RE: Siblings of Children with CHARGE (Research Opportunity)

[Guest guest]

I'll check to see if would be a willing participant. " Compliant " is

not a descriptor for his right now so I have no idea if he'll be interested.

I'd be interested in his responses though! I look forward to the results of

your study.

Michele W

Aubrie's mom

_____

From: CHARGE [mailto:CHARGE ] On Behalf Of

olson1ta

Sent: Sunday, April 29, 2007 4:34 PM

To: CHARGE

Subject: Siblings of Children with CHARGE (Research Opportunity)

Hello parents of children with CHARGE. We, Olson, a student at

Central Michigan University, a Haggerty, sister of Patty and

daughter of Bonnie, and Tim Hartshorne, father of , are

conducting an initial study of how being the sibling of a child with

CHARGE affects people. We are looking for about ten siblings, ages 15

and up who would be willing to participate by completing a form. If

you have a sibling you believe might be willing to participate, please

let us know by off-list email. We will then contact you with

additional information. The impact on siblings has been a frequent

issue discussed on the list. We hope to be able to provide some answers.

Thanks,

, a, and Tim

Olson

olson1ta (AT) cmich (DOT) edu

a Haggerty

kristina91384@ yahoo.com

Tim Hartshorne

harts1ts (AT) cmich (DOT) edu

[Guest guest]

I too look forward to the results. Good luck with your research you three,

it is one which is much needed. Hope you get lots of volunteers. You are

certainly choosing the right age to look at if my 4 year old is anything to

go by. She started expressing an interest in meeting " other children with

sisters and brothers with a disability " recently. She obviously has not

noticed she has been meeting them regularly all her life. Anyway I got on

to the Sibkids list to help her to write an e-mail of her choosing. I

suggested it may not be a good thing to tell everyone " my sister is a

guava " . She changed it to " my sister is a pretzel " ! Hmm, back to the

drawing board! Perhaps she is a little young. We did get a little

introductory mail written and she was very excited when she got a few

welcoming replies. Aiming to get on the list ocassionally when her sister

becomes a non fruit or snack.

Flo

>

> I'll check to see if would be a willing participant. " Compliant "

> is

> not a descriptor for his right now so I have no idea if he'll be

> interested.

> I'd be interested in his responses though! I look forward to the results

> of

> your study.

>

> Michele W

> Aubrie's mom

>

>

> Hello parents of children with CHARGE. We, Olson, a student at

> Central Michigan University, a Haggerty, sister of Patty and

> daughter of Bonnie, and Tim Hartshorne, father of , are

> conducting an initial study of how being the sibling of a child with

> CHARGE affects people. We are looking for about ten siblings, ages 15

> and up who would be willing to participate by completing a form. If

> you have a sibling you believe might be willing to participate, please

> let us know by off-list email. We will then contact you with

> additional information. The impact on siblings has been a frequent

> issue discussed on the list. We hope to be able to provide some answers.

>

> Thanks,

> , a, and Tim

>

> Olson

> olson1ta (AT) cmich (DOT) 40cmich.edu> edu

>

> a Haggerty

> kristina91384@ yahoo.com

>

> Tim Hartshorne

> harts1ts (AT) cmich (DOT) 40cmich.edu> edu

>

>

[Guest guest]

Flo-

Priceless !

;-)

in Ma.

************************************** See what's free at http://www.aol.com.

[Guest guest]

Flo,

this was so funny--I can just see the little pumpkin saying these things!!!

pam

Re: Siblings of Children with CHARGE (Research Opportunity)

I too look forward to the results. Good luck with your research you three,

it is one which is much needed. Hope you get lots of volunteers. You are

certainly choosing the right age to look at if my 4 year old is anything to

go by. She started expressing an interest in meeting " other children with

sisters and brothers with a disability " recently. She obviously has not

noticed she has been meeting them regularly all her life. Anyway I got on

to the Sibkids list to help her to write an e-mail of her choosing. I

suggested it may not be a good thing to tell everyone " my sister is a

guava " . She changed it to " my sister is a pretzel " ! Hmm, back to the

drawing board! Perhaps she is a little young. We did get a little

introductory mail written and she was very excited when she got a few

welcoming replies. Aiming to get on the list ocassionally when her sister

becomes a non fruit or snack.

Flo

>

> I'll check to see if would be a willing participant. " Compliant "

> is

> not a descriptor for his right now so I have no idea if he'll be

> interested.

> I'd be interested in his responses though! I look forward to the results

> of

> your study.

>

> Michele W

> Aubrie's mom

>

>

> Hello parents of children with CHARGE. We, Olson, a student at

> Central Michigan University, a Haggerty, sister of Patty and

> daughter of Bonnie, and Tim Hartshorne, father of , are

> conducting an initial study of how being the sibling of a child with

> CHARGE affects people. We are looking for about ten siblings, ages 15

> and up who would be willing to participate by completing a form. If

> you have a sibling you believe might be willing to participate, please

> let us know by off-list email. We will then contact you with

> additional information. The impact on siblings has been a frequent

> issue discussed on the list. We hope to be able to provide some answers.

>

> Thanks,

> , a, and Tim

>

> Olson

> olson1ta (AT) cmich (DOT) 40cmich.edu> edu

>

> a Haggerty

> kristina91384@ yahoo.com

>

> Tim Hartshorne

> harts1ts (AT) cmich (DOT) 40cmich.edu> edu

>

>