Guest guest Posted April 22, 2007 Report Share Posted April 22, 2007 Yay to Aubrie for doing so well. First thought that came to mind-your Mom! Could she stay at your home while you have to travel? I'm going to be cliche here. I've heard there's supposed to be enough energy for the moment in every moment, if we can just stay in it. You know when the day comes to walk in it-you will, and you'll do it well. So, maybe you can find some rest in that assurance, for now. -- Let us know when mouth mold time approaches. They may offer some distraction, like a tv. And can she breath well through her nose? Maybe it will be a different procedure from the one I had done which took about 7 minutes, but could have seemed much longer had I not meditated through it. -- Does Aubrie have a PT who could call some orthotics places about an overnight stabilizer? Or ask around for ideas? (call in the backup troops). Sending restful vibrations, in Ma. ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 HI , Congratulations on the BAHA! I remember being surprised at what it looked like. Is there a mending cap that will have to be removed when healed? I to did not realize it would take 3 months to heal. Never thought to ask those questions. Hope all goes well! Cathie, mom to ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 - Thanks for all the suggestions. When time comes for the mouth mold, we'll figure it out. As we will everything else. I'm in the place of dealing with one thing at a time - quite literally. That's my usual MO, but sometimes I can think ahead a bit. Not right now. Here's a funny. I have a chalkboard for writing my to do's on in the kitchen. There's been a heart drawn on there for ages but I couldn't recall what for. Turns out, Aubrie was due for a heart check about 6 months ago. Oh well. It's not a crisis cuz she's doing exceptionally well there. Just something to add to the summer appts. Michele W _____ From: CHARGE [mailto:CHARGE ] On Behalf Of mdlinda@... Sent: Sunday, April 22, 2007 10:10 PM To: CHARGE Subject: Re: Aubrie's BAHA Yay to Aubrie for doing so well. First thought that came to mind-your Mom! Could she stay at your home while you have to travel? I'm going to be cliche here. I've heard there's supposed to be enough energy for the moment in every moment, if we can just stay in it. You know when the day comes to walk in it-you will, and you'll do it well. So, maybe you can find some rest in that assurance, for now. -- Let us know when mouth mold time approaches. They may offer some distraction, like a tv. And can she breath well through her nose? Maybe it will be a different procedure from the one I had done which took about 7 minutes, but could have seemed much longer had I not meditated through it. -- Does Aubrie have a PT who could call some orthotics places about an overnight stabilizer? Or ask around for ideas? (call in the backup troops). Sending restful vibrations, in Ma. ************************************** See what's free at http://www.aol. http://www.aol.com.> com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 The first week or two the site is the nastiest; once the healing cap comes off, it gets better. It's pretty gross, I agree. I hope she does well with it. We had to send K's Divino in again for repair (I'm not happy with the digital BAHA - I think they need to work on the bugs...the Classic we had before that seems MUCH more reliable). It will be great for Kennedy to see another friend with a BAHA at the conference. Hope everything works out for the best, good to hear from you. > > Hi- > > I've been barely keeping up with everyone lately. Just really busy here. > Aubrie had her BAHA implant put in on Thursday. She's such a trooper! She > did great. The site looks good. I think everything's going just fine. I > didn't realize how nasty the site would look. Almost looks like he carved > a > small chunk out of her skull. Maybe it won't look like that when it's > healed. I also didn't know that we would have to wait at least 3 months to > begin using the BAHA. Argh. I was hoping for 6 weeks. Oh well. > > Also had a dental cleaning on Friday. She threw up all the way home - I > think just from the trauma of the cleaning. We've been waiting for her > molars to come in enough to put on metal bands to hold a speech prosthesis > - > palatal lift. They are finally in. Not such good news for me cuz I'm > feeling overwhelmed lately with the hip problems at night and the BAHA. I > was feeling so bad for having to add another apparatus to her arsenal. The > prosthesis will be difficult to adjust to because you have to get over the > initial gag reflex when wearing it. Not to mention the trauma of sitting > still for the bands to be put on her teeth. Then having a mold taken of > your mouth. Lots of visits back and forth to the prosthedontist who is 2+ > hrs away. So I was debating if it was worth it. Her speech has been > improving with her increased hearing. I asked her what she thought. Oh - > it is a problem that most people can't understand her speech so she wants > to > go for it. Gotta love that kid. I mean, I'm worn out at the thought of it > and it's not even happening to me! > > What I have to figure out is how to accommodate all of these appointments > with working and keeping attention to her brother. He won't want to join > us > on all these dr visits over the summer but I won't want to leave him home > alone all the time either. Could be a struggle to balance everything. Wish > me luck. Right now, I'm not feeling much confidence as a mom. > > Prayers to all the families needing it - and to those who are doing fine - > let's hope we all do as fine as possible every step of the way! > > Michele W > Aubrie's mom > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 - I know Aubrie will be glad to see a friend with it too! The one she has now - loaner - has been great. I wonder which model it is. I'm guessing Classic since it's probably 2 yrs old or so. Luckily, she can hear fairly well without any amplification so it won't be critically bad when it's malfunctioning - but the point is to have it working. Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Cathie- Yes, there is a cap. We take it off for cleaning daily. I don't know how long until it stays off. We go back on Friday (one week post-op) so we'll find out the next steps then. I think that is when the cap comes off and we begin the regular cleaning routine. Michele W _____ From: CHARGE [mailto:CHARGE ] On Behalf Of NPTQueenie@... Sent: Monday, April 23, 2007 7:59 AM To: CHARGE Subject: Re: Aubrie's BAHA HI , Congratulations on the BAHA! I remember being surprised at what it looked like. Is there a mending cap that will have to be removed when healed? I to did not realize it would take 3 months to heal. Never thought to ask those questions. Hope all goes well! Cathie, mom to Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 , Glad everything went well. I thought you know it was about 4 months for the ossilation period. Sorry you were disappointed, but it is worth the wait. You can talk right into the sight, (I know it sounds crazy), and she should be able to hear you. needs me to talk in a very low voice when I do it. We obviously don't rely on that, but it's a goof that he can hear something. He thinks it's funny. I remember seeing the dent in the skull and sort of freaking out, like, what did I do, but now it's just " normal " . Debbie RE: Aubrie's BAHA - I know Aubrie will be glad to see a friend with it too! The one she has now - loaner - has been great. I wonder which model it is. I'm guessing Classic since it's probably 2 yrs old or so. Luckily, she can hear fairly well without any amplification so it won't be critically bad when it's malfunctioning - but the point is to have it working. Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 hope things settle a little and the appts. won't be too much and you figure out a plan for andrew too. maria Aubrie's BAHA Hi- I've been barely keeping up with everyone lately. Just really busy here. Aubrie had her BAHA implant put in on Thursday. She's such a trooper! She did great. The site looks good. I think everything's going just fine. I didn't realize how nasty the site would look. Almost looks like he carved a small chunk out of her skull. Maybe it won't look like that when it's healed. I also didn't know that we would have to wait at least 3 months to begin using the BAHA. Argh. I was hoping for 6 weeks. Oh well. Also had a dental cleaning on Friday. She threw up all the way home - I think just from the trauma of the cleaning. We've been waiting for her molars to come in enough to put on metal bands to hold a speech prosthesis - palatal lift. They are finally in. Not such good news for me cuz I'm feeling overwhelmed lately with the hip problems at night and the BAHA. I was feeling so bad for having to add another apparatus to her arsenal. The prosthesis will be difficult to adjust to because you have to get over the initial gag reflex when wearing it. Not to mention the trauma of sitting still for the bands to be put on her teeth. Then having a mold taken of your mouth. Lots of visits back and forth to the prosthedontist who is 2+ hrs away. So I was debating if it was worth it. Her speech has been improving with her increased hearing. I asked her what she thought. Oh - it is a problem that most people can't understand her speech so she wants to go for it. Gotta love that kid. I mean, I'm worn out at the thought of it and it's not even happening to me! What I have to figure out is how to accommodate all of these appointments with working and keeping attention to her brother. He won't want to join us on all these dr visits over the summer but I won't want to leave him home alone all the time either. Could be a struggle to balance everything. Wish me luck. Right now, I'm not feeling much confidence as a mom. Prayers to all the families needing it - and to those who are doing fine - let's hope we all do as fine as possible every step of the way! Michele W Aubrie's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Debbie- Thanks for the encouraging words. I hope Aubrie loves the thing once it's usable. Were you able to use the softband while the site healed? Michele W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Michele, we used the softband while it healed. He said not for the first week or so but after that, we did. > > Debbie- > > Thanks for the encouraging words. I hope Aubrie loves the thing once it's > usable. Were you able to use the softband while the site healed? > > Michele W > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 - Thanks. It seemed like we could use it once the site is no longer sensitive. We also have the BTE aids we can use. I had forgotten about them til just about an hour ago :-) Michele _____ From: CHARGE [mailto:CHARGE ] On Behalf Of Weir Sent: Monday, April 23, 2007 12:57 PM To: CHARGE Subject: Re: Aubrie's BAHA Michele, we used the softband while it healed. He said not for the first week or so but after that, we did. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 wow u r busy my comps been stuffed since bout fri and i miss everyone here and now im at my programs checking lol love u all > > - > > Thanks. It seemed like we could use it once the site is no longer > sensitive. We also have the BTE aids we can use. I had forgotten about > them til just about an hour ago :-) > > Michele > > _____ > > From: CHARGE [mailto: > CHARGE ] On Behalf Of > Weir > Sent: Monday, April 23, 2007 12:57 PM > To: CHARGE > Subject: Re: Aubrie's BAHA > > Michele, we used the softband while it healed. He said not for the first > week or so but after that, we did. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 and dont worry bout forgetting the heart thing my mum forgot my zymeta infusion two weeks ago and no one rang us to remind us thi swas made a year ago we rang up to confirm thinking wa this week they said u missed it but i am going same day as endo next tues will let u all know how that goes > > wow u r busy my comps been stuffed since bout fri and i miss everyone > here and now im at my programs checking lol love u all > > > > > > - > > > > Thanks. It seemed like we could use it once the site is no longer > > sensitive. We also have the BTE aids we can use. I had forgotten about > > them til just about an hour ago :-) > > > > Michele > > > > _____ > > > > From: CHARGE [mailto:CHARGE ] > > On Behalf Of > > Weir > > Sent: Monday, April 23, 2007 12:57 PM > > To: CHARGE > > Subject: Re: Aubrie's BAHA > > > > Michele, we used the softband while it healed. He said not for the first > > week or so but after that, we did. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Michele, You have so many things going on. It might seem hard to put Aubrie through all that but I know she will thank you when she is an adult. If she isn't complaining then don't worry so much. (Easy advice to give, hard to take!) I am looking forward to hearing more about her BAHA. About the sibling thing. I am sure you are doing what is right for both your children. Again, don't worry too much. You can only do what you can do. Love goes a long way in life. Best wishes! Bonnie, Mom to Kris 24, Patty CHARGE 22 and wife to ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
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