Mom would like contact

[Guest guest]

Hi folks. This came through the CHARGE Syndrome Foundation website. A

mom would like to be in touch with other families. I have replied to

her that we know of lots of older individuals with CHARGE. She would

love to hear (directly to her, she's not on the list) from other families.

Meg

" My name is Mrs. Janice Tucker and my son is Hubbard- whom

has Charge syndrome association an will be 22 years old. His vision has

deteriorated the coloboma in both eyes as well as detached retina and

cataracts. His self abusive behavior has also increased and emotional

outburst. He was born in 1985 are their any other known persons with

CHARGE syndrome that are older? If so please have them contact me @

JaniceT@... JaniceT@...> Thank you very

much. My son is effected by the whole acronym of CHARGE

<>Mrs. Janice Tucker "

[Guest guest]

y hes the same age as meto the year il b 22 in a month thanks meg ill try

get intouch with that fam

>

> Hi folks. This came through the CHARGE Syndrome Foundation website. A

> mom would like to be in touch with other families. I have replied to

> her that we know of lots of older individuals with CHARGE. She would

> love to hear (directly to her, she's not on the list) from other families.

> Meg

>

> " My name is Mrs. Janice Tucker and my son is Hubbard- whom

> has Charge syndrome association an will be 22 years old. His vision has

> deteriorated the coloboma in both eyes as well as detached retina and

> cataracts. His self abusive behavior has also increased and emotional

> outburst. He was born in 1985 are their any other known persons with

> CHARGE syndrome that are older? If so please have them contact me @

> JaniceT@...

JaniceT@... > Thank you very

> much. My son is effected by the whole acronym of CHARGE

> <>Mrs. Janice Tucker "

>

>