Re: just was thinking brandi and others

[Guest guest]

Hi Ellen,

I think you are making some very good points. Charge is very scary for new

parents.

But by staying on the listserv and reading abut kids like you it has helped

me be much less scared! Infact your participation on the list (plus

Belinda, Chip, Chantelle, and co...all the adults with Charge ) is one

thing which helped me straightaway when I was thinking very bleak thoughts

about 's future. Thank you.

For all of us here in life, the future is uncertain, with or without Charge

in our lives. But something like Charge brings that fact into sharp focus!

Thanks for your hugs and sending them right back at you!

is ('s Mum)

>

> hey its me again as brandi says catn see how we can scare people i

> agree but when we think aout it life as a charger or a charge parent

> can b scary at first and at times through otu life firstthe child is

> born they have a disability you dotn know if he or she will live as

> was the casewith me you dotn know the future as was with me you dont

> know anyothers with it as was with my fam and others on here im sure

> then as the child gets older there will b surgeries open heart and

> tummy and other majour and minor things but to that particula child

> can b quite life threatening then there is school is this the rightr

> decision is she in the right spot is the ip right all those questions

> r faced then its adulthood services will he she b elible for soemthing

> will he she b able to work will he she be able to b independant of us

> all those questions i see mothers ask on here every day and all these

> questions ,y own mums asked but to the charge it can b hard to why am

> i like this why arent i accdepted questions like these can b asked so

> when u look it though at the second mite not b scary to you the big

> picture is scary look at me there were days i nearly died then bounced

> back there were times i couldnt get what i need then i did we all face

> this and dotn think oftenwe relise how hard it can b for others MANY

> hugs to all you wonderful fams out there and hope u like my thoughts

> ellen adult charger in aus

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