouncer is now

empty. her windchimes are silent. Thanks

Lia

Mommy to Jalia Camryn 2/21/06-4/18/2007

I MISS YOU MUNCHKIN!!!!!!!!!!!

Jadon 3/9/05

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

[Guest guest]

Lia,

I am so sorry for your loss. I can only imagine how difficult it is to deal

with her death. Jalia was a strong little fighter--I know that spirit will live

on in your heart forever. Our familiy's thoughts are with you.

Hugs during a difficult time,

(mom to Evan, 21 months)

Lia williamsquadx4@...> wrote:

My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

old. I don't post that much, but I do read most posts. I have

learned so much from all of the wonderful people here. Jalia was

hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

She was very sick and was on the ventalator for 13 days. She finally

made a turn around and we were able to come home with just a little

oxygen(.2 hardly anything) until her lungs were back to almost 100%.

Well on Wednesday Aril 18th, exactly one week since she cam ehome

from the hosiptla. she stopped breathing. She was very congested

that morning, and I was going to call the doctor at 9am when he got

in. She was sleeping so I went in the bathroom,to brush my teeth and

ect. I came back about 3-5 min8tes later. I looked over at her and

she just didn't look right. I ran to her adn she wasn't breathing.

I picked her up and she was floppy like a rag doll. I started to pat

her back as I dialed 911. The police arrived about 3 minuted later

and proceeded to give her oxygen. They were trying to get her

breathing again. Once we reached the hospital she still was not

breathing. The finally got her heart beating, 45 minutes after she

stopped breathing. My baby was dead for 45 minutes. They gave her

4x the normal amount of medication to get her going. As youall

probably know how much brain damage and organ damaage can happen when

your body doesn't have oxygen for 45 minutes. They put her on a

ventilator at 100? oxygen, but her saturation levels stayed in the

80's, so they kept bagging her. They wanted to put her on the

occilator, but her blood pressure was too low. They gave her lasix

to get her to pee, but her kidneys had shut down. I was waiting on a

sign from her or God to help me make a decision. She never once

regained conciousness. They let me hold her while she was on the

venilator. We decided that whatever her body was going to do, we

would just accept it. It would be selfish of us to let her suffer. I

held her in my arms for about 15 minutes before her heart stopped

beating. I am so lost and confused. I feel like I can't go on, but

I have my 2 year old son Jadon that needs me. But I still feel so

empty. I miss my little girl who always made me smile and laugh. I

guess God had a plan and a lesson, but I just don't know what it is.

I want my baby back. I would give my life, if I could have her here

and to take all her pain.

I just wanted to vent my feelings to people who could understand.

Please send virtual hugs this way, or a hug in person would be nice(

wishful thinking). I just finished making arrangements. I can still

see and smell her in the nursery. Her favorite bouncer is now

empty. her windchimes are silent. Thanks

Lia

Mommy to Jalia Camryn 2/21/06-4/18/2007

I MISS YOU MUNCHKIN!!!!!!!!!!!

Jadon 3/9/05

---------------------------------

Ahhh...imagining that irresistible " new car " smell?

Check outnew cars at Yahoo! Autos.

[Guest guest]

Lia-

I remember your occasional posts. Thank you for sharing so openly. My

heart breaks for your family and for Jalia. I know you can't imagine how

you will continue, but, of course, you will. I know that I am thankful

every day for my older son who forced us to maintain some kind of " normalcy "

and sanity in the crazy early years with CHARGE. Jadon will help you

manage. On those days when you want to hide and escape, you'll force

yourself to move forward for him. And you will always want to share the

best memories of Jalia with him.

When our kids are born and we have to figure out how to manage all the

stress of CHARGE, we think we can't do it. The only way to get through is

one day at a time full of faith. You've done that for 13 months. I know

this tragedy is incomparable to the initial diagnosis, but you can use the

same strategy to get through. Just know you will. Trust that God will get

you through and then be open to the ways your healing will unfold.

Bless you. My hugs are coming your way. My thoughts will be with you

always. Jalia will be enveloping you and your family with her love too.

Always.

Michele W

Aubrie's mom 9 yrs

[Guest guest]

Lia,

We are sending you many hugs and much love. May you find the strength and

courage to smile and remember the beautiful moments you shared with Jalia.

The Murray family

,Jay, and

Re: Jalia Camryn is now with God

Lia,

I am so sorry to hear about Jalia. I can't imagine the heartbreak you are

going through right now after having had that little special sweetheart in

your life for 13 months. Wishing you much love and strength,

& the rest of the Weir family, New Brunswick, Canada

(Kennedy's Mom)

www.chargesyndrome.info

>

> My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

> old. I don't post that much, but I do read most posts. I have

> learned so much from all of the wonderful people here. Jalia was

> hospitalized from March 19, 2007-Aril 11, 2007 for RSV and Pnemonia.

> She was very sick and was on the ventalator for 13 days. She finally

> made a turn around and we were able to come home with just a little

> oxygen(.2 hardly anything) until her lungs were back to almost 100%.

> Well on Wednesday Aril 18th, exactly one week since she cam ehome

> from the hosiptla. she stopped breathing. She was very congested

> that morning, and I was going to call the doctor at 9am when he got

> in. She was sleeping so I went in the bathroom,to brush my teeth and

> ect. I came back about 3-5 min8tes later. I looked over at her and

> she just didn't look right. I ran to her adn she wasn't breathing.

> I picked her up and she was floppy like a rag doll. I started to pat

> her back as I dialed 911. The police arrived about 3 minuted later

> and proceeded to give her oxygen. They were trying to get her

> breathing again. Once we reached the hospital she still was not

> breathing. The finally got her heart beating, 45 minutes after she

> stopped breathing. My baby was dead for 45 minutes. They gave her

> 4x the normal amount of medication to get her going. As youall

> probably know how much brain damage and organ damaage can happen when

> your body doesn't have oxygen for 45 minutes. They put her on a

> ventilator at 100? oxygen, but her saturation levels stayed in the

> 80's, so they kept bagging her. They wanted to put her on the

> occilator, but her blood pressure was too low. They gave her lasix

> to get her to pee, but her kidneys had shut down. I was waiting on a

> sign from her or God to help me make a decision. She never once

> regained conciousness. They let me hold her while she was on the

> venilator. We decided that whatever her body was going to do, we

> would just accept it. It would be selfish of us to let her suffer. I

> held her in my arms for about 15 minutes before her heart stopped

> beating. I am so lost and confused. I feel like I can't go on, but

> I have my 2 year old son Jadon that needs me. But I still feel so

> empty. I miss my little girl who always made me smile and laugh. I

> guess God had a plan and a lesson, but I just don't know what it is.

> I want my baby back. I would give my life, if I could have her here

> and to take all her pain.

>

> I just wanted to vent my feelings to people who could understand.

> Please send virtual hugs this way, or a hug in person would be nice(

> wishful thinking). I just finished making arrangements. I can still

> see and smell her in the nursery. Her favorite bouncer is now

> empty. her windchimes are silent. Thanks

>

> Lia

> Mommy to Jalia Camryn 2/21/06-4/18/2007

> I MISS YOU MUNCHKIN!!!!!!!!!!!

> Jadon 3/9/05

>

>

>

--

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

[Guest guest]

Dear Lia,

My heart is with you. Jalia was a gift given from God. Only his

most special Angels come and touch lives like your precious Jalia

did. I shed my tears beside you in thoughts and prayers. As CHARGE

moms we will forever hold Jalia and others who have been lost to us

in a special place in our hearts.

mom to 31

>

> My name is Lia and I am the proud mother of Jalia CHaRgE 13 months

> old. I don't post that much, but I do read most posts. I have

> learned so much from all of the wonderful people here. Jalia was

> hospitalized from March 19, 2007-Aril 11, 2007 for RSV and

Pnemonia.

> She was very sick and was on the ventalator for 13 days. She

finally

> made a turn around and we were able to come home with just a little

> oxygen(.2 hardly anything) until her lungs were back to almost

100%.

> Well on Wednesday Aril 18th, exactly one week since she cam ehome

> from the hosiptla. she stopped breathing. She was very congested

> that morning, and I was going to call the doctor at 9am when he got

> in. She was sleeping so I went in the bathroom,to brush my teeth

and

> ect. I came back about 3-5 min8tes later. I looked over at her

and

> she just didn't look right. I ran to her adn she wasn't

breathing.

> I picked her up and she was floppy like a rag doll. I started to

pat

> her back as I dialed 911. The police arrived about 3 minuted later

> and proceeded to give her oxygen. They were trying to get her

> breathing again. Once we reached the hospital she still was not

> breathing. The finally got her heart beating, 45 minutes after she

> stopped breathing. My baby was dead for 45 minutes. They gave her

> 4x the normal amount of medication to get her going. As youall

> probably know how much brain damage and organ damaage can happen

when

> your body doesn't have oxygen for 45 minutes. They put her on a

> ventilator at 100? oxygen, but her saturation levels stayed in the

> 80's, so they kept bagging her. They wanted to put her on the

> occilator, but her blood pressure was too low. They gave her lasix

> to get her to pee, but her kidneys had shut down. I was waiting on

a

> sign from her or God to help me make a decision. She never once

> regained conciousness. They let me hold her while she was on the

> venilator. We decided that whatever her body was going to do, we

> would just accept it. It would be selfish of us to let her suffer.

I

> held her in my arms for about 15 minutes before her heart stopped

> beating. I am so lost and confused. I feel like I can't go on,

but

> I have my 2 year old son Jadon that needs me. But I still feel so

> empty. I miss my little girl who always made me smile and laugh. I

> guess God had a plan and a lesson, but I just don't know what it

is.

> I want my baby back. I would give my life, if I could have her

here

> and to take all her pain.

>

> I just wanted to vent my feelings to people who could understand.

> Please send virtual hugs this way, or a hug in person would be nice

(

> wishful thinking). I just finished making arrangements. I can

still

> see and smell her in the nursery. Her favorite bouncer is now

> empty. her windchimes are silent. Thanks

>

> Lia

> Mommy to Jalia Camryn 2/21/06-4/18/2007

> I MISS YOU MUNCHKIN!!!!!!!!!!!

> Jadon 3/9/05

>