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Ellen

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  • 1 month later...
Guest guest

Ellen,

There are times that the best thing to say is nothing, just be there. You can

only talk about things you know, has facial palsy.. the only

info I know of G-tubes and feeding that way is from my father.. he had a stroke

and for the last three years of his life was fed by G-tube due to the stroke

affecting his swallowing. I can talk about deaf/ blind issues only because I

used to work with deaf/blind kids at a state school when I lived in Texas.

Most times we parents are not only looking for info from people that have been

there. I know having a mildly affected CHARGER, I can only offer a sympathetic

ear, and as a parent there are times I just want to have someone to listen, not

know what I need, what I could do, but be there and let me 'blow off'.

Sometimes just being able to say it and have someone listen, whether or not they

have an answer or know what to do is a relief and lessens the burden. Not that

I am saying you guys are burdens but sometimes we parents are overwhelmed.

Kinda like when you were in school and some creepy kid pestered you and just

telling someone that the lil kid was a creep and

whom you told said " That kid is a creep! " just makes you feel better.

Sooooooo.... just keep being you.. because you are special.. not to just me but

everyone who has any contact with you. Youn have changed anyones life who has

ever known you, whether or not they know it..

Love ya,

Case

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  • 2 months later...
Guest guest

BIG hugs to you too Ellen. Have you got your purple chair yet or waiting

for it? Want to hear how you do with it.

Keep smiling.......

Flo

>

> big hugs to you alllllll

>

>

>

> m to - CHARGE - (7) and Elly (5)

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Guest guest

waiting waiting waiting istn that wat we all do in charge land

>

> BIG hugs to you too Ellen. Have you got your purple chair yet or waiting

> for it? Want to hear how you do with it.

>

> Keep smiling.......

> Flo

>

> On 28/07/07, ellen howe ellen.howe@... >

> wrote:

> >

> > big hugs to you alllllll

> >

> >

> >

> > m to - CHARGE - (7) and Elly (5)

>

>

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