Re: So excited, but a little sad at the same time

[Guest guest]

I'm taking my almost 7 year old CHARGER to the conference this year - I've

attended two without her. Unlike me, you will be able to socialize and make eye

contact with other adults! You won't be an oddball!

See you there!

Lori Myers

Spouse - Trent, Children - (9), (6, CHARGE Syndrome, Congenital

Heart Defects/TOF Pulmonary Atresia/repaired, ECMO 12 days, Bi-lateral Choanal

Atresia, Decanullated Trach, G-button, partial hearing loss, walking as of

12/22/04! and eating by mouth......finally!, and Emma (4).

Dallas, Texas

So excited, but a little sad at the same time

Just wanted to post and say how much I'm looking forward to meeting

some of you in California. It'll be so nice to put faces to the

names I've gotten to know so well. I am however, really wishing that

Luke and the rest of my family were coming too. But, both with my

husband's job (at the bottom of the totem pole as a UPS driver and

VERY BUSY in the summertime filling in for vacations) and Luke's

tolerance (or should I say intolerance) for even the smallest

changes, we just couldn't do it this year. We decided Luke wouldn't

get enough out of going at his age to make up for all the stress he

would feel in such a different environment. Stress is a biggy for

Luke. Sooooo, it'll just be me and my mother-in-law there. I hope I

don't feel too much like an oddball being there Luke-less. I'm sure

it'll make me a little sad at times, especially once I meet all the

other little CHARGErs who are close to the same age as he is. It

would be so awesome if he could meet his little CHARGE friends.

Anyway, hopefully in 2009!! Both my mom-in-law and I are really

excited and feeling like the countdown is on. So much to do, so

little time. See ya soon!

PS - Anyone else going without thier kids???

Snyder

http://www.caringbridge.org/mn/lukejoseph

[Guest guest]

,

There are always many families who come with children and many who come without.

I have done it both ways. This is my fourth time with Dylan and I

have done it 2 times without. As much as I love having him with me, I

have to say I am always glad that when he comes there is still someone

else to hang out with him in the hotel at bedtime, so I can have my

socializing time then.

Kim

Certified HANDLE Screener and Intern

Mom to Dylan 11 CHaRGE, Kayla 16, Tyler 19

and wife to Roy who makes all things possible in our lives.

[Guest guest]

Hi, . I am so happy that you and your mother in law are goming to the

conference.Unfortunately, my son and I are not going to be able to make

it. I understand your excitement and your feeling a little sad about leaving the

rest of your family behind. However, on the brighter side, you will be meeting

so many wonderful people and are going to get a lot of information that will

help you and your family. Take care,

(mommy to (13 months Charger)

proudmary730@...> wrote:

Just wanted to post and say how much I'm looking forward to meeting

some of you in California. It'll be so nice to put faces to the

names I've gotten to know so well. I am however, really wishing that

Luke and the rest of my family were coming too. But, both with my

husband's job (at the bottom of the totem pole as a UPS driver and

VERY BUSY in the summertime filling in for vacations) and Luke's

tolerance (or should I say intolerance) for even the smallest

changes, we just couldn't do it this year. We decided Luke wouldn't

get enough out of going at his age to make up for all the stress he

would feel in such a different environment. Stress is a biggy for

Luke. Sooooo, it'll just be me and my mother-in-law there. I hope I

don't feel too much like an oddball being there Luke-less. I'm sure

it'll make me a little sad at times, especially once I meet all the

other little CHARGErs who are close to the same age as he is. It

would be so awesome if he could meet his little CHARGE friends.

Anyway, hopefully in 2009!! Both my mom-in-law and I are really

excited and feeling like the countdown is on. So much to do, so

little time. See ya soon!

PS - Anyone else going without thier kids???

Snyder

http://www.caringbridge.org/mn/lukejoseph

---------------------------------

Be a better Globetrotter. Get better travel answers from someone who knows.

Yahoo! Answers - Check it out.

[Guest guest]

Hi ,

I'm going on my own too....all the way from England!!!

I am already in America having arrived in San Francisco yesterday and

staying with my siser who lives here until I catch a plane to Orange County

on Thursday! Very excited and looking forward to meeting some people!

is ('s Mum. is 3yrs.)

>

> Hi, . I am so happy that you and your mother in law are goming to

> the conference.Unfortunately, my son and I are not going to be able

> to make it. I understand your excitement and your feeling a little sad about

> leaving the rest of your family behind. However, on the brighter side, you

> will be meeting so many wonderful people and are going to get a lot of

> information that will help you and your family. Take care,

>

> (mommy to (13 months Charger)

>

> proudmary730@... > wrote:

> Just wanted to post and say how much I'm looking forward to meeting

> some of you in California. It'll be so nice to put faces to the

> names I've gotten to know so well. I am however, really wishing that

> Luke and the rest of my family were coming too. But, both with my

> husband's job (at the bottom of the totem pole as a UPS driver and

> VERY BUSY in the summertime filling in for vacations) and Luke's

> tolerance (or should I say intolerance) for even the smallest

> changes, we just couldn't do it this year. We decided Luke wouldn't

> get enough out of going at his age to make up for all the stress he

> would feel in such a different environment. Stress is a biggy for

> Luke. Sooooo, it'll just be me and my mother-in-law there. I hope I

> don't feel too much like an oddball being there Luke-less. I'm sure

> it'll make me a little sad at times, especially once I meet all the

> other little CHARGErs who are close to the same age as he is. It

> would be so awesome if he could meet his little CHARGE friends.

> Anyway, hopefully in 2009!! Both my mom-in-law and I are really

> excited and feeling like the countdown is on. So much to do, so

> little time. See ya soon!

>

> PS - Anyone else going without thier kids???

>

> Snyder

> http://www.caringbridge.org/mn/lukejoseph

>

> ---------------------------------

> Be a better Globetrotter. Get better travel answers from someone who

> knows.

> Yahoo! Answers - Check it out.

>

>

[Guest guest]

You guys are all so great! I already feel so much better.

http://www.caringbridge.org/mn/lukejoseph

> Just wanted to post and say how much I'm looking forward

to meeting

> some of you in California. It'll be so nice to put faces to the

> names I've gotten to know so well. I am however, really wishing

that

> Luke and the rest of my family were coming too. But, both with my

> husband's job (at the bottom of the totem pole as a UPS driver and

> VERY BUSY in the summertime filling in for vacations) and Luke's

> tolerance (or should I say intolerance) for even the smallest

> changes, we just couldn't do it this year. We decided Luke wouldn't

> get enough out of going at his age to make up for all the stress he

> would feel in such a different environment. Stress is a biggy for

> Luke. Sooooo, it'll just be me and my mother-in-law there. I hope I

> don't feel too much like an oddball being there Luke-less. I'm sure

> it'll make me a little sad at times, especially once I meet all the

> other little CHARGErs who are close to the same age as he is. It

> would be so awesome if he could meet his little CHARGE friends.

> Anyway, hopefully in 2009!! Both my mom-in-law and I are really

> excited and feeling like the countdown is on. So much to do, so

> little time. See ya soon!

>

> PS - Anyone else going without thier kids???

>

> Snyder

> http://www.caringbridge.org/mn/lukejoseph

>

>

>

>

>

>

> ---------------------------------

> Be a better Globetrotter. Get better travel answers from someone

who knows.

> Yahoo! Answers - Check it out.

>

>

[Guest guest]

I don't like him for it and I am jealous as hell, but my partner Simon is

also coming all the way from England without the girls and me. He will fly

out tomorrow and looks forward to birthday celebrations on arrival in

evening. Says it feels a little odd but is looking forward to being able to

catch up with everyone without the demanding Elly (only issue with her is

being 5 and having the ego of that age) and the sleep deprived (7

and ........ well, need I say more. Mostly grouchy!). So there you are,

there are plus sides to not taking them with you, and you will be able to

finish your conversations! Don't think I have managed that in 7 years!

Have a lovely time everyone and maybe see you in 2 years (now there is

forward planning for you!).

Flo

>

> You guys are all so great! I already feel so much better.

>

>

>

> http://www.caringbridge.org/mn/lukejoseph>

>

--

Flo (UK)

Mum to - CHARGE - (7) and Elly (5)

[Guest guest]

I'm sad to not be seeing you and the girls this time around. I am hoping that I

might be back in London in November for a conference, just working on getting

sponsors for it. Will have to get together again if I do make it. Don't worry,

we will all make sure Simon celebrates his Bday tomorrow!!! Take care!

Re: Re: So excited, but a little sad at the same time

I don't like him for it and I am jealous as hell, but my partner Simon is

also coming all the way from England without the girls and me. He will fly

out tomorrow and looks forward to birthday celebrations on arrival in

evening. Says it feels a little odd but is looking forward to being able to

catch up with everyone without the demanding Elly (only issue with her is

being 5 and having the ego of that age) and the sleep deprived (7

and ........ well, need I say more. Mostly grouchy!). So there you are,

there are plus sides to not taking them with you, and you will be able to

finish your conversations! Don't think I have managed that in 7 years!

Have a lovely time everyone and maybe see you in 2 years (now there is

forward planning for you!).

Flo

>

> You guys are all so great! I already feel so much better.

>

>

>

> http://www.caringbridge.org/mn/lukejoseph>

>

--

Flo (UK)

Mum to - CHARGE - (7) and Elly (5)

[Guest guest]

Flo, I am happy to be seeing Simon again but I wish I would be seeing all of

you again. I was so happy to have gotten the picture of your fam for my

poster, you guys look so cute!

Lis

>

> I don't like him for it and I am jealous as hell, but my partner Simon

> is

> also coming all the way from England without the girls and me. He will fly

> out tomorrow and looks forward to birthday celebrations on arrival in

> evening. Says it feels a little odd but is looking forward to being able

> to

> catch up with everyone without the demanding Elly (only issue with her is

> being 5 and having the ego of that age) and the sleep deprived (7

> and ........ well, need I say more. Mostly grouchy!). So there you are,

> there are plus sides to not taking them with you, and you will be able to

> finish your conversations! Don't think I have managed that in 7 years!

>

> Have a lovely time everyone and maybe see you in 2 years (now there is

> forward planning for you!).

>

> Flo

>

> On 24/07/07, proudmary730@... >

> wrote:

> >

> > You guys are all so great! I already feel so much better.

> >

> >

> >

> > http://www.caringbridge.org/mn/lukejoseph>

> >

>

> --

>

> Flo (UK)

> Mum to - CHARGE - (7) and Elly (5)

>

>