Re: Please I need help / was in hospital and I am at my witts end - thank you

[Guest guest]

a, it sounds to me liek ehat you heard abotu this Endo is from

uninformed peolle with not so serious problems as you. I have to say it

is unlikley you will find a decent doc on your insurance plan as the

GOOD docs usually don't take insurance as they do nto want an insurance

company dictating to them what tests they can run, nor what meds they

can prescribe nor how often they can see you. I have seen almost NO

decent doc in the last few years that accepted any kind of insurance.

Which leaves many of us in a really bad place. Pay out of pocket for a

decent doctor (IF we can manage that!) or self treat or stay sick.

Really not good choices, but choices for life, none the less. I think

you have to make this choice and there is no advice we cna give you that

will elp this decision as you must do it on your own. Or you can try

another Endo, but I have not found Endos to be good doctors at all. I am

sickened by this specialty that really is nothing but a snob club.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://health.groups.yahoo.com/group/RT3_T3/

[Guest guest]

Hi ERica,

I'm sorry to hear how sick you are feeling. It sounded to me like

the original doc who put you on cortef and armour was on track.

Seems like taking the cortef by itself for awhile, along with iron

supplementation, then later add the armour would be a plan. My iron

was low and i've been on ferrous bis-glycinate Ferrochel 27 mg

capsules...you can take up to 150-200mg a day to get the iron up. I

take it with 1000 mg vit C powder in juice. Be sure to take it away

from calcium as calcium inhibits its absorption. I had no

constipation and my iron/ferritin has gone up about10 points in 8

weeks, and i was only taking about 60mg per day.

Have you heard of WRight? He's an MD very knowlegable in

alternative medicine and he has done some case studies with people

with hearing loss using aldosterone and having it restore their

hearing, so perhaps besides the adrenal/thyroid issues you also have

low aldosterone. I'd ask that first doc who gave you the cortef to

test for aldosterone or order you some..i'm not sure how to get it

but I know there are a couple labs who make it.

hang in there and don't give up--i'd stay away from the endos and

find a good holistic MD doctor in your town who will work on your

hormone system with you using bioidentical hormones instead of

synthetics.

Liz

>

> Hi,

> I have tried to post this severl times and i think my computer is

not

> right again.

> Any how I was in the hospital 3/10-3/13 first went through ER.

Reason

> being is that I was beyond fatigued (which on regular day is alot)

as

> wel as when I stood up my hearing was going dim. I could hear but

> everything was far away it seemed.

> The ER doc, (thank goodness( had a brain and did not just chalk it

up

> to nothing. He decided after doing the routine blood work he then

had

> teh nurse check several times my standing, sitting and laying down

> bp. So it was so off he had be admiited for quationable cortisol

> issues.

> I had the ACTH test and all it says is that my result was a 15 ref.

> (6-48) I do know they took blood one hour prior then injected me

with

> the cortisone and then an hour after took the blood test again.

> My cortisol was 1.7 3/10 and 3/11 both taken around 6 or 7am . ref

> range (5.0-23.0).

> I also had an MRI brain with and without contrast.It was to check

the

> pituitary and came back negative.

> The doc who was seeing me in hospital felt I should be put on

thyroid

> medication , he had no issues with Armour and 20 mgs. of Cortef 10

> mgs twice a day. The first day my TSH was 0.78 and next day was

1.45

> and t4 was 4.7 I do not know why t3 was not taken.

> Also my Iron was 41 which says low by it and TIBC low 192 ref. -

250-

> 450 Iron Sat. 21 ref . - 15-50 and Transferrin 137 low ref . - 190-

> 375and a t3 uptake 41.3 ref. 32.0 - 48.0

> I am taking a stool test as the hosp. doc wants to see I am not

sure

> something with red blood cells.

> This is were I need help. I put first what has been going so anyone

> could help me.

> I saw an Endo Thurs. over 6 people said he is great and he goes by

> symptoms as well. Well lucky me lol he did not. He said he did not

> know why the doc put me on Armour and Cortef to go off adn see hoim

> in ten weeks. Two weeks prior at 7am having a fasting blood test(

> around 20 tests no joke)I did ask some ?'s but I was livid. I

waited

> over a hour ot see him he had all my past labs plus recent hospiatl

> stay.

> I know alot of you are done with docs. I am not feeling well one

bit

> it is extremely difficult for me to get on the computer and try and

> get all the info. and then I haev seen amny of docs and most say

the

> other is wrong. I do know I have to get on he proper Iron. The Enod

> did not even bring up that I as low.

> I am to see the doc that was seeing me in teh hosp. this week. He

> told me I should see an endo but he would wacth me while I got into

> one. Well I got in sooner than I thought and I am told so not take

> anything for the adrenals or thyroid he is not think I have issues

> with them. The salivia test he dismissed but patients are raving

> about him. The gyno i saw told me that I must see an Endo as the

> salviia tests she believes and my levels were off ont hem TSH high

> and the frees low.

> I have no strength to deal with this any longer. I have raead alot

> here and on realthyroid.com and I am beside myself. i am lucky I am

> not back in the ER I feel like crap.

> Please can anyone help/give me feedback as to what I can do? Do I

> need the thyroid , do I need cortef. The minute I told the ENdo

> towards the end of the appt. I was on a Medrol pack in Jan he said

> that is why your cortisol is so low and I will retest weeks from

now.

> My cortisol was at a stage 5 with the salivia that was before teh

> Medrol. I do not have it in me anymore to go to docs and I need

help

> and will end up back in the ER if I am not getting better. I know

> alot of docs do not want ot deal with these issues but this Endo

has

> helped many others. He ordered the same ACTH test as hosp/ etcc.

> I am low in D as well. I wil get teh D3 and I did read ashile back

> about what type of Iron but can someone please tel me as I lost the

> post on it.

> Thanks for reading. I know it is long but w/o the facts how could

> anyone help.

> Peace,

> a

>

[Guest guest]

Hi a,

I'm not real knowledgable about all the other hormones, estrogen

etc. But I think you just need to slow down and stop going to all

kinds of different doctors. The ER doc gave you some scripts. I

think you're right to start on cortef 20mg per day 5mg four times a

day. At the same time i'd start on some iron, do the vitamin c and

others you mentioned. And just give it a few weeks and see if the

cortef helps. Write on here again at that point if you need

direction on when/how to add in the armour.

I don't know anything about the amino acids, but like I said, it

might be best to just keep it simple...take the cortef and a couple

supplements you KNOW you need, and give it time to work.

I hope you feel better soon and that the brain fog lifts a bit with

the cortef!

Liz

>

> > a, it sounds to me liek ehat you heard abotu this Endo is

from

> > uninformed peolle with not so serious problems as you. I have to

say it

> > is unlikley you will find a decent doc on your insurance plan as

the

> > GOOD docs usually don't take insurance as they do nto want an

insurance

> > company dictating to them what tests they can run, nor what meds

they

> > can prescribe nor how often they can see you. I have seen almost

NO

> > decent doc in the last few years that accepted any kind of

insurance.

> > Which leaves many of us in a really bad place. Pay out of pocket

for a

> > decent doctor (IF we can manage that!) or self treat or stay sick.

> > Really not good choices, but choices for life, none the less. I

think

> > you have to make this choice and there is no advice we cna give

you that

> > will elp this decision as you must do it on your own. Or you can

try

> > another Endo, but I have not found Endos to be good doctors at

all. I am

> > sickened by this specialty that really is nothing but a snob club.

> >

> > --

> > Artistic Grooming- Hurricane WV

> >

> > http://www.stopthethyroidmadness.com/

> >

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> > http://health.groups.yahoo.com/group/RT3_T3/

> >

> >

> >

>

>

>

[Guest guest]

Liz,

I am woke up less brain fogged(=

The reason I had to go into the ER is honestly I could not move without the

help of my parents.

My BP was so off when getting up I was pratcially fainting.

I will take your advice and take the Cortef split up. he had me takig 10 mg

in morning and 10 in the afternoon and it was way too much at once.

I was short on funds but luckily I found that I have a tad money to get the

C and and Iron today.

The Endo gave me a packet of labs to take two weeks prior to May 29th.

Although he was felt I did not have a thyroid or cortisol issue I am still

going to use the lab request because it is testing 20 things and my

insurance covers it.

Just for clarification testing free cortisol (serum) once I hev taken cortef

will be skewed?

I also read a post last night on this group regarding Iron. It was said that

one should be fasting and look at the saturated levels for the true number.

My father has Iron overload and his first cousin as well I believe. I wil

start the Iron but maybe low and then raise it up .

In regards to the Armour, for now, I think I should hold off until I can get

my cortisol a bit better. I was a stage 5 or 6 from results of the salivia

test back in this Jan.

I will also try adn get the aldosterone and renin checked by the doc this

Thursday.

Thanks Liz for your time and patiece.

a (=

> Hi a,

>

> I'm not real knowledgable about all the other hormones, estrogen

> etc. But I think you just need to slow down and stop going to all

> kinds of different doctors. The ER doc gave you some scripts. I

> think you're right to start on cortef 20mg per day 5mg four times a

> day. At the same time i'd start on some iron, do the vitamin c and

> others you mentioned. And just give it a few weeks and see if the

> cortef helps. Write on here again at that point if you need

> direction on when/how to add in the armour.

>

> I don't know anything about the amino acids, but like I said, it

> might be best to just keep it simple...take the cortef and a couple

> supplements you KNOW you need, and give it time to work.

>

> I hope you feel better soon and that the brain fog lifts a bit with

> the cortef!

> Liz

>

>

> >

> > > a, it sounds to me liek ehat you heard abotu this Endo is

> from

> > > uninformed peolle with not so serious problems as you. I have to

> say it

> > > is unlikley you will find a decent doc on your insurance plan as

> the

> > > GOOD docs usually don't take insurance as they do nto want an

> insurance

> > > company dictating to them what tests they can run, nor what meds

> they

> > > can prescribe nor how often they can see you. I have seen almost

> NO

> > > decent doc in the last few years that accepted any kind of

> insurance.

> > > Which leaves many of us in a really bad place. Pay out of pocket

> for a

> > > decent doctor (IF we can manage that!) or self treat or stay sick.

> > > Really not good choices, but choices for life, none the less. I

> think

> > > you have to make this choice and there is no advice we cna give

> you that

> > > will elp this decision as you must do it on your own. Or you can

> try

> > > another Endo, but I have not found Endos to be good doctors at

> all. I am

> > > sickened by this specialty that really is nothing but a snob club.

> > >

> > > --

> > > Artistic Grooming- Hurricane WV

> > >

> > > http://www.stopthethyroidmadness.com/

> > >

> http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> > > http://health.groups.yahoo.com/group/RT3_T3/

> > >

> > >

> > >

> >

> >

> >

[Guest guest]

Liz,

I am woke up less brain fogged(=

The reason I had to go into the ER is honestly I could not move without the

help of my parents.

My BP was so off when getting up I was pratcially fainting.

I will take your advice and take the Cortef split up. he had me takig 10 mg

in morning and 10 in the afternoon and it was way too much at once.

I was short on funds but luckily I found that I have a tad money to get the

C and and Iron today.

The Endo gave me a packet of labs to take two weeks prior to May 29th.

Although he was felt I did not have a thyroid or cortisol issue I am still

going to use the lab request because it is testing 20 things and my

insurance covers it.

Just for clarification testing free cortisol (serum) once I hev taken cortef

will be skewed?

I also read a post last night on this group regarding Iron. It was said that

one should be fasting and look at the saturated levels for the true number.

My father has Iron overload and his first cousin as well I believe. I wil

start the Iron but maybe low and then raise it up .

In regards to the Armour, for now, I think I should hold off until I can get

my cortisol a bit better. I was a stage 5 or 6 from results of the salivia

test back in this Jan.

I will also try adn get the aldosterone and renin checked by the doc this

Thursday.

Thanks Liz for your time and patiece.

a (=

> Hi a,

>

> I'm not real knowledgable about all the other hormones, estrogen

> etc. But I think you just need to slow down and stop going to all

> kinds of different doctors. The ER doc gave you some scripts. I

> think you're right to start on cortef 20mg per day 5mg four times a

> day. At the same time i'd start on some iron, do the vitamin c and

> others you mentioned. And just give it a few weeks and see if the

> cortef helps. Write on here again at that point if you need

> direction on when/how to add in the armour.

>

> I don't know anything about the amino acids, but like I said, it

> might be best to just keep it simple...take the cortef and a couple

> supplements you KNOW you need, and give it time to work.

>

> I hope you feel better soon and that the brain fog lifts a bit with

> the cortef!

> Liz

>

>

> >

> > > a, it sounds to me liek ehat you heard abotu this Endo is

> from

> > > uninformed peolle with not so serious problems as you. I have to

> say it

> > > is unlikley you will find a decent doc on your insurance plan as

> the

> > > GOOD docs usually don't take insurance as they do nto want an

> insurance

> > > company dictating to them what tests they can run, nor what meds

> they

> > > can prescribe nor how often they can see you. I have seen almost

> NO

> > > decent doc in the last few years that accepted any kind of

> insurance.

> > > Which leaves many of us in a really bad place. Pay out of pocket

> for a

> > > decent doctor (IF we can manage that!) or self treat or stay sick.

> > > Really not good choices, but choices for life, none the less. I

> think

> > > you have to make this choice and there is no advice we cna give

> you that

> > > will elp this decision as you must do it on your own. Or you can

> try

> > > another Endo, but I have not found Endos to be good doctors at

> all. I am

> > > sickened by this specialty that really is nothing but a snob club.

> > >

> > > --

> > > Artistic Grooming- Hurricane WV

> > >

> > > http://www.stopthethyroidmadness.com/

> > >

> http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> > > http://health.groups.yahoo.com/group/RT3_T3/

> > >

> > >

> > >

> >

> >

> >

[Guest guest]

Liz,

I am woke up less brain fogged(=

The reason I had to go into the ER is honestly I could not move without the

help of my parents.

My BP was so off when getting up I was pratcially fainting.

I will take your advice and take the Cortef split up. he had me takig 10 mg

in morning and 10 in the afternoon and it was way too much at once.

I was short on funds but luckily I found that I have a tad money to get the

C and and Iron today.

The Endo gave me a packet of labs to take two weeks prior to May 29th.

Although he was felt I did not have a thyroid or cortisol issue I am still

going to use the lab request because it is testing 20 things and my

insurance covers it.

Just for clarification testing free cortisol (serum) once I hev taken cortef

will be skewed?

I also read a post last night on this group regarding Iron. It was said that

one should be fasting and look at the saturated levels for the true number.

My father has Iron overload and his first cousin as well I believe. I wil

start the Iron but maybe low and then raise it up .

In regards to the Armour, for now, I think I should hold off until I can get

my cortisol a bit better. I was a stage 5 or 6 from results of the salivia

test back in this Jan.

I will also try adn get the aldosterone and renin checked by the doc this

Thursday.

Thanks Liz for your time and patiece.

a (=

> Hi a,

>

> I'm not real knowledgable about all the other hormones, estrogen

> etc. But I think you just need to slow down and stop going to all

> kinds of different doctors. The ER doc gave you some scripts. I

> think you're right to start on cortef 20mg per day 5mg four times a

> day. At the same time i'd start on some iron, do the vitamin c and

> others you mentioned. And just give it a few weeks and see if the

> cortef helps. Write on here again at that point if you need

> direction on when/how to add in the armour.

>

> I don't know anything about the amino acids, but like I said, it

> might be best to just keep it simple...take the cortef and a couple

> supplements you KNOW you need, and give it time to work.

>

> I hope you feel better soon and that the brain fog lifts a bit with

> the cortef!

> Liz

>

>

> >

> > > a, it sounds to me liek ehat you heard abotu this Endo is

> from

> > > uninformed peolle with not so serious problems as you. I have to

> say it

> > > is unlikley you will find a decent doc on your insurance plan as

> the

> > > GOOD docs usually don't take insurance as they do nto want an

> insurance

> > > company dictating to them what tests they can run, nor what meds

> they

> > > can prescribe nor how often they can see you. I have seen almost

> NO

> > > decent doc in the last few years that accepted any kind of

> insurance.

> > > Which leaves many of us in a really bad place. Pay out of pocket

> for a

> > > decent doctor (IF we can manage that!) or self treat or stay sick.

> > > Really not good choices, but choices for life, none the less. I

> think

> > > you have to make this choice and there is no advice we cna give

> you that

> > > will elp this decision as you must do it on your own. Or you can

> try

> > > another Endo, but I have not found Endos to be good doctors at

> all. I am

> > > sickened by this specialty that really is nothing but a snob club.

> > >

> > > --

> > > Artistic Grooming- Hurricane WV

> > >

> > > http://www.stopthethyroidmadness.com/

> > >

> http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> > > http://health.groups.yahoo.com/group/RT3_T3/

> > >

> > >

> > >

> >

> >

> >

[Guest guest]

>>Just for clarification testing free cortisol (serum) once I hev taken cortef

will be skewed?<<

Yes.

--

Artistic Grooming- Hurricane WV

http://www.stopthethyroidmadness.com/

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

http://www.seewell4less.com/Valspage.htm Medical Alert Bracelets

[Guest guest]

Since your adrenals are so burnt out it makes sense you are having

major BP problems...the adrenals also produce aldosterone and this is

the one that apparently helps with hearing...so maybe by taking the

cortef to support your adrenals, the hearing issue will also

improve. I know I used to get majorly dizzy going from sitting to

standing up, but after just a couple weeks on cortef, it went away.

I'm not saying it will resolve that quickly for you, but it should

help anyway! You can always slowly ramp up the cortef too. I think

I took 15 mg split 3 times in the day for a few weeks before going to

20mg.

Your iron, and saturated % and ferritin are all VERY low...you are

not at risk of high iron! I wouldn't worry about taking 100mg

anyway, with the C, and then re-test if you can in a couple months to

see if you're absorbing and if iron is going up.

always recommends getting cortisol and iron levels up before

starting armour so that sounds like a good plan. For iron she told me

to at least have ferritin up at 30. However, I didn't follow her

advice and did start on armour before that, but just on 1/4 grain (i

have been losing hair and just wanted to start the armour to help

with that), plus my TSH was 7.9 so I really wanted to start it

lowering. But, everyone is different, so I think your plan is a good

one. You also are taking other meds so you want to go slow to watch

for interactions i'm guessing. You may be able to decrease any anti-

depressants after being on cortef for awhile...I know it helped me

big time with negative thoughts and depression.

take care and keep in touch...i'll be curious to know about the

aldosterone test. Maybe you should wait and start the cortef after

your Thursday test...but i'd ask valerie about that. Even though the

cortef might skew your serum cortisol...if you're not having that

test till the end of May i'd just start cortef so you can begin

feeling better, especially since you have saliva results already and

know you need the cortef!

Liz

> > >

> > > > a, it sounds to me liek ehat you heard abotu this Endo is

> > from

> > > > uninformed peolle with not so serious problems as you. I have

to

> > say it

> > > > is unlikley you will find a decent doc on your insurance plan

as

> > the

> > > > GOOD docs usually don't take insurance as they do nto want an

> > insurance

> > > > company dictating to them what tests they can run, nor what

meds

> > they

> > > > can prescribe nor how often they can see you. I have seen

almost

> > NO

> > > > decent doc in the last few years that accepted any kind of

> > insurance.

> > > > Which leaves many of us in a really bad place. Pay out of

pocket

> > for a

> > > > decent doctor (IF we can manage that!) or self treat or stay

sick.

> > > > Really not good choices, but choices for life, none the less.

I

> > think

> > > > you have to make this choice and there is no advice we cna

give

> > you that

> > > > will elp this decision as you must do it on your own. Or you

can

> > try

> > > > another Endo, but I have not found Endos to be good doctors at

> > all. I am

> > > > sickened by this specialty that really is nothing but a snob

club.

> > > >

> > > > --

> > > > Artistic Grooming- Hurricane WV

> > > >

> > > > http://www.stopthethyroidmadness.com/

> > > >

> >

http://health.groups.yahoo.com/group/NaturalThyroidHormonesADRENALS/

> > > > http://health.groups.yahoo.com/group/RT3_T3/

> > > >

> > > >

> > > >

> > >

> > >

> > >