Re: Update on Krista Bach

[Guest guest]

the things our drs dont tell us stupid sutpid

>

> Hello Everyone;

>

> I have gone through a lot over the last few months, and I thought I'll

> fill you in right now, since I know there are a lot of you that are

> wondering where I've been?

>

> I started having problems with my tube in April, and had to have it

> changed in May. Found out myself - the doctors never informed me that I had

> to have my tube changed every 4-5 months. Now I know.

>

> Starting off with a little history from me - I had constant screaming

> headaches, and seizures for the first 3 years of my life without any type of

> explainations or findings on why it was happening. The seizures went away,

> but the screaming headaches didn't, but they did lesson as I grew older.

>

> In 1991 I was 12 years old, and one night in late summer, early fall, I

> was walking down the stairs when I dropped and started seizuring, scaring

> the crap out of my brother who witnessed it. I was put on Nortriplyne later

> on that year.

>

> I stopped using Nortriplyne because it irritated my estophagus, and

> prevented me from swallowing even more - that was less than 5 years ago. I

> haven't had a screaming headache for almost 4 years - until now.

>

> Last week, I started waking up every morning with a headache, that

> wouldn't go away. I still wake up with the headaches, and still go through

> the day with the dull sense of a headache. Last night I had the start of a

> screaming headache, that lasted 5 seconds.

>

> I don't know if it'll get worse, or more frequent. I don't know if the

> doctor will put me on some type of medication. I don't know what is going to

> happen. But I will keep you informed as I go through this stage of neck

> tranformation.

>

> ---------------------------------

> Be smarter than spam. See how smart SpamGuard is at giving junk email the

> boot with the All-new Yahoo! Mail

>

>

[Guest guest]

Krista, I'm sorry those screaming headaches are coming back - it sounds

awful! I hope you get some answers or prescriptions soon that help get rid

of them quickly.

Lots of love,

--

Weir

Personal Web Site:

http://chargesyndrome.info

The Adventures of Kennedy Blog:

http://chargesyndrome.blogspot.com

Secretary, CHARGE Syndrome Foundation Inc:

http://www.chargesyndrome.org

Email:

lisa@...

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

[Guest guest]

Sorry about all you have been threw, Eva's doctor never told us we

needed to change her tube either I had to find out from anther mom

whos son has a g-tube.

I hope things are getting better, big hugs!!

Crystal and Eva

>

> Hello Everyone;

>

> I have gone through a lot over the last few months, and I

thought I'll fill you in right now, since I know there are a lot of

you that are wondering where I've been?

>

> I started having problems with my tube in April, and had to have

it changed in May. Found out myself - the doctors never informed me

that I had to have my tube changed every 4-5 months. Now I know.

>

> Starting off with a little history from me - I had constant

screaming headaches, and seizures for the first 3 years of my life

without any type of explainations or findings on why it was

happening. The seizures went away, but the screaming headaches

didn't, but they did lesson as I grew older.

>

> In 1991 I was 12 years old, and one night in late summer, early

fall, I was walking down the stairs when I dropped and started

seizuring, scaring the crap out of my brother who witnessed it. I

was put on Nortriplyne later on that year.

>

> I stopped using Nortriplyne because it irritated my estophagus,

and prevented me from swallowing even more - that was less than 5

years ago. I haven't had a screaming headache for almost 4 years -

until now.

>

> Last week, I started waking up every morning with a headache,

that wouldn't go away. I still wake up with the headaches, and still

go through the day with the dull sense of a headache. Last night I

had the start of a screaming headache, that lasted 5 seconds.

>

> I don't know if it'll get worse, or more frequent. I don't know

if the doctor will put me on some type of medication. I don't know

what is going to happen. But I will keep you informed as I go

through this stage of neck tranformation.

>

>

> ---------------------------------

> Be smarter than spam. See how smart SpamGuard is at giving junk

email the boot with the All-new Yahoo! Mail

>

>

[Guest guest]

Krista,

Hope you have some luck figuring out what the4 headaches are.

Take care,

Casey

________________________________________________________________________________\

____

Don't pick lemons.

See all the new 2007 cars at Yahoo! Autos.

http://autos.yahoo.com/new_cars.html

[Guest guest]

Krista,

Oh my dear, I am so sorry that your headaches are so awful and frequent!!

HOpefully, you will find something out soon and can get some relief.

pam

Update on Krista Bach

Hello Everyone;

I have gone through a lot over the last few months, and I thought I'll fill

you in right now, since I know there are a lot of you that are wondering where

I've been?

I started having problems with my tube in April, and had to have it changed in

May. Found out myself - the doctors never informed me that I had to have my tube

changed every 4-5 months. Now I know.

Starting off with a little history from me - I had constant screaming

headaches, and seizures for the first 3 years of my life without any type of

explainations or findings on why it was happening. The seizures went away, but

the screaming headaches didn't, but they did lesson as I grew older.

In 1991 I was 12 years old, and one night in late summer, early fall, I was

walking down the stairs when I dropped and started seizuring, scaring the crap

out of my brother who witnessed it. I was put on Nortriplyne later on that year.

I stopped using Nortriplyne because it irritated my estophagus, and prevented

me from swallowing even more - that was less than 5 years ago. I haven't had a

screaming headache for almost 4 years - until now.

Last week, I started waking up every morning with a headache, that wouldn't go

away. I still wake up with the headaches, and still go through the day with the

dull sense of a headache. Last night I had the start of a screaming headache,

that lasted 5 seconds.

I don't know if it'll get worse, or more frequent. I don't know if the doctor

will put me on some type of medication. I don't know what is going to happen.

But I will keep you informed as I go through this stage of neck tranformation.

---------------------------------

Be smarter than spam. See how smart SpamGuard is at giving junk email the boot

with the All-new Yahoo! Mail

[Guest guest]

Oh I get those all the time. Headaches and seisures. Has your doctor tried

Clonozapram (I think thats the orange pills and Citalapram is the celexa

stuff). Anyways they helped for a few months. Actualy the seizures just

started up again this week after seeing my one specialist and we both being

happy cause the meds seemed to be doing their job. Well I will call her up

and tell her the symptoms are up again. Might be that we have to change the

meds around.

Chantelle

>

> Krista,

> Oh my dear, I am so sorry that your headaches are so awful and frequent!!

> HOpefully, you will find something out soon and can get some relief.

> pam

>

> Update on Krista Bach

>

> Hello Everyone;

>

> I have gone through a lot over the last few months, and I thought I'll

> fill you in right now, since I know there are a lot of you that are

> wondering where I've been?

>

> I started having problems with my tube in April, and had to have it

> changed in May. Found out myself - the doctors never informed me that I had

> to have my tube changed every 4-5 months. Now I know.

>

> Starting off with a little history from me - I had constant screaming

> headaches, and seizures for the first 3 years of my life without any type of

> explainations or findings on why it was happening. The seizures went away,

> but the screaming headaches didn't, but they did lesson as I grew older.

>

> In 1991 I was 12 years old, and one night in late summer, early fall, I

> was walking down the stairs when I dropped and started seizuring, scaring

> the crap out of my brother who witnessed it. I was put on Nortriplyne later

> on that year.

>

> I stopped using Nortriplyne because it irritated my estophagus, and

> prevented me from swallowing even more - that was less than 5 years ago. I

> haven't had a screaming headache for almost 4 years - until now.

>

> Last week, I started waking up every morning with a headache, that

> wouldn't go away. I still wake up with the headaches, and still go through

> the day with the dull sense of a headache. Last night I had the start of a

> screaming headache, that lasted 5 seconds.

>

> I don't know if it'll get worse, or more frequent. I don't know if the

> doctor will put me on some type of medication. I don't know what is going to

> happen. But I will keep you informed as I go through this stage of neck

> tranformation.

>

> ---------------------------------

> Be smarter than spam. See how smart SpamGuard is at giving junk email the

> boot with the All-new Yahoo! Mail

>

>