Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 I was on these drugs for nine years, im off of them now. it took two tries and over a year to get off of them. for anyone thats on these meds and wants off of them it can be done. never go off of them cold turkey, NEVER. sherie BENZODIAZEPINE WITHDRAWAL SYMPTOMS By LIZ WOOD As time has gone by, it has become more and more obvious that the benzodiazepines have intrinsic addictive properties; they would not be exchanging hands on the black market if they did not. Over the years, however, doctors and patients have had tremendous problems separating the withdrawal syndrome from an anxiety syndrome, because the benzodiazepine withdrawal syndrome does mimic an anxiety syndrome to a large extent. This is only to be expected due to the tolerance of the drug at the benzodiazepine receptor complex: a decrease in receptor sites results in the inhibitory effects of the neurotransmitter GABA becoming less and less effective and excess excitatory effects result in anxiety symptoms. There are symptoms that some researchers believe are seen mainly in benzodiazepine withdrawal and rarely seen in anxiety. Examples are perceptual symptoms like undulating floors. As a general rule, however, these symptoms that develop during benzodiazepine ingestion and withdrawal that are different from the original problem are symptoms of a withdrawal syndrome. Usually there are a cluster of symptoms that appear together. Some of the symptoms that occur can be attributed to benzodiazepines whilst others like weight gain are secondary symptoms related to the overall withdrawal effect; i.e. inability to exercise due to muscular ridgitity could result in weight gain. Also the symptoms that may have occurred due to an original anxiety problem may well be enhanced by the addiction. The very people the drugs are supposed to help the most are those that it helps the least. It is also worth mentioning that regardless of whether the drug is addictive or not, the therapeutic effects are not conducive to solving the original problems. In the very short term the sedative effects may be beneficial in situations of shock due to death for example. However, counselling, behaviour therapy and psychotherapy are less effective whilst the drug is being ingested. LIST OF SYMPTOMS DOUBLE VISION TIRED EYES BLURRED VISION SCREWING UP OF THE EYES TENSION BETWEEN THE EYES RAPID BLINKING OF THE EYES DIZZINESS AGITATED SIGHT-LOSS OF CONTROL OF THE MOVEMENT OF THE EYES PUPILS IN THE EYES BECOME MINUTE IRIS IN THE EYES CHANGE COLORS WAVES, SPARKS AND FLASHES OF LIGHT HYPERSENITIVITY TO LIGHT AND SOUND AND SMELL SEEING SPOTS TOTAL LOSS OF CONFIDENCE FEAR OF BEING ALONE THOUGHTS AND FEELINGS THAT YOU ARE DYING RAPID MOOD CHANGES INSOMNIA LOSS OF CONCENTRATION LOSS OF INTEREST IN PEOPLE AND THINGS INABILITY TO READ DYSPHORIA FEELING OF VULNERABILITY REPETITIVE THOUGHTS A FEAR OF INSANITY A FEELING OF IMPENDING DOOM DEMENTED AND MURDEROUS THOUGHTS IRRATIONAL RAGE LOSS OF SELF RESPECT DEPRESSION ANXIETY PARANOIA UNUSUALLY DISTURBED AND SENSITIVE PHOBIAS FEAR OF LOSING CONTROL DE-REALISATION SPEECH DIFFICULTIES DIFFICULTY IN WRITING SLOWLY INABILITY TO WRITE DISORIENTATION INABILITY TO COMPHREHEND THE SIMPLEST OF THINGS OBSESSIVE BEHAVIOUR FEAR OF WATER HYSTERICAL AND INNAPPROPRIATE LAUGHTER NIGHTMARES LOSS OF MEMORY FEELINGS OF THE SPIRIT BEING OUT OF SYNCHRONISATION WITH THE BODY SUICIDAL FEELINGS AGORAPHOBIA DEPERSONALISATION BRAIN MOVING WITHIN THE SKULL INABILITY TO COPE WITH A LOT OF INFORMATION HALLUCINATIONS VERTIGO TIREDNESS LEGS, ARMS AND HEAD VERY HEAVY PARESTHESIA EXERCISE INTOLERANCE SEVERE MUSCULAR RIDGIDITY ALL OVER MUSCULAR WEAKNESS MUSCLE WASTAGE ACHING JOINTS AND MUSCLES RESTLESSNESS RESTLESS LEGS IN BED AT NIGHT SEVERE CRAMPING IN THE STOMACH ELECTRIC SHOCK AND MUSCULAR SPASMS UNABLE TO WALK ARMS AND LEGS FEEL DETACHED FROM BODY GRINDING TEETH INTENSE JAW PAIN JAWS CLAMPED TOGETHER NEURALGIA PAINS IN THE NECK TO THE SHOULDER BLADES TICKLING AND ITCHING FEELING OVER THE WHOLE BODY NUMBNESS, PAIN, PINS AND NEEDLES SHARP THROBBING PAIN IN THE WRISTS CLUMSINESS LACK OF CO-ORDINATION BUILDINGS APPEAR TO BE LEANING LEGS FEEL LIKE JELLY SWEATING FEELING OF EXTREME COLD NAUSEA FLU LIKE SYMPTOMS TIGHT BAND AROUND THE HEAD INTENSE FUZZY FEELING IN THE HEAD TINNITUS EARACHE SINUS PROBLEMS TWITCHING OF THE HEAD FEELINGS OF WORMS UNDER THE SCALP SEIZURES PAINS IN THE TEMPLE SEVERE HEADACHES EXTREMELY NERVOUS AND JUMPY HYPERACTVITY PANIC ATTACKS FEELINGS OF SHAKING INSIDE AND OUT HEAVY POUNDING OF THE HEART WHEN CLIMBING STAIRS BREATHLESSNESS OVER BREATHING HEARTBURN PAINS IN THE LUNGS MISSED HEARTBEATS MILD HYPERTENSION PAINS IN THE CHEST IMPOTENCY HAIR LOSS PROBLEMS OF DECAYING TEETH AND GUMS CRACKED AND SORE LIPS ALLERGIES TO FOOD SENSITIVE TO CHEMICALS AND ODORS METALLIC TASTE IN MOUTH EXTREME THIRST SWALLOWING DIFFICULTIES DRY MOUTH FEELING BLOATED DIAHORREA CONSTIPATION RASHES,BLOTCHES AND BURNING SENSATIONS ON THE SKIN TOE AND FINGERNAILS CHANGE COLOR FROM PINK TO GREY SALIVA RUNNING FROM MOUTH WHILE SLEEPING CUTS AND ABRASIONS TAKE WEEKS TO HEAL SPEECH APPEARS TO BE TWO FEET IN FRONT OF YOU WHEN SPEAKING FLASHBACKS BURNING SPINE " The art of fighting against benzodiazepine withdrawal syndrome is in ability to convince yourself when you feel so bad like you are dying that you are feeling good and that you will get better.It's also a demonstration of the ultimate power of positive thinking within you. " NOTE: ALWAYS GET CHECKED TO MAKE SURE. RULE OUT SERIOUS DISEASE. EVEN IF YOU ARE CONFIDENT THAT WD IS THE CAUSE IT IS BEST TO TRY TO CONFIRM IT. Benzodiazepine Side Effects This is a list of side effects that may result from the use of benzodiazepines: So-called " Paradoxical " Effects According to Professor Malcolm Lader, 5% of those using benzodiazepines may be affected by so-called " paradoxical " reactions in response to the drugs rather than the desired tranquillising effects. Such reactions include increased aggressiveness (in some individuals even violent behaviour), depression (with or without suicidal thoughts or intentions), and sometimes personality changes. In some instances, reactions such as hallucinations, depersonalisation, derealisation and other psychiatric symptoms occur. Ativan (lorazepam) and Halcion (triazolam) in particular may produce dissociation and other psychiatric symptoms. " Paradoxical " side effects occur in all age groups but are more likely to be found in children and in the elderly where they may be fairly frequent yet erroneously diagnosed as various psychiatric disorders. The risk of such reactions is generally greater with short-acting compounds but may occur with all benzodiazepine drugs. It is important to remember that the " paradoxical " reactions can also be encountered in short-term use and, in rare cases, even following the first ingestion of the drug. Long-term Side Effects All the psychological changes mentioned above may occur as long-term side effects when the use (or abuse) has become chronic i.e. has been going on for many months or even years. The frequency of such side effects is significantly higher than the frequency of " paradoxical " side effects. The long-term effects include depression, querulousness or aggression, and subtle personality changes. Further, fatigue, passivity and symptoms of memory and cognitive impairment may ensue. Tolerance with inter-dose withdrawal exists when the originally prescribed dosage no longer produces the original effect, and the patient experiences drug withdrawal although he/she is still taking the preparation. This may lead to an increase of dosage, or more often, result in long-term use. Over time, the above-mentioned long-term side effects may develop. The risk of this course of events is greater with compounds with short half-lives such as Ativan (lorazepam), Halcion (triazolam), Xanax (alprazolam) , Rohypnol (flunitrazepam) and even Serax/Serenid (oxazepam). In addition to the symptomatology described under " Paradoxical Effects " , phobias, OCD, and various neurological symptoms such as tinnitus may occur as long-term side effects. Psychomotor Side Effects Benzodiazepines may cause psychomotor impairment, and several studies have shown an increased risk of road accidents in drivers under the influence of benzodiazepine drugs. The risk of other accidents, for example in industrial workshops, may be increased as well. The elderly are particularly vulnerable to these psychomotor effects and may also develop dysarthria and ataxia. The risk of falls and fractures is pronounced in this population when tranquillisers are used on a regular basis. Cognitive Side Effects Memory functioning is markedly and measurably impaired, especially the ability to store acquired knowledge into long-term memory. This memory impairment is highly relevant to students. The risk of acute amnesia is more pronounced with short-acting drugs. Ativan (lorazepam), Halcion (triazolam), Xanax (alprazolam) and Rohypnol (flunitrazepam) are especially likely to induce such memory impairment. Benzodiazepine Symptoms List More Symptoms Lists 1. ACUTE 2. PROTRACTED 3. PARADOXICAL 4. TOLERANCE EFFECTS (including toxicity) 5. SIDE EFFECTS 6. CATEGORIES OF SYMPTOMS 1. ACUTE: - aggression - anxiety - agoraphobia - apathy - ataxia - breathlessness - chest discomfort and tightness - choking - constipation - convulsions (muscle usually) - dental pain - depersonalisation - depression - derealisation - diarrhoea - distortion of body image, misperceptions - dry, itchy skin - " electric shock " feelings throughout the body - dysphoria - excitability - fasciculations - flushing - formications - head sensations - heart palpitations - hyperacusis - hypersensitivity to stimuli - hyperosmia (sensitive sense of smell) - hyperpyrexia (overheating) - hyperventilation (overbreathing) - insomnia - intrusive thoughts - irrational rage - irritability - jumpiness - metallic taste - nausea - nightmares - obsessions - panic attacks - perceptual disturbances and distortions - photosensitivity - psychotic symptoms (usually transient and confined to rapid withdrawal) - restlessness - seizures (on abrupt discontinuation) - sensory disruption - scalp burning - sore tongue - sweating, night sweats - tinnitus - tremor - vomiting - weakness, " jelly legs " - weight gain - weight loss (this may be quite rapid) Cold Turkey Symptoms usually confined to 'cold turkey' or rapid withdrawal from high doses of benzodiazepines: - confusion - delirium - fits - hallucinations - psychotic symptoms - seizures 2. PROTRACTED: - abnormal muscle tone - anxiety - aching joints - ataxia - allergic reactions - back pain - blepharospasm (eye twitching) - breast pain - apathy - constipation (often alternating with diarrhoea) - cravings - dehydration - dental pain - depersonalisation - depression - derealisation - diarrhoea (often alternating with constipation) - dry, tickly cough - dysphagia - fluctuations in blood pressure - " electric shock " feelings throughout the body - fasciculations - formication (sensation of bugs crawling over skin) - gait disturbance (the ground seems to move underfoot) - gastritis - glassy eyes - hair loss - heartburn - heart palpitations - heavy flu-like symptoms - hyperacusis - hyperaesthesia (sensitivity to stimuli) - hyperosmia - insomnia - iris colour changes - kakosmia - joint pains - leukonychea (whitening of nails) - libidinal changes - malabsorption - menstrual irregularity - muscular cramps - muscular rigidity - muscular spasms - muscular (and bone) weakness - myoclonic convulsions (muscle/nerve spasms) - nausea - neurological problems (topical nerve anaesthesia) - nose bleeds - oedema (especially of ankles and face) - oesophagitis - paraesthesiae (numbing, burning and tingling; pins and needles) - poor concentration - poor short-term memory - perspiring, night sweats - severe headaches - sinusitis - skin insensitivity - sore, itchy eyes - spine (burning sensation) - stomach cramps - thirst - thrush-like symptoms - tremor - tinnitus (ear buzzing, popping, ringing, hissing) - tiny pupils - urinary problems (bladder either 'all on' or 'all off') - vertigo - visual disturbances (blurred, double, vivid) - vomiting - water retention 3. PARADOXICAL: - acute hyperexcited state - agitation - aggressive behaviour - anxiety - breathlessness - excitability - fear - hallucinations - hostility - hyperactivity - increased muscle spasticity - irrational rage - insomnia - nervousness - nightmares, vivid dreams - phobias - rage - restlessness - restless legs, arms - sleep disturbances - tension - tremor - panic attacks 4. TOLERANCE EFFECTS (including toxicity): - anxiety - apnea (night) - breathlessness - dyspnea (breathing problems) - fibrositis - fatigue - gait disturbance - impotence - leaden heaviness - lethargy - libido disturbances - loss of self-confidence - menstrual irregularity - neurological problems - panic attacks - phobias - severe muscle rigidity - short-term memory impairment - vasovagal attacks - vertigo 5. SIDE EFFECTS: - abnormal behaviour or false beliefs - aches and pains (muscle tension) - aggressiveness - agitation - agoraphobia and claustrophobia - anger - anti-social behaviour - apathy - ataxia - blood disorders (resulting in severe tiredness and possible infections) - blurred vision - bradycardia (slow heartbeat/pulse) - breast enlargement - changes in appetite - changes in libido - changes in salivation - chemical sensitivities, allergies - cognitive impairment - confusion - daytime drowsiness - depression - diarrhoea and constipation - diplopia - dizziness - dry, itchy skin - dysarthria - dysphoria - emotional blunting - exhaustion - fatigue - feeling afraid - feeling unreal - feelings of anger and anxiety - flu-like symptoms - hair loss - hallucinations - headaches - hypotension - IBS (Irritable Bowel Syndrome) - inability to pass urine/holding of urine in the bladder - impairment of motor co-ordination - incontinence - insomnia - irritability - jaundice - jaw pains - lack of concentration - lack of confidence - lethargy - many people wonder why they have changed from being happy and outgoing, to being over-anxious and unconfident - memory loss or forgetfulness - mild hypertension - muscle weakness, spasticity, cramps, abnormal tone - nausea - nightmares - numbed emotions - oedema - panic attacks - personality changes - poor muscle control - problems with vision - psychomotor impairment - rashes - reduced alertness - reduced blood pressure - restlessness - shivering - skin problems, rashes - sleep problems - slurred speech - stomach and bowel problems - stomach upsets - suicidal behaviour - thyroid disturbances - tolerance - tremor - urinary retention - vertigo - violence - water retention - weight gain - xeroderma (dry skin) 6. CATEGORIES OF SYMPTOMS: CARDIOVASCULAR: Fluctuations in blood pressure Mild hypertension Shivering, feelings of extreme cold or hot Heart palpitations DERMATOLOGICAL: Allergic reactions Chemical sensitivities Dry, itchy skin Dry throat, sore tongue, and thrush Formications (sensation of crawling on skin) Glassy eyes Hair loss Leukonychea (whitening of nails) Nosebleeds Oedema Paraesthesiae (numbness, tingling) Perspiring, night sweats Rashes, blotches GASTROINTESTINAL: Bladder incontinence Constipation (sometimes alternating with diarrhoea) Diarrhoea Dyspepsia (indigestion) Gastritis Heartburn Nausea Oesophagitis Stomach cramps GENITOURINARY: Impotence Libido disturbances Menstrual irregularities urinary problems (continence or incontinence) Encopressia (faecal incontinence) MUSCULOSKELETAL: Aching joints Blepharospasm (eye twitches) Formication (sensations of bugs crawling on skin) Gait disturbance Jaw, tooth, neck and shoulder pain Muscle wasting Muscle spasms Rapid weight loss Severe headaches Severe muscle rigidity Tremor or feeling of inner vibration Vertigo NEUROLOGICAL: Blurred vision, seeing spots, flashes, vivid vision Bruxism (teeth grinding) Dysphagia (difficulty eating or swallowing) Electric shock feelings Fatigue, leaden heaviness Hypersensitivity to light, sound, and other stimuli Neurological problems (e.g. topical anaesthesia) Severe muscle rigidity Speech difficulty Thirst Tinnitus (ear buzzing, popping, ringing, hissing) Tiny pupils Tremor PARADOXICAL: Agitation Aggressive behaviour anxiety Breathlessness Excitability Fear Hostility Hyperactivity Irrational rage Insomnia Nervousness Nightmares, vivid dreams Phobias Restlessness PSYCHIATRIC: Apathy Anxiety Delirium Depersonalisation Depression Derealisation Distortions or hallucinations Dysphoria (inability to feel pleasure or happiness) Fear Hyperventilation Hyperreflexia (`jumpiness' ) Hypnologic hallucinations sleepwalking) Lack of concentration Nightmares Obsessions Paranoia Phobias (hydrophobia, agoraphobia, monophobia, acrophobia, anthropophobia and others) Rapid mood changes Suicidal thoughts Short-term memory impairment RESPIRATORY: Breathlessness Choking Dry, tickly cough Dyspnea (breathing difficulty) Hyperventilation (overbreathing) Inability to draw satisfying breath Night apnea Sinusitis These lists are pretty comprehensive and include symptoms reported by members of the Benzo Group. It is mercifully unlikely that any one person will experience all the symptoms recorded here. They are given purely for reference purposes. Note: It is difficult to determine exactly which symptoms are acute and which are protracted. Everyone's experience is clearly different. Ray Nimmo and others from the Benzo Group · July 2000. BENZODIAZEPINE WITHDRAWAL SYMPTOMS from Tranx, Australia There are many symptoms that can be experienced during benzodiazepine withdrawal. Some common withdrawal symptoms are increased anxiety, insomnia, headaches, dizziness, depression and increased sensitivity of the eyes, ears, skin and taste. The following is a complete list of possible withdrawal symptoms: Common withdrawal symptoms: * Abdominal pains and cramp * Agoraphobia * Anxiety * Breathing difficulties * Blurred vision * Changes in perception (faces distorting and inanimate objects moving) * Depression * Distended abdomen * Dizziness * Extreme lethargy * Fears * Feelings of unreality * Flu-like symptoms * Heavy limbs * Heart palpitations * Hypersensitivity to light * Indigestion * Insomnia * Irritability * Lack of concentration * Lack of co-ordination * Loss of balance * Loss of memory * Muscular aches and pains * Nausea * Nightmares * Panic attacks * Rapid mood changes * Restlessness * Severe headaches * Shaking * Seeing spots before the eyes * Sore eyes * Sweating * Tightness in the chest * Tightness in the head Less common withdrawal symptoms: * Aching jaw * Craving for sweet food * Constipation * Depersonalisation (a feeling of not knowing who you are) * Diarrhoea * Difficulty swallowing * Feeling of the ground moving * Hallucinations (auditory and visual) * Hyperactivity * Hypersensitivity to sound * Incontinence, or frequency and urgency * Increased saliva * Loss or changes in appetite * Loss of taste or metallic taste * Menstrual problems (painful periods, irregular periods, cessation of periods) * Morbid thoughts * Numbness in any part of the body * Outbursts of rage or aggression * Paranoia * Painful scalp * Persistent, unpleasant memories * Pins and needles * Rapid changes in body temperature * Sexual problems (changes in libido) * Skin problems (dryness, itchiness, rashes, slow healing) * Sore mouth and tongue * Speech difficulties * Suicidal thoughts * Tinnitus (buzzing or ringing in the ears) * Unusually sensitive (unable to watch the news on television or read the newspaper) * Vaginal discharge * Vomiting * Weight loss or gain Rare withdrawal symptoms: * Blackouts -an episode where the person has no recall of their activity. (This is rare with low dose use, but less rare when large amounts have been taken) * Bleeding from the nose * Bleeding between menstrual cycles * Burning along the spine * Burning sensation around the mouth * Discharge from the breasts * Falling hair * Haemorrhoids * Hypersensitivity to touch * Rectal bleeding * Sinus pain * Seizures (fits) Almost unknown if people reduce gradually. More common for people using high doses who stop suddenly. * Sensitive or painful teeth * Swollen breasts LIST OF SYMPTOMS ASSOCIATED WITH BENZODIAZEPINES & WITHDRAWAL from Kilen, Sweden Note: Some of these are side-effects and tolerance symptoms Changes in perception: Derealisation - a sense of unreality Depersonalisation - insecurity about one's identity, one cannot recognise oneself in the mirror and so on Tinnitus - ringing ears, buzzing, whistling Déjà vu experiences - appear occasionally due to dreams, and sometimes as strong, sudden experiences in the middle of the day Discomfort in the face and around the mouth - a sense of loss of control over face muscles, sometimes appearing as unwanted faces. The cramps spread occasionally to the whole body Formications - A sense that insects are crawling on the body, scalp etc Visual Disturbances - blurred vision, vivid 3D vision Tense head, neck, shoulders. A marked, sometimes hard backache may be experienced while one is taking pills and during abstinence Co-ordination problems - slurred speech, stammering, the mixing up of words when speaking Paraesthesiae - " A thousand needles " Shivering / Heating experiences Dizziness Fatigue - a feel of exhaustion Tension Headache The feeling of that one has a piece of string around the head, a constant pressure on the top of the head Numbness A sense of instability - the ground seems to move beneath one's feet, one walks in the air, a common and very disturbing experience which may last for a long period of time Illusions and hallucinations Paranoia - " people are looking at me, talking about me " . This is also a common symptom of long-term use Changes in emotions: Phobias - This is also a common symptom of long-term use. Fear, anxiety, indignation, panic. This is also a common symptom of long-term use. Resignation - " what is the point of quitting? Melancholy - an abnormal state of depression, guilt, feelings of hopelessness. Suicidal behaviour - everything ranging from suicidal thoughts to actual attempts should be taken seriously Fear of, or a feeling of, becoming mentally ill Lack of confidence Irritability, bursts of fury Restlessness Rapid mood swings Lack of control over impulses Lack of sense of humour Contact seeking Demanding, whining Morbid, destructive thoughts Bodily and vegetative symptoms: Sleeping problems - Insomnia and irregular sleep patterns Loss of appetite Thirst Weight loss Nausea A taste of metal in the mouth Stomach cramps Periods of diarrhoea and periods of constipation Breathing problems Uneven inhalation Hyperventilation Dry coughs Uneven pulse Blood pressure changes, upwards and downwards Palpitations A feeling of swollenness, sometimes very swollen hands, feet and face Sore tongue Difficulty swallowing, dysphagia Tremor - shaking body parts, may go on for months Itches Hair loss Cracks in lips and in the corner of the mouth Libido - usually reduced, but sometimes intensified Changes in menstrual pattern Incontinence - alternatively difficulty voiding bladder Swollen vulva Increased secretion in the vagina Changes in the will and cognitive ability: Deterioration of the memory, the short-term memory is most affected Paralexia - the mixing up of words in texts. Poor concentration Problem with speed and precision in work Loss of ability to take initiatives Problems making make plans or decisions Learning difficulties - it is not unusual that things learnt during the period when one took benzodiazepines will be lost and have to be relearned Drug related behaviour: A subjective need for drugs - " the body cries out for pills " A secret, continued drug use, if necessary with help of lies and fraud Stock of pills Frauds, theft, falsified prescriptions to get pills Seeking replacement drugs - alcohol, pain killers, codeine etc Social changes: Social isolation Loss of contact with others Loss of financial judgement Kleptomania The power acting the strongest for one to continue using pills, regardless of what consequences it has, is FEAR. It is not dangerous to be afraid, but it can be paralysing, especially when one doesn't have the courage to even admit to oneself what one is afraid of. http://www.benzo. org.uk/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 Mark, Thanks for posting this. I wholeheartedly concur! They saved my life many a time. Dahlia > > Oh I'd just like to point out that these drugs DO have their place > and should not be viewed only in negative light. It's true that > these drugs are offen abused and must be used responsibily but > honestly I might not have survived this without them. > > I've been on them for approx. five years and would not have been able > to work without them. Perhaps not even survive. > > They were a LIFE saver when my thyroid and adrenals started going bad > and I didn't know what the heck was wrong with me and idiot doctors > couldn't figure it out. > > These drugs were the only thing that enabled me to cope and hang on > for several years until I finally found the real cause of my > illness. I use to DREAD going to bed at night being woke up > everynight with the night terrors due to low cortisol. Xanax and > Temezpam was the only thing then which enabled me to be able to > sleep. Without sleep I would have went downhill quickly lost job > been thrown out on the street and probably dead or something by now. > > Thanks mainly to HC and Armour I'm almost off now I only take > approx .5mg Clonazepam at bedtime. > > Ok just wanted to put my 2cents. > > Mark > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2008 Report Share Posted March 15, 2008 Hi Everyone, Ok, I have to add my 2 cents too. I have not slept " on my own " in 2 years due to adrenal fatigue and 2 disastorous attempts at fixing my endocrine system by going at it through my sex hormones (estrogen and testosterone). All along, my western doctor knew my adrenals were weak but didn't know best how to adress them. Now i'm going to an ND who is treating adrenals FIRST, and i'm feeling a LOT better, doing a combination of 's vitamin supplements, precursors such as iodine, and Isocort to adress my low coritisol. (FINALLY! this is what i've been wanting to do for so long)... anyway, I, at the moment i use a small amount of klonopin to sleep: .5mg. Last year when i was averaging 3 hours per night for several months --I was going nuts. Ativan worked for a while but the side effects were a killer the next day...plus the tolerance went up with me. Klonopin, " for me " works really well, with very little side effects. The idea for me is not to stay on it, but I think intermitently for people who are suffering so badly, its not a bad idea to use a benzo. But to be aware of how to use it and for how long. I just saw this article on the web recently by a doc who treats adrenals and it " clicked " for me why " ambien " and all the " new " sleep aids don't work. Because benzo's work on the physiological symptoms of anxiety (they are anti-anxiety), which seem to be symptoms of adrenal fatigue (at least for me, i felt like i was in panic most nights, my body only, not my head or my cognitions. although going through that enough eventually wears on your mental health too.) And this doc in this article said benzos can be more helpful for treating insomnia and adrenals while using Jeffries model of treatment. This was the " ah ha! " for me in why regular sleep aids never worked and only wired me more! http://www.usdoctor.com/cortisol.htm (i can't even remember, did i get this article from this list? I may have...) The current messages on benzo's and gaba make a lot of sense in this light to me and it makes sense that one wouldn't ideally want to stay on them for the reason of lowering gaba receptors. However, everybody is different and every body has a different healing time table. whatever it takes! ps. I've been lurking for a few months and you've all help a whole lot. > > > > Oh I'd just like to point out that these drugs DO have their place > > and should not be viewed only in negative light. It's true that > > these drugs are offen abused and must be used responsibily but > > honestly I might not have survived this without them. > > > > I've been on them for approx. five years and would not have been > able > > to work without them. Perhaps not even survive. > > > > They were a LIFE saver when my thyroid and adrenals started going > bad > > and I didn't know what the heck was wrong with me and idiot doctors > > couldn't figure it out. > > > > These drugs were the only thing that enabled me to cope and hang on > > for several years until I finally found the real cause of my > > illness. I use to DREAD going to bed at night being woke up > > everynight with the night terrors due to low cortisol. Xanax and > > Temezpam was the only thing then which enabled me to be able to > > sleep. Without sleep I would have went downhill quickly lost job > > been thrown out on the street and probably dead or something by now. > > > > Thanks mainly to HC and Armour I'm almost off now I only take > > approx .5mg Clonazepam at bedtime. > > > > Ok just wanted to put my 2cents. > > > > Mark > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 > > Oh I'd just like to point out that these drugs DO have their place > and should not be viewed only in negative light. It's true that > these drugs are offen abused and must be used responsibily but > honestly I might not have survived this without them. > > I've been on them for approx. five years and would not have been able > to work without them. Perhaps not even survive. > > They were a LIFE saver when my thyroid and adrenals started going bad > and I didn't know what the heck was wrong with me and idiot doctors > couldn't figure it out. > > These drugs were the only thing that enabled me to cope and hang on > for several years until I finally found the real cause of my > illness. I use to DREAD going to bed at night being woke up > everynight with the night terrors due to low cortisol. Xanax and > Temezpam was the only thing then which enabled me to be able to > sleep. Without sleep I would have went downhill quickly lost job > been thrown out on the street and probably dead or something by now. > > Thanks mainly to HC and Armour I'm almost off now I only take > approx .5mg Clonazepam at bedtime. > > Ok just wanted to put my 2cents. > > Mark > Hi Mark This was my experience too. I didn't get any proper treatment for 23 years and I am positive I wouldn't have survived without clonazepan. It still keeps me sane when I get severe adrenaline attacks at night and helps me to get back to sleep. Without it I would be suicidal at times. Recently my adrenals completely crashed because of daily Diflucan and I still haven't been able to get back to where I was prior to this. My thyroid has a habit of very easily going hyper from hypo and I have got this the past few days so yet again adrenals are being stressed. I don't feel I am ever going to get the balance back. I am lucky in that I respond to only 1/4 of 0.5mg but sometimes at night if I am in a bad way I need 1/2 of 0.5mg. Now that I have got Florinef I am hoping that eventually my adrenals are going to pick up a bit but the extra adrenaline from being a tiny bit hyper keeps pushing me bp up too high anyway so its not a brilliant time to be adding in the Florinef but I know I need it cos I loose so much salt and have done this for many years but it wasn't treated. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Hi , Like you, I've always found the only thing that helps for sleep are benzo's. And I agree sleep is crucial, for mental and physical health. Ambien never touched my sleep problems. Benadryl and other antihistamines worked better than ambien. They're also known to be anti-anxiety agents. I hadn't made the connection why until reading your post. Thank you! btw, after about a month on Florinef, I have stopped needing benzo's to sleep--for the 1st time in 15 years! I find this truly amazing, as I wasn't trying to stop taking klonopin/ativan (I rotated them), one night I just felt I didn't want it, and I haven't looked back. I'm very psyched about this! Dahlia p.s. I may be unusual, but I had no problem at all with withdrawal, didn't notice a thing. Sometimes these articles are written as if we're children and don't know anything and need to be scared to 'behave'. Like when there's no distinction drawn between physiological and pharmalogical doses of hc. Hate that! > > > > > > Oh I'd just like to point out that these drugs DO have their > place > > > and should not be viewed only in negative light. It's true that > > > these drugs are offen abused and must be used responsibily but > > > honestly I might not have survived this without them. > > > > > > I've been on them for approx. five years and would not have been > > able > > > to work without them. Perhaps not even survive. > > > > > > They were a LIFE saver when my thyroid and adrenals started going > > bad > > > and I didn't know what the heck was wrong with me and idiot > doctors > > > couldn't figure it out. > > > > > > These drugs were the only thing that enabled me to cope and hang > on > > > for several years until I finally found the real cause of my > > > illness. I use to DREAD going to bed at night being woke up > > > everynight with the night terrors due to low cortisol. Xanax and > > > Temezpam was the only thing then which enabled me to be able to > > > sleep. Without sleep I would have went downhill quickly lost job > > > been thrown out on the street and probably dead or something by > now. > > > > > > Thanks mainly to HC and Armour I'm almost off now I only take > > > approx .5mg Clonazepam at bedtime. > > > > > > Ok just wanted to put my 2cents. > > > > > > Mark > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 > > Oh I'd just like to point out that these drugs DO have their place > and should not be viewed only in negative light. It's true that > these drugs are offen abused and must be used responsibily but > honestly I might not have survived this without them. > > I've been on them for approx. five years and would not have been able > to work without them. Perhaps not even survive. > > They were a LIFE saver when my thyroid and adrenals started going bad > and I didn't know what the heck was wrong with me and idiot doctors > couldn't figure it out. > > These drugs were the only thing that enabled me to cope and hang on > for several years until I finally found the real cause of my > illness. I use to DREAD going to bed at night being woke up > everynight with the night terrors due to low cortisol. Xanax and > Temezpam was the only thing then which enabled me to be able to > sleep. Without sleep I would have went downhill quickly lost job > been thrown out on the street and probably dead or something by now. > > Thanks mainly to HC and Armour I'm almost off now I only take > approx .5mg Clonazepam at bedtime. > > Ok just wanted to put my 2cents. > > Mark > Mark, I can SO relate. I have been on .5 mg of Klonipin for years. Only a bit higher of dose if I was in a full blown panic attack. Finally I am getting on the right path very slowly for adrenals and thyroid. We are all diff. and that is why somethings work on one person and some people need a whole other set of minerals, meds. etc. I have known serveral people who have goen addicted to these type of meds but those who really need it I believe are the ones not prone to abuse it. Sure I would like to be off it. I would need it less. My situation is that I have in the past 15 years not been able to sleep a a quality sleep. I have tried natural. Once in a blue moon it helped. This is part why I am in stage 5 close to 6 in adrenal issues. I appreciate those who have posted the effects and article on the Benzo's. For ME I have tgo slowly try and heal in baby steps because as most of you are aware this causes this and so on. When I first started researching I was freaking out. I am like how in the world am I going process all this and being I as on three meds for depression made the situation even more dicey. Thanks for everyones posts and precautions! I am feel very blessed I have this support group and such bright individuals that care. Peace and Healing, a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 One thing I found out about " natural " sleep aids (in this case only referring to melatonin), was that melatonin cannot be given to people with adrenal fatigue because it lowers the cortisol levels even further! I once took 12 mg of melatonin (3mg should knock anyone on their butts)... and it wired me for days. I read this in a hormone book by Uzzi Reiss (The Natural Superwoman) or was it his first book on hormones? (my memory is aweful.) i'm not trying to discount melatonin for anyone here that uses it. but if anyone had tried it and didn't work... this is another one of those " Ah ha! " > > > > Oh I'd just like to point out that these drugs DO have their place > > and should not be viewed only in negative light. It's true that > > these drugs are offen abused and must be used responsibily but > > honestly I might not have survived this without them. > > > > I've been on them for approx. five years and would not have been > able > > to work without them. Perhaps not even survive. > > > > They were a LIFE saver when my thyroid and adrenals started going > bad > > and I didn't know what the heck was wrong with me and idiot doctors > > couldn't figure it out. > > > > These drugs were the only thing that enabled me to cope and hang on > > for several years until I finally found the real cause of my > > illness. I use to DREAD going to bed at night being woke up > > everynight with the night terrors due to low cortisol. Xanax and > > Temezpam was the only thing then which enabled me to be able to > > sleep. Without sleep I would have went downhill quickly lost job > > been thrown out on the street and probably dead or something by now. > > > > Thanks mainly to HC and Armour I'm almost off now I only take > > approx .5mg Clonazepam at bedtime. > > > > Ok just wanted to put my 2cents. > > > > Mark > > > Mark, > I can SO relate. I have been on .5 mg of Klonipin for years. Only a > bit higher of dose if I was in a full blown panic attack. Finally I > am getting on the right path very slowly for adrenals and thyroid. > We are all diff. and that is why somethings work on one person and > some people need a whole other set of minerals, meds. etc. > I have known serveral people who have goen addicted to these type of > meds but those who really need it I believe are the ones not prone to > abuse it. Sure I would like to be off it. I would need it less. My > situation is that I have in the past 15 years not been able to sleep > a a quality sleep. I have tried natural. Once in a blue moon it > helped. This is part why I am in stage 5 close to 6 in adrenal > issues. > I appreciate those who have posted the effects and article on the > Benzo's. For ME I have tgo slowly try and heal in baby steps because > as most of you are aware this causes this and so on. When I first > started researching I was freaking out. I am like how in the world am > I going process all this and being I as on three meds for depression > made the situation even more dicey. > Thanks for everyones posts and precautions! I am feel very blessed I > have this support group and such bright individuals that care. > Peace and Healing, > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 One thing I found out about " natural " sleep aids (in this case only referring to melatonin), was that melatonin cannot be given to people with adrenal fatigue because it lowers the cortisol levels even further! I once took 12 mg of melatonin (3mg should knock anyone on their butts)... and it wired me for days. I read this in a hormone book by Uzzi Reiss (The Natural Superwoman) or was it his first book on hormones? (my memory is aweful.) i'm not trying to discount melatonin for anyone here that uses it. but if anyone had tried it and didn't work... this is another one of those " Ah ha! " > > > > Oh I'd just like to point out that these drugs DO have their place > > and should not be viewed only in negative light. It's true that > > these drugs are offen abused and must be used responsibily but > > honestly I might not have survived this without them. > > > > I've been on them for approx. five years and would not have been > able > > to work without them. Perhaps not even survive. > > > > They were a LIFE saver when my thyroid and adrenals started going > bad > > and I didn't know what the heck was wrong with me and idiot doctors > > couldn't figure it out. > > > > These drugs were the only thing that enabled me to cope and hang on > > for several years until I finally found the real cause of my > > illness. I use to DREAD going to bed at night being woke up > > everynight with the night terrors due to low cortisol. Xanax and > > Temezpam was the only thing then which enabled me to be able to > > sleep. Without sleep I would have went downhill quickly lost job > > been thrown out on the street and probably dead or something by now. > > > > Thanks mainly to HC and Armour I'm almost off now I only take > > approx .5mg Clonazepam at bedtime. > > > > Ok just wanted to put my 2cents. > > > > Mark > > > Mark, > I can SO relate. I have been on .5 mg of Klonipin for years. Only a > bit higher of dose if I was in a full blown panic attack. Finally I > am getting on the right path very slowly for adrenals and thyroid. > We are all diff. and that is why somethings work on one person and > some people need a whole other set of minerals, meds. etc. > I have known serveral people who have goen addicted to these type of > meds but those who really need it I believe are the ones not prone to > abuse it. Sure I would like to be off it. I would need it less. My > situation is that I have in the past 15 years not been able to sleep > a a quality sleep. I have tried natural. Once in a blue moon it > helped. This is part why I am in stage 5 close to 6 in adrenal > issues. > I appreciate those who have posted the effects and article on the > Benzo's. For ME I have tgo slowly try and heal in baby steps because > as most of you are aware this causes this and so on. When I first > started researching I was freaking out. I am like how in the world am > I going process all this and being I as on three meds for depression > made the situation even more dicey. > Thanks for everyones posts and precautions! I am feel very blessed I > have this support group and such bright individuals that care. > Peace and Healing, > a > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Hi Dahlia, I'm exactly like you. Before my adrenal crash 2 years ago, I " used " Benadryl probalby 3x/week for probably 4 years regularly, which should have been the adrenal sign then and there, but I knew nothing about adrenal fatigue then. BEFORE those 4 years, i used it very intermittently (a few times/month)...I'm quite certain I was " blessed " with weaker than average adrenals going into my 20's. (I'm not late 30s')... looking back at my history of " using " Benadryl...if only i had known then... and supplemented properly... oy. The florinef thing intrigues me. I've heard about this in various circles and among other peers. i just started my iodine and isocort routine so i have a long way to go...I'll keep the florinef in mind. I'm not so certain about my salt/potassium levels at the momement, some tests show high sodium so not so sure. this group has been very educational. thank you for that! best, > > > > > > > > Oh I'd just like to point out that these drugs DO have their > > place > > > > and should not be viewed only in negative light. It's true > that > > > > these drugs are offen abused and must be used responsibily but > > > > honestly I might not have survived this without them. > > > > > > > > I've been on them for approx. five years and would not have > been > > > able > > > > to work without them. Perhaps not even survive. > > > > > > > > They were a LIFE saver when my thyroid and adrenals started > going > > > bad > > > > and I didn't know what the heck was wrong with me and idiot > > doctors > > > > couldn't figure it out. > > > > > > > > These drugs were the only thing that enabled me to cope and > hang > > on > > > > for several years until I finally found the real cause of my > > > > illness. I use to DREAD going to bed at night being woke up > > > > everynight with the night terrors due to low cortisol. Xanax > and > > > > Temezpam was the only thing then which enabled me to be able to > > > > sleep. Without sleep I would have went downhill quickly lost > job > > > > been thrown out on the street and probably dead or something by > > now. > > > > > > > > Thanks mainly to HC and Armour I'm almost off now I only take > > > > approx .5mg Clonazepam at bedtime. > > > > > > > > Ok just wanted to put my 2cents. > > > > > > > > Mark > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 > > > btw, after about a month on Florinef, I have stopped needing benzo's > to sleep--for the 1st time in 15 years! I find this truly amazing, as > I wasn't trying to stop taking klonopin/ativan (I rotated them), one > night I just felt I didn't want it, and I haven't looked back. I'm > very psyched about this! > > Dahlia Congratulations Dahlia! That's wonderful! I haven't slept without meds in about 15 yrs or more either. Wonder why the florinef. Very interesting. Lynn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 Hi , Well, I'm glad for you that you are treating your adrenals, that will go a long way for you. It's hard work,as you know, and this board is certainly fantastically helpful! On a side note, I also take iodine (in the form of Iodoral) and found I had to cut way back on my dose (which was 50 mg) when my adrenals re-crashed this past fall. I can now tolerate about 6.25 mgs without my temps going down. Just a word to the wise. Re: florinef, I had my aldosterone tested and it was in the dirt, my sodium and potassium levels are also lowish by our standards. I wish I had the aldosterone tested years ago, I'm sure it would have screamed out " florinef " , LOL. Best of luck, Dahlia > > Hi Dahlia, > I'm exactly like you. Before my adrenal crash 2 years ago, I " used " > Benadryl probalby 3x/week for probably 4 years regularly, which > should have been the adrenal sign then and there, but I knew nothing > about adrenal fatigue then. BEFORE those 4 years, i used it very > intermittently (a few times/month)...I'm quite certain I > was " blessed " with weaker than average adrenals going into my 20's. > (I'm not late 30s')... looking back at my history of " using " > Benadryl...if only i had known then... and supplemented properly... > oy. > > The florinef thing intrigues me. I've heard about this in various > circles and among other peers. i just started my iodine and isocort > routine so i have a long way to go...I'll keep the florinef in mind. > I'm not so certain about my salt/potassium levels at the momement, > some tests show high sodium so not so sure. > > this group has been very educational. thank you for that! > > best, > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2008 Report Share Posted March 16, 2008 > > > > > > btw, after about a month on Florinef, I have stopped needing benzo's > > to sleep--for the 1st time in 15 years! I find this truly amazing, as > > I wasn't trying to stop taking klonopin/ativan (I rotated them), one > > night I just felt I didn't want it, and I haven't looked back. I'm > > very psyched about this! > > > > Dahlia > > > Congratulations Dahlia! That's wonderful! I haven't slept without meds > in about 15 yrs or more either. Wonder why the florinef. Very > interesting. > > Lynn Hi Lynn, I also am extremely curious, as I had no idea how I would do on the Florinef. This is a wild guess, but I have the feeling that the florinef is not only helping sodium/potassium but also all other minerals, maybe, and that has something to do with sleep. If I find out more, I'll post it. Dahlia > Quote Link to comment Share on other sites More sharing options...
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