Re: Rasha's MRI results-Not good...

June 1, 2007

Janay-

I'm so sorry. I can only imagine your disappointment.

Maybe this is a good time to share a song that was posted on the IL Hands

and Voices list-serve just the other day.

Love

Michele W

Perfect That Way

_#topfive_ (http://www.songwrit

http://www.songwriteruniverse.com/contestwinner27.htm#topfive>

eruniverse.com/contestwinner27.htm#topfive)

-- Scroll down to find the link to play the song

She was born a little less than perfect

at least in that doctor's eyes

he said that she'll be different

much more than you ever realized

that girl grew up not knowing

the sound of her mama's voice

God's gift to her was silence

in a world so full of noise

and she sings with her smile

and talks with her hands

she listens with her heart

so she always understands

she believes there's more to life

than the sounds that it makes

she's perfect that way

shes got a sign for the thunder

one for the wind and the rain

she's the kind that keeps you laughing

and the first to see your pain

and she sings with her smile

and talks with her hands

she listens with her heart

so she always understands

she believes there's more to life

than the sounds that it makes

she's perfect that way

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

jkhayes95

Sent: Friday, June 01, 2007 10:00 PM

To: CHARGE

Subject: Rasha's MRI results-Not good...

Hey everyone!

We got the brief version of Rasha's MRI results as far as determining

her candidacy for a cochlear implant. NO GO. Seems she doesn't have

auditory nerves on either side. Very disappointing. I didn't realize

that I was secretly hoping this would turn out ok and she would be

able to hear something...

Any suggestions are more than welcome.

Janay

Rasha's Mom (22 months old)

June 1, 2007

Thanks Michele. That helps-keeps me focused on the important part of

communication.

jkhm

>

> Janay-

>

> I'm so sorry. I can only imagine your disappointment.

>

> Maybe this is a good time to share a song that was posted on the

IL Hands

> and Voices list-serve just the other day.

>

> Love

>

> Michele W

>

> Perfect That Way

> _#topfive_ (http://www.songwrit

> http://www.songwriteruniverse.com/contestwinner27.htm#topfive>

> eruniverse.com/contestwinner27.htm#topfive)

> -- Scroll down to find the link to play the song

>

> She was born a little less than perfect

> at least in that doctor's eyes

> he said that she'll be different

> much more than you ever realized

>

> that girl grew up not knowing

> the sound of her mama's voice

> God's gift to her was silence

> in a world so full of noise

>

> and she sings with her smile

> and talks with her hands

> she listens with her heart

> so she always understands

>

> she believes there's more to life

> than the sounds that it makes

>

> she's perfect that way

>

> shes got a sign for the thunder

> one for the wind and the rain

> she's the kind that keeps you laughing

> and the first to see your pain

>

> and she sings with her smile

> and talks with her hands

> she listens with her heart

> so she always understands

>

> she believes there's more to life

> than the sounds that it makes

>

> she's perfect that way

>

> _____

>

> From: CHARGE [mailto:CHARGE ] On

Behalf Of

> jkhayes95

> Sent: Friday, June 01, 2007 10:00 PM

> To: CHARGE

> Subject: Rasha's MRI results-Not good...

>

> Hey everyone!

>

> We got the brief version of Rasha's MRI results as far as

determining

> her candidacy for a cochlear implant. NO GO. Seems she doesn't

have

> auditory nerves on either side. Very disappointing. I didn't

realize

> that I was secretly hoping this would turn out ok and she would be

> able to hear something...

>

> Any suggestions are more than welcome.

>

> Janay

> Rasha's Mom (22 months old)

>

June 1, 2007

Janay-

I'm glad it was helpful. I know it's devastating to know that hearing is

not an option. But, you know, being deaf is not a horrible thing. In fact,

most Deaf people will tell you it's just fine - even great.

Are you bringing Rasha down for ISD's Parent-Infant Institute?? It's in

just a few weeks. It would be a great opportunity for you to be in a deaf

environment and begin feeling more comfortable with it. I remember when we

first drove into ISD for Aubrie's EI Evaluation at 10 weeks old. When I saw

the " Deaf School " sign, I sobbed. I couldn't believe I was going there.

But it became one of our most comfortable places.

Michele W

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

jkhayes95

Sent: Friday, June 01, 2007 10:26 PM

To: CHARGE

Subject: Re: Rasha's MRI results-Not good...

Thanks Michele. That helps-keeps me focused on the important part of

communication.

jkhm

June 1, 2007

Janay,

I think I can understand some of the feelings you had when you saw the MRI

results. For us it seemed so 'unfair' that after all the difficult medical

experiences, there would be something so life-affecting as communication to deal

with, too.

Some time after the identification of deafness in Kendra, a new neighbor moved

to our street. It turns out that he had become deaf at about age 2 due to

meningitis. While he had begun to speak prior to the meningitis, it left him

completely deaf. In fact, he even recalls sitting in the hospital bed shortly

after awakening from the coma associated with the illness, and telling his mom

that he didn't understand why she wasn't using her voice when he could see her

lips moving. He could hear nothing.

This friend, Ed, has led, and continues to lead a very full and amazing life.

In fact, he was the first deaf individual to earn the Ph.D. degree from UCLA.

Somehow after he told us this, I started to realize that what had been difficult

for me about the deafness, (outside of the sadness that music would not be the

same for Kendra as for us), was that deep down I worried that the deafness would

affect her quality of life and her happiness. Knowing that Ed had done

everything in his life that he wanted and that deafness was no deterrant seemed

to slowly sink into my thoughts and alter how I viewed deafness.

Over time I have changed alot in how I view hearing loss. There is no question

in my mind now that deafness, in and of itself, is not a characteristic that

limits a person. I love supporting Kendra in learning ASl and I so value all

the friendships we have made with people I probably would have never met if

Kendra weren't deaf.

As someone who majored in french, it was one of my dreams to be an interpreter.

While I am certainly not a FRENCH interpreter, I do spend a good deal of time

interpreting for Kendra and for others wishing to communicate with her. I

sometimes marvel at this irony. I got what I had dreamed, but certainly in a

completely unexpected way.

I send all my support your way, Janay. May all good things come to your sweet

Rasha.

Rasha's MRI results-Not good...

>

> Hey everyone!

>

> We got the brief version of Rasha's MRI results as far as

determining

> her candidacy for a cochlear implant. NO GO. Seems she doesn't

have

> auditory nerves on either side. Very disappointing. I didn't

realize

> that I was secretly hoping this would turn out ok and she would be

> able to hear something...

>

> Any suggestions are more than welcome.

>

> Janay

> Rasha's Mom (22 months old)

>

June 2, 2007

wendy ur neighbour sounds amazing and u can tell him so form me hugs ellen

>

> Janay,

>

> I think I can understand some of the feelings you had when you saw the MRI

> results. For us it seemed so 'unfair' that after all the difficult medical

> experiences, there would be something so life-affecting as communication to

> deal with, too.

>

> Some time after the identification of deafness in Kendra, a new neighbor

> moved to our street. It turns out that he had become deaf at about age 2 due

> to meningitis. While he had begun to speak prior to the meningitis, it left

> him completely deaf. In fact, he even recalls sitting in the hospital bed

> shortly after awakening from the coma associated with the illness, and

> telling his mom that he didn't understand why she wasn't using her voice

> when he could see her lips moving. He could hear nothing.

>

> This friend, Ed, has led, and continues to lead a very full and amazing

> life. In fact, he was the first deaf individual to earn the Ph.D. degree

> from UCLA. Somehow after he told us this, I started to realize that what had

> been difficult for me about the deafness, (outside of the sadness that music

> would not be the same for Kendra as for us), was that deep down I worried

> that the deafness would affect her quality of life and her happiness.

> Knowing that Ed had done everything in his life that he wanted and that

> deafness was no deterrant seemed to slowly sink into my thoughts and alter

> how I viewed deafness.

>

> Over time I have changed alot in how I view hearing loss. There is no

> question in my mind now that deafness, in and of itself, is not a

> characteristic that limits a person. I love supporting Kendra in learning

> ASl and I so value all the friendships we have made with people I probably

> would have never met if Kendra weren't deaf.

>

> As someone who majored in french, it was one of my dreams to be an

> interpreter. While I am certainly not a FRENCH interpreter, I do spend a

> good deal of time interpreting for Kendra and for others wishing to

> communicate with her. I sometimes marvel at this irony. I got what I had

> dreamed, but certainly in a completely unexpected way.

>

> I send all my support your way, Janay. May all good things come to your

> sweet Rasha.

>

> Rasha's MRI results-Not good...

> >

> > Hey everyone!

> >

> > We got the brief version of Rasha's MRI results as far as

> determining

> > her candidacy for a cochlear implant. NO GO. Seems she doesn't

> have

> > auditory nerves on either side. Very disappointing. I didn't

> realize

> > that I was secretly hoping this would turn out ok and she would be

> > able to hear something...

> >

> > Any suggestions are more than welcome.

> >

> > Janay

> > Rasha's Mom (22 months old)

> >

June 2, 2007

Sorry Hun!! I wish I had some info to give you we are not dealing with

that issue as far as hearing goes.

I hope you can get some help somewhere.

Hugs,

Crystal and Eva

>

> Hey everyone!

>

> We got the brief version of Rasha's MRI results as far as

determining

> her candidacy for a cochlear implant. NO GO. Seems she doesn't have

> auditory nerves on either side. Very disappointing. I didn't realize

> that I was secretly hoping this would turn out ok and she would be

> able to hear something...

>

> Any suggestions are more than welcome.

>

> Janay

> Rasha's Mom (22 months old)

>

June 2, 2007

could she poslby have a baha that is simila but different

>

> Sorry Hun!! I wish I had some info to give you we are not dealing with

> that issue as far as hearing goes.

> I hope you can get some help somewhere.

> Hugs,

> Crystal and Eva

>

> >

> > Hey everyone!

> >

> > We got the brief version of Rasha's MRI results as far as

> determining

> > her candidacy for a cochlear implant. NO GO. Seems she doesn't have

> > auditory nerves on either side. Very disappointing. I didn't realize

> > that I was secretly hoping this would turn out ok and she would be

> > able to hear something...

> >

> > Any suggestions are more than welcome.

> >

> > Janay

> > Rasha's Mom (22 months old)

> >

>

--

stand up and speak up!!!!!!! and dont let the world hold you back just go

for it

June 2, 2007

Dear Janay,

You have every right to your pity party, I'm sure none of us has escaped

them, and

it's ultimately healthy to give them their due time, no doubt.

When it's time you will find solace in Michele's shared poem/song, and

's

guidance.

And I would offer: Whenever one door closes, another door opens. Through

faith

and hope we maintain the ability to see it when it presents itself.

I am sure God is love, and He is on our side, even when things don't seem to

go

our way. When your healing comes, you will be ready to turn toward the day

again,

and lead your precious Rasha to playfulness and joy.

In love and compassion,

in Ma.

************************************** See what's free at http://www.aol.com.

June 2, 2007

I don't think so Ellen. The audiologist wants to talk to us on

Monday about alternative forms of communication-sign language and

augmentative communication. She told me she will not be able to

learn to speak. The results of the tests done while she was sedated

say no response to anything-bone conduction included. I think that's

what the BAHA does, right?

Janay

> > >

> > > Hey everyone!

> > >

> > > We got the brief version of Rasha's MRI results as far as

> > determining

> > > her candidacy for a cochlear implant. NO GO. Seems she doesn't

have

> > > auditory nerves on either side. Very disappointing. I didn't

realize

> > > that I was secretly hoping this would turn out ok and she

would be

> > > able to hear something...

> > >

> > > Any suggestions are more than welcome.

> > >

> > > Janay

> > > Rasha's Mom (22 months old)

> > >

> >

>

> --

> stand up and speak up!!!!!!! and dont let the world hold you back

just go

> for it

>

June 2, 2007

Thanks .

You certainly touched on what's been going through my mind. I just

want her to be able to communicate fully so she won't be frustrated.

I'm sure I also wanted something to just " go right " for her-

something she doesn't have to fight for. She has to fight to hold

her head up-she's fighting to sit, stand, walk, eat. I just wanted

her to catch a break somewhere. Her vision is impaired-opth thinks

she's seeing lower 40% and she's severly nearsighted-only seeing

about 1' in front of her face. I thought it would be nice for her to

learn to anticipate sounds of people coming so she won't always be

surprised when people " appear " .

I'm sorry to conduct such a grand pity party-thanks for coming! :-)

Janay

PS-I always wanted to be a Spanish teacher. Maybe I can learn ASL

well enough to channel my secret wish there...

> >

> > Janay-

> >

> > I'm so sorry. I can only imagine your disappointment.

> >

> > Maybe this is a good time to share a song that was posted on

the

> IL Hands

> > and Voices list-serve just the other day.

> >

> > Love

> >

> > Michele W

> >

> > Perfect That Way

> > _#topfive_ (http://www.songwrit

> > http://www.songwriteruniverse.com/contestwinner27.htm#topfive>

> > eruniverse.com/contestwinner27.htm#topfive)

> > -- Scroll down to find the link to play the song

> >

> > She was born a little less than perfect

> > at least in that doctor's eyes

> > he said that she'll be different

> > much more than you ever realized

> >

> > that girl grew up not knowing

> > the sound of her mama's voice

> > God's gift to her was silence

> > in a world so full of noise

> >

> > and she sings with her smile

> > and talks with her hands

> > she listens with her heart

> > so she always understands

> >

> > she believes there's more to life

> > than the sounds that it makes

> >

> > she's perfect that way

> >

> > shes got a sign for the thunder

> > one for the wind and the rain

> > she's the kind that keeps you laughing

> > and the first to see your pain

> >

> > and she sings with her smile

> > and talks with her hands

> > she listens with her heart

> > so she always understands

> >

> > she believes there's more to life

> > than the sounds that it makes

> >

> > she's perfect that way

> >

> > _____

> >

> > From: CHARGE [mailto:CHARGE ]

On

> Behalf Of

> > jkhayes95

> > Sent: Friday, June 01, 2007 10:00 PM

> > To: CHARGE

> > Subject: Rasha's MRI results-Not good...

> >

> > Hey everyone!

> >

> > We got the brief version of Rasha's MRI results as far as

> determining

> > her candidacy for a cochlear implant. NO GO. Seems she doesn't

> have

> > auditory nerves on either side. Very disappointing. I didn't

> realize

> > that I was secretly hoping this would turn out ok and she

would be

> > able to hear something...

> >

> > Any suggestions are more than welcome.

> >

> > Janay

> > Rasha's Mom (22 months old)

> >

June 2, 2007

Yes, we're planning on coming. I think it's even more important now

that when I signed up.

I agree with you that being deaf isn't the worst thing in the world.

I guess I'm just mad/sad/disappointed (fill in all emotions here)

that it's not the ONLY thing she has to deal with (refer to pity

party response to 's post for full gripe).

Thanks,

Janay

>

> Janay-

>

> I'm glad it was helpful. I know it's devastating to know that

hearing is

> not an option. But, you know, being deaf is not a horrible

thing. In fact,

> most Deaf people will tell you it's just fine - even great.

>

> Are you bringing Rasha down for ISD's Parent-Infant Institute??

It's in

> just a few weeks. It would be a great opportunity for you to be

in a deaf

> environment and begin feeling more comfortable with it. I

remember when we

> first drove into ISD for Aubrie's EI Evaluation at 10 weeks old.

When I saw

> the " Deaf School " sign, I sobbed. I couldn't believe I was going

there.

> But it became one of our most comfortable places.

>

> Michele W

>

> _____

>

> From: CHARGE [mailto:CHARGE ] On

Behalf Of

> jkhayes95

> Sent: Friday, June 01, 2007 10:26 PM

> To: CHARGE

> Subject: Re: Rasha's MRI results-Not good...

>

> Thanks Michele. That helps-keeps me focused on the important part

of

> communication.

>

> jkhm

>

June 2, 2007

Janay,

In terms of wanting her to learn to anticipate sounds, you might want to look

into a Tactaid device. We used one when Kendra was very young. The device has

changed over time and I don't know the current model's characteristics. In

fact, I don't really even know if they are still in use. But I'll do some

reading and see what I can find out. The device provided a vibration that

certainly could alert someone when a person was walking toward them, especially

on a hard floor. And voice sounds also provided some vibrotactile input so that

rhythm and loudness or softness of sound could be detected.

I am always encouraged by upcoming developments and discoveries. A few years

ago I read in a HOUSE EAR INSTITUTE publication that hair cell research may

ultimately lead to renewed hearing for some individuals. This institute which

*pioneered* the cochelar implant was stating that they felt further research may

even make cochlear implants obsolete! I know the actual process they are

researching is some time off in the future in terms of implication, but ! one

never knows what is just around the corner. Perhaps information on the nerves

will be forthcoming as well.

Kendra was not believed to be able to benefit by bone conduction. Low and

behold, about 8 years ago when I pressed for them to do further testing she

responded very well to bone conduction. In fact, she responded within the

speech frequencies! The experience was a full reminder that tests or original

predictions may or may not be accurate.

Additionally, eye research is also moving forward at amazing speeds when one

considers the last several years.

One thing that keeps me going is hope. I find when I have it, things seem to go

pretty well. I have a general hope that what Kendra has is what Kendra needs,

or that somehow things will change to make that the case. I believe that so

fully.

I appreciate the sadness you are feeling. I just say never give up. I myself

am legally blind in one eye. That is different than being legally blind in both

eyes, or blind in both eyes. I know that very well. But the things that I would

have wanted to do had my vision been 'typical' are not important to me.

I send cyber hugs and most of all, hope, your way.

Rasha's MRI results-Not good...

> >

> > Hey everyone!

> >

> > We got the brief version of Rasha's MRI results as far as

> determining

> > her candidacy for a cochlear implant. NO GO. Seems she doesn't

> have

> > auditory nerves on either side. Very disappointing. I didn't

> realize

> > that I was secretly hoping this would turn out ok and she

would be

> > able to hear something...

> >

> > Any suggestions are more than welcome.

> >

> > Janay

> > Rasha's Mom (22 months old)

> >

June 2, 2007

,

I am going to check this out. What you are describing is exactly

what I was thinking she needs. A kind of personal doorbell. She

likes vibration. She has some adaptive toys we borrowed from Lekotek

that have the vibrating touch button with one red light and she does

the happy dance everytime she sees it and then tries to lick it...

I bookmarked something from the House Ear Institute last night as I

became bleary eyed. It was talking about an auditory brain stem

implant for people with damaged nerves from tumors-as this seems to

be the most common way to not have use of your auditory nerve. I'm

not quite there yet as far as being ready to research that. Surgery

scares me-especially when its " elective " .

Thanks, everyone, for bearing with me while I try to shake my bad

attitude!

Janay

Rasha's Mom (22 months old today!)

> > >

> > > Janay-

> > >

> > > I'm so sorry. I can only imagine your disappointment.

> > >

> > > Maybe this is a good time to share a song that was posted on

> the

> > IL Hands

> > > and Voices list-serve just the other day.

> > >

> > > Love

> > >

> > > Michele W

> > >

> > > Perfect That Way

> > > _#topfive_ (http://www.songwrit

> > >

http://www.songwriteruniverse.com/contestwinner27.htm#topfive>

> > > eruniverse.com/contestwinner27.htm#topfive)

> > > -- Scroll down to find the link to play the song

> > >

> > > She was born a little less than perfect

> > > at least in that doctor's eyes

> > > he said that she'll be different

> > > much more than you ever realized

> > >

> > > that girl grew up not knowing

> > > the sound of her mama's voice

> > > God's gift to her was silence

> > > in a world so full of noise

> > >

> > > and she sings with her smile

> > > and talks with her hands

> > > she listens with her heart

> > > so she always understands

> > >

> > > she believes there's more to life

> > > than the sounds that it makes

> > >

> > > she's perfect that way

> > >

> > > shes got a sign for the thunder

> > > one for the wind and the rain

> > > she's the kind that keeps you laughing

> > > and the first to see your pain

> > >

> > > and she sings with her smile

> > > and talks with her hands

> > > she listens with her heart

> > > so she always understands

> > >

> > > she believes there's more to life

> > > than the sounds that it makes

> > >

> > > she's perfect that way

> > >

> > > _____

> > >

> > > From: CHARGE [mailto:CHARGE ]

> On

> > Behalf Of

> > > jkhayes95

> > > Sent: Friday, June 01, 2007 10:00 PM

> > > To: CHARGE

> > > Subject: Rasha's MRI results-Not good...

> > >

> > > Hey everyone!

> > >

> > > We got the brief version of Rasha's MRI results as far as

> > determining

> > > her candidacy for a cochlear implant. NO GO. Seems she

doesn't

> > have

> > > auditory nerves on either side. Very disappointing. I didn't

> > realize

> > > that I was secretly hoping this would turn out ok and she

> would be

> > > able to hear something...

> > >

> > > Any suggestions are more than welcome.

> > >

> > > Janay

> > > Rasha's Mom (22 months old)

> > >

June 2, 2007

Hi -

Your kind words feel like the hug I needed!

Janay

>

> Dear Janay,

>

> You have every right to your pity party, I'm sure none of us has

escaped

> them, and

> it's ultimately healthy to give them their due time, no doubt.

>

> When it's time you will find solace in Michele's shared poem/song,

and

> 's

> guidance.

>

> And I would offer: Whenever one door closes, another door

opens. Through

> faith

> and hope we maintain the ability to see it when it presents

itself.

> I am sure God is love, and He is on our side, even when things

don't seem to

> go

> our way. When your healing comes, you will be ready to turn

toward the day

> again,

> and lead your precious Rasha to playfulness and joy.

>

> In love and compassion,

> in Ma.

>

> ************************************** See what's free at

http://www.aol.com.

>

June 2, 2007

Janay,

What bad attitude are you referring to? What I hear is a natural response

to something you had hoped for for Rasha, which on the grand scale of all

that our children have to challenge them is an entirely understandable

thing. Anyway, who says we should always be happy with our lot? However

(you knew that was coming), the mourning does (even if temporarily) get

shelved and we look at how else we might approach the challenge. It is true

that there are many deaf people out there who more than get by. However, I

do take on board that Rasha is not just deaf so of course we hope that other

senses might compensate for that which is particularly compromised. As I

watch 's language slowly unfold, I have to say that I am much

convinced that in due course, she will be able to find her place and

communicate with the world. I am sure it will of course be hard for her.

Heck it has been and still is hard learning to sign but I do genuinely

really enjoy sign language, which makes it a pleasure to communicate with

that way. We have combined all modes of communication for her, some

of which have worked better than others.

Janay, best if I continue with this tomorrow. We have just returned from a

week away and really I am in no fit state to be replying to this list. Just

to say I am sorry for your disappointment, I am sure we can all relate

(another time!) but also that there is still hope. As for pity parties,

right in there with you. I do believe it is the pity parties that help us

to move on to what is possible, so party away and emerge a stronger more

informed woman.

Big hug from across the pond............

Flo

>

> Thanks, everyone, for bearing with me while I try to shake my bad

> attitude!

>

> Janay

> Rasha's Mom (22 months old today!)

>

> -

>

Flo (UK)

Mum to - CHARGE - (6) and Elly (4)

June 2, 2007

yeah it is taht but never no some things magic aly improve in us chargers

LOL

>

> Janay,

> What bad attitude are you referring to? What I hear is a natural response

> to something you had hoped for for Rasha, which on the grand scale of all

> that our children have to challenge them is an entirely understandable

> thing. Anyway, who says we should always be happy with our lot? However

> (you knew that was coming), the mourning does (even if temporarily) get

> shelved and we look at how else we might approach the challenge. It is

> true

> that there are many deaf people out there who more than get by. However, I

> do take on board that Rasha is not just deaf so of course we hope that

> other

> senses might compensate for that which is particularly compromised. As I

> watch 's language slowly unfold, I have to say that I am much

> convinced that in due course, she will be able to find her place and

> communicate with the world. I am sure it will of course be hard for her.

> Heck it has been and still is hard learning to sign but I do genuinely

> really enjoy sign language, which makes it a pleasure to communicate with

> that way. We have combined all modes of communication for her,

> some

> of which have worked better than others.

>

> Janay, best if I continue with this tomorrow. We have just returned from a

> week away and really I am in no fit state to be replying to this list.

> Just

> to say I am sorry for your disappointment, I am sure we can all relate

> (another time!) but also that there is still hope. As for pity parties,

> right in there with you. I do believe it is the pity parties that help us

> to move on to what is possible, so party away and emerge a stronger more

> informed woman.

>

> Big hug from across the pond............

>

> Flo

>

> On 02/06/07, jkhayes95 jkhayes95@... >

> wrote:

> >

> > Thanks, everyone, for bearing with me while I try to shake my bad

> > attitude!

> >

> > Janay

> > Rasha's Mom (22 months old today!)

> >

> > -

> >

>

> Flo (UK)

> Mum to - CHARGE - (6) and Elly (4)

>

June 3, 2007

Good point Ellen. I have watched Rasha wake up on several occasions

doing things that made me wonder if she's the same kid I put to bed

the night before.

She might not hear herself but it doesn't stop her laughing. I have

spent the day enjoying the sound of her giggles and working through

the disappointment.

jkhm

> > >

> > > Thanks, everyone, for bearing with me while I try to shake my

bad

> > > attitude!

> > >

> > > Janay

> > > Rasha's Mom (22 months old today!)

> > >

> > > -

> > >

> >

> > Flo (UK)

> > Mum to - CHARGE - (6) and Elly (4)

> >

June 3, 2007

and oneday ill get to meet u all maybe when the harrypotterland is built

>

> Good point Ellen. I have watched Rasha wake up on several occasions

> doing things that made me wonder if she's the same kid I put to bed

> the night before.

>

> She might not hear herself but it doesn't stop her laughing. I have

> spent the day enjoying the sound of her giggles and working through

> the disappointment.

>

> jkhm

>

> > > >

> > > > Thanks, everyone, for bearing with me while I try to shake my

> bad

> > > > attitude!

> > > >

> > > > Janay

> > > > Rasha's Mom (22 months old today!)

> > > >

> > > > -

> > > >

> > >

> > > Flo (UK)

> > > Mum to - CHARGE - (6) and Elly (4)

> > >

June 3, 2007

Janay

feel your sadness too, we were told as you know no nerves, well 98% certain

no auditory nerves, I

am still going ahead with an MRI on 19th June, that 2% is nagging away at

me.

I cried at s poem/song and posted it into my keepsakes to read on a

rainy day!!

hugs to you all Les x

>

> and oneday ill get to meet u all maybe when the harrypotterland is built

>

> On 03/06/07, jkhayes95 jkhayes95@... >

> wrote:

> >

> > Good point Ellen. I have watched Rasha wake up on several occasions

> > doing things that made me wonder if she's the same kid I put to bed

> > the night before.

> >

> > She might not hear herself but it doesn't stop her laughing. I have

> > spent the day enjoying the sound of her giggles and working through

> > the disappointment.

> >

> > jkhm

> >

> > > > >

> > > > > Thanks, everyone, for bearing with me while I try to shake my

> > bad

> > > > > attitude!

> > > > >

> > > > > Janay

> > > > > Rasha's Mom (22 months old today!)

> > > > >

> > > > > -

> > > > >

> > > >

> > > > Flo (UK)

> > > > Mum to - CHARGE - (6) and Elly (4)

> > > >

June 3, 2007

,

this is such a lovely and tender story--thanks.

pam

Re: Re: Rasha's MRI results-Not good...