Guest guest Posted July 23, 2007 Report Share Posted July 23, 2007 Martha, Just take care of yourself and try and get us a message at some point to let us know you're okay. I'm so sorry I won't get to meet you at the conference. > > Hi, all: > My memory from several weeks ago is so scanty that I can't remember > what I've written. Sorry! It's now official: Andy and I will miss the > conference. I saw my cardiologist last week. His office returned my call > this morning, and I'm scheduled for surgery on 6 August --- with many, > many things to do between now and then. I'd really rather liked the idea > of > getting other opinions when in CA (Meg: I do know the difference between > southern CA and Stanford but thought the chance to return to old haunts > would be fun and worth the extra trip), but now I just want to get this > done. > A piece of advice: I was appointed 's guardian because in MO only > one person can be guardian unless both parties have to sign for > everything. Andy and I did this in large part because when she was at > Perkins, I was the one who flew in for various medical things; also, > there's > the whole male vs. female predicted life span. Suddenly we have to > rethink that. Just know that the plans we put in place for our young > adults > might need changing and have a lawyer you can turn to in an emergency. > Please let me know if there will be a way for us to share in handouts, > etc. I simply haven't adjusted to REALLY having to miss seeing all of you > and learning from everyone. > With warmest wishes to all of you --- Martha > > -- Weir Personal Web Site: http://chargesyndrome.info The Adventures of Kennedy Blog: http://chargesyndrome.blogspot.com Secretary, CHARGE Syndrome Foundation Inc: http://www.chargesyndrome.org Email: lisa@... " It is far better to grasp the universe as it really is than to persist in delusion, however satisfying and reassuring. " --Carl Sagan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2007 Report Share Posted July 23, 2007 Martha, I will be looking forward to hearing that surgery is done and you are feeling great! Will miss you in CA. Kim > > > > > > > Hi, all: > My memory from several weeks ago is so scanty that I can't remember > what I've written. Sorry! It's now official: Andy and I will miss the > conference. I saw my cardiologist last week. His office returned my call > this morning, and I'm scheduled for surgery on 6 August --- with many, > many things to do between now and then. I'd really rather liked the idea of > getting other opinions when in CA (Meg: I do know the difference between > southern CA and Stanford but thought the chance to return to old haunts > would be fun and worth the extra trip), but now I just want to get this > done. > A piece of advice: I was appointed 's guardian because in MO only > one person can be guardian unless both parties have to sign for > everything. Andy and I did this in large part because when she was at > Perkins, I was the one who flew in for various medical things; also, > there's > the whole male vs. female predicted life span. Suddenly we have to > rethink that. Just know that the plans we put in place for our young adults > might need changing and have a lawyer you can turn to in an emergency. > Please let me know if there will be a way for us to share in handouts, > etc. I simply haven't adjusted to REALLY having to miss seeing all of you > and learning from everyone. > With warmest wishes to all of you --- Martha > -- Kim Certified HANDLE Screener and Intern Mom to Dylan 11 CHaRGE, Kayla 16, Tyler 19 and wife to Roy who makes all things possible in our lives. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2007 Report Share Posted July 23, 2007 hugs > > Martha, > > I will be looking forward to hearing that surgery is done and you are > feeling great! > Will miss you in CA. > > Kim > > On 7/23/07, lewcap@... lewcap@...> > wrote: > > > > > > > > > > > > > > Hi, all: > > My memory from several weeks ago is so scanty that I can't remember > > what I've written. Sorry! It's now official: Andy and I will miss the > > conference. I saw my cardiologist last week. His office returned my call > > this morning, and I'm scheduled for surgery on 6 August --- with many, > > many things to do between now and then. I'd really rather liked the idea > of > > getting other opinions when in CA (Meg: I do know the difference between > > southern CA and Stanford but thought the chance to return to old haunts > > would be fun and worth the extra trip), but now I just want to get this > > done. > > A piece of advice: I was appointed 's guardian because in MO only > > one person can be guardian unless both parties have to sign for > > everything. Andy and I did this in large part because when she was at > > Perkins, I was the one who flew in for various medical things; also, > > there's > > the whole male vs. female predicted life span. Suddenly we have to > > rethink that. Just know that the plans we put in place for our young > adults > > might need changing and have a lawyer you can turn to in an emergency. > > Please let me know if there will be a way for us to share in handouts, > > etc. I simply haven't adjusted to REALLY having to miss seeing all of > you > > and learning from everyone. > > With warmest wishes to all of you --- Martha > > > > -- > Kim > Certified HANDLE Screener and Intern > Mom to Dylan 11 CHaRGE, Kayla 16, Tyler 19 > and wife to Roy who makes all things possible in our lives. > > -- stand up and speak up!!!!!!! and dont let the world hold you back just go for it Quote Link to comment Share on other sites More sharing options...
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