Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 Foley, Mom to Jillian asked me to post this for her. She can be reached at 3jefmom@... " Jillian has a small chorioretinal coloboma in her left eye. The opthamologist said it does not affect her vision. At school they have been having difficulyt understanding what Jillian sees. They are brininging a visual specialist from the county in. I just realized as I was reading the CHARGE manual that an underactive vestibular system can affect vision and the maintaining of tha visual field. Jillian cannot get dizzy. She has no balance other than the fact she has learned where she si in space and can fool anyone watching (LOL)... So she difinitely has an underactive vestibular function. What do I need to know to look for? What do I need to tell the visual specialist at school> How can she work with her? Her teacher wants JIllian's test to be read to her now because she is feeling her comprehension is affected when she has too big of a test or the question is too long. Never knew this would be an issue until now. Thanks. Foley Mom to 11, (CHARGE deceased) Jillian 9 CHARGE and Richie 15 adopted " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2007 Report Share Posted June 23, 2007 , Funny I popped on today. I have been avoiding the computer because of problems with my own vision and vestibular systems... The vestibular system regulates the motor movement of the eye (among many other things). The problem in CHARGE is that so much effort needs to put into maintaining body in space (vestibular), and muscle tone (vestibular), that it is hard to support the eyes in having a stable visual target, as well as using the 2 eyes together. The person coming in to assess Jillian needs to be familiar with assessing visual functions - different than a functional vision exam. Generally this type of assessment is done by a Behavioral Optometrist. Acuity is how well she sees, functional vision is how she appears to be using her vision in the environment (CHARGErs will totally fool people), but visual functions are how well she can focus her eyes on a target near or far, how easily she can adapt between near and far, how well the 2 eyes work together as a team when tracking, from what Vision Therapists tell me, there are 32 distinct visual functions that impact how well one is able to make use of what the eyes see. With HANDLE we assess the basics of visual functions, but more importantly we look at helping the vestibular system become strong enough to support the visual functions, a piece not often done with vision therapy. Hope you have a great team for her assessment. Kim Lauger PS - feel free to contact me off list. klauger@... > > > > > > > Foley, Mom to Jillian asked me to post this for her. She can > be reached at 3jefmom@... > > " Jillian has a small chorioretinal coloboma in her left eye. The > opthamologist said it does not affect her vision. At school they > have been having difficulyt understanding what Jillian sees. They > are brininging a visual specialist from the county in. I just > realized as I was reading the CHARGE manual that an underactive > vestibular system can affect vision and the maintaining of tha > visual field. Jillian cannot get dizzy. She has no balance other > than the fact she has learned where she si in space and can fool > anyone watching (LOL)... So she difinitely has an underactive > vestibular function. What do I need to know to look for? What do I > need to tell the visual specialist at school> How can she work with > her? Her teacher wants JIllian's test to be read to her now because > she is feeling her comprehension is affected when she has too big of > a test or the question is too long. Never knew this would be an > issue until now. Thanks. > Foley > Mom to 11, (CHARGE deceased) Jillian 9 CHARGE and > Richie 15 adopted " > > -- Kim Certified HANDLE Screener and Intern Mom to Dylan 10 CHaRGE, Kayla 16, Tyler 18 and wife to Roy who makes all things possible in our lives. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 24, 2007 Report Share Posted June 24, 2007 Kim, you are so amazing. This post surely will help Jillian.. pam Re: Vision/Vestubular system , Funny I popped on today. I have been avoiding the computer because of problems with my own vision and vestibular systems... The vestibular system regulates the motor movement of the eye (among many other things). The problem in CHARGE is that so much effort needs to put into maintaining body in space (vestibular), and muscle tone (vestibular), that it is hard to support the eyes in having a stable visual target, as well as using the 2 eyes together. The person coming in to assess Jillian needs to be familiar with assessing visual functions - different than a functional vision exam. Generally this type of assessment is done by a Behavioral Optometrist. Acuity is how well she sees, functional vision is how she appears to be using her vision in the environment (CHARGErs will totally fool people), but visual functions are how well she can focus her eyes on a target near or far, how easily she can adapt between near and far, how well the 2 eyes work together as a team when tracking, from what Vision Therapists tell me, there are 32 distinct visual functions that impact how well one is able to make use of what the eyes see. With HANDLE we assess the basics of visual functions, but more importantly we look at helping the vestibular system become strong enough to support the visual functions, a piece not often done with vision therapy. Hope you have a great team for her assessment. Kim Lauger PS - feel free to contact me off list. klauger@... > > > > > > > Foley, Mom to Jillian asked me to post this for her. She can > be reached at 3jefmom@... > > " Jillian has a small chorioretinal coloboma in her left eye. The > opthamologist said it does not affect her vision. At school they > have been having difficulyt understanding what Jillian sees. They > are brininging a visual specialist from the county in. I just > realized as I was reading the CHARGE manual that an underactive > vestibular system can affect vision and the maintaining of tha > visual field. Jillian cannot get dizzy. She has no balance other > than the fact she has learned where she si in space and can fool > anyone watching (LOL)... So she difinitely has an underactive > vestibular function. What do I need to know to look for? What do I > need to tell the visual specialist at school> How can she work with > her? Her teacher wants JIllian's test to be read to her now because > she is feeling her comprehension is affected when she has too big of > a test or the question is too long. Never knew this would be an > issue until now. Thanks. > Foley > Mom to 11, (CHARGE deceased) Jillian 9 CHARGE and > Richie 15 adopted " > > -- Kim Certified HANDLE Screener and Intern Mom to Dylan 10 CHaRGE, Kayla 16, Tyler 18 and wife to Roy who makes all things possible in our lives. Quote Link to comment Share on other sites More sharing options...
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