Vestibular System Question

[Guest guest]

Hi, I'm new to the site and had a question about how your children

have done in terms of learning to walk safely. Our son, , was born

with CHARGE in January 2005 and started taking steps just before

Christmas last year (right before he was two). His vestibular system

is all but gone, but he must have some in order to be able to balance

at all. He is getting steadier, but still falls often indoors and

outdoors he can't walk alone (which is pretty frustrating to a two

year old who wants to be independent). A weighted backpack or weighted

t-shirt helps him some, but I am just curious what you all have

experienced in terms of your children with CHARGE learning to walk

SAFELY. I've learned there's a big difference between walking and

walking safely! I understand most children with CHARGE have problems

with their vestibular system, but have not been able to find anyone

who can really tell us what to expect. Our doctors and therapists are

optimistic that he'll improve, but I'm sure you all have better

experience. Thanks for any info you have to share!

Beth