[Fwd: Re: CHARGE / SARAH MOORE]

[Guest guest]

Hi Everyone,

I'm sure many of you will remember Lynn and her daughter .

Last week I received Lynn's membership renewal and I emailed her for an

update on . Here is her reply which she asked me to share with the

List. If you want to send her a message you will have to do it off line.

Her email is

Lynn M lynnelen@...>

n

--- Re: CHARGE / SARAH MOORE

Date: Sun, 20 May 2007 21:51:25 -0400

Reply-To: Lynn M lynnelen@...>

To: n Norbury mnorbury@...>

References: 464DDE86.1080801@...>

n,

I would have to write a book to update the CHARGE group, but I will try

to condense it into something readable.

has completed three years of college. She changed majors twice and

decided on Nursing School. June 2006 she wasn't accepted into the

University of Akron Nursing program on the " first round " .( it would be

another year before she had another chance to get in. She was very

disappointed. She was told they look at science grades. She had As and Bs

in Chemistry I and II. She had an A in biology and an A in Microbiology.

The problem was, there were 300 applicants for 180 spaces. Many must have

had straight As. She did an amazing job in college none the less.

After much soul searching and thinking, she and her then boyfriend

decided to change gears completely. They went to school for 6 weeks to earn

their Class A CDL in order to team drive a semi/tractor, trailer. Long

story, but the boyfriend dropped out of the " on the job " training in Joplin,

MO. (She also dropped the boy friend, to her parents liking) stayed

with her training at the encouragement of her trucker/trainer that she was

driving with to gain experience. He told her she was the best female rookie

he had ever trained. In talking with others, she learned that he really

meant it. She had high scores on her written test, and practiced and

practiced with her rig.

spent November, December 2006 and January 2007 driving,with her

puppy Rupert, chris-crossing the country making deliveries. She said it was

an experience she will never forget or regret doing, however, she had some

nerve racking and scary experiences too. She turned a lot of heads when a

5'3 " woman climbed out of her truck by herself. She said she met all kinds

of wonderful people all over the country. She was in Loraido, TX nice and

warm when we were snowed in. She told a story of sleeping in the truck in

northern TX and being awakened by tumbleweeds hitting the truck in high

winds.

What she didn't know was that the company she worked for was notorious

for hiring young ( she's 22) newly licensed drivers, working them for their

three months probation, then finding any little thing to " let them go " just

before their insurance starts. had had a few, minor problems, and a

couple slightly serious problems. She was let go in February of 2007.

Another long story from trucking to living in Utica, NY. She now had a

new boyfriend that she met through a friend. She

has applied to a two year RN school in Utica, but hasn't heard anything yet.

She's working full time at a Verizon call center to make ends meet.

We are so amazed at her independence. She just keeps forging ahead.

She's made mistakes and learned from them and seems to know how to just

keep trying.

She continues to have respiratory infections, and ear infections but as

of right now she has no other issues to deal with other than medication for

anxiety. She still wants little to do with CHARGE, but acknowledges she is

aware of it if she should ever need more medical attention or information.

I am still teaching Junior High Special Education. I love my job but do

look forward to summers off. I have been well except for orthopedic

problems. Summer of 2005 I had a walking cast on my left foot for what are

now permanent tendon problems. I wear a stiff brace daily. I'm still walking

so I can deal with it. July 2006 fell and broke my right wrist. I am right

handed so it wasn't fun. I was in a cast for 7 weeks, started school with

it. Rehab. was very painful but my wrist works fairly well. I still have

pain and stiffness because of all over arthritis. I really can't complain,

at almost 56 I still keep active. My husband is fine. We enjoy living in the

country.

Best wishes to the CHARGE family. Have a great conference this summer. I

really don't have time for the list, but feel free to email me personally.

lynnelen@... .

Lynn , Mom to Tom(28) and cHARGE (22) and wife to Doug

Pierpont, OH.

eb site: http://www.chargesyndrome.org

>

--

n A Norbury, Executive Director

CHARGE Syndrome Foundation, Inc.

2004 Parkade Blvd, Columbia MO 65202-3121 USA

phone/fax; (families only)

mailto:mnorbury@... or mailto:marion@...

web site: http://www.chargesyndrome.org