Re: peeing issues HELP ME!

[Guest guest]

I am having an opposite problem. Yes, does and can hold his pee for

a long time. But, EVERYDAY at 4:30 or so, he has 1 or 2 accidents. He is

also still in a pull-up at night because of his night feeding and I don't

know what to do about this, I want to get rid of the night feeding but he

doesn't eat enough calories during the day, even by tube it is impossible to

squeeze it all in him without becoming ill.

Anyone else have the " accident " issue? I think it could possibly be

purposeful sometimes. Last night he was at dinner and knew he was going to

pee so he put a paper towel between his legs and started to go. I wasn't

home (my husband was) and he was furious. He said he just didn't want to

get up. I am not sure how to handle these " accidents " anymore because I

can't tell if it is physical or behavioral. I am leaning toward behavioral

because when he is out at that time or is with a friend he won't do it.

Debbie Matasker mom to 10 w/CHARGE

Re: peeing issues and iep

at least he's not the only one!

maria

Re: peeing issues and iep

,

Peyton does this holding his pee thing sometimes too. He only does it in

spurts, not all the time. Come to think of it, he's not been doing it for a

while.

He'll wake up w/ a dry diaper(he gets 4 cans- 8 oz each throughout the nite)

and wait unitl late in the am to " go " . Sometimes we'll even start giviing

him his daily routine of bolus' before he'll go.So he'll have the 32 oz. of

overnite feeds plus a few more ounces before he goes-can you imagine?

They've noticed this before when they've done tests on his kidney. They

just said they'd have to watch it because it could cause problems. None so

far though.

So no answers for you, just to say that yes, we have that issue too.

Corrie

On 4/24/07, PATRICK HALLORAN

net> wrote:

>

> ok experts a rather personal ? here for the boys. Tim had a stomache

> yesterday, made it through school, came haome and peed said his penis

hurt.

> said the same on sunday--so I called the ped. raced to dr apt. and waited

2

> hours for him to pee. he drank 2 bottles of water and tried many tomes

> before he broke the dam!!!! here is my ? he could not just pee a little

> bit--he had to wait until his bladder was overflowing. he does not pee

very

> many times a day--but when he does watch out. we have tried to tell him

this

> isn't good for his body, but he cannot seem to go just a little--it's all

or

> nothing. anyone else like that? maybe he has a huge bladder and doesn't

get

> the sensation until full?

>

> regardless it was a frustrating 2 hours he wasnt eating did eat lunch for

> g-ma today and drank says it doesn't hurt to pee now or last night. threw

up

> on way home they gave him augmentan--even tho urine seemed fine at office

> just in case and sent urine to the lab. I'm thinking he may have had virus

> liam had because tim had diarhea this pm. he slept alot of today this am.

>

> had his iep today--school is requesting assisive devices eval for

> writing--school work. also will get earlier bus in am he has to be there

for

> 8 am pe class--also is eligable for sports now that he will be in middle

> school--yes, I said middle school!!!!!! of course district will fuss about

> that--only 2 in town go to that school the other will be in first

grade--he

> will start at 8:45--not my issue they WILL provide a bus for him when he

> needs it!! tim will be glad to be rid of this boy anyway--he is always

> giving tim the finger!!! nice!! he is 6 years old!!!

>

> said he is doing well--coming out of his shell more--not sure that is

> possible--they mean he is maturing--starting to get more interested in

> children rather than adults, but I think adults would be his first choice

> hands down. reading is getting better, but will never be a strong

> suit--still on low level. but if material is read to him like in social

> studies or science he knows it at about grade level. expressive speech is

> getting better, sentence structure etc, he is becoming quite the big man!!

> with an attitude to go with it!!

>

> another ? all said he attentiveness--being able to stay on task,

> distractability was and issue--(there's a big surprise), anyway speech

ther.

> asked if we had ever thought about meds to help with that. any input? well

> guess that is news for today. hoping he goes to school tomorrow--don't

> really want to take him w/me for mamogram!!

>

>

>

>

[Guest guest]

Im having " accidents " at night. They are happening more frequently now.

(couple times a week.) Im concerned cause I havnt had this problem since I

was a kid, mind you lately I have been better at staying hydrated. Problem

is, I need to have a cup of water at night to take my night meds, problem is

i wake up cause i had an accident. I need to figure out if this is a medicin

related issue as its quite embarrising for me as an adult to admit this is

happening frequently.

Chantelle

--

I have 4 eyes, 4 ears, a guide cat and a cat that speaks mouse! - me

[Guest guest]

,

The holding of the pee until the sensation is really strong doesn't surprise

me at all from what I've read here over the years. For some of these guys,

they seem to need a much strong sensation to do certain things (Jeanie's

daughter, MacKenzie, needs to shove her mouth FULL of food before swallowing

or chewing also...similar but at opposite ends). I'm not sure what you

could do to work on that, though, I just wanted to tell you that it isn't

the first time I've heard it. I think Kennedy does it with having BMs

sometimes for sure, whereas most people would go when they feel those

initial first " cramps " , I'm not really sure that they bother her. After all

these guys have been through, I mean really, what's a little poop cramp? I

think she just ignores it or doesn't feel it like we do and then BAM! she's

backed right up and requires intervention (this only happens once in a blue

moon because I get her to " try " every day after school to try and keep her

on track).

RE: attentiveness/staying on task. I know some people think it's

controversial (which is fine, everyone is entitled to their opinion), but

without Ritalin, I seriously believe Kennedy would not be as successful as

she is in school. People joke around about kids bouncing around not being

able to stand still - with her balance issues, when she wakes up in the

morning, she really DOES literally bounce off the walls! She does have a

hard time staying on task, but the med for her really does help and it does

NOT turn her into a zombie (I know some kids they say it does, but not so

for us).

Good luck with everything!

Lis

>

> I am having an opposite problem. Yes, does and can hold his pee

> for

> a long time. But, EVERYDAY at 4:30 or so, he has 1 or 2 accidents. He is

> also still in a pull-up at night because of his night feeding and I don't

> know what to do about this, I want to get rid of the night feeding but he

> doesn't eat enough calories during the day, even by tube it is impossible

> to

> squeeze it all in him without becoming ill.

>

> Anyone else have the " accident " issue? I think it could possibly be

> purposeful sometimes. Last night he was at dinner and knew he was going to

> pee so he put a paper towel between his legs and started to go. I wasn't

> home (my husband was) and he was furious. He said he just didn't want to

> get up. I am not sure how to handle these " accidents " anymore because I

> can't tell if it is physical or behavioral. I am leaning toward behavioral

> because when he is out at that time or is with a friend he won't do it.

>

> Debbie Matasker mom to 10 w/CHARGE

>

> Re: peeing issues and iep

>

> at least he's not the only one!

>

> maria

> Re: peeing issues and iep

>

> ,

>

> Peyton does this holding his pee thing sometimes too. He only does it in

> spurts, not all the time. Come to think of it, he's not been doing it for

> a

> while.

>

> He'll wake up w/ a dry diaper(he gets 4 cans- 8 oz each throughout the

> nite)

> and wait unitl late in the am to " go " . Sometimes we'll even start giviing

> him his daily routine of bolus' before he'll go.So he'll have the 32 oz.

> of

> overnite feeds plus a few more ounces before he goes-can you imagine?

> They've noticed this before when they've done tests on his kidney. They

> just said they'd have to watch it because it could cause problems. None so

> far though.

>

> So no answers for you, just to say that yes, we have that issue too.

>

> Corrie

>

> On 4/24/07, PATRICK HALLORAN

> 40verizon.net>

> net> wrote:

> >

> > ok experts a rather personal ? here for the boys. Tim had a stomache

> > yesterday, made it through school, came haome and peed said his penis

> hurt.

> > said the same on sunday--so I called the ped. raced to dr apt. and

> waited

> 2

> > hours for him to pee. he drank 2 bottles of water and tried many tomes

> > before he broke the dam!!!! here is my ? he could not just pee a little

> > bit--he had to wait until his bladder was overflowing. he does not pee

> very

> > many times a day--but when he does watch out. we have tried to tell him

> this

> > isn't good for his body, but he cannot seem to go just a little--it's

> all

> or

> > nothing. anyone else like that? maybe he has a huge bladder and doesn't

> get

> > the sensation until full?

> >

> > regardless it was a frustrating 2 hours he wasnt eating did eat lunch

> for

> > g-ma today and drank says it doesn't hurt to pee now or last night.

> threw

> up

> > on way home they gave him augmentan--even tho urine seemed fine at

> office

> > just in case and sent urine to the lab. I'm thinking he may have had

> virus

> > liam had because tim had diarhea this pm. he slept alot of today this

> am.

> >

> > had his iep today--school is requesting assisive devices eval for

> > writing--school work. also will get earlier bus in am he has to be there

> for

> > 8 am pe class--also is eligable for sports now that he will be in middle

> > school--yes, I said middle school!!!!!! of course district will fuss

> about

> > that--only 2 in town go to that school the other will be in first

> grade--he

> > will start at 8:45--not my issue they WILL provide a bus for him when he

> > needs it!! tim will be glad to be rid of this boy anyway--he is always

> > giving tim the finger!!! nice!! he is 6 years old!!!

> >

> > said he is doing well--coming out of his shell more--not sure that is

> > possible--they mean he is maturing--starting to get more interested in

> > children rather than adults, but I think adults would be his first

> choice

> > hands down. reading is getting better, but will never be a strong

> > suit--still on low level. but if material is read to him like in social

> > studies or science he knows it at about grade level. expressive speech

> is

> > getting better, sentence structure etc, he is becoming quite the big

> man!!

> > with an attitude to go with it!!

> >

> > another ? all said he attentiveness--being able to stay on task,

> > distractability was and issue--(there's a big surprise), anyway speech

> ther.

> > asked if we had ever thought about meds to help with that. any input?

> well

> > guess that is news for today. hoping he goes to school tomorrow--don't

> > really want to take him w/me for mamogram!!

> >

> >

> >

> >

[Guest guest]

Chantelle, is there a way to get your medication schedule changed so you

don't need that last cup of water at night? I'd ask the doc/pharmacist.

>

> Im having " accidents " at night. They are happening more frequently now.

> (couple times a week.) Im concerned cause I havnt had this problem since I

> was a kid, mind you lately I have been better at staying hydrated. Problem

> is, I need to have a cup of water at night to take my night meds, problem

> is

> i wake up cause i had an accident. I need to figure out if this is a

> medicin

> related issue as its quite embarrising for me as an adult to admit this is

> happening frequently.

>

> Chantelle

>

> --

> I have 4 eyes, 4 ears, a guide cat and a cat that speaks mouse! - me

>

>

[Guest guest]

Chantelle,

What meds are you on? Maybe I need to see if this is a side effect of

's meds.

Debbie

Re: peeing issues HELP ME!

Im having " accidents " at night. They are happening more frequently now.

(couple times a week.) Im concerned cause I havnt had this problem since I

was a kid, mind you lately I have been better at staying hydrated. Problem

is, I need to have a cup of water at night to take my night meds, problem is

i wake up cause i had an accident. I need to figure out if this is a medicin

related issue as its quite embarrising for me as an adult to admit this is

happening frequently.

Chantelle

--

I have 4 eyes, 4 ears, a guide cat and a cat that speaks mouse! - me

[Guest guest]

who did you see to put her on meds? he does not bounce of the walls, but his

attention is VERY easily distracted--if he hears or sees something or thinks of

something he's off and running with that instead of what he needs to focus on

and do.

Re: peeing issues and iep

>

> ,

>

> Peyton does this holding his pee thing sometimes too. He only does it in

> spurts, not all the time. Come to think of it, he's not been doing it for

> a

> while.

>

> He'll wake up w/ a dry diaper(he gets 4 cans- 8 oz each throughout the

> nite)

> and wait unitl late in the am to " go " . Sometimes we'll even start giviing

> him his daily routine of bolus' before he'll go.So he'll have the 32 oz.

> of

> overnite feeds plus a few more ounces before he goes-can you imagine?

> They've noticed this before when they've done tests on his kidney. They

> just said they'd have to watch it because it could cause problems. None so

> far though.

>

> So no answers for you, just to say that yes, we have that issue too.

>

> Corrie

>

> On 4/24/07, PATRICK HALLORAN

> 40verizon.net>

> net> wrote:

> >

> > ok experts a rather personal ? here for the boys. Tim had a stomache

> > yesterday, made it through school, came haome and peed said his penis

> hurt.

> > said the same on sunday--so I called the ped. raced to dr apt. and

> waited

> 2

> > hours for him to pee. he drank 2 bottles of water and tried many tomes

> > before he broke the dam!!!! here is my ? he could not just pee a little

> > bit--he had to wait until his bladder was overflowing. he does not pee

> very

> > many times a day--but when he does watch out. we have tried to tell him

> this

> > isn't good for his body, but he cannot seem to go just a little--it's

> all

> or

> > nothing. anyone else like that? maybe he has a huge bladder and doesn't

> get

> > the sensation until full?

> >

> > regardless it was a frustrating 2 hours he wasnt eating did eat lunch

> for

> > g-ma today and drank says it doesn't hurt to pee now or last night.

> threw

> up

> > on way home they gave him augmentan--even tho urine seemed fine at

> office

> > just in case and sent urine to the lab. I'm thinking he may have had

> virus

> > liam had because tim had diarhea this pm. he slept alot of today this

> am.

> >

> > had his iep today--school is requesting assisive devices eval for

> > writing--school work. also will get earlier bus in am he has to be there

> for

> > 8 am pe class--also is eligable for sports now that he will be in middle

> > school--yes, I said middle school!!!!!! of course district will fuss

> about

> > that--only 2 in town go to that school the other will be in first

> grade--he

> > will start at 8:45--not my issue they WILL provide a bus for him when he

> > needs it!! tim will be glad to be rid of this boy anyway--he is always

> > giving tim the finger!!! nice!! he is 6 years old!!!

> >

> > said he is doing well--coming out of his shell more--not sure that is

> > possible--they mean he is maturing--starting to get more interested in

> > children rather than adults, but I think adults would be his first

> choice

> > hands down. reading is getting better, but will never be a strong

> > suit--still on low level. but if material is read to him like in social

> > studies or science he knows it at about grade level. expressive speech

> is

> > getting better, sentence structure etc, he is becoming quite the big

> man!!

> > with an attitude to go with it!!

> >

> > another ? all said he attentiveness--being able to stay on task,

> > distractability was and issue--(there's a big surprise), anyway speech

> ther.

> > asked if we had ever thought about meds to help with that. any input?

> well

> > guess that is news for today. hoping he goes to school tomorrow--don't

> > really want to take him w/me for mamogram!!

> >

> >

> >

> >

[Guest guest]

, it was our pediatrician. It helps her tremendously with being able

to focus, which is very difficult for her.

Lis

>

> who did you see to put her on meds? he does not bounce of the walls, but

> his attention is VERY easily distracted--if he hears or sees something or

> thinks of something he's off and running with that instead of what he needs

> to focus on and do.

>

>

> Re: peeing issues and iep

> >

> > ,

> >

> > Peyton does this holding his pee thing sometimes too. He only does it in

> > spurts, not all the time. Come to think of it, he's not been doing it

> for

> > a

> > while.

> >

> > He'll wake up w/ a dry diaper(he gets 4 cans- 8 oz each throughout the

> > nite)

> > and wait unitl late in the am to " go " . Sometimes we'll even start

> giviing

> > him his daily routine of bolus' before he'll go.So he'll have the 32 oz.

> > of

> > overnite feeds plus a few more ounces before he goes-can you imagine?

> > They've noticed this before when they've done tests on his kidney. They

> > just said they'd have to watch it because it could cause problems. None

> so

> > far though.

> >

> > So no answers for you, just to say that yes, we have that issue too.

> >

> > Corrie

> >

> > On 4/24/07, PATRICK HALLORAN

> > 40verizon.net>

> > net> wrote:

> > >

> > > ok experts a rather personal ? here for the boys. Tim had a stomache

> > > yesterday, made it through school, came haome and peed said his penis

> > hurt.

> > > said the same on sunday--so I called the ped. raced to dr apt. and

> > waited

> > 2

> > > hours for him to pee. he drank 2 bottles of water and tried many tomes

> > > before he broke the dam!!!! here is my ? he could not just pee a

> little

> > > bit--he had to wait until his bladder was overflowing. he does not pee

> > very

> > > many times a day--but when he does watch out. we have tried to tell

> him

> > this

> > > isn't good for his body, but he cannot seem to go just a little--it's

> > all

> > or

> > > nothing. anyone else like that? maybe he has a huge bladder and

> doesn't

> > get

> > > the sensation until full?

> > >

> > > regardless it was a frustrating 2 hours he wasnt eating did eat lunch

> > for

> > > g-ma today and drank says it doesn't hurt to pee now or last night.

> > threw

> > up

> > > on way home they gave him augmentan--even tho urine seemed fine at

> > office

> > > just in case and sent urine to the lab. I'm thinking he may have had

> > virus

> > > liam had because tim had diarhea this pm. he slept alot of today this

> > am.

> > >

> > > had his iep today--school is requesting assisive devices eval for

> > > writing--school work. also will get earlier bus in am he has to be

> there

> > for

> > > 8 am pe class--also is eligable for sports now that he will be in

> middle

> > > school--yes, I said middle school!!!!!! of course district will fuss

> > about

> > > that--only 2 in town go to that school the other will be in first

> > grade--he

> > > will start at 8:45--not my issue they WILL provide a bus for him when

> he

> > > needs it!! tim will be glad to be rid of this boy anyway--he is always

> > > giving tim the finger!!! nice!! he is 6 years old!!!

> > >

> > > said he is doing well--coming out of his shell more--not sure that is

> > > possible--they mean he is maturing--starting to get more interested in

> > > children rather than adults, but I think adults would be his first

> > choice

> > > hands down. reading is getting better, but will never be a strong

> > > suit--still on low level. but if material is read to him like in

> social

> > > studies or science he knows it at about grade level. expressive speech

> > is

> > > getting better, sentence structure etc, he is becoming quite the big

> > man!!

> > > with an attitude to go with it!!

> > >

> > > another ? all said he attentiveness--being able to stay on task,

> > > distractability was and issue--(there's a big surprise), anyway speech

> > ther.

> > > asked if we had ever thought about meds to help with that. any input?

> > well

> > > guess that is news for today. hoping he goes to school tomorrow--don't

> > > really want to take him w/me for mamogram!!

> > >

> > >

> > >

> > >

[Guest guest]

Dear -

That is very frequent. What is the ratio of fluid intake to output? Any

concern there?

Does she show urgency even at that frequent an interval?

Is this with a g/g-j tube? How old is again?

----

It was different for us. wouldn't take the time to go to the bathroom

until she was

leaking. So, she'd frequently be not wet, but damp. She finally stopped

after I told her

that was just plain silly and could cause infection-but she was 15 yrs old

when we had that

discussion! So there's no similarity here. (regular coughing didn't help

her either)

in Ma.

************************************** See what's free at http://www.aol.com.

[Guest guest]

I am glad to hear of someone having the opposite problem. I am trying to potty

train and it is wearing me out b/c she has to pee all the time. I

think that she goes every hour and sometimes less than that. And of course she

never tells me when she needs to go so I just have to stay on her about going.

And then if she does have an accident and soaks herself it doesn't even faze

her. Any suggestions?

Re: peeing issues and iep

,

Peyton does this holding his pee thing sometimes too. He only does it in

spurts, not all the time. Come to think of it, he's not been doing it for a

while.

He'll wake up w/ a dry diaper(he gets 4 cans- 8 oz each throughout the nite)

and wait unitl late in the am to " go " . Sometimes we'll even start giviing

him his daily routine of bolus' before he'll go.So he'll have the 32 oz. of

overnite feeds plus a few more ounces before he goes-can you imagine?

They've noticed this before when they've done tests on his kidney. They

just said they'd have to watch it because it could cause problems. None so

far though.

So no answers for you, just to say that yes, we have that issue too.

Corrie

On 4/24/07, PATRICK HALLORAN

net> wrote:

>

> ok experts a rather personal ? here for the boys. Tim had a stomache

> yesterday, made it through school, came haome and peed said his penis

hurt.

> said the same on sunday--so I called the ped. raced to dr apt. and waited

2

> hours for him to pee. he drank 2 bottles of water and tried many tomes

> before he broke the dam!!!! here is my ? he could not just pee a little

> bit--he had to wait until his bladder was overflowing. he does not pee

very

> many times a day--but when he does watch out. we have tried to tell him

this

> isn't good for his body, but he cannot seem to go just a little--it's all

or

> nothing. anyone else like that? maybe he has a huge bladder and doesn't

get

> the sensation until full?

>

> regardless it was a frustrating 2 hours he wasnt eating did eat lunch for

> g-ma today and drank says it doesn't hurt to pee now or last night. threw

up

> on way home they gave him augmentan--even tho urine seemed fine at office

> just in case and sent urine to the lab. I'm thinking he may have had virus

> liam had because tim had diarhea this pm. he slept alot of today this am.

>

> had his iep today--school is requesting assisive devices eval for

> writing--school work. also will get earlier bus in am he has to be there

for

> 8 am pe class--also is eligable for sports now that he will be in middle

> school--yes, I said middle school!!!!!! of course district will fuss about

> that--only 2 in town go to that school the other will be in first

grade--he

> will start at 8:45--not my issue they WILL provide a bus for him when he

> needs it!! tim will be glad to be rid of this boy anyway--he is always

> giving tim the finger!!! nice!! he is 6 years old!!!

>

> said he is doing well--coming out of his shell more--not sure that is

> possible--they mean he is maturing--starting to get more interested in

> children rather than adults, but I think adults would be his first choice

> hands down. reading is getting better, but will never be a strong

> suit--still on low level. but if material is read to him like in social

> studies or science he knows it at about grade level. expressive speech is

> getting better, sentence structure etc, he is becoming quite the big man!!

> with an attitude to go with it!!

>

> another ? all said he attentiveness--being able to stay on task,

> distractability was and issue--(there's a big surprise), anyway speech

ther.

> asked if we had ever thought about meds to help with that. any input? well

> guess that is news for today. hoping he goes to school tomorrow--don't

> really want to take him w/me for mamogram!!

>

>

>

>