Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Re: V.K. birthday HI JIMMY, PLEASE POST TO THE CREW.. THANK YOU MY CREW FRIENDS FOR THE GET WELL CARD. IT WAS A MOST PLEASANT SURPRISE. AND OUR KING DID A GREAT JOB AS HE ALWAYS DOES. I AM IMPROVING GREATLY WILL SEE THE EAR DOCTOR TOMORROW AND LEARN WHAT IS THE CASE WITH THE EAR... I AM SURE HE'S NOT GOING TO TELL ME MY HEARING IS RETURNING LOL THANKS AGAIN JIMMY AND FRIENDS FOR THE GET WELL WISHES HUGS, CATHERINE Be on guard against physical agitation; be controlled in body. Forsaking bodily misconduct, follow right conduct in body. Be on guard against verbal agitation; be controlled in words. Forsaking wrong speech, follow right ways in words. Be on guard against mental agitation; be controlled in thoughts. Forsaking evil thoughts, follow right ways in thoughts-Buddha- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 Emile wrote: I know she couldn't hear me, but I stood there and softly told her how much I love her. I thanked her for being the best part of every day of my life for the past thirteen years. She heard you Emile. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2005 Report Share Posted December 29, 2005 All the best to you too, in 2006 Judith! Let's hope it is a year of discovery in the area of PLS/ALS research! Now remember...next time you see your neurologist and he tests your knee reflexes.....ha ha....you know the drill now! Ha ha!! Take good care of you! Di....PLS.....Canada > > Hi all, > Just wanted to say thanks for the wonderful support > and humor you have provided over the last months since > I was DX. I wish everyone a years worth of Dolores' 2 > and a half good days in 2006. > > Judith in NC > > > > > __________________________________ > Yahoo! for Good - Make a difference this year. > http://brand.yahoo.com/cybergivingweek2005/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 Bonnie, I hope you can take care of yourself now for a while and will find a way to sell the expensive equipment that you needed for Don. I have thought of you so often over the last year or so. Our List has changed quite a bit with new ones coming and the " older " ones " moving on " I guess. I think Lists like this are cyclical. We're so excited when we find someone who knows and understands and then we tend to feel more comfortable and move on. If you're thinking of anyone in particular, write to me directly (or to Ronnie) and we can probably let you know. Love you back, G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 6, 2006 Report Share Posted March 6, 2006 Bonnie, I hope you can take care of yourself now for a while and will find a way to sell the expensive equipment that you needed for Don. I have thought of you so often over the last year or so. Our List has changed quite a bit with new ones coming and the " older " ones " moving on " I guess. I think Lists like this are cyclical. We're so excited when we find someone who knows and understands and then we tend to feel more comfortable and move on. If you're thinking of anyone in particular, write to me directly (or to Ronnie) and we can probably let you know. Love you back, G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2006 Report Share Posted March 7, 2006 Bonnie: I am still hanging around, as I said before I know how difficult it was for you and you sound like you have things under control. I remember you got your van just about the time I got mine, and remember you didn't know how you were going to do? But you did, the Lord does work in mysterious ways. So please dear friend take care of yourself now and we are all still here if you need us. God Bless! Rita Till next time! Love & Hugs ****************************** Some people succeed in spite of their handicap. Others succeed because of them. thank you I would like to thank you all for your kind words with my loss of Don. I'm sorry that I haven't written sooner but I am still working on my thank you notes. There were so many people to thank. I have some items that I would like to find new homes for. They need to be somewhere close. I have gravity feeding bags and pole. There are two cases. I already took the boost to the food pantry. I have the w/c van with hand controls. The van has some mileage left but the lift and hand controls could be put into another van. Any one who care to take these are quite welcome to come get them. We have an over the tub shower chair and commode. it has a three piece set up and also reclines. that cost nearly 3,000. I would hope someone could make an offer. I also have don's talker. It is a top of the line vanguard II . It is unbelievable able what it can do. Don was working with a speech therapist to learn how to use it. This is a 7,000 machine. I need to get a good price for it because I need to get a car. I have all the books and assistance numbers. The company is very good about walking you through and it has a built in manual. anyone that is also on living with als are welcome to pass this information along. I am not ready to talk on that site. We had just to many problems and losses to cope with more. Don suffered terribly for two months before I lost him and I was there through it all. I think the Drs.. couldn't stand to loose him. There was always an " if " . (that is truly the largest work in the English language, everything depends of if) I don't see a lot of the people that use to post. I'm half afraid to ask about how they are doing. love to all Bonnie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 27, 2007 Report Share Posted May 27, 2007 -- You are right. I feel like I am all over the board with my emotions. But I said yesterday that my children are not my purpose in life but they are guiding me to it. I feel that is what both my children are doing healthy or not. I love them but I am me and I need to remember that. I think that is the hardest thing to do with this syndrome. - In CHARGE , " ellen howe " wrote: > > heather u will find in time u can offer help to tohers to the number of > mummies and other fams who will come on and with in two months b offerent > support to others is amazing hugs from aus ellen > > > > > > I did not expect the responses from people that I have received. I am > > sure all of you have felt like this > > heather > > > > > > > > > > -- > stand up and speak up!!!!!!! and dont let the world hold you back just go > for it > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 I know how feels, I think, The day was born, the doctor told my son and I that he believed had Charge, and we learned this in the NICU before his mom ever did. I was there with my son when his mom was well enough from the Ccection that we could go in and tell her that the baby had a heart defect. She did not believe it, did not want to believe it, and when they started to explain about Charge NONE of us believed it or wanted to believe it.Some of the things the doctor was saying to my son about , well I think my son felt like punching him at one point! But nobody can ever predict, because each child is so different, even with the similarities. I still fell really weird about it, like, something this rare and so complicated and so heartbreaking, how could it possibly happen and WHY?????? He looked so perfect and so cute, yes, like the Gerber baby! We had never even heard of this thing.We all expected a beautiful PERFECT baby like his sister, how shocking this is.I am still asking why. His mom does not go to this charge group, mainly because she doesn't have time, but maybe she she just doesn't want to because like , it scares her. She is very brave and very positive, and has been dealing with all the ups and downs better than anyone I know could possibly do.But she refuses to hear anything negative. You may call it denial in a way, but that is her best way to cope. To us is BEAUTIFUL and perfect, even though he has had 4 heart surgeries and a fundo, and Gtube, etc, etc.But a day doesn't go by that I don't ask why? I feel nauseous from anxiety worried about the future, it is very scary to me. But then I read from Chantelle or Belinda, and hear about some of the older kids and I feel better, how wonderful they have turned out! Liz -- Thank you I did not expect the responses from people that I have received. I am sure all of you have felt like this heather Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 I know how feels, I think, The day was born, the doctor told my son and I that he believed had Charge, and we learned this in the NICU before his mom ever did. I was there with my son when his mom was well enough from the Ccection that we could go in and tell her that the baby had a heart defect. She did not believe it, did not want to believe it, and when they started to explain about Charge NONE of us believed it or wanted to believe it.Some of the things the doctor was saying to my son about , well I think my son felt like punching him at one point! But nobody can ever predict, because each child is so different, even with the similarities. I still fell really weird about it, like, something this rare and so complicated and so heartbreaking, how could it possibly happen and WHY?????? He looked so perfect and so cute, yes, like the Gerber baby! We had never even heard of this thing.We all expected a beautiful PERFECT baby like his sister, how shocking this is.I am still asking why. His mom does not go to this charge group, mainly because she doesn't have time, but maybe she she just doesn't want to because like , it scares her. She is very brave and very positive, and has been dealing with all the ups and downs better than anyone I know could possibly do.But she refuses to hear anything negative. You may call it denial in a way, but that is her best way to cope. To us is BEAUTIFUL and perfect, even though he has had 4 heart surgeries and a fundo, and Gtube, etc, etc.But a day doesn't go by that I don't ask why? I feel nauseous from anxiety worried about the future, it is very scary to me. But then I read from Chantelle or Belinda, and hear about some of the older kids and I feel better, how wonderful they have turned out! Liz -- Thank you I did not expect the responses from people that I have received. I am sure all of you have felt like this heather Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 Liz, I so understand that. We knew before was born that there was going to be problems, we just didn't know that there was more. He was dx'd at a 22 week ultrasound with a cleft lip and palate. Being 36 at the time we had been hooked up with a geneticist, did the amnio and ended up having 11 ultrsounds and an echo, and still the only thing that showed was the cleft. So I did the search stuff on clefts.. had it down too. But then the big day came.. he went straight to NICU.. three hours later they bring him to me and then the ped comes in, starts listing every little thing wrong.. from the cleft to crooked toes (which is when my mother informed him that the only thing wrong with his toes was that he had his Uncle Andy's toes, family trait).. And as far as wanting to punch him, this guy came real close, from my husband, my mother and my brother. He in a very nasty manner asked what we had named him, When I told him he actually said, " Good, then you can just change the spelling because the baby is going to have to have an operation and you'll have to raise him as a girl. " My husband actually started towards him at that one. I guess what I am trying to say is that all the3 info given can scare the hell out of you, some deal with it one way or another. We all have to do what is right and comfortable for ourselves and our families. BTW, I made sure that doc was never allowed near my son again. Casey ________________________________________________________________________________\ ____Got a little couch potato? Check out fun summer activities for kids. http://search.yahoo.com/search?fr=oni_on_mail&p=summer+activities+for+kids&cs=bz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 OMG!!! Casey, I didn't say so before, but that is the EXACT same thing that happened to us, because this ass doctor said, OH, Its a good thing his name is ALEX, that way you wont have to change the name, since it could be the same for boy or girl " Wow, did these guys have medical training from the same school of insensitive assess?? Yes, there was the question of gender since he said the testicles could not be felt but is all boy, and the testicles did eventually drop. My son cried when the results came back from the genetic testing and resolved that one isuue, but like you said, so many other things all at once, too much to comprehend. I am really amazed at the emotional strength of all the Charge families. Here is an example of similar experiences that we have all shared in one way or another. Unbelievable! Liz -- Re: Thank you Liz, I so understand that. We knew before was born that there was going to be problems, we just didn't know that there was more. He was dx'd at a 22 week ultrasound with a cleft lip and palate. Being 36 at the time we had been hooked up with a geneticist, did the amnio and ended up having 11 ultrsounds and an echo, and still the only thing that showed was the cleft. So I did the search stuff on clefts.. had it down too. But then the big day came.. he went straight to NICU.. three hours later they bring him to me and then the ped comes in, starts listing every little thing wrong.. from the cleft to crooked toes (which is when my mother informed him that the only thing wrong with his toes was that he had his Uncle Andy's toes, family trait).. And as far as wanting to punch him, this guy came real close, from my husband, my mother and my brother. He in a very nasty manner asked what we had named him, When I told him he actually said, " Good, then you can just change the spelling because the baby is going to have to have an operation and you'll have to raise him as a girl. " My husband actually started towards him at that one. I guess what I am trying to say is that all the3 info given can scare the hell out of you, some deal with it one way or another. We all have to do what is right and comfortable for ourselves and our families. BTW, I made sure that doc was never allowed near my son again. Casey __________________________________________________________Got a little couch potato? Check out fun summer activities for kids. http://search.yahoo com/search?fr=oni_on_mail&p=summer+activities+for+kids&cs=bz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 OMG what kind of doctor would say that??? it infuriated me when Casey said it but now i'm totally and completely perplexed as well... what a couple of jerks Cole > > OMG!!! Casey, I didn't say so before, but that is the EXACT same thing > that > happened to us, because this ass doctor said, OH, Its a good thing his > name > is ALEX, that way you wont have to change the name, since it could be the > same for boy or girl " Wow, did these guys have medical training from the > same school of insensitive assess?? Yes, there was the question of gender > since he said the testicles could not be felt but is all boy, and the > testicles did eventually drop. My son cried when the results came back > from > the genetic testing and resolved that one isuue, but like you said, so > many > other things all at once, too much to comprehend. I am really amazed at > the > emotional strength of all the Charge families. > Here is an example of similar experiences that we have all shared in one > way > or another. > Unbelievable! > > Liz > > -- Re: Thank you > > Liz, > > I so understand that. We knew before was born that there was going > to > be problems, we just didn't know that there was more. He was dx'd at a 22 > week ultrasound with a cleft lip and palate. Being 36 at the time we had > been hooked up with a geneticist, did the amnio and ended up having 11 > ultrsounds and an echo, and still the only thing that showed was the > cleft. > So I did the search stuff on clefts.. had it down too. > > But then the big day came.. he went straight to NICU.. three hours later > they bring him to me and then the ped comes in, starts listing every > little > thing wrong.. from the cleft to crooked toes (which is when my mother > informed him that the only thing wrong with his toes was that he had his > Uncle Andy's toes, family trait).. And as far as wanting to punch him, > this > guy came real close, from my husband, my mother and my brother. He in a > very > nasty manner asked what we had named him, When I told him he > actually > said, " Good, then you can just change the spelling because the baby is > going > to have to have an operation and you'll have to raise him as a girl. " My > husband actually started towards him at that one. I guess what I am trying > to say is that all the3 info given can scare the hell out of you, some > deal > with it one way or another. We all have to do what is right and > comfortable > for ourselves and our families. > > BTW, I made sure that doc was never allowed near my son again. > > Casey > > __________________________________________________________Got a little > couch > potato? > Check out fun summer activities for kids. > http://search.yahoo > com/search?fr=oni_on_mail&p=summer+activities+for+kids&cs=bz > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 OMG what kind of doctor would say that??? it infuriated me when Casey said it but now i'm totally and completely perplexed as well... what a couple of jerks Cole > > OMG!!! Casey, I didn't say so before, but that is the EXACT same thing > that > happened to us, because this ass doctor said, OH, Its a good thing his > name > is ALEX, that way you wont have to change the name, since it could be the > same for boy or girl " Wow, did these guys have medical training from the > same school of insensitive assess?? Yes, there was the question of gender > since he said the testicles could not be felt but is all boy, and the > testicles did eventually drop. My son cried when the results came back > from > the genetic testing and resolved that one isuue, but like you said, so > many > other things all at once, too much to comprehend. I am really amazed at > the > emotional strength of all the Charge families. > Here is an example of similar experiences that we have all shared in one > way > or another. > Unbelievable! > > Liz > > -- Re: Thank you > > Liz, > > I so understand that. We knew before was born that there was going > to > be problems, we just didn't know that there was more. He was dx'd at a 22 > week ultrasound with a cleft lip and palate. Being 36 at the time we had > been hooked up with a geneticist, did the amnio and ended up having 11 > ultrsounds and an echo, and still the only thing that showed was the > cleft. > So I did the search stuff on clefts.. had it down too. > > But then the big day came.. he went straight to NICU.. three hours later > they bring him to me and then the ped comes in, starts listing every > little > thing wrong.. from the cleft to crooked toes (which is when my mother > informed him that the only thing wrong with his toes was that he had his > Uncle Andy's toes, family trait).. And as far as wanting to punch him, > this > guy came real close, from my husband, my mother and my brother. He in a > very > nasty manner asked what we had named him, When I told him he > actually > said, " Good, then you can just change the spelling because the baby is > going > to have to have an operation and you'll have to raise him as a girl. " My > husband actually started towards him at that one. I guess what I am trying > to say is that all the3 info given can scare the hell out of you, some > deal > with it one way or another. We all have to do what is right and > comfortable > for ourselves and our families. > > BTW, I made sure that doc was never allowed near my son again. > > Casey > > __________________________________________________________Got a little > couch > potato? > Check out fun summer activities for kids. > http://search.yahoo > com/search?fr=oni_on_mail&p=summer+activities+for+kids&cs=bz > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 Liz, They had to have gone to the same backwater off planet med school. We didn't have to wait for genetic testing, I had had an amnio. You would have been proud of my mom, she had these LONG thick fingernails (kinda like the phonet ones of today but all hers) she got up walked to this guy and poked him in the chest a bunch of times as she backed him out of the room... I tell ya what she told him and called him but this is a family list LOL. His idea too was that undecended testes and micro penis were the problem even tho the idiot never checked my chart where the amnio results were. About a year and a half later was having one of his resp things going on so I took him to the after hours peds clinic.. this ass was the only doc there.. he walked into the room and when I saw who it was I told him that I had said he'd never touch my child again.. walked out and across the parking lot and took him to the ER.. they wantede to call him over and when I told the ER doc what happened he calle my reg ped at home and he came in. Casey ________________________________________________________________________________\ ____Got a little couch potato? Check out fun summer activities for kids. http://search.yahoo.com/search?fr=oni_on_mail&p=summer+activities+for+kids&cs=bz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 Liz, They had to have gone to the same backwater off planet med school. We didn't have to wait for genetic testing, I had had an amnio. You would have been proud of my mom, she had these LONG thick fingernails (kinda like the phonet ones of today but all hers) she got up walked to this guy and poked him in the chest a bunch of times as she backed him out of the room... I tell ya what she told him and called him but this is a family list LOL. His idea too was that undecended testes and micro penis were the problem even tho the idiot never checked my chart where the amnio results were. About a year and a half later was having one of his resp things going on so I took him to the after hours peds clinic.. this ass was the only doc there.. he walked into the room and when I saw who it was I told him that I had said he'd never touch my child again.. walked out and across the parking lot and took him to the ER.. they wantede to call him over and when I told the ER doc what happened he calle my reg ped at home and he came in. Casey ________________________________________________________________________________\ ____Got a little couch potato? Check out fun summer activities for kids. http://search.yahoo.com/search?fr=oni_on_mail&p=summer+activities+for+kids&cs=bz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 Yup Cole there are some really jerky docs out there.. And the suprising thing to me is other than that one most I have met were residents, I actually physically through a resident out of 's hosp room one night. There seriously needs to be a 'bedside maaners' class added to their training. Casey ________________________________________________________________________________\ ____Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV. http://tv.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 Yup Cole there are some really jerky docs out there.. And the suprising thing to me is other than that one most I have met were residents, I actually physically through a resident out of 's hosp room one night. There seriously needs to be a 'bedside maaners' class added to their training. Casey ________________________________________________________________________________\ ____Ready for the edge of your seat? Check out tonight's top picks on Yahoo! TV. http://tv.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 actually i think they have one now in some programs - i know scott and white practitioners have to take workshops and classes now i suppose thats a good thing Cole > > Yup Cole there are some really jerky docs out there.. And the suprising > thing to me is other than that one most I have met were residents, I > actually physically through a resident out of 's hosp room one night. > There seriously needs to be a 'bedside maaners' class added to their > training. > > Casey > > __________________________________________________________Ready for the > edge of your seat? > Check out tonight's top picks on Yahoo! TV. > http://tv.yahoo.com/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 I have to respond to you. I went through hell and back and then I thought it was over and it came back to haunt me. I was in the hospital and the ENts did not do their job. Fine, I got over it. Then I went to see the urologist to desend his testes and he was awful. I can not even write the story because it was so bad.-- - In CHARGE , Casey Fisher wrote: > > Yup Cole there are some really jerky docs out there.. And the suprising thing to me is other than that one most I have met were residents, I actually physically through a resident out of 's hosp room one night. There seriously needs to be a 'bedside maaners' class added to their training. > > > Casey > > > > ______________________________________________________________________ ______________Ready for the edge of your seat? > Check out tonight's top picks on Yahoo! TV. > http://tv.yahoo.com/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 28, 2007 Report Share Posted May 28, 2007 , There some bad docs out there and some really fantastic ones. One mess up with this mama bear and they are out and I go looking for another, we've been through 4 ENTs, 2 endos, and luckily I've only had to fire one ped. Just remember that you do not have to put uop with the bad ones. Hugs, Casey Re: Thank you I have to respond to you. I went through hell and back and then I thought it was over and it came back to haunt me. I was in the hospital and the ENts did not do their job. Fine, I got over it. Then I went to see the urologist to desend his testes and he was awful. I can not even write the story because it was so bad.-- - In CHARGE , Casey Fisher wrote: > > Yup Cole there are some really jerky docs out there.. And the suprising thing to me is other than that one most I have met were residents, I actually physically through a resident out of 's hosp room one night. There seriously needs to be a 'bedside maaners' class added to their training. > > > Casey > > > > ______________________________________________________________________ ______________Ready for the edge of your seat? > Check out tonight's top picks on Yahoo! TV. > http://tv.yahoo.com/ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 Good for you, and your mom, sometimes we just have to fight back. I have worked in the medical field for many years,and I have known and worked with doctors so I do not let them get away with acting like they are God and as far as the doctors involved in 's care, I usually ask the type of questions that make them really think and a lot of them say my questions are " too hard " ..but what really irritates me is that these " specialists " only know about their specific specialty, so they pass the buck when they don't want to answer, like you would think that a cardiac surgeon would know about the type of pacemaker they implant, but when you ask them specific questions about it, he says, oh, you need to talk to the cardiologist about that.Yes, true, there are some excellent doctors out there, and we have to be thankful for what they have done to try to save our children but without having an educated advocate around to make sure mistakes are not made and that everyone does the right thing patients are sometimes at the mercy of uncaring, or unethical so called professional medical people, and sometimes the bottom line in the money or reimbursement they get for their services. Sorry, I could go on but the thing is we have to be really careful. Liz -- Re: Thank you Liz, They had to have gone to the same backwater off planet med school. We didn't have to wait for genetic testing, I had had an amnio. You would have been proud of my mom, she had these LONG thick fingernails (kinda like the phonet ones of today but all hers) she got up walked to this guy and poked him in the chest a bunch of times as she backed him out of the room... I tell ya what she told him and called him but this is a family list LOL. His idea too was that undecended testes and micro penis were the problem even tho the idiot never checked my chart where the amnio results were. About a year and a half later was having one of his resp things going on so I took him to the after hours peds clinic.. this ass was the only doc there.. he walked into the room and when I saw who it was I told him that I had said he'd never touch my child again.. walked out and across the parking lot and took him to the ER.. they wantede to call him over and when I told the ER doc what happened he calle my reg ped at home and he came in. Casey __________________________________________________________Got a little couch potato? Check out fun summer activities for kids. http://search.yahoo com/search?fr=oni_on_mail&p=summer+activities+for+kids&cs=bz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 i had a dr who wanted mum i said she didnt need stay coz i can talk for my self that certainly got her and few years later she was my gp and a very good one at that C I TRAINED HER PROPERLY DIDNT I LOL > > liz im sure many of us could go on LOL in fact id love to find the people > on here who havent had a bad drs experience im sure there isnt one on this > list > > > > > > Good for you, and your mom, sometimes we just have to fight back. I > > have > > worked in the medical field for many years,and I have known and worked > > with > > doctors so I do not let them get away with acting like they are God and > > as > > far as the doctors involved in 's care, I usually ask the type of > > questions that make them really think and a lot of them say my questions > > are > > " too hard " ..but what really irritates me is that these " specialists " > > only > > know about their specific specialty, so they pass the buck when they > > don't > > want to answer, like you would think that a cardiac surgeon would know > > about > > the type of pacemaker they implant, but when you ask them specific > > questions > > about it, he says, oh, you need to talk to the cardiologist about > > that.Yes, > > true, there are some excellent doctors out there, and we have to be > > thankful > > for what they have done to try to save our children but without having > > an > > educated advocate around to make sure mistakes are not made and that > > everyone does the right thing patients are sometimes at the mercy of > > uncaring, or unethical so called professional medical people, and > > sometimes > > the bottom line in the money or reimbursement they get for their > > services. > > Sorry, I could go on but the thing is we have to be really careful. > > > > Liz > > > > > > -- Re: Thank you > > > > Liz, > > > > They had to have gone to the same backwater off planet med school. We > > didn't > > have to wait for genetic testing, I had had an amnio. You would have > > been > > proud of my mom, she had these LONG thick fingernails (kinda like the > > phonet > > ones of today but all hers) she got up walked to this guy and poked him > > in > > the chest a bunch of times as she backed him out of the room... I tell > > ya > > what she told him and called him but this is a family list LOL. His idea > > too > > was that undecended testes and micro penis were the problem even tho the > > idiot never checked my chart where the amnio results were. > > > > About a year and a half later was having one of his resp things > > going > > on so I took him to the after hours peds clinic.. this ass was the only > > doc > > there.. he walked into the room and when I saw who it was I told him > > that I > > had said he'd never touch my child again.. walked out and across the > > parking > > lot and took him to the ER.. they wantede to call him over and when I > > told > > the ER doc what happened he calle my reg ped at home and he came in. > > > > Casey > > > > __________________________________________________________Got a little > > couch > > potato? > > Check out fun summer activities for kids. > > http://search.yahoo > > com/search?fr=oni_on_mail&p=summer+activities+for+kids&cs=bz > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 We have been through our fair share of dr.s as well. We always chalk it up to the fact that they are doctors, there still always has to be someone to graduate last in their class. Those must be the examples! > > i had a dr who wanted mum i said she didnt need stay coz i can talk for > my > self that certainly got her and few years later she was my gp and a very > good one at that C I TRAINED HER PROPERLY DIDNT I LOL > > On 29/05/07, ellen howe ellen.howe@... > > wrote: > > > > liz im sure many of us could go on LOL in fact id love to find the > people > > on here who havent had a bad drs experience im sure there isnt one on > this > > list > > > > On 29/05/07, Stromsnes Dolz < elizabeth@...> > wrote: > > > > > > Good for you, and your mom, sometimes we just have to fight back. I > > > have > > > worked in the medical field for many years,and I have known and worked > > > with > > > doctors so I do not let them get away with acting like they are God > and > > > as > > > far as the doctors involved in 's care, I usually ask the type of > > > questions that make them really think and a lot of them say my > questions > > > are > > > " too hard " ..but what really irritates me is that these " specialists " > > > only > > > know about their specific specialty, so they pass the buck when they > > > don't > > > want to answer, like you would think that a cardiac surgeon would know > > > about > > > the type of pacemaker they implant, but when you ask them specific > > > questions > > > about it, he says, oh, you need to talk to the cardiologist about > > > that.Yes, > > > true, there are some excellent doctors out there, and we have to be > > > thankful > > > for what they have done to try to save our children but without having > > > an > > > educated advocate around to make sure mistakes are not made and that > > > everyone does the right thing patients are sometimes at the mercy of > > > uncaring, or unethical so called professional medical people, and > > > sometimes > > > the bottom line in the money or reimbursement they get for their > > > services. > > > Sorry, I could go on but the thing is we have to be really careful. > > > > > > Liz > > > > > > > > > -- Re: Thank you > > > > > > Liz, > > > > > > They had to have gone to the same backwater off planet med school. We > > > didn't > > > have to wait for genetic testing, I had had an amnio. You would have > > > been > > > proud of my mom, she had these LONG thick fingernails (kinda like the > > > phonet > > > ones of today but all hers) she got up walked to this guy and poked > him > > > in > > > the chest a bunch of times as she backed him out of the room... I tell > > > > ya > > > what she told him and called him but this is a family list LOL. His > idea > > > too > > > was that undecended testes and micro penis were the problem even tho > the > > > idiot never checked my chart where the amnio results were. > > > > > > About a year and a half later was having one of his resp things > > > going > > > on so I took him to the after hours peds clinic.. this ass was the > only > > > doc > > > there.. he walked into the room and when I saw who it was I told him > > > that I > > > had said he'd never touch my child again.. walked out and across the > > > parking > > > lot and took him to the ER.. they wantede to call him over and when I > > > told > > > the ER doc what happened he calle my reg ped at home and he came in. > > > > > > Casey > > > > > > __________________________________________________________Got a little > > > > couch > > > potato? > > > Check out fun summer activities for kids. > > > http://search.yahoo > > > com/search?fr=oni_on_mail&p=summer+activities+for+kids&cs=bz > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 At least we can get rid of the bad doctors. I'm stuck with an entire school board full of morons. Short of moving there is no way to get rid of them. Jeanie P.S. Oh yeah, speaking of idiot doctors, I just emailed photos of MacKenzie completing her first cross country run to a fellow that told me when she was 6 months old that she would never walk. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 29, 2007 Report Share Posted May 29, 2007 I am SO SICK that these docs said that to you!!! What did you say?!? What could you say? It was the beginning...you probably couldn't even absorb what he was saying was even real. What sickos. , mommy to Meagan (CHaRgE) and 2 1/2year old twins, and big brother 5 next month, married to the best daddy in the world for 10 years! The mention of my child's name might make me cry. Not mentioning my child's name will break my heart. Unknown Quote Link to comment Share on other sites More sharing options...
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