Re: Fundoplications, what is eating like afterwards?

[Guest guest]

Hello ,

Our daughter had a fundoplication at 7 months.

At age three, after having her tracheostomy removed she started intense feeding

therapy. Over the next couple of years she became able to eat most pureed

foods. We pureed a variety of healthy homemade soups, and other common foods.

A few years later she was able to eat many table foods unpureed.. Today, in

high school, she eats almost everything that we eat. Tonight for example, she

ate barbecued salmon, tossed green salad, green beans, fruit salad, rice and

cheese casserole and chocolate pudding for dessert. Before dinner she joined us

for quacamole and tortilla chips.

I think the outcome after a fundoplication will depend on many factors. Some of

the factors may include rate of peristalsis, facial paralysis, cleft palate,

coordination of swallow, presence of tracheostomy, and factors relating to the

location and degree of closure achieved with the fundoplication.

While the fundoplication helped our daughter avoid serious aspirations, I would

have preferred that we find the cause of the aspiration and reflux problems and

solve it by solving those problems. This wasn't possible in our case and isn't

possible in many cases. But, I would have preferred not to have had her endure

that surgery.

It is a significant mystery to me why so many babies with CHARGE end up with

severe reflux. Our daughter did not have it originally to the degree that

occured at about 5 months. It just kept getting worse. i would love to know

why.

But in our case, and in many others, once the reflux started, the only safe

solution at the time was fundoplication.

Fundoplications, what is eating like afterwards?

Our son (14mo) is due to have a fundoplication in a couple of weeks

but we have not yet consented to the procedure.

I have read a little bit about what can be eaten after a

fundoplication but I am interested to hear of your baby's eating

experiences after having a fundoplication. Specifically what types of

foods and textures were they able to tolerate?

Any comments appreciated

thanks,

http://raphaelincharge.blogspot.com/

[Guest guest]

Hi ,

Looking at what you said here and re: peristalsis , and also constipation

and (I'm going to leap here= and possible malabsorption/intolerance),

I've always thought it's the same floppy, low tone, that we see in the

larger muscle groups, combined

with the neurological lack of coordination, that is the root cause.

(Notwithstanding observable conditions such as the aortic wrap (?forgive

me-the right name escapes me atm) Kendra and others have had.

So going with my impression, time is the enemy in the beginning, and the

eventual healer.

I also wonder about cilia, and all the places they function in the body.

Besides the ears, they

keep the lungs clear, they are responsible for nutrient absorption in the

intestines. I would think

they are also subject to compromise in Charge, based on what we see.

That brings us back to those seven critical muscle rings in the body that

are essential to optimum

health. I believe you know much more about that than I.

>>> " While the fundoplication helped our daughter avoid serious aspirations,

I would have preferred that we find the cause of the aspiration and reflux

problems and solve it by solving those problems. This wasn't possible in our

case and isn't possible in many cases. But, I would have preferred not to have

had her endure that surgery<<< "

;-)

in Ma.

************************************** See what's free at http://www.aol.com.

[Guest guest]

My 8 year old daughter had a fundo at age 3, after having been fed via J-tube

for 3 years. She has never done well with bolus feeds through the tube so I

continuos feed her all night. She will accept most textures orally, but doesn't

eat enough to sustain her. She also seems to be hyposensitive in her mouth area

and doesn't chew well. the only problem she has with the fundo is the inability

to handle boluses, which seems to slowly be improving.

Jeanie