Re: Anyone in LA - Santa area?

[Guest guest]

simon could they join the list when and if they r ready as u no this list is

one of the best places and ive had the aspiration probs but not the heart so

i know wat they r talking bout if they have an email feel free to ask them

to email me at my gmail address talking to another charger aswell as fams

helps i no other mums have said so

>

> Hi everyone

>

> I've been talking to a woman in the UK whose English friend and husband

> live

> in the Santa area. They have just had a boy who is in Children's

> Hospitaland diagnosed with CHARGE. His main problems ie life threatening

> type are heart - a hole and pulmonary artery stenosis and aspiration (I

> think a fundo has been proposed). The little boy was desperately wanted

> and

> I think some of the medical input could be more caring. Her friend has

> described the mother as being in a very dark place.

>

> Is there anyone in the area who could maybe say hello or visit to help the

> parents see beyond where they are at the moment.

>

> Contact me off list on my other email address -

si_howard@...

> .

>

> Thanks

>

> Simon

>

>

[Guest guest]

Ellen

Yes they join as and when they wish. However at the moment they need a

different kind of support. I have had a number of replies which I have

forwarded. I trust that this will help them.

Simon

>

> simon could they join the list when and if they r ready as u no this

> list is

> one of the best places and ive had the aspiration probs but not the heart

> so

> i know wat they r talking bout if they have an email feel free to ask them

> to email me at my gmail address talking to another charger aswell as fams

> helps i no other mums have said so

>

>

> On 22/05/07, simon howard

simonthoward@...>

> wrote:

> >

> > Hi everyone

> >

> > I've been talking to a woman in the UK whose English friend and husband

> > live

> > in the Santa area. They have just had a boy who is in Children's

> > Hospitaland diagnosed with CHARGE. His main problems ie life threatening

> > type are heart - a hole and pulmonary artery stenosis and aspiration (I

> > think a fundo has been proposed). The little boy was desperately wanted

> > and

> > I think some of the medical input could be more caring. Her friend has

> > described the mother as being in a very dark place.

> >

> > Is there anyone in the area who could maybe say hello or visit to help

> the

> > parents see beyond where they are at the moment.

> >

> > Contact me off list on my other email address -

si_howard@...

>

> > .

> >

> > Thanks

> >

> > Simon

> >

> >