Re: Sunday July 29th

[Guest guest]

Count me in!

>

> Who will still be at the hotel after the confernce is over on Sunday??

> I was thinking we could all go out to dinner or something, it will be

> our last night there our plane leaves monday morning.

> Hugs,

> Crystal and Eva

>

>

>

[Guest guest]

We'll be there til Monday noon (when we leave to go stay at my friend's

place for a few days) - but I already made plans to go to the Medieval Times

that night with her so I'll have to miss out on the dinner. I'm sure you'll

find folks to go for sure and remember there will be people at the

conference who aren't on the listserv so you'll meet lots of new friends as

well...

Lis

>

> Who will still be at the hotel after the confernce is over on Sunday??

> I was thinking we could all go out to dinner or something, it will be

> our last night there our plane leaves monday morning.

> Hugs,

> Crystal and Eva

>

>

>

--

Weir

Personal Web Site:

http://chargesyndrome.info

The Adventures of Kennedy Blog:

http://chargesyndrome.blogspot.com

Secretary, CHARGE Syndrome Foundation Inc:

http://www.chargesyndrome.org

Email:

lisa@...

" It is far better to grasp the universe as it really is than to persist in

delusion, however satisfying and reassuring. " --Carl Sagan

[Guest guest]

Thanks Belinda!!!

thank you also, I am sure I will meet alot of new people. I

know 3 other families that are also coming who are no on the list

either. I am so excited that I took your idea and put a count down

on Eva's site also...lol.

Hugs,

Crystal and Eva

> >

> > Who will still be at the hotel after the confernce is over on

Sunday??

> > I was thinking we could all go out to dinner or something, it

will be

> > our last night there our plane leaves monday morning.

> > Hugs,

> > Crystal and Eva

> >

> >

> >

>

>

>

[Guest guest]

I will still be there until Wednesday August 1st. Not sure whats planned for

Sunday afternoon yet. Thinking that will be a beach day. And Im still looking

for a LA day tour. I have to go to the Chinese Theatre and the the walk of fame!

lol Dinner sounds like a great idea!

Sunday July 29th

Who will still be at the hotel after the confernce is over on Sunday??

I was thinking we could all go out to dinner or something, it will be

our last night there our plane leaves monday morning.

Hugs,

Crystal and Eva

[Guest guest]

,

I am thinking of doing the beach Sun. afternoon as well, maybe Laguna. We don't

go to Disney until Mon. morning. I wish we'd get a chance to tour LA but that's

probably not MacKenzie's thing.

Jeanie

[Guest guest]

how close is the beach?

>

> ,

>

> I am thinking of doing the beach Sun. afternoon as well, maybe Laguna. We

> don't go to Disney until Mon. morning. I wish we'd get a chance to tour LA

> but that's probably not MacKenzie's thing.

>

> Jeanie

>

>

[Guest guest]

,

Just let me know and we can all plan something before we leave or we

can just talk at the conference.

Hugs,

Crystal

>

> I will still be there until Wednesday August 1st. Not sure whats

planned for Sunday afternoon yet. Thinking that will be a beach day.

And Im still looking for a LA day tour. I have to go to the Chinese

Theatre and the the walk of fame! lol Dinner sounds like a great

idea!

>

>

> Sunday July 29th

>

>

> Who will still be at the hotel after the confernce is over on

Sunday??

> I was thinking we could all go out to dinner or something, it

will be

> our last night there our plane leaves monday morning.

> Hugs,

> Crystal and Eva

>

>

>

>

>

>

[Guest guest]

Yeah how close it is it that is something I WOULD LOVE TO DO!!! I

have never seen the ocean in my life, even tho my dad said its just

water its nothing like that lake let me tell you!! LOL! We could all

do that if you want I know the kids would love it.

Hugs,

Crystal and Eva

> >

> > ,

> >

> > I am thinking of doing the beach Sun. afternoon as well, maybe

Laguna. We

> > don't go to Disney until Mon. morning. I wish we'd get a chance

to tour LA

> > but that's probably not MacKenzie's thing.

> >

> > Jeanie

> >

> >

[Guest guest]

I'm not checking out until Monday and would be happy to get together

for something on Sunday. I'll try to find you.

Joanne

> ,

> Just let me know and we can all plan something before we leave or we

> can just talk at the conference.

> Hugs,

> Crystal

>

>

> >

> > I will still be there until Wednesday August 1st. Not sure whats

> planned for Sunday afternoon yet. Thinking that will be a beach day.

> And Im still looking for a LA day tour. I have to go to the Chinese

> Theatre and the the walk of fame! lol Dinner sounds like a great

> idea!

> >

> >

> > Sunday July 29th

> >

> >

> > Who will still be at the hotel after the confernce is over on

> Sunday??

> > I was thinking we could all go out to dinner or something, it

> will be

> > our last night there our plane leaves monday morning.

> > Hugs,

> > Crystal and Eva

[Guest guest]

Crystal.

Darlin you are about 5 miles from the ocean (Laguna Beach) when you are at the

hotel.

And believe me there is nothing like watching the sun set on the Pacific Ocean.

I've

lived here practically all my life and seen it a thousand times sand it still

thrills me.

Casey

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[Guest guest]

Thank you Casey, that has confermed it we are going to the Ocean!!!

Crystal

>

> Crystal.

>

> Darlin you are about 5 miles from the ocean (Laguna Beach) when

you are at the hotel.

> And believe me there is nothing like watching the sun set on the

Pacific Ocean. I've

> lived here practically all my life and seen it a thousand times

sand it still thrills me.

>

> Casey

>

>

>

>

_____________________________________________________________________

_______________

> No need to miss a message. Get email on-the-go

> with Yahoo! Mail for Mobile. Get started.

> http://mobile.yahoo.com/mail

>

>

[Guest guest]

I just really want to do the walk of fame. I've always wanted to put my hands in

my long time favorite actiress' Judy Garland. I'm still trying to figure out if

I can get to Universal. I am hoping I may encounter a dog lover conference goer

who may be willing to watch Velda (Guide Dog) for a few hours so I can go, or go

with a group to Universal because theres always someone in a group who wont want

to go on a ride so can hold the dog. Disney is easy since they have kennels,

Universal doesnt. And the beach is a must for Velda as she is a major water dog!

I am sure MacKenzie will love it too!

Re: Sunday July 29th

,

I am thinking of doing the beach Sun. afternoon as well, maybe Laguna. We

don't go to Disney until Mon. morning. I wish we'd get a chance to tour LA but

that's probably not MacKenzie's thing.

Jeanie

[Guest guest]

I'm there until Monday afternoon. I hope that I can get to the

ocean to see a sunset! Don't know how my schedule (as Board

member/organizer) will be filled or what time I'd be actually free Sunday

afternoon; but I'd love to go!

Friends in CHARGE,

Marilyn Ogan

Mom of (14, CHARGE+, JRA)

Mom of Ken (17, Aspergers)

Wife of Rick

oganm@...

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

supermama95

Sent: Sunday, July 08, 2007 1:54 PM

To: CHARGE

Subject: Re: Sunday July 29th

Thank you Casey, that has confermed it we are going to the Ocean!!!

Crystal

>

> Crystal.

>

> Darlin you are about 5 miles from the ocean (Laguna Beach) when

you are at the hotel.

> And believe me there is nothing like watching the sun set on the

Pacific Ocean. I've

> lived here practically all my life and seen it a thousand times

sand it still thrills me.

>

> Casey

>

>

>

>

__________________________________________________________

_______________

> No need to miss a message. Get email on-the-go

> with Yahoo! Mail for Mobile. Get started.

> http://mobile. http://mobile.yahoo.com/mail> yahoo.com/mail

>

>

[Guest guest]

My daughter, , and I will be there until Monday after the conference.

We fly home in the late afternoon. Our tenative plans so far are to go to

Disneyland on Thursday after we get to the hotel. Friday on the dinner on

your own night we are considering the Disney Boardwalk area and/or the beach.

Sunday after the conference we will probably go back to Disney for one last

hoorah or spend the afternoon at the beach.

Jacque

mom to Austin (12 years, CHARGE) and (9 years)

wife to Steve

Kansas

************************************** See what's free at http://www.aol.com.

[Guest guest]

Joanne,

A must see is Pier 39 (or the San Francisco Wharf ).. You could spend all day

there..

Gheridelli Square (and who doesn't like chocolate?) The Maritime Museum.. The

Aquarium,

Great seafood (dont forget to get you some San Francisco Sourdough bread) and a

ton of other stuff

check out www.pier39.com Gotta do the Blue and Gold Bay trip.. takes you on

a

tour of the bay.. Golden Gate Bridge.. Alcatraz. Tons of shops and stuff too..

Then for you and the kids The Exploratorium.. www.exploratorium.org my kids

LOVE

that place, all sorts of hands on stuff for everyone to do (great for a low

vision or blind person)..

If you are into history there is Fort Point (it's a fort that is on the point at

the south

end of the Golden Gate Bridge, and The Presidio (good history but not much to

do)

Then there is Golden Gate Park...

There is a lot of good info on other stuff at www.sfgate.com

If you guys are gonna be up here for a few days and want to check out stuff

outside of

SF let me know..

Casey

________________________________________________________________________________\

____

Luggage? GPS? Comic books?

Check out fitting gifts for grads at Yahoo! Search

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[Guest guest]

Hi all,

New member here. I do not have a child with CHARGE, however, I am an OT

Assistant and am currently treating a 3 year old little guy in a preschool

setting. I joined this group to get insight into the syndrome and learn

more about it, and I am learning tons of stuff from you all. It is really

helping me to understand him better and hopefully, to be able to treat him

better, as far as OT goes.

Anyway, I just wanted to chime in regarding the post below and things to do

in SF. A great place is the Bay Area Children's Museum in Sausalito. It is

just beyond the Golden Gate Bridge heading North on 101. It's located at

the old Fort Baker, which was a Coat Guard base, and it has amazing views of

the GG Bridge. There's lots for the kids to do. They have an outdoor area

with a crab boat, an old pirate ship that looks like it's been sunk and the

kids can climb all around it and dig for " buried treasure " .

Well, that's all I have for now. Thanks for letting me part of this amazing

group.

~Angie (in Bay Area, CA)

>

> Joanne,

>

> A must see is Pier 39 (or the San Francisco Wharf ).. You could spend all

> day there..

> Gheridelli Square (and who doesn't like chocolate?) The Maritime Museum..

> The Aquarium,

> Great seafood (dont forget to get you some San Francisco Sourdough bread)

> and a ton of other stuff

> check out www.pier39.com Gotta do the Blue and Gold Bay trip.. takes you

> on a

> tour of the bay.. Golden Gate Bridge.. Alcatraz. Tons of shops and stuff

> too..

>

> Then for you and the kids The Exploratorium.. www.exploratorium.org my

> kids LOVE

> that place, all sorts of hands on stuff for everyone to do (great for a

> low vision or blind person)..

>

> If you are into history there is Fort Point (it's a fort that is on the

> point at the south

> end of the Golden Gate Bridge, and The Presidio (good history but not much

> to do)

>

> Then there is Golden Gate Park...

>

> There is a lot of good info on other stuff at www.sfgate.com

>

> If you guys are gonna be up here for a few days and want to check out

> stuff outside of

> SF let me know..

>

> Casey

>

> __________________________________________________________

> Luggage? GPS? Comic books?

> Check out fitting gifts for grads at Yahoo! Search

> http://search.yahoo.com/search?fr=oni_on_mail&p=graduation+gifts&cs=bz

>

>

[Guest guest]

Thanks Angie,

I forgot all about the Children's Museum..

Casey

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[Guest guest]

Angie,

Welcome to the listserv. We all appreciate any professionals that are involved

here. It truly shows your dedication to the people that you work with. Will you

be attending the conference?

Jeanie

[Guest guest]

Angie, welcome to the group - I'm glad you've joined us. Don't be afraid to

ask us questions! Will you be at the conference in a couple of weeks?

>

> Hi all,

> New member here. I do not have a child with CHARGE, however, I am an OT

> Assistant and am currently treating a 3 year old little guy in a preschool

> setting. I joined this group to get insight into the syndrome and learn

> more about it, and I am learning tons of stuff from you all. It is really

> helping me to understand him better and hopefully, to be able to treat him

> better, as far as OT goes.

>

> Anyway, I just wanted to chime in regarding the post below and things to

> do

> in SF. A great place is the Bay Area Children's Museum in Sausalito. It is

> just beyond the Golden Gate Bridge heading North on 101. It's located at

> the old Fort Baker, which was a Coat Guard base, and it has amazing views

> of

> the GG Bridge. There's lots for the kids to do. They have an outdoor area

> with a crab boat, an old pirate ship that looks like it's been sunk and

> the

> kids can climb all around it and dig for " buried treasure " .

>

> Well, that's all I have for now. Thanks for letting me part of this

> amazing

> group.

> ~Angie (in Bay Area, CA)

>

> On 7/9/07, Casey Fisher aarididdle@... >

> wrote:

> >

> > Joanne,

> >

> > A must see is Pier 39 (or the San Francisco Wharf ).. You could spend

> all

> > day there..

> > Gheridelli Square (and who doesn't like chocolate?) The Maritime

> Museum..

> > The Aquarium,

> > Great seafood (dont forget to get you some San Francisco Sourdough

> bread)

> > and a ton of other stuff

> > check out www.pier39.com Gotta do the Blue and Gold Bay trip.. takes you

> > on a

> > tour of the bay.. Golden Gate Bridge.. Alcatraz. Tons of shops and stuff

> > too..

> >

> > Then for you and the kids The Exploratorium.. www.exploratorium.org my

> > kids LOVE

> > that place, all sorts of hands on stuff for everyone to do (great for a

> > low vision or blind person)..

> >

> > If you are into history there is Fort Point (it's a fort that is on the

> > point at the south

> > end of the Golden Gate Bridge, and The Presidio (good history but not

> much

> > to do)

> >

> > Then there is Golden Gate Park...

> >

> > There is a lot of good info on other stuff at www.sfgate.com

> >

> > If you guys are gonna be up here for a few days and want to check out

> > stuff outside of

> > SF let me know..

> >

> > Casey

> >

> > __________________________________________________________

> > Luggage? GPS? Comic books?

> > Check out fitting gifts for grads at Yahoo! Search

> > http://search.yahoo.com/search?fr=oni_on_mail&p=graduation+gifts&cs=bz

> >

> >

[Guest guest]

Thanks for the suggestions. I'll have plenty of room in my suitcase for

sourdough bread by the end of the trip as we go through all the diapers

we'll have to pack!

joanne

> Joanne,

>

> A must see is Pier 39 (or the San Francisco Wharf ).. You could spend

> all day there..

> Gheridelli Square (and who doesn't like chocolate?) The Maritime

> Museum.. The Aquarium,

> Great seafood (dont forget to get you some San Francisco Sourdough

> bread) and a ton of other stuff

> check out www.pier39.com Gotta do the Blue and Gold Bay trip.. takes

> you on a

> tour of the bay.. Golden Gate Bridge.. Alcatraz. Tons of shops and

> stuff too..

>

> Then for you and the kids The Exploratorium.. www.exploratorium.org

> my kids LOVE

> that place, all sorts of hands on stuff for everyone to do (great for

> a low vision or blind person)..

>

> If you are into history there is Fort Point (it's a fort that is on

> the point at the south

> end of the Golden Gate Bridge, and The Presidio (good history but not

> much to do)

>

> Then there is Golden Gate Park...

>

> There is a lot of good info on other stuff at www.sfgate.com

>

> If you guys are gonna be up here for a few days and want to check out

> stuff outside of

> SF let me know..

>

> Casey

>

> __________________________________________________________

> Luggage? GPS? Comic books?

> Check out fitting gifts for grads at Yahoo! Search

> http://search.yahoo.com/search?fr=oni_on_mail&p=graduation+gifts&cs=bz

>

>

[Guest guest]

Casey,

Thanks for the recap on things to do in San Francisco. My husband and I

lived in the city for seven years (but it was a while ago) and plan to

take a day trip in during our two week trip to California for the

conference. I forgot how many wonderful things there are to do there -

besides the great food . I think it will be fun to show our sons

where we lived and show them around.

We are looking forward to the conference!

Mom to Cameron, 5, CHaRGE and , 7

Wife to Linden