help !!! insurance/financing question

[Guest guest]

Yuka, we were originally told we had very little home care coverage when

erika was first coming home. as it turns out it states in our plan that as

" medically necessary " was the key phrase. Now, as long as we can provide

medical

necessity, ie; doctors letters etc. our insurance is much more reasonable

and actually has been very good.

cathie, mom to erika

************************************** See what's free at http://www.aol.com.

[Guest guest]

Yuka,

By California Children's Fund, do you mean California Children's

Services? That is whom we used for years. We were also tapped into an

agency in the SF Bay Area called Golden Gate Regional Center, but that

was 20 years ago, so no telling if they are still in 'business'.

--

--- Yuka Persico yuka@...> wrote:

> Dear List-

>

> A dear darling five week old boy with CHARGE is nearing the time he

> may be discharged from the hospital. The parents have been told by

> the case manager for their health insurance (PPO) that they are only

> covered for $ 2,000 for equipment, which would only last two months.

> They have already been rejected by California Children's Fund.

>

> I realize there are probably gaps in my information that would help

> in giving support - but any information of how to navigate and

> enlighten insurance, where to seek support, what other agencies to

> seek out would be deeply appreciated. Any questions which would help

> in giving advice I will forward as well as suggestions )

>

> THANK YOU !!!!

>

> Yuka

>

>

[Guest guest]

Yuka,

By California Children's Fund, do you mean California Children's

Services? That is whom we used for years. We were also tapped into an

agency in the SF Bay Area called Golden Gate Regional Center, but that

was 20 years ago, so no telling if they are still in 'business'.

--

--- Yuka Persico yuka@...> wrote:

> Dear List-

>

> A dear darling five week old boy with CHARGE is nearing the time he

> may be discharged from the hospital. The parents have been told by

> the case manager for their health insurance (PPO) that they are only

> covered for $ 2,000 for equipment, which would only last two months.

> They have already been rejected by California Children's Fund.

>

> I realize there are probably gaps in my information that would help

> in giving support - but any information of how to navigate and

> enlighten insurance, where to seek support, what other agencies to

> seek out would be deeply appreciated. Any questions which would help

> in giving advice I will forward as well as suggestions )

>

> THANK YOU !!!!

>

> Yuka

>

>

[Guest guest]

Dear List-

A dear darling five week old boy with CHARGE is nearing the time he may be

discharged from the hospital. The parents have been told by the case manager

for their health insurance (PPO) that they are only covered for $ 2,000 for

equipment, which would only last two months. They have already been rejected by

California Children's Fund.

I realize there are probably gaps in my information that would help in giving

support - but any information of how to navigate and enlighten insurance, where

to seek support, what other agencies to seek out would be deeply appreciated.

Any questions which would help in giving advice I will forward as well as

suggestions )

THANK YOU !!!!

Yuka

[Guest guest]

Yuka,

My son, is now 25 years old, and some things do seem like only

yesterday that they happened! Now he's working, driving, and going to

community college (occasionally, as the mood strikes), still not living

on his own, but that is next on the list!

--

--- Yuka Persico yuka@...> wrote:

> Dear -

>

> Thank you for your reply. I think you are absolutely right, they

> probably do mean CCS, I was literally transferring their text message

> to me into my email in hopes of not messing anything up. I will

> mention both CCS and Regional Center to them in case they haven't

> checked them for financial resource, but I do recall both agencies

> have already been in contact with them. Both agencies contacted us

> as well when was an infant (..18 years ago! gasp!). I never

> knew anything about this world - suddenly I had all these well

> intended people coming over asking me the same questions over and

> over filling in a myriad of forms and giving me binders of resource

> telephone numbers and leaving. Seems like yesterday....

> thanks again-

>

> yuka

>

>

> Re: help !!! insurance/financing question

>

>

> Yuka,

>

> By California Children's Fund, do you mean California Children's

> Services? That is whom we used for years. We were also tapped into

> an

> agency in the SF Bay Area called Golden Gate Regional Center, but

> that

> was 20 years ago, so no telling if they are still in 'business'.

>

> --

>

> --- Yuka Persico yuka@...> wrote:

>

> > Dear List-

> >

> > A dear darling five week old boy with CHARGE is nearing the time

> he

> > may be discharged from the hospital. The parents have been told

> by

> > the case manager for their health insurance (PPO) that they are

> only

> > covered for $ 2,000 for equipment, which would only last two

> months.

> > They have already been rejected by California Children's Fund.

> >

> > I realize there are probably gaps in my information that would

> help

> > in giving support - but any information of how to navigate and

> > enlighten insurance, where to seek support, what other agencies

> to

> > seek out would be deeply appreciated. Any questions which would

> help

> > in giving advice I will forward as well as suggestions )

> >

> > THANK YOU !!!!

> >

> > Yuka

> >

> >

[Guest guest]

Yuka,

If the parents are like us.. make too much to meet low income requirments..

there are other programs.. CCS for one.. we can qualify if the medical needs

exceed a certain percent of net income, there is also a MediCal program to help,

also Regional Center..I'm not up on most but I do know someone that does ,

California Deaf Blind Services (I'll put contact info at the end). The parents

can get a hold of Jackie, and she will give them the contact info on the closest

Family Service Provider in their area. Great support for the family and they do

know CHARGE, have info on local agencies that can help.

Here's Jackie's contact info:

Jackie Kenley, Family Specialist

California Deaf-Blind Services

San Francisco State University-Pacific Plaza

1600 Holloway

San Francisco, CA 94132-4201

FAX

1 ext 3 (in CA only)

Casey

PS: Brown is part of CDBS

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[Guest guest]

They should also look into having their child declared

" institutionally deemed " for Medi-Cal. See here:

http://www.dds.cahwnet.gov/Title17/SectionView.cfm?Section=50247.htm

This means that the parents income will not be used to determine if

their child is eligible. Unfortunately, they make you apply for

medi-cal as a family first.

>

> Dear List-

>

> A dear darling five week old boy with CHARGE is nearing the time he

may be discharged from the hospital. The parents have been told by

the case manager for their health insurance (PPO) that they are only

covered for $ 2,000 for equipment, which would only last two months.

They have already been rejected by California Children's Fund.

>

> I realize there are probably gaps in my information that would help

in giving support - but any information of how to navigate and

enlighten insurance, where to seek support, what other agencies to

seek out would be deeply appreciated. Any questions which would help

in giving advice I will forward as well as suggestions )

>

> THANK YOU !!!!

>

> Yuka

>

>