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Jeanie,

she will be her fabulous self and that is the best part!!

And...may I add here: I am so sorry for not responding much these past few days.

Graduation at our school (busy, as you can imagine) and now I am SUFFERING

(although not in silence) with a muscle spasm in my neck and shoulder.

When the pain is gone, I will comment about the fun things going on; little

one's health issues; and to say hi!!

thinking of you all.

pam

Yuka,

I just noticed there are videos!!! I can't hold my neck up (I know how silly

that sounds!!) but hopefully tomorrow I can watch them!!! You are a computer

genius to get them on!!

xo

pam

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pammmmmmmmmmmmm get beter soon for me a need trip to aus for my pam coz my

cousin is a massage lady and guess where she is acutaly form new mexico USA

HAHA she married my auntys son the oldest of my cousins and well she is the

best massage lady she does mum most weeks when shes not over ur way visiting

her fam acutlay her sis is in texas or la or i dotn know just hop down there

pam mums friend told me awhile go she thought was arizona!!!!!!!1111 maybe

shes right but think i am HAHAHA

>

> Jeanie,

> she will be her fabulous self and that is the best part!!

>

> And...may I add here: I am so sorry for not responding much these past few

> days. Graduation at our school (busy, as you can imagine) and now I am

> SUFFERING (although not in silence) with a muscle spasm in my neck and

> shoulder.

> When the pain is gone, I will comment about the fun things going on;

> little one's health issues; and to say hi!!

>

> thinking of you all.

> pam

>

> Yuka,

> I just noticed there are videos!!! I can't hold my neck up (I know how

> silly that sounds!!) but hopefully tomorrow I can watch them!!! You are a

> computer genius to get them on!!

> xo

> pam

>

>

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Pam,

Maybe the back thing is going around. I have the same thing going on right now.

Whenever I am stressed (most of the time), I have spasms in my neck and upper

back. I'm taking Amitriptyline each night to loosen things up. Hope you feel

better soon.

Jeanie

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Guest guest

My back was in a spasm last week something awful - funny how Friday &

Saturday (AFTER my two exams), things are back to normal. Amitriptyline

eh? I'll have to check it out.

>

> Pam,

>

> Maybe the back thing is going around. I have the same thing going on right

> now. Whenever I am stressed (most of the time), I have spasms in my neck and

> upper back. I'm taking Amitriptyline each night to loosen things up. Hope

> you feel better soon.

>

> Jeanie

>

>

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Hi and Jeanie,

thanks for the sympathy!!

I am not sure exactly what precipitated this event--the first in my life!!! The

only thing I can think of is that I made an odd turn during interpreting (eager

to see the graduates!!). Anyway, after a LOVELY and LONG chiropractic session

yesterday, I do feel better and was able to sleep last night. Today is full of

icing (not the frosting kind!) and heat and just resting my weary bones. At

least today I can lift my arms and turn my neck--WOOHOO!

Anitriptyline sounds like big meds!! I am only on tylenol!

pam

Re: conference

My back was in a spasm last week something awful - funny how Friday &

Saturday (AFTER my two exams), things are back to normal. Amitriptyline

eh? I'll have to check it out.

>

> Pam,

>

> Maybe the back thing is going around. I have the same thing going on right

> now. Whenever I am stressed (most of the time), I have spasms in my neck and

> upper back. I'm taking Amitriptyline each night to loosen things up. Hope

> you feel better soon.

>

> Jeanie

>

>

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Pam,

Actually, the Amitriptyline is an anti-anxiety med. I never feel particularly

anxious, but was also having tension headaches. I take two every night and it

has really helped the headaches. It doesn't seem to work as well on the back,

but maybe it would be worse if I didn't take them.

Your comment about interpreting is so funny. I frequently scratch my face or

poke myself in the eye while signing. That probably says something about my

coordination doesn't it. Anyway, hopefully we'll all sleep well tonight.

Jeanie

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OH Ellen,

to be in Aus. right now and getting a healing massage for my big boo boo!!!

I did see the chiropractor yesterday and do feel so much better today. I was at

the chiro, then a hot tub, then ice, ice, ice, and today more ice, ice, ice and

relaxing my arms and neck. I am on the mend, my dear.

Hmmm NM and ARizona and Texas--all in the VERY warm parts of this country!!

Thank you for your concern.

love,

pam

Re: conference

pammmmmmmmmmmmm get beter soon for me a need trip to aus for my pam coz my

cousin is a massage lady and guess where she is acutaly form new mexico USA

HAHA she married my auntys son the oldest of my cousins and well she is the

best massage lady she does mum most weeks when shes not over ur way visiting

her fam acutlay her sis is in texas or la or i dotn know just hop down there

pam mums friend told me awhile go she thought was arizona!!!!!!!1111 maybe

shes right but think i am HAHAHA

>

> Jeanie,

> she will be her fabulous self and that is the best part!!

>

> And...may I add here: I am so sorry for not responding much these past few

> days. Graduation at our school (busy, as you can imagine) and now I am

> SUFFERING (although not in silence) with a muscle spasm in my neck and

> shoulder.

> When the pain is gone, I will comment about the fun things going on;

> little one's health issues; and to say hi!!

>

> thinking of you all.

> pam

>

> Yuka,

> I just noticed there are videos!!! I can't hold my neck up (I know how

> silly that sounds!!) but hopefully tomorrow I can watch them!!! You are a

> computer genius to get them on!!

> xo

> pam

>

>

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hahah,

I have poked myself in unusual places, too!! You would think that we would have

a better sense of our bodies (upper, anyway) because of this, but noooooooo, I

have poked, scratched, etc.!! This has translated to my tap dancing, too, where

I occasionally step on my own foot!! Ok, so your are right: poor coordination

overall!!!

pam

Re: conference

Pam,

Actually, the Amitriptyline is an anti-anxiety med. I never feel particularly

anxious, but was also having tension headaches. I take two every night and it

has really helped the headaches. It doesn't seem to work as well on the back,

but maybe it would be worse if I didn't take them.

Your comment about interpreting is so funny. I frequently scratch my face or

poke myself in the eye while signing. That probably says something about my

coordination doesn't it. Anyway, hopefully we'll all sleep well tonight.

Jeanie

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Guest guest

kim have u got big print does dylan have a vidion peorson at scholl coz this

person should be abe to set ru computer up so u can c betterim lucky got one

in my own house dad wears gklasses so he can ajjust my comp just for me hugs

ellen

>

> Hi Everyone,

>

> My eyes have been very bad lately, requiring me to wear sun glasses to

> use the computer if it involves much scrolling, which the list does.

> Fortunately they are getting better, but I am trying to not max them

> out too soon, so I miss you all.

>

> Roy, Dylan, and I are going to be at the conference. We plan on

> arriving on Wed. for a little bit of play time before the conference.

>

> Hope to see lots of you there.

>

> --

> Kim

> Certified HANDLE Screener and Intern

> Mom to Dylan 11 on Thursday, CHaRGE, Kayla 16, Tyler 19

> and wife to Roy who makes all things possible in our lives.

>

>

--

stand up and speak up!!!!!!! and dont let the world hold you back just go

for it

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Guest guest

Ellen Kim said SHE is having trouble, not Dylan

>

> kim have u got big print does dylan have a vidion peorson at scholl coz

> this

> person should be abe to set ru computer up so u can c betterim lucky got

> one

> in my own house dad wears gklasses so he can ajjust my comp just for me

> hugs

> ellen

>

> On 24/06/07, Kim Lauger dylansmom.kim@...>

> wrote:

> >

> > Hi Everyone,

> >

> > My eyes have been very bad lately, requiring me to wear sun glasses to

> > use the computer if it involves much scrolling, which the list does.

> > Fortunately they are getting better, but I am trying to not max them

> > out too soon, so I miss you all.

> >

> > Roy, Dylan, and I are going to be at the conference. We plan on

> > arriving on Wed. for a little bit of play time before the conference.

> >

> > Hope to see lots of you there.

> >

> > --

> > Kim

> > Certified HANDLE Screener and Intern

> > Mom to Dylan 11 on Thursday, CHaRGE, Kayla 16, Tyler 19

> > and wife to Roy who makes all things possible in our lives.

> >

> >

>

> --

> stand up and speak up!!!!!!! and dont let the world hold you back just go

> for it

>

>

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Guest guest

Y DOES EVERYONE HACVE TO PICK ON ME U DOTN UNDERSTND I WA SAYING SHE COULD

GET THEM TO HELP FIX HER COMP FOR HER I THINK U HATE ME BEL U ALLWAYS PICK

ON ME AND TEL ME OFF AND I HATE IT

>

> Ellen Kim said SHE is having trouble, not Dylan

>

> On 6/24/07, ellen howe ellen.howe@... >

> wrote:

> >

> > kim have u got big print does dylan have a vidion peorson at scholl coz

> > this

> > person should be abe to set ru computer up so u can c betterim lucky got

> > one

> > in my own house dad wears gklasses so he can ajjust my comp just for me

> > hugs

> > ellen

> >

> > On 24/06/07, Kim Lauger dylansmom.kim@...

> >

> > wrote:

> > >

> > > Hi Everyone,

> > >

> > > My eyes have been very bad lately, requiring me to wear sun glasses to

> > > use the computer if it involves much scrolling, which the list does.

> > > Fortunately they are getting better, but I am trying to not max them

> > > out too soon, so I miss you all.

> > >

> > > Roy, Dylan, and I are going to be at the conference. We plan on

> > > arriving on Wed. for a little bit of play time before the conference.

> > >

> > > Hope to see lots of you there.

> > >

> > > --

> > > Kim

> > > Certified HANDLE Screener and Intern

> > > Mom to Dylan 11 on Thursday, CHaRGE, Kayla 16, Tyler 19

> > > and wife to Roy who makes all things possible in our lives.

> > >

> > >

> >

> > --

> > stand up and speak up!!!!!!! and dont let the world hold you back just

> go

> > for it

> >

> >

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Guest guest

Kim,

Sorry to hear about your eyes but I'm happy we'll be seeing you guys at the

conference. I am so excited to be bringing Kennedy for the first time!

>

> Hi Everyone,

>

> My eyes have been very bad lately, requiring me to wear sun glasses to

> use the computer if it involves much scrolling, which the list does.

> Fortunately they are getting better, but I am trying to not max them

> out too soon, so I miss you all.

>

> Roy, Dylan, and I are going to be at the conference. We plan on

> arriving on Wed. for a little bit of play time before the conference.

>

> Hope to see lots of you there.

>

> --

> Kim

> Certified HANDLE Screener and Intern

> Mom to Dylan 11 on Thursday, CHaRGE, Kayla 16, Tyler 19

> and wife to Roy who makes all things possible in our lives.

>

>

--

Weir

Personal Web Site:

http://chargesyndrome.info

The Adventures of Kennedy Blog:

http://chargesyndrome.blogspot.com

Secretary, CHARGE Syndrome Foundation Inc:

http://www.chargesyndrome.org

Email:

lisa@...

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

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Ellen " hugs " Dont hate you. Im just trying to help you. I didn't understand

you because your typing was really bad. You had lots of typos in your

writing. Please don't understand sometimes because of that. Thats all okay,

We all love you :)

Belinda

>

> Y DOES EVERYONE HACVE TO PICK ON ME U DOTN UNDERSTND I WA SAYING SHE

> COULD

> GET THEM TO HELP FIX HER COMP FOR HER I THINK U HATE ME BEL U ALLWAYS PICK

> ON ME AND TEL ME OFF AND I HATE IT

>

> On 24/06/07, _Belinda _ belinda83au@... >

> wrote:

> >

> > Ellen Kim said SHE is having trouble, not Dylan

> >

> > On 6/24/07, ellen howe ellen.howe@... <

> ellen.howe%40gmail.com>>

> > wrote:

> > >

> > > kim have u got big print does dylan have a vidion peorson at scholl

> coz

> > > this

> > > person should be abe to set ru computer up so u can c betterim lucky

> got

> > > one

> > > in my own house dad wears gklasses so he can ajjust my comp just for

> me

> > > hugs

> > > ellen

> > >

> > > On 24/06/07, Kim Lauger

dylansmom.kim@...

>

> > >

>

> > > wrote:

> > > >

> > > > Hi Everyone,

> > > >

> > > > My eyes have been very bad lately, requiring me to wear sun glasses

> to

> > > > use the computer if it involves much scrolling, which the list does.

> > > > Fortunately they are getting better, but I am trying to not max them

> > > > out too soon, so I miss you all.

> > > >

> > > > Roy, Dylan, and I are going to be at the conference. We plan on

> > > > arriving on Wed. for a little bit of play time before the

> conference.

> > > >

> > > > Hope to see lots of you there.

> > > >

> > > > --

> > > > Kim

> > > > Certified HANDLE Screener and Intern

> > > > Mom to Dylan 11 on Thursday, CHaRGE, Kayla 16, Tyler 19

> > > > and wife to Roy who makes all things possible in our lives.

> > > >

> > > >

> > >

> > > --

> > > stand up and speak up!!!!!!! and dont let the world hold you back just

> > go

> > > for it

> > >

> > >

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Guest guest

My eyes can be very sensitive also sometimes, I hope yours get

better soon. Hope to see you at the conference we will be there on

Tuesday but not at the hilton we will be at a disney hotel.

Hugs,

Crystal and Eva

>

> Hi Everyone,

>

> My eyes have been very bad lately, requiring me to wear sun

glasses to

> use the computer if it involves much scrolling, which the list

does.

> Fortunately they are getting better, but I am trying to not max

them

> out too soon, so I miss you all.

>

> Roy, Dylan, and I are going to be at the conference. We plan on

> arriving on Wed. for a little bit of play time before the

conference.

>

> Hope to see lots of you there.

>

> --

> Kim

> Certified HANDLE Screener and Intern

> Mom to Dylan 11 on Thursday, CHaRGE, Kayla 16, Tyler 19

> and wife to Roy who makes all things possible in our lives.

>

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Guest guest

It's the movement (flicker) combined with the lights that is the

problem and filters don't work on the newer computer screens. I have

a filter on my glasses, but it's not enough. Add scrolling to it and

it is much worse. So I have been saving my computer time for what I

have to get done. Kim

>

>

>

>

>

>

> Y DOES EVERYONE HACVE TO PICK ON ME U DOTN UNDERSTND I WA SAYING SHE COULD

> GET THEM TO HELP FIX HER COMP FOR HER I THINK U HATE ME BEL U ALLWAYS PICK

> ON ME AND TEL ME OFF AND I HATE IT

>

>

> >

> > Ellen Kim said SHE is having trouble, not Dylan

> >

> > On 6/24/07, ellen howe ellen.howe@... >

>

> > wrote:

> > >

> > > kim have u got big print does dylan have a vidion peorson at scholl coz

> > > this

> > > person should be abe to set ru computer up so u can c betterim lucky

> got

> > > one

> > > in my own house dad wears gklasses so he can ajjust my comp just for me

> > > hugs

> > > ellen

> > >

> > > On 24/06/07, Kim Lauger

> dylansmom.kim@...

> > >

> > > wrote:

> > > >

> > > > Hi Everyone,

> > > >

> > > > My eyes have been very bad lately, requiring me to wear sun glasses

> to

> > > > use the computer if it involves much scrolling, which the list does.

> > > > Fortunately they are getting better, but I am trying to not max them

> > > > out too soon, so I miss you all.

> > > >

> > > > Roy, Dylan, and I are going to be at the conference. We plan on

> > > > arriving on Wed. for a little bit of play time before the conference.

> > > >

> > > > Hope to see lots of you there.

> > > >

> > > > --

> > > > Kim

> > > > Certified HANDLE Screener and Intern

> > > > Mom to Dylan 11 on Thursday, CHaRGE, Kayla 16, Tyler 19

> > > > and wife to Roy who makes all things possible in our lives.

> > > >

> > > >

> > >

> > > --

> > > stand up and speak up!!!!!!! and dont let the world hold you back just

> > go

> > > for it

> > >

> > >

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Guest guest

Hi KIm,

I am so glad you will be at then conference!

What is going on with your eyes??? I hope nothing awful or permanent.

pam

Re: conference

kim have u got big print does dylan have a vidion peorson at scholl coz this

person should be abe to set ru computer up so u can c betterim lucky got one

in my own house dad wears gklasses so he can ajjust my comp just for me hugs

ellen

>

> Hi Everyone,

>

> My eyes have been very bad lately, requiring me to wear sun glasses to

> use the computer if it involves much scrolling, which the list does.

> Fortunately they are getting better, but I am trying to not max them

> out too soon, so I miss you all.

>

> Roy, Dylan, and I are going to be at the conference. We plan on

> arriving on Wed. for a little bit of play time before the conference.

>

> Hope to see lots of you there.

>

> --

> Kim

> Certified HANDLE Screener and Intern

> Mom to Dylan 11 on Thursday, CHaRGE, Kayla 16, Tyler 19

> and wife to Roy who makes all things possible in our lives.

>

>

--

stand up and speak up!!!!!!! and dont let the world hold you back just go

for it

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  • 2 weeks later...
Guest guest

Hi everyone,

We are getting excited about meeting everyone....Since this is our

first conference I have a question.....Is it dress-up for the Carnival

and Silent Auction?

Thanks

Ellen mom to 9

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Guest guest

Ellen,

Nope... none of the conference is 'dress up' Pretty casual affair all around.

Just relax and enjoy.

Casey

________________________________________________________________________________\

____

Got a little couch potato?

Check out fun summer activities for kids.

http://search.yahoo.com/search?fr=oni_on_mail&p=summer+activities+for+kids&cs=bz

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Guest guest

Ellen,

It is casual dress all weekend.

n

Ellen and Steinbrick wrote:

> Hi everyone,

> We are getting excited about meeting everyone....Since this is our

> first conference I have a question.....Is it dress-up for the Carnival

> and Silent Auction?

>

> Thanks

> Ellen mom to 9

>

>

>

>

> CHARGE SYNDROME LISTSERV PHOTO PAGE:

> http://www.imagestation.com/album/?id=2117043995

>

> Membership of this email support group does not constitute membership in the

CHARGE Syndrome Foundation; for information about the CHARGE Syndrome

> Foundation or to become a member (and get the newsletter),

> please contact marion@... or visit

> the web site at http://www.chargesyndrome.org

>

> 8th International

> CHARGE Syndrome Conference, July, 2007. Information will be available at

www.chargesyndrome.org or by calling 1-.

>

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Guest guest

Heck no!

>

> Hi everyone,

> We are getting excited about meeting everyone....Since this is our

> first conference I have a question.....Is it dress-up for the Carnival

> and Silent Auction?

>

> Thanks

> Ellen mom to 9

>

>

>

>

--

Weir

Personal Web Site:

http://chargesyndrome.info

The Adventures of Kennedy Blog:

http://chargesyndrome.blogspot.com

Secretary, CHARGE Syndrome Foundation Inc:

http://www.chargesyndrome.org

Email:

lisa@...

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

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Guest guest

Hi

I was just curious, how many of you all are going to Disneyland while in

California? What day are you going?

I did not get tickets to the conference, I really cant afford, but it sounds

so interesting! My granddaughter Meagan wants to go to Disneyland this

summer, so I was thinking maybe I could take her at the same time that the

conference is going on, and maybe we could meet some of you. I know its a

long shot, but I was just thinking.......

Liz

-- Re: Conference

Heck no!

>

> Hi everyone,

> We are getting excited about meeting everyone....Since this is our

> first conference I have a question.....Is it dress-up for the Carnival

> and Silent Auction?

>

> Thanks

> Ellen mom to 9

>

>

>

>

--

Weir

Personal Web Site:

http://chargesyndrome.info

The Adventures of Kennedy Blog:

http://chargesyndrome.blogspot.com

Secretary, CHARGE Syndrome Foundation Inc:

http://www.chargesyndrome.org

Email:

lisa@...

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

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Guest guest

Liz-

If you plan to come towards Costa Mesa - there is value in just hanging

around the hotel in the public areas. The pool will be swarming with CHARGE

families. You don't have to attend sessions to wander the hotel and visit!

Michele W

Aubrie's mom

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

Stromsnes Dolz

Sent: Sunday, July 08, 2007 7:53 PM

To: CHARGE

Subject: Re: Conference

Hi

I was just curious, how many of you all are going to Disneyland while in

California? What day are you going?

I did not get tickets to the conference, I really cant afford, but it sounds

so interesting! My granddaughter Meagan wants to go to Disneyland this

summer, so I was thinking maybe I could take her at the same time that the

conference is going on, and maybe we could meet some of you. I know its a

long shot, but I was just thinking.......

Liz

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Guest guest

Liz

We'll be at Disney Tuesday and Wednesday after the conference. My

charger Eddie is 7, big sos is 11. And i love Michele's idea to

join in the fun at the hotel pool!

joanne

> Liz-

>

> If you plan to come towards Costa Mesa - there is value in just

> hanging

> around the hotel in the public areas. The pool will be swarming with

> CHARGE

> families. You don't have to attend sessions to wander the hotel and

> visit!

>

> Michele W

>

> Aubrie's mom

>

> _____

>

> From: CHARGE [mailto:CHARGE ] On

> Behalf Of

> Stromsnes Dolz

> Sent: Sunday, July 08, 2007 7:53 PM

> To: CHARGE

> Subject: Re: Conference

>

> Hi

>

> I was just curious, how many of you all are going to Disneyland while

> in

> California? What day are you going?

> I did not get tickets to the conference, I really cant afford, but it

> sounds

> so interesting! My granddaughter Meagan wants to go to Disneyland this

> summer, so I was thinking maybe I could take her at the same time

> that the

> conference is going on, and maybe we could meet some of you. I know

> its a

> long shot, but I was just thinking.......

> Liz

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Guest guest

Liz we are going on the Tuesday after the conference.

Hope to see you around!

>

>

> Liz

>

> We'll be at Disney Tuesday and Wednesday after the conference. My

> charger Eddie is 7, big sos is 11. And i love Michele's idea to

> join in the fun at the hotel pool!

>

> joanne

>

>

>

> > Liz-

> >

> > If you plan to come towards Costa Mesa - there is value in just

> > hanging

> > around the hotel in the public areas. The pool will be swarming with

> > CHARGE

> > families. You don't have to attend sessions to wander the hotel and

> > visit!

> >

> > Michele W

> >

> > Aubrie's mom

> >

> > _____

> >

> > From: CHARGE [mailto:

> CHARGE ] On

> > Behalf Of

> > Stromsnes Dolz

> > Sent: Sunday, July 08, 2007 7:53 PM

> > To: CHARGE

> > Subject: Re: Conference

> >

> > Hi

> >

> > I was just curious, how many of you all are going to Disneyland while

> > in

> > California? What day are you going?

> > I did not get tickets to the conference, I really cant afford, but it

> > sounds

> > so interesting! My granddaughter Meagan wants to go to Disneyland this

> > summer, so I was thinking maybe I could take her at the same time

> > that the

> > conference is going on, and maybe we could meet some of you. I know

> > its a

> > long shot, but I was just thinking.......

> > Liz

>

>

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