a rough week

May 14, 2007

,

Wow, what a week ahead. I wish you the best for the craniofacial

appointment.

As for the in laws, it might seem like forever but keep remembering, it's

only for a few days, it's only for a few days. Whatever you do don't let them

see your irritation. People like that usually find joy knowing they upset

you. Just smile, say yes, sure, and that sort of thing and go on. If you can

change subjects go ahead. If you cant you can just sit calmly and think-

jerk, jerk, jerk.

You know, the fact that they're coming might mean they really are interested

to connect with and about Jack. They might have the desire but just don't

know how. People are afraid of what they don't know. Once they see you and

your family they'll learn and hopefully get better.

You know, not forgiving people only hurts you. I struggle with forgiveness

myself- some more than others. But I was shown you must forgive to lighten

your own heart but that doesn't mean you have to forget. Remembering helps

avoid hurtful times and leads to new paths ahead. So, try to forgive them and

their selfish ignorance. But don't ever forget. Hey, they must have done

something great if they raised your husband to be who he is.

Wishing you all the best. Have fun shopping. You deserve some quiet ME

time.

Bonnie, Mom to Kris 24, Patty CHARGE 22, and wife to

************************************** See what's free at http://www.aol.com.

May 14, 2007

This week is going to be a rough one. Today I had to take Jack to the Dr.

because his secretions increased and he developed a cough. The dr. said his

lungs were clear and that we just needed to keep up on the suctioning. We also

started him on benadryl in case the secretions are caused by springtime

allergies. We'll just have to see if it helps.

We have a sleep study tomorrow night. I am worried that his secretion situation

is going to affect the results. Hopefully we'll have it under control by

tomorrow night.

Then, we have our first appointment with the craniofacial team wednesday

morning. We are seeing 7 different specialists in one appt. I'm really nervous

about it because I don't know what to expect. With all of his other specialists

I knew what was wrong and how it needed to be fixed. With this I'm not sure

what they are planning to do to fix everything. I guess I'll find out soon.

Thursday my in-laws are coming. I just can't come to a place where I'm ok with

it. When Jack was first born they drove out here to tell us that we needed to

" let go and start over " . They said that " we didn't need to deal with this " .

I've tried really hard to forgive them but I can't. I don't think I ever will.

I know I'm being selfish but I don't want them to hold him. I've been trying to

think of every possible excuse for them not to come. Philip's mom is not bad,

it is really his dad. He is a horrible person. 2 weeks ago Philip's mom's cat

died. She was devistated. Philip's brother then gave her a beautiful kitten

for her birthday. This man gave her the silence treatment all day and then had

a fake allergy attack and made her get rid of it. He does little things like

that to keep her from being happy all the time. I don't know how my husband

turned out so normal.

Luckily I have my book club Thursday night (which I won't be rushing home from)

and then we got in on a cancellation with a new pulmonologist on Friday in

Rochester. I've decided that after the appt. Jack and I are going to go to the

mall up there and then to the outlets that are on the way home. I have to find

a dress for my brother's wedding in 2 weeks and I need to find some summer

clothes for Jack since we are going to be spending 10 days in the sweltering

heat of Houston. I'm sure you don't know this but Ithaca just got a wal-mart 3

years ago so the places to buy clothes are very limited. We have to drive an

hour and a half to either Syracuse or Rochester to find good shopping. So since

I'm going to be up there I might as well get my shopping done too. I think I'll

take my time.....

I just can't wait until Monday when it is all over.

~

Mom of Jack (7mo. CHARGEr)

________________________________________________________________________________\

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FareChase.

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May 14, 2007

AManda,

Good luck with your rough week ahead.

What I can say about your feelings...I have had those before re: family

members on my husband's side. They were very rude about Bradley and said

some hurtful things. I didnt have it in me to forgive two of them but that

is water under the bridge. IN fact, one of his aunts still says such

outlandishly thoughtless things and doesnt appear to know that what she is

saying is pure craziness... But now that Bradley is 16 and doing well, I

just think she is a sad, sad creature. ANyway, focus on what it is you have

to do for your wonderful child and please know that many of us have and

still do go through these things with some family members.

There are many members who are supportive and loving and I focus on that.

Again, good luck to you.

PS BTW..my parents are both from upstate NY and I was born there. They

were from Rochester and Sodus, NY. My cousins still live around there. But

I have lived in Michigan since I was 1 year old so I am basically a

MIchiganian (Detroiter)... Cindy, mother of Bradley (charge) and Steph and

wife of Tom

>

>Reply-To: CHARGE

>To: Charge Group CHARGE >

>Subject: a rough week

>Date: Mon, 14 May 2007 15:36:37 -0700 (PDT)

>

>This week is going to be a rough one. Today I had to take Jack to the Dr.

>because his secretions increased and he developed a cough. The dr. said

>his lungs were clear and that we just needed to keep up on the suctioning.

>We also started him on benadryl in case the secretions are caused by

>springtime allergies. We'll just have to see if it helps.

>

>We have a sleep study tomorrow night. I am worried that his secretion

>situation is going to affect the results. Hopefully we'll have it under

>control by tomorrow night.

>

>Then, we have our first appointment with the craniofacial team wednesday

>morning. We are seeing 7 different specialists in one appt. I'm really

>nervous about it because I don't know what to expect. With all of his

>other specialists I knew what was wrong and how it needed to be fixed.

>With this I'm not sure what they are planning to do to fix everything. I

>guess I'll find out soon.

>

>Thursday my in-laws are coming. I just can't come to a place where I'm ok

>with it. When Jack was first born they drove out here to tell us that we

>needed to " let go and start over " . They said that " we didn't need to deal

>with this " . I've tried really hard to forgive them but I can't. I don't

>think I ever will. I know I'm being selfish but I don't want them to hold

>him. I've been trying to think of every possible excuse for them not to

>come. Philip's mom is not bad, it is really his dad. He is a horrible

>person. 2 weeks ago Philip's mom's cat died. She was devistated.

>Philip's brother then gave her a beautiful kitten for her birthday. This

>man gave her the silence treatment all day and then had a fake allergy

>attack and made her get rid of it. He does little things like that to keep

>her from being happy all the time. I don't know how my husband turned out

>so normal.

>

>Luckily I have my book club Thursday night (which I won't be rushing home

>from) and then we got in on a cancellation with a new pulmonologist on

>Friday in Rochester. I've decided that after the appt. Jack and I are

>going to go to the mall up there and then to the outlets that are on the

>way home. I have to find a dress for my brother's wedding in 2 weeks and I

>need to find some summer clothes for Jack since we are going to be spending

>10 days in the sweltering heat of Houston. I'm sure you don't know this

>but Ithaca just got a wal-mart 3 years ago so the places to buy clothes are

>very limited. We have to drive an hour and a half to either Syracuse or

>Rochester to find good shopping. So since I'm going to be up there I might

>as well get my shopping done too. I think I'll take my time.....

>

>I just can't wait until Monday when it is all over.

>

>~

>Mom of Jack (7mo. CHARGEr)

>

>_______________________________________________________________________________\

_____Looking

>for a deal? Find great prices on flights and hotels with Yahoo! FareChase.

>http://farechase.yahoo.com/

>

May 14, 2007

,

you are so infinitely more gracious than most people would be given what you

have (and will) go through. You know what is right--you will teach Jack

kindness and tolerance and that beauty is part of all of us. One can only hope,

then, his grandparents will learn these lessons from your lovely son.

Good luck and know we are all with you!

pam