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Aubrie's BAHA

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Hi-

I've been barely keeping up with everyone lately. Just really busy here.

Aubrie had her BAHA implant put in on Thursday. She's such a trooper! She

did great. The site looks good. I think everything's going just fine. I

didn't realize how nasty the site would look. Almost looks like he carved a

small chunk out of her skull. Maybe it won't look like that when it's

healed. I also didn't know that we would have to wait at least 3 months to

begin using the BAHA. Argh. I was hoping for 6 weeks. Oh well.

Also had a dental cleaning on Friday. She threw up all the way home - I

think just from the trauma of the cleaning. We've been waiting for her

molars to come in enough to put on metal bands to hold a speech prosthesis -

palatal lift. They are finally in. Not such good news for me cuz I'm

feeling overwhelmed lately with the hip problems at night and the BAHA. I

was feeling so bad for having to add another apparatus to her arsenal. The

prosthesis will be difficult to adjust to because you have to get over the

initial gag reflex when wearing it. Not to mention the trauma of sitting

still for the bands to be put on her teeth. Then having a mold taken of

your mouth. Lots of visits back and forth to the prosthedontist who is 2+

hrs away. So I was debating if it was worth it. Her speech has been

improving with her increased hearing. I asked her what she thought. Oh -

it is a problem that most people can't understand her speech so she wants to

go for it. Gotta love that kid. I mean, I'm worn out at the thought of it

and it's not even happening to me!

What I have to figure out is how to accommodate all of these appointments

with working and keeping attention to her brother. He won't want to join us

on all these dr visits over the summer but I won't want to leave him home

alone all the time either. Could be a struggle to balance everything. Wish

me luck. Right now, I'm not feeling much confidence as a mom.

Prayers to all the families needing it - and to those who are doing fine -

let's hope we all do as fine as possible every step of the way!

Michele W

Aubrie's mom

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