Re: Try this, sorry- Family Update.

[Guest guest]

Sounds like all is going well, I love hearing updates from your

family.

Keep up the great work!!

Crystal and Eva

>

>

> Guys I am sorry about the last email. I thought it went through.

>

> JD went to Childrens Medical Center Dallas today for a CT scan of

his head,

> nose and sinuses. This was planned as Dr. Orval Brown (JD's ENT)

needed it

> to allow him to see what else needs to be done for his choanal

atresia repair

> and to see if what he was able to get done has still remained

open. JD was

> put under anesthesia around 1 pm today at Childrens in Radiology

and the CT

> scan took about an hour. He then went to a recovery room in

Radiology for

> about two hours and came home. JD did well and didn't have any

problems at all.

> It seems being put under anesthesia is a walk in the park for

him. We will

> take JD to visit with Dr. Brown soon to see the results of this

scan and

> possibly discuss JD's next nose repair. JD continues to make

slow improvements

> also as he is off the vent for four hours a day twice a day for a

total of

> eight hours. We have also been able to successfully wean JD off

of his oxygen

> for sleep apnea at night by two hours. As of now he is getting

around 7 hours

> of Oxygen at night at about 1/16 of a liter or what I like to

call just a

> mere " wisp " which is about 22%. JD has been having O2

saturations of 95% or

> higher for about a week now. Besides Dr. Brown, he will see his

eye doctor,

> his GI doctor, go to vent clinic with Dr. Gelfand, see his

general surgeon Dr.

> Renard, and go to therapy two times a week all in the month of

July. So JD

> will be a very busy boy.

>

> Olivia is doing well also. She is learning the alphabet now and

is doing

> well at it. She has a favorite TV show on the Childrens Channel

called Dora

> the Explorer. She also likes Sesame Street and she still likes

to watch

> baseball on TV. She has also taken a liking to her Daddys

Playstation 2. We

> believe that Olivia is extremely intelligent. Her pediatrician,

Dr. Joslin has

> stated to us that Olivia is very advanced for her age. Her

vocabulary is

> increasing too. She has a tendency to call some of her relatives

from time to

> time but this week she hasnt called any. But the week is still

quite young. We

> honestly cannot figure out how she is doing it. Olivia has

graduated from

> her crib. She has a new bed which is a little bed I guess you

could call it

> and she loves it. Olivia has also graduated to big people

foods. She is

> developing a liking to french fries like her mother. Today, she

had Catfish for

> lunch and she loved it. She has developed a liking for

tomatoes. She is

> also becoming quite protective of her brother JD and wants to help

her mother

> and daddy take care of him. We are beginning to let JD and Olivia

play

> together and they both are responding really well. It is very

surprising to us

> just how fast Olivia is learning things. She has two new friends

now in the

> house in Touchdown, our dog who she calls Puppy and TJ, our cat

who she calls

> Kitty. As you can see she really is doing well.

>

> I went and saw Dr. Brad Gamble (ENT) this week concerning my

nose. Many of

> you do not realize that I have frequent sinusitis and allergies

and earlier

> in the spring I had two very bad sinus infections which lasted for

quite some

> time. Dr. Gamble is Mandy's doctor and I have seen the very good

work that

> he did with her last Choanal atresia repair. He is considered one

of the top

> doctors in his field in the City of Dallas and in the State of

Texas. I had

> been informed in an earlier visit to my personal physician, Dr.

Adell that I

> had severe nasal polyps. Dr. Gamble examined me on Tuesday

afternoon with

> Mandy present and confirmed what I feared was the worst in that

these polyps

> are very bad. He wants to remove these polyps surgically and has

asked me to

> get a CT scan of my sinuses and I will do that in the coming

days. I have

> consented to the surgical procedure to be done by him and it will

be done soon.

> This is a problem (these polyps and recurrent sinus infections)

that I have

> had since I was in college or for almost 20 years. I dont have

very much air

> moving through my nostrils because of these polyps. They are

very large. I

> havent had the ability to smell a lot since I was in college. We

have tried

> the medicine route and topical medicine route and it is not

helping very

> much. Dr. Gamble has informed me that this procedure will take

about 3 to 3 1/2

> hours to remove these polyps and clear my sinuses. This surgery

is

> considered very serious and can be risky. But it needs to be

done. It needs to be

> done for the sake of my children. It needs to be done so I will

no longer

> have frequent sneezing and sinus infections and constantly worry

about passing

> it on to Olivia, my wife or even my critically ill son, JD. I do

not need to

> be a stumbling block in JD's progress and Olivia progress with

her asthma. I

> am quite worried about this surgery but I have no other choice if

I want to

> rid myself of this. Mandy is in support of this surgery and

agrees with me

> that we need to get this problem behind me. I have turned my

trust over to

> God that He will get me through this and guide Dr. Gamble as he

operates on my

> nose and sinuses. God will take care of me as He always has and

His will

> will be accomplished. I do not know what all Dr. Gamble will have

to do in

> this surgery and neither does he just yet. When I have the CT

scan we will know

> exactly what the procedure will entail. It is possible that Dr.

Gamble will

> also have to flush my sinuses.

>

> We ask for your continued prayers for JD and Olivia. They are

miracles and

> continue to thrive and grow in their own time frame and in their

own way. We

> will update you more when we know more. Until then we remain

servants to a

> risen Lord who is Christ Jesus. We remain forever In His Grip.

>

>

> &, parents to twins:

> Olivia : potty training,walking, running the house, talking,

saying no all

> the time and JD(cHArgE: Choanal Atresia, Heart Repair, TE-F

Repair, G-Tube,

> Trach, on CPap w/ O2 at Night, severe to profound hearing loss,

dumping

> syndrome ) 21 months, Waxahachie, Texas

>

> _www.chargesyndrome.org_ (http://www.charge/)

>

>

>

>

>

> ************************************** See what's free at

http://www.aol.com.

>

>

>

[Guest guest]

wow hope they fix it well

>

> Sounds like all is going well, I love hearing updates from your

> family.

> Keep up the great work!!

> Crystal and Eva

>

>

> >

> >

> > Guys I am sorry about the last email. I thought it went through.

> >

> > JD went to Childrens Medical Center Dallas today for a CT scan of

> his head,

> > nose and sinuses. This was planned as Dr. Orval Brown (JD's ENT)

> needed it

> > to allow him to see what else needs to be done for his choanal

> atresia repair

> > and to see if what he was able to get done has still remained

> open. JD was

> > put under anesthesia around 1 pm today at Childrens in Radiology

> and the CT

> > scan took about an hour. He then went to a recovery room in

> Radiology for

> > about two hours and came home. JD did well and didn't have any

> problems at all.

> > It seems being put under anesthesia is a walk in the park for

> him. We will

> > take JD to visit with Dr. Brown soon to see the results of this

> scan and

> > possibly discuss JD's next nose repair. JD continues to make

> slow improvements

> > also as he is off the vent for four hours a day twice a day for a

> total of

> > eight hours. We have also been able to successfully wean JD off

> of his oxygen

> > for sleep apnea at night by two hours. As of now he is getting

> around 7 hours

> > of Oxygen at night at about 1/16 of a liter or what I like to

> call just a

> > mere " wisp " which is about 22%. JD has been having O2

> saturations of 95% or

> > higher for about a week now. Besides Dr. Brown, he will see his

> eye doctor,

> > his GI doctor, go to vent clinic with Dr. Gelfand, see his

> general surgeon Dr.

> > Renard, and go to therapy two times a week all in the month of

> July. So JD

> > will be a very busy boy.

> >

> > Olivia is doing well also. She is learning the alphabet now and

> is doing

> > well at it. She has a favorite TV show on the Childrens Channel

> called Dora

> > the Explorer. She also likes Sesame Street and she still likes

> to watch

> > baseball on TV. She has also taken a liking to her Daddys

> Playstation 2. We

> > believe that Olivia is extremely intelligent. Her pediatrician,

> Dr. Joslin has

> > stated to us that Olivia is very advanced for her age. Her

> vocabulary is

> > increasing too. She has a tendency to call some of her relatives

> from time to

> > time but this week she hasnt called any. But the week is still

> quite young. We

> > honestly cannot figure out how she is doing it. Olivia has

> graduated from

> > her crib. She has a new bed which is a little bed I guess you

> could call it

> > and she loves it. Olivia has also graduated to big people

> foods. She is

> > developing a liking to french fries like her mother. Today, she

> had Catfish for

> > lunch and she loved it. She has developed a liking for

> tomatoes. She is

> > also becoming quite protective of her brother JD and wants to help

> her mother

> > and daddy take care of him. We are beginning to let JD and Olivia

> play

> > together and they both are responding really well. It is very

> surprising to us

> > just how fast Olivia is learning things. She has two new friends

> now in the

> > house in Touchdown, our dog who she calls Puppy and TJ, our cat

> who she calls

> > Kitty. As you can see she really is doing well.

> >

> > I went and saw Dr. Brad Gamble (ENT) this week concerning my

> nose. Many of

> > you do not realize that I have frequent sinusitis and allergies

> and earlier

> > in the spring I had two very bad sinus infections which lasted for

> quite some

> > time. Dr. Gamble is Mandy's doctor and I have seen the very good

> work that

> > he did with her last Choanal atresia repair. He is considered one

> of the top

> > doctors in his field in the City of Dallas and in the State of

> Texas. I had

> > been informed in an earlier visit to my personal physician, Dr.

> Adell that I

> > had severe nasal polyps. Dr. Gamble examined me on Tuesday

> afternoon with

> > Mandy present and confirmed what I feared was the worst in that

> these polyps

> > are very bad. He wants to remove these polyps surgically and has

> asked me to

> > get a CT scan of my sinuses and I will do that in the coming

> days. I have

> > consented to the surgical procedure to be done by him and it will

> be done soon.

> > This is a problem (these polyps and recurrent sinus infections)

> that I have

> > had since I was in college or for almost 20 years. I dont have

> very much air

> > moving through my nostrils because of these polyps. They are

> very large. I

> > havent had the ability to smell a lot since I was in college. We

> have tried

> > the medicine route and topical medicine route and it is not

> helping very

> > much. Dr. Gamble has informed me that this procedure will take

> about 3 to 3 1/2

> > hours to remove these polyps and clear my sinuses. This surgery

> is

> > considered very serious and can be risky. But it needs to be

> done. It needs to be

> > done for the sake of my children. It needs to be done so I will

> no longer

> > have frequent sneezing and sinus infections and constantly worry

> about passing

> > it on to Olivia, my wife or even my critically ill son, JD. I do

> not need to

> > be a stumbling block in JD's progress and Olivia progress with

> her asthma. I

> > am quite worried about this surgery but I have no other choice if

> I want to

> > rid myself of this. Mandy is in support of this surgery and

> agrees with me

> > that we need to get this problem behind me. I have turned my

> trust over to

> > God that He will get me through this and guide Dr. Gamble as he

> operates on my

> > nose and sinuses. God will take care of me as He always has and

> His will

> > will be accomplished. I do not know what all Dr. Gamble will have

> to do in

> > this surgery and neither does he just yet. When I have the CT

> scan we will know

> > exactly what the procedure will entail. It is possible that Dr.

> Gamble will

> > also have to flush my sinuses.

> >

> > We ask for your continued prayers for JD and Olivia. They are

> miracles and

> > continue to thrive and grow in their own time frame and in their

> own way. We

> > will update you more when we know more. Until then we remain

> servants to a

> > risen Lord who is Christ Jesus. We remain forever In His Grip.

> >

> >

> > &, parents to twins:

> > Olivia : potty training,walking, running the house, talking,

> saying no all

> > the time and JD(cHArgE: Choanal Atresia, Heart Repair, TE-F

> Repair, G-Tube,

> > Trach, on CPap w/ O2 at Night, severe to profound hearing loss,

> dumping

> > syndrome ) 21 months, Waxahachie, Texas

> >

> > _www.chargesyndrome.org_ (http://www.charge/)

> >

> >

> >

> >

> >

> > ************************************** See what's free at

> http://www.aol.com.

> >

> >

> >