Guest guest Posted April 21, 2007 Report Share Posted April 21, 2007 Yes, my son Zak has both, a G-tube button on his left and a J-tube button on his right. We use the J-button for drip feedings all night long and the G-button for his water and medications. Having 2 buttons is a blessing as now he no longer vomits his formula up and when we bolus his meds and water down the G side, they are absorbed immediately. Talk to your pediatric surgeon about both, I'm so glad I did. Debra Trynton & Zakarya's mother ************************************** See what's free at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2007 Report Share Posted April 21, 2007 Hi everyone. We are having alot of problems with my daughters G/J tube (she has both and its pretty much a makeshift apparatus). They have suggested we consider a permanent J tube. Anyone have any experiences with J tubes, temp or perm? Thanks for the feedback. - M. mother to Anabelle, 16 months Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2007 Report Share Posted April 21, 2007 I echo what Debra is saying, we have a j tube in via the gastrostomy site, and yes its a annoying that each time they pop you need a radiograph to pass the new one, which means we can no longer do this ourselves, but like Zak we are now waiting for surgery this summer to do a separate J mickey for night time pump feeds and keep the gastrostomy for venting and meds. Amelie has stayed out of hospital all winter thanks to J feeding its the best thing we ever did, I dont think her team ever expected her to stay home and its been a year!! good luck Lesley mum to Amelie > > Yes, my son Zak has both, a G-tube button on his left and a J-tube > button on > his right. We use the J-button for drip feedings all night long and the > G-button for his water and medications. Having 2 buttons is a blessing as > now > he no longer vomits his formula up and when we bolus his meds and water > down > the G side, they are absorbed immediately. > > Talk to your pediatric surgeon about both, I'm so glad I did. > > Debra > Trynton & Zakarya's mother > > ************************************** See what's free at > http://www.aol.com. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Thank you so much for the feedback. We are going to talk to her surgeon next week about this option. Wanted to ask though, what is the age of your children? Did any of them have the fundoplication (not sure how its spelled) done? and is there any movement towards attempting to feed by stomach or mouth in the near future once the perm one is in? We have started giving Anabelle some feeds in her G & were told if we do the perm J we won't be feeding at all by G or mouth. We also recognize that she needs to stop having all these interruptions with her feeds because her slow weight gain is an issue (11.5 pounds, unrepaired TOF). These decisions are so difficult to make and I appreciate everyone sharing their story. - M. mother to Anabelle, 16 months. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 u mite not b at all but at first look at me im 21 had a jtube and now ive got bak gtube and am eating bits by mouth NEVER give up > > Thank you so much for the feedback. We are going to talk to her > surgeon next week about this option. Wanted to ask though, what is the > age of your children? Did any of them have the fundoplication (not > sure how its spelled) done? and is there any movement towards > attempting to feed by stomach or mouth in the near future once the > perm one is in? We have started giving Anabelle some feeds in her G & > were told if we do the perm J we won't be feeding at all by G or > mouth. We also recognize that she needs to stop having all these > interruptions with her feeds because her slow weight gain is an issue > (11.5 pounds, unrepaired TOF). These decisions are so difficult to > make and I appreciate everyone sharing their story. > - M. > mother to Anabelle, 16 months. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 Thanks for the encouragement. Doctors make things seem so hopeless sometimes. - M. > > > > Thank you so much for the feedback. We are going to talk to her > > surgeon next week about this option. Wanted to ask though, what is the > > age of your children? Did any of them have the fundoplication (not > > sure how its spelled) done? and is there any movement towards > > attempting to feed by stomach or mouth in the near future once the > > perm one is in? We have started giving Anabelle some feeds in her G & > > were told if we do the perm J we won't be feeding at all by G or > > mouth. We also recognize that she needs to stop having all these > > interruptions with her feeds because her slow weight gain is an issue > > (11.5 pounds, unrepaired TOF). These decisions are so difficult to > > make and I appreciate everyone sharing their story. > > - M. > > mother to Anabelle, 16 months. > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 lol do they evder sometimes i think they like to tell us wat could happen > > Thanks for the encouragement. Doctors make things seem so hopeless > sometimes. > - M. > > > > > > > > > Thank you so much for the feedback. We are going to talk to her > > > surgeon next week about this option. Wanted to ask though, what > is the > > > age of your children? Did any of them have the fundoplication > (not > > > sure how its spelled) done? and is there any movement towards > > > attempting to feed by stomach or mouth in the near future once > the > > > perm one is in? We have started giving Anabelle some feeds in > her G & > > > were told if we do the perm J we won't be feeding at all by G or > > > mouth. We also recognize that she needs to stop having all these > > > interruptions with her feeds because her slow weight gain is an > issue > > > (11.5 pounds, unrepaired TOF). These decisions are so difficult > to > > > make and I appreciate everyone sharing their story. > > > - M. > > > mother to Anabelle, 16 months. > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2007 Report Share Posted April 23, 2007 -Hi, my name is and my daughter's name is Alissa. Alissa is 24 monthes and is currently G-Tube fed although she was jtube fed when she was 9 monthes old. She has never had a fundoplication. ( There are no gueguarantees with fundoplications... if thats the route you take make sure you got a top notch surgeon.Its a pretty extensive surgery). For us... the J tube was my saving grace.... Alissa was vomiting and refluxing soo much that I was soo scared of her aspirating I couldn't watch anymore... Those were the most difficult times for me. Once she got her J tube in...no more vomiting! Yepee!! We still continued to feed her thich puree's by mouth but it was tricky cause she was on the pump for 19 hours of the day so she was never hungry but we never gave up. |Then miraculously ... she passed a feeding study... and outgrew her vomiting within 3 three monthes which is highly unusual (at least thats what the doctors told us). She still could not have water by mouth so I begged the docs to put the gtube back in so we could give her bolus water feeds so I wouldn't have to keep her on a pump for hours just for the water. I know some people did not want to get a jtube for there children because they didn't want there child on a pump all day.. but for me... I could n't bare to see her refluxing soo much and with Alissa's high risk of aspiration I felt that she would have gotten an pneomia and that would have been it. I hope this helps. ..-- In CHARGE , " mami122006 " wrote: > > Thank you so much for the feedback. We are going to talk to her > surgeon next week about this option. Wanted to ask though, what is the > age of your children? Did any of them have the fundoplication (not > sure how its spelled) done? and is there any movement towards > attempting to feed by stomach or mouth in the near future once the > perm one is in? We have started giving Anabelle some feeds in her G & > were told if we do the perm J we won't be feeding at all by G or > mouth. We also recognize that she needs to stop having all these > interruptions with her feeds because her slow weight gain is an issue > (11.5 pounds, unrepaired TOF). These decisions are so difficult to > make and I appreciate everyone sharing their story. > - M. > mother to Anabelle, 16 months. > Quote Link to comment Share on other sites More sharing options...
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