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,

Peyton does this holding his pee thing sometimes too. He only does it in

spurts, not all the time. Come to think of it, he's not been doing it for a

while.

He'll wake up w/ a dry diaper(he gets 4 cans- 8 oz each throughout the nite)

and wait unitl late in the am to " go " . Sometimes we'll even start giviing

him his daily routine of bolus' before he'll go.So he'll have the 32 oz. of

overnite feeds plus a few more ounces before he goes-can you imagine?

They've noticed this before when they've done tests on his kidney. They

just said they'd have to watch it because it could cause problems. None so

far though.

So no answers for you, just to say that yes, we have that issue too.

Corrie

>

> ok experts a rather personal ? here for the boys. Tim had a stomache

> yesterday, made it through school, came haome and peed said his penis hurt.

> said the same on sunday--so I called the ped. raced to dr apt. and waited 2

> hours for him to pee. he drank 2 bottles of water and tried many tomes

> before he broke the dam!!!! here is my ? he could not just pee a little

> bit--he had to wait until his bladder was overflowing. he does not pee very

> many times a day--but when he does watch out. we have tried to tell him this

> isn't good for his body, but he cannot seem to go just a little--it's all or

> nothing. anyone else like that? maybe he has a huge bladder and doesn't get

> the sensation until full?

>

> regardless it was a frustrating 2 hours he wasnt eating did eat lunch for

> g-ma today and drank says it doesn't hurt to pee now or last night. threw up

> on way home they gave him augmentan--even tho urine seemed fine at office

> just in case and sent urine to the lab. I'm thinking he may have had virus

> liam had because tim had diarhea this pm. he slept alot of today this am.

>

> had his iep today--school is requesting assisive devices eval for

> writing--school work. also will get earlier bus in am he has to be there for

> 8 am pe class--also is eligable for sports now that he will be in middle

> school--yes, I said middle school!!!!!! of course district will fuss about

> that--only 2 in town go to that school the other will be in first grade--he

> will start at 8:45--not my issue they WILL provide a bus for him when he

> needs it!! tim will be glad to be rid of this boy anyway--he is always

> giving tim the finger!!! nice!! he is 6 years old!!!

>

> said he is doing well--coming out of his shell more--not sure that is

> possible--they mean he is maturing--starting to get more interested in

> children rather than adults, but I think adults would be his first choice

> hands down. reading is getting better, but will never be a strong

> suit--still on low level. but if material is read to him like in social

> studies or science he knows it at about grade level. expressive speech is

> getting better, sentence structure etc, he is becoming quite the big man!!

> with an attitude to go with it!!

>

> another ? all said he attentiveness--being able to stay on task,

> distractability was and issue--(there's a big surprise), anyway speech ther.

> asked if we had ever thought about meds to help with that. any input? well

> guess that is news for today. hoping he goes to school tomorrow--don't

> really want to take him w/me for mamogram!!

>

>

>

>

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Guest guest

,

Peyton does this holding his pee thing sometimes too. He only does it in

spurts, not all the time. Come to think of it, he's not been doing it for a

while.

He'll wake up w/ a dry diaper(he gets 4 cans- 8 oz each throughout the nite)

and wait unitl late in the am to " go " . Sometimes we'll even start giviing

him his daily routine of bolus' before he'll go.So he'll have the 32 oz. of

overnite feeds plus a few more ounces before he goes-can you imagine?

They've noticed this before when they've done tests on his kidney. They

just said they'd have to watch it because it could cause problems. None so

far though.

So no answers for you, just to say that yes, we have that issue too.

Corrie

>

> ok experts a rather personal ? here for the boys. Tim had a stomache

> yesterday, made it through school, came haome and peed said his penis hurt.

> said the same on sunday--so I called the ped. raced to dr apt. and waited 2

> hours for him to pee. he drank 2 bottles of water and tried many tomes

> before he broke the dam!!!! here is my ? he could not just pee a little

> bit--he had to wait until his bladder was overflowing. he does not pee very

> many times a day--but when he does watch out. we have tried to tell him this

> isn't good for his body, but he cannot seem to go just a little--it's all or

> nothing. anyone else like that? maybe he has a huge bladder and doesn't get

> the sensation until full?

>

> regardless it was a frustrating 2 hours he wasnt eating did eat lunch for

> g-ma today and drank says it doesn't hurt to pee now or last night. threw up

> on way home they gave him augmentan--even tho urine seemed fine at office

> just in case and sent urine to the lab. I'm thinking he may have had virus

> liam had because tim had diarhea this pm. he slept alot of today this am.

>

> had his iep today--school is requesting assisive devices eval for

> writing--school work. also will get earlier bus in am he has to be there for

> 8 am pe class--also is eligable for sports now that he will be in middle

> school--yes, I said middle school!!!!!! of course district will fuss about

> that--only 2 in town go to that school the other will be in first grade--he

> will start at 8:45--not my issue they WILL provide a bus for him when he

> needs it!! tim will be glad to be rid of this boy anyway--he is always

> giving tim the finger!!! nice!! he is 6 years old!!!

>

> said he is doing well--coming out of his shell more--not sure that is

> possible--they mean he is maturing--starting to get more interested in

> children rather than adults, but I think adults would be his first choice

> hands down. reading is getting better, but will never be a strong

> suit--still on low level. but if material is read to him like in social

> studies or science he knows it at about grade level. expressive speech is

> getting better, sentence structure etc, he is becoming quite the big man!!

> with an attitude to go with it!!

>

> another ? all said he attentiveness--being able to stay on task,

> distractability was and issue--(there's a big surprise), anyway speech ther.

> asked if we had ever thought about meds to help with that. any input? well

> guess that is news for today. hoping he goes to school tomorrow--don't

> really want to take him w/me for mamogram!!

>

>

>

>

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Guest guest

,

Patty did much of the same. I'm guessing it is that sensation thing. Hers

used to be worse. She'd wake in the am and not have to go till hours later.

Then she'd only go twice a day. Finally we made rules for her. She had to

go in the am, after she got home from school and then before bed. It

actually was a doctor who helped enforce that rule. She finally did fine. It

was

all about routines.

Patty also could not tell when she had an infection. If I thought she had

one we took her in. There were a few times they spun it at the office and

said she didn't have an infection only to call a few days later to say when

they

sent it out they found one.

I'm hoping it's nothing more than a passing fluke.

Yea for the bus situation. You must feel much calmer sending Tim on that

bus now.

As for the paying attention thing, Patty was diagnosed with ADD (Not ADHD)

when she was in high school. I think there were many reasons she had

difficulty paying attention. Yes it was the ADD but it also was her fatigue,

her not

knowing all that was going on around her and her inner voice just wasn't

telling her to calm. We put it in her IEP that she was allowed to take a break

if needed. She'd just take a walk and come back to class within a few

minutes. She was better to attend after. Some thought she was just trying to

get

out of work, which was sometimes true, but most understood how difficult it

was for her and a break was beneficial.

I do have to add that Patty does take meds. It helps regulate her in a way

she needs, i.e. lessens her tics and anxiety. With that she's better able

to pay attention.

Also Patty did much better when she learned how to use a computer. Yes she

grew leaps and bounds with it. I would say learning the computer and various

programs closed that gap tons! Technology is what all our children need

regardless of their disabilities. You would be surprised to find what is truly

out there. Yea for your district.

Middle school! Good luck mom!!

Bonnie, Mom to Kris 24, Patty CHARGE 22 and wife to

************************************** See what's free at http://www.aol.com.

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at least he's not the only one!

maria

Re: peeing issues and iep

,

Peyton does this holding his pee thing sometimes too. He only does it in

spurts, not all the time. Come to think of it, he's not been doing it for a

while.

He'll wake up w/ a dry diaper(he gets 4 cans- 8 oz each throughout the nite)

and wait unitl late in the am to " go " . Sometimes we'll even start giviing

him his daily routine of bolus' before he'll go.So he'll have the 32 oz. of

overnite feeds plus a few more ounces before he goes-can you imagine?

They've noticed this before when they've done tests on his kidney. They

just said they'd have to watch it because it could cause problems. None so

far though.

So no answers for you, just to say that yes, we have that issue too.

Corrie

>

> ok experts a rather personal ? here for the boys. Tim had a stomache

> yesterday, made it through school, came haome and peed said his penis hurt.

> said the same on sunday--so I called the ped. raced to dr apt. and waited 2

> hours for him to pee. he drank 2 bottles of water and tried many tomes

> before he broke the dam!!!! here is my ? he could not just pee a little

> bit--he had to wait until his bladder was overflowing. he does not pee very

> many times a day--but when he does watch out. we have tried to tell him this

> isn't good for his body, but he cannot seem to go just a little--it's all or

> nothing. anyone else like that? maybe he has a huge bladder and doesn't get

> the sensation until full?

>

> regardless it was a frustrating 2 hours he wasnt eating did eat lunch for

> g-ma today and drank says it doesn't hurt to pee now or last night. threw up

> on way home they gave him augmentan--even tho urine seemed fine at office

> just in case and sent urine to the lab. I'm thinking he may have had virus

> liam had because tim had diarhea this pm. he slept alot of today this am.

>

> had his iep today--school is requesting assisive devices eval for

> writing--school work. also will get earlier bus in am he has to be there for

> 8 am pe class--also is eligable for sports now that he will be in middle

> school--yes, I said middle school!!!!!! of course district will fuss about

> that--only 2 in town go to that school the other will be in first grade--he

> will start at 8:45--not my issue they WILL provide a bus for him when he

> needs it!! tim will be glad to be rid of this boy anyway--he is always

> giving tim the finger!!! nice!! he is 6 years old!!!

>

> said he is doing well--coming out of his shell more--not sure that is

> possible--they mean he is maturing--starting to get more interested in

> children rather than adults, but I think adults would be his first choice

> hands down. reading is getting better, but will never be a strong

> suit--still on low level. but if material is read to him like in social

> studies or science he knows it at about grade level. expressive speech is

> getting better, sentence structure etc, he is becoming quite the big man!!

> with an attitude to go with it!!

>

> another ? all said he attentiveness--being able to stay on task,

> distractability was and issue--(there's a big surprise), anyway speech ther.

> asked if we had ever thought about meds to help with that. any input? well

> guess that is news for today. hoping he goes to school tomorrow--don't

> really want to take him w/me for mamogram!!

>

>

>

>

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Guest guest

,

too will go a long time in between pees. We always joke that he

has a bladder the size of Rhode Island. His bowel movements have

always been really large. I mean clog the toilet large. I nicknamed

him Godzilla boy. He is on miralax to keep his movements a little on

the loose side. I always blamed it on his stomach surgeries and the

doctors haven't said other wize.

mom to 31

> >

> > ok experts a rather personal ? here for the boys. Tim had a

stomache

> > yesterday, made it through school, came haome and peed said his

penis hurt.

> > said the same on sunday--so I called the ped. raced to dr apt.

and waited 2

> > hours for him to pee. he drank 2 bottles of water and tried many

tomes

> > before he broke the dam!!!! here is my ? he could not just pee a

little

> > bit--he had to wait until his bladder was overflowing. he does

not pee very

> > many times a day--but when he does watch out. we have tried to

tell him this

> > isn't good for his body, but he cannot seem to go just a little--

it's all or

> > nothing. anyone else like that? maybe he has a huge bladder and

doesn't get

> > the sensation until full?

> >

> > regardless it was a frustrating 2 hours he wasnt eating did eat

lunch for

> > g-ma today and drank says it doesn't hurt to pee now or last

night. threw up

> > on way home they gave him augmentan--even tho urine seemed fine

at office

> > just in case and sent urine to the lab. I'm thinking he may have

had virus

> > liam had because tim had diarhea this pm. he slept alot of today

this am.

> >

> > had his iep today--school is requesting assisive devices eval for

> > writing--school work. also will get earlier bus in am he has to

be there for

> > 8 am pe class--also is eligable for sports now that he will be in

middle

> > school--yes, I said middle school!!!!!! of course district will

fuss about

> > that--only 2 in town go to that school the other will be in first

grade--he

> > will start at 8:45--not my issue they WILL provide a bus for him

when he

> > needs it!! tim will be glad to be rid of this boy anyway--he is

always

> > giving tim the finger!!! nice!! he is 6 years old!!!

> >

> > said he is doing well--coming out of his shell more--not sure

that is

> > possible--they mean he is maturing--starting to get more

interested in

> > children rather than adults, but I think adults would be his

first choice

> > hands down. reading is getting better, but will never be a strong

> > suit--still on low level. but if material is read to him like in

social

> > studies or science he knows it at about grade level. expressive

speech is

> > getting better, sentence structure etc, he is becoming quite the

big man!!

> > with an attitude to go with it!!

> >

> > another ? all said he attentiveness--being able to stay on task,

> > distractability was and issue--(there's a big surprise), anyway

speech ther.

> > asked if we had ever thought about meds to help with that. any

input? well

> > guess that is news for today. hoping he goes to school tomorrow--

don't

> > really want to take him w/me for mamogram!!

> >

> >

> >

> >

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